Guest guest Posted February 15, 2011 Report Share Posted February 15, 2011 Hi , Â What kind of a return journey are you talkng about? There is no way that you should contemplate driving, but after a period of recovery, you will probably be fine on public transport. Are you having to do this alone? Â Love from Ann From: Hulmes <christine.hulmes@...> Subject: 's ogd & dilatation achalasia Date: Tuesday, 15 February, 2011, 12:18 Â Hello I haven't posted in a while as i have had to concentrate on coping with very bad reflux and yes a stricture in my ectomy join in the neck. I have been on Nexium 40mg morning and night but still i have the reflux. So my GP faxed my surgeon in Liverpool with urgency as i am having big issues with swallowing again and i saw my surgeon in Liverpool yesterday after getting an urgent letter to turn up for clinic last week. After describing that the only way i can get even soft food down is to hiccup or jump up and down he immedietely mentioned that the acid that i am refluxing could have scarred the ectomy join in my neck and could have caused a stricture there. As i told him that i have about 10 reflux episodes a night when on jejunostomy overnight feeds and about 8 episodes during the day, he imedietelly said that i need a camera down to inspect the join and to check what the hold up is at the bottom of the stomach tube as well as evaluate the damage done overall by the acid. So i am to have another dilatation and if i do not hear from them with a date within 3 weeks i am to contact them urgently! After a break of 6 years without needing a dilatation i am now back to having another. my only fear is that living a big distance (big for me) from the hospital is it wise to have sedation if i am to have the dilatation? Has anyone out there had a dilatation of the stricture without sedation? I don't know if i can handle that so may have to plump for the sedation and be kept in hospital overnight for recovery. Don't know. from the UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2011 Report Share Posted February 15, 2011 Hi Ann My partner cannot get cover for work during the whole of March and the 1st week in April to escort me to and from the endoscopy unit at The Royal in Liverpool, i have already thought of that, there is nobody else that i can think of as i cannot ask my elderly parents to escort me.  I can get hospital transport but some of the drivers are unwilling to bring me home while under the influence of sedation. I was with another patient in a hospital transport car yesterday to go to Liverpool and back home and the return journey was pure hell, through no fault of her own the other patient did not have an escort and had an endoscopy with sedation and was very poorly on the return journey home. We had to stop 5-6 times to allow here to be ill if you know what i mean. After that i must admit that i am a little bit worried about having sedation for the dilation and then travelling home via hospital transport. Guess i'll just have to play it by ear but i am definately not looking forward to it at all after yesterday with the other patient. It is the pain with the dilatation while fully aware with no sedation that i can barely take in. Would they do the dilatation without sedation i ask myself? from the UK ________________________________ From: Ann Higgs <lilac_blossom_lady@...> achalasia Sent: Tue, February 15, 2011 2:32:27 PM Subject: Re: 's ogd & dilatation  Hi ,  What kind of a return journey are you talkng about? There is no way that you should contemplate driving, but after a period of recovery, you will probably be fine on public transport. Are you having to do this alone?  Love from Ann From: Hulmes <christine.hulmes@...> Subject: 's ogd & dilatation achalasia Date: Tuesday, 15 February, 2011, 12:18  Hello I haven't posted in a while as i have had to concentrate on coping with very bad reflux and yes a stricture in my ectomy join in the neck. I have been on Nexium 40mg morning and night but still i have the reflux. So my GP faxed my surgeon in Liverpool with urgency as i am having big issues with swallowing again and i saw my surgeon in Liverpool yesterday after getting an urgent letter to turn up for clinic last week. After describing that the only way i can get even soft food down is to hiccup or jump up and down he immedietely mentioned that the acid that i am refluxing could have scarred the ectomy join in my neck and could have caused a stricture there. As i told him that i have about 10 reflux episodes a night when on jejunostomy overnight feeds and about 8 episodes during the day, he imedietelly said that i need a camera down to inspect the join and to check what the hold up is at the bottom of the stomach tube as well as evaluate the damage done overall by the acid. So i am to have another dilatation and if i do not hear from them with a date within 3 weeks i am to contact them urgently! After a break of 6 years without needing a dilatation i am now back to having another. my only fear is that living a big distance (big for me) from the hospital is it wise to have sedation if i am to have the dilatation? Has anyone out there had a dilatation of the stricture without sedation? I don't know if i can handle that so may have to plump for the sedation and be kept in hospital overnight for recovery. Don't know. from the UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2011 Report Share Posted February 15, 2011 Hi , So sorry to read that your sufferings have not let up and there seems to be no good answers. Back in the 1980's I had half a dozen dilatations performed, none with any anesthesia. Certainly was not my choice to have had it done that way. But, apparently that was the way it was performed, and I was kept overnight for observation. The pain was brutal, but brief (about 90 seconds, with about 20 seconds at the peak - making the worse spasm I had ever had seem like a piece of cake by comparison). I don't think that one can draw a valid comparison for a dilatation that most of us have to a dilatation for a person who has had an ectomy. Maybe Isabella or could shed some light on this for you. Wishing you the best. ________________________________ From: Hulmes <christine.hulmes@...> achalasia Sent: Tue, February 15, 2011 11:22:33 AM Subject: Re: 's ogd & dilatation  Hi Ann My partner cannot get cover for work during the whole of March and the 1st week in April to escort me to and from the endoscopy unit at The Royal in Liverpool, i have already thought of that, there is nobody else that i can think of as i cannot ask my elderly parents to escort me.  I can get hospital transport but some of the drivers are unwilling to bring me home while under the influence of sedation. I was with another patient in a hospital transport car yesterday to go to Liverpool and back home and the return journey was pure hell, through no fault of her own the other patient did not have an escort and had an endoscopy with sedation and was very poorly on the return journey home. We had to stop 5-6 times to allow here to be ill if you know what i mean. After that i must admit that i am a little bit worried about having sedation for the dilation and then travelling home via hospital transport. Guess i'll just have to play it by ear but i am definately not looking forward to it at all after yesterday with the other patient. It is the pain with the dilatation while fully aware with no sedation that i can barely take in. Would they do the dilatation without sedation i ask myself? from the UK ________________________________ From: Ann Higgs <lilac_blossom_lady@...> achalasia Sent: Tue, February 15, 2011 2:32:27 PM Subject: Re: 's ogd & dilatation  Hi ,  What kind of a return journey are you talkng about? There is no way that you should contemplate driving, but after a period of recovery, you will probably be fine on public transport. Are you having to do this alone?  Love from Ann From: Hulmes <christine.hulmes@...> Subject: 's ogd & dilatation achalasia Date: Tuesday, 15 February, 2011, 12:18  Hello I haven't posted in a while as i have had to concentrate on coping with very bad reflux and yes a stricture in my ectomy join in the neck. I have been on Nexium 40mg morning and night but still i have the reflux. So my GP faxed my surgeon in Liverpool with urgency as i am having big issues with swallowing again and i saw my surgeon in Liverpool yesterday after getting an urgent letter to turn up for clinic last week. After describing that the only way i can get even soft food down is to hiccup or jump up and down he immedietely mentioned that the acid that i am refluxing could have scarred the ectomy join in my neck and could have caused a stricture there. As i told him that i have about 10 reflux episodes a night when on jejunostomy overnight feeds and about 8 episodes during the day, he imedietelly said that i need a camera down to inspect the join and to check what the hold up is at the bottom of the stomach tube as well as evaluate the damage done overall by the acid. So i am to have another dilatation and if i do not hear from them with a date within 3 weeks i am to contact them urgently! After a break of 6 years without needing a dilatation i am now back to having another. my only fear is that living a big distance (big for me) from the hospital is it wise to have sedation if i am to have the dilatation? Has anyone out there had a dilatation of the stricture without sedation? I don't know if i can handle that so may have to plump for the sedation and be kept in hospital overnight for recovery. Don't know. from the UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2011 Report Share Posted February 15, 2011 Hi Many thanks for your post. Very informative of you. I can catagiricaly say that i am dreading this dilatation because i may have to have it without sedation if i want to be discharged the same day to go home. I can only hope that if i have sedation with the dilatation the medical staff keep me in overnight for observation. from the UK ________________________________ From: RICHARD FRIEDMAN <cynmark24@...> achalasia Sent: Tue, February 15, 2011 5:11:25 PM Subject: Re: 's ogd & dilatation  Hi , So sorry to read that your sufferings have not let up and there seems to be no good answers. Back in the 1980's I had half a dozen dilatations performed, none with any anesthesia. Certainly was not my choice to have had it done that way. But, apparently that was the way it was performed, and I was kept overnight for observation. The pain was brutal, but brief (about 90 seconds, with about 20 seconds at the peak - making the worse spasm I had ever had seem like a piece of cake by comparison). I don't think that one can draw a valid comparison for a dilatation that most of us have to a dilatation for a person who has had an ectomy. Maybe Isabella or could shed some light on this for you. Wishing you the best. ________________________________ From: Hulmes <christine.hulmes@...> achalasia Sent: Tue, February 15, 2011 11:22:33 AM Subject: Re: 's ogd & dilatation  Hi Ann My partner cannot get cover for work during the whole of March and the 1st week in April to escort me to and from the endoscopy unit at The Royal in Liverpool, i have already thought of that, there is nobody else that i can think of as i cannot ask my elderly parents to escort me.  I can get hospital transport but some of the drivers are unwilling to bring me home while under the influence of sedation. I was with another patient in a hospital transport car yesterday to go to Liverpool and back home and the return journey was pure hell, through no fault of her own the other patient did not have an escort and had an endoscopy with sedation and was very poorly on the return journey home. We had to stop 5-6 times to allow here to be ill if you know what i mean. After that i must admit that i am a little bit worried about having sedation for the dilation and then travelling home via hospital transport. Guess i'll just have to play it by ear but i am definately not looking forward to it at all after yesterday with the other patient. It is the pain with the dilatation while fully aware with no sedation that i can barely take in. Would they do the dilatation without sedation i ask myself? from the UK ________________________________ From: Ann Higgs <lilac_blossom_lady@...> achalasia Sent: Tue, February 15, 2011 2:32:27 PM Subject: Re: 's ogd & dilatation  Hi ,  What kind of a return journey are you talkng about? There is no way that you should contemplate driving, but after a period of recovery, you will probably be fine on public transport. Are you having to do this alone?  Love from Ann From: Hulmes <christine.hulmes@...> Subject: 's ogd & dilatation achalasia Date: Tuesday, 15 February, 2011, 12:18  Hello I haven't posted in a while as i have had to concentrate on coping with very bad reflux and yes a stricture in my ectomy join in the neck. I have been on Nexium 40mg morning and night but still i have the reflux. So my GP faxed my surgeon in Liverpool with urgency as i am having big issues with swallowing again and i saw my surgeon in Liverpool yesterday after getting an urgent letter to turn up for clinic last week. After describing that the only way i can get even soft food down is to hiccup or jump up and down he immedietely mentioned that the acid that i am refluxing could have scarred the ectomy join in my neck and could have caused a stricture there. As i told him that i have about 10 reflux episodes a night when on jejunostomy overnight feeds and about 8 episodes during the day, he imedietelly said that i need a camera down to inspect the join and to check what the hold up is at the bottom of the stomach tube as well as evaluate the damage done overall by the acid. So i am to have another dilatation and if i do not hear from them with a date within 3 weeks i am to contact them urgently! After a break of 6 years without needing a dilatation i am now back to having another. my only fear is that living a big distance (big for me) from the hospital is it wise to have sedation if i am to have the dilatation? Has anyone out there had a dilatation of the stricture without sedation? I don't know if i can handle that so may have to plump for the sedation and be kept in hospital overnight for recovery. Don't know. from the UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2011 Report Share Posted February 15, 2011 Hi You may find that you can have the dilatation done either with or without sedation have you tried to contact the hospital unit where it will be done? If I were you and seeing that you are already saying you are worried about it I would go for the sedation and have a stay overnight. I am sure that if your consultant knew how worried you were he would allow you to stay overnight try ringing his secretary and telling her how concerned you are about it and see if she can help. Let us know how you get on Pippa > > From: Hulmes <christine.hulmes@...> > Subject: 's ogd & dilatation > achalasia > Date: Tuesday, 15 February, 2011, 12:18 > > Â > > Hello > I haven't posted in a while as i have had to concentrate on coping with very bad > > > reflux and yes a stricture in my ectomy join in the neck. I have been on Nexium > 40mg morning and night but still i have the reflux. So my GP faxed my surgeon in > > > Liverpool with urgency as i am having big issues with swallowing again and i saw > > > my surgeon in Liverpool yesterday after getting an urgent letter to turn up for > clinic last week. > > After describing that the only way i can get even soft food down is to hiccup or > > > jump up and down he immedietely mentioned that the acid that i am refluxing > could have scarred the ectomy join in my neck and could have caused a stricture > there. As i told him that i have about 10 reflux episodes a night when on > jejunostomy overnight feeds and about 8 episodes during the day, he imedietelly > said that i need a camera down to inspect the join and to check what the hold up > > > is at the bottom of the stomach tube as well as evaluate the damage done overall > > > by the acid. > > So i am to have another dilatation and if i do not hear from them with a date > within 3 weeks i am to contact them urgently! After a break of 6 years without > needing a dilatation i am now back to having another. my only fear is that > living a big distance (big for me) from the hospital is it wise to have sedation > > > if i am to have the dilatation? Has anyone out there had a dilatation of the > stricture without sedation? I don't know if i can handle that so may have to > plump for the sedation and be kept in hospital overnight for recovery. Don't > know. > from the UK > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Hi Pippa I think i may contact the surgeons secretary this morning for a chat about how worried that i am with the dilatation and sedation especially after my experience with another patient having sedation and endoscopy and being discharged within 90 minutes of the procedure travelling home in the same car as me. Will let the group know when i can. from the UK ________________________________ From: manchesterpippa <manchesterpippa@...> achalasia Sent: Tue, February 15, 2011 8:56:12 PM Subject: Re: 's ogd & dilatation  Hi You may find that you can have the dilatation done either with or without sedation have you tried to contact the hospital unit where it will be done? If I were you and seeing that you are already saying you are worried about it I would go for the sedation and have a stay overnight. I am sure that if your consultant knew how worried you were he would allow you to stay overnight try ringing his secretary and telling her how concerned you are about it and see if she can help. Let us know how you get on Pippa > > From: Hulmes <christine.hulmes@...> > Subject: 's ogd & dilatation > achalasia > Date: Tuesday, 15 February, 2011, 12:18 > >  > > Hello > I haven't posted in a while as i have had to concentrate on coping with very >bad > > > > reflux and yes a stricture in my ectomy join in the neck. I have been on Nexium > > 40mg morning and night but still i have the reflux. So my GP faxed my surgeon >in > > > > Liverpool with urgency as i am having big issues with swallowing again and i >saw > > > > my surgeon in Liverpool yesterday after getting an urgent letter to turn up for > > clinic last week. > > After describing that the only way i can get even soft food down is to hiccup >or > > > > jump up and down he immedietely mentioned that the acid that i am refluxing > could have scarred the ectomy join in my neck and could have caused a stricture > > there. As i told him that i have about 10 reflux episodes a night when on > jejunostomy overnight feeds and about 8 episodes during the day, he imedietelly > > said that i need a camera down to inspect the join and to check what the hold >up > > > > is at the bottom of the stomach tube as well as evaluate the damage done >overall > > > > by the acid. > > So i am to have another dilatation and if i do not hear from them with a date > within 3 weeks i am to contact them urgently! After a break of 6 years without > needing a dilatation i am now back to having another. my only fear is that > living a big distance (big for me) from the hospital is it wise to have >sedation > > > > if i am to have the dilatation? Has anyone out there had a dilatation of the > stricture without sedation? I don't know if i can handle that so may have to > plump for the sedation and be kept in hospital overnight for recovery. Don't > know. > from the UK > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Hi Pippa Have just phoned my surgeons secretary only to be told that she is off until next Monday! The other secretary that i spoke to isn't familiar with my case so cannot anser my quiery. Will phone the endoscopy unit instead and if i get no joy there i will phone the surgeons secretary next Monday when she returns. This delay will plague my mind now until i know any different as i know that dilatation can be very painfull that i know from past experience and that was with sedation. from the UK ________________________________ From: manchesterpippa <manchesterpippa@...> achalasia Sent: Tue, February 15, 2011 8:56:12 PM Subject: Re: 's ogd & dilatation  Hi You may find that you can have the dilatation done either with or without sedation have you tried to contact the hospital unit where it will be done? If I were you and seeing that you are already saying you are worried about it I would go for the sedation and have a stay overnight. I am sure that if your consultant knew how worried you were he would allow you to stay overnight try ringing his secretary and telling her how concerned you are about it and see if she can help. Let us know how you get on Pippa > > From: Hulmes <christine.hulmes@...> > Subject: 's ogd & dilatation > achalasia > Date: Tuesday, 15 February, 2011, 12:18 > >  > > Hello > I haven't posted in a while as i have had to concentrate on coping with very >bad > > > > reflux and yes a stricture in my ectomy join in the neck. I have been on Nexium > > 40mg morning and night but still i have the reflux. So my GP faxed my surgeon >in > > > > Liverpool with urgency as i am having big issues with swallowing again and i >saw > > > > my surgeon in Liverpool yesterday after getting an urgent letter to turn up for > > clinic last week. > > After describing that the only way i can get even soft food down is to hiccup >or > > > > jump up and down he immedietely mentioned that the acid that i am refluxing > could have scarred the ectomy join in my neck and could have caused a stricture > > there. As i told him that i have about 10 reflux episodes a night when on > jejunostomy overnight feeds and about 8 episodes during the day, he imedietelly > > said that i need a camera down to inspect the join and to check what the hold >up > > > > is at the bottom of the stomach tube as well as evaluate the damage done >overall > > > > by the acid. > > So i am to have another dilatation and if i do not hear from them with a date > within 3 weeks i am to contact them urgently! After a break of 6 years without > needing a dilatation i am now back to having another. my only fear is that > living a big distance (big for me) from the hospital is it wise to have >sedation > > > > if i am to have the dilatation? Has anyone out there had a dilatation of the > stricture without sedation? I don't know if i can handle that so may have to > plump for the sedation and be kept in hospital overnight for recovery. Don't > know. > from the UK > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 wrote: > ... the other patient did not have an escort and had an endoscopy > with sedation and was very poorly on the return journey home. We had to stop 5-6 > times to allow here to be ill if you know what i mean. ... If this is the concern there are some things to consider. Has sedation, or pain medications, made you sick in the past? Do you have a problem with motion sickness? If your answers are no then you don't have as much risk as if they had been yes. There is a shot that can be given with sedation to reduce nausea and motion sickness. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 I had the same problem with my surgeon at Kettering the secretary only seamed to work a few days each week. I'm sure that you will get some answers Monday one option is to have your appointment early in the morning say the first or second appointment of the morning which will give you the rest of the day to get over the sedation. Although its still not really wise to drive yourself it really will depend on what sedation and how much they have to give you some can be out of your system quicker that others. Going on my past history thought I have always been told that I had to have someone with me for the following 24 hours after the procedure and no driving plus a list of other things that I wasn't suppose to do. Pippa > > > > From: Hulmes <christine.hulmes@> > > Subject: 's ogd & dilatation > > achalasia > > Date: Tuesday, 15 February, 2011, 12:18 > > > >  > > > > Hello > > I haven't posted in a while as i have had to concentrate on coping with very > >bad > > > > > > > > reflux and yes a stricture in my ectomy join in the neck. I have been on Nexium > > > > 40mg morning and night but still i have the reflux. So my GP faxed my surgeon > >in > > > > > > > > Liverpool with urgency as i am having big issues with swallowing again and i > >saw > > > > > > > > my surgeon in Liverpool yesterday after getting an urgent letter to turn up for > > > > clinic last week. > > > > After describing that the only way i can get even soft food down is to hiccup > >or > > > > > > > > jump up and down he immedietely mentioned that the acid that i am refluxing > > could have scarred the ectomy join in my neck and could have caused a stricture > > > > there. As i told him that i have about 10 reflux episodes a night when on > > jejunostomy overnight feeds and about 8 episodes during the day, he imedietelly > > > > said that i need a camera down to inspect the join and to check what the hold > >up > > > > > > > > is at the bottom of the stomach tube as well as evaluate the damage done > >overall > > > > > > > > by the acid. > > > > So i am to have another dilatation and if i do not hear from them with a date > > within 3 weeks i am to contact them urgently! After a break of 6 years without > > > needing a dilatation i am now back to having another. my only fear is that > > living a big distance (big for me) from the hospital is it wise to have > >sedation > > > > > > > > if i am to have the dilatation? Has anyone out there had a dilatation of the > > stricture without sedation? I don't know if i can handle that so may have to > > plump for the sedation and be kept in hospital overnight for recovery. Don't > > know. > > from the UK > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2011 Report Share Posted February 17, 2011 Hi Pippa Yes, the hospital does say that you have to have an escort if you have sedation for the procedure but on my previous dilations in the past at the Liverpool Heart & Chest hospital i was admitted as an inpatient for the dilatation. Another thing as well i do not drive. And another thing, i have problems with Midazolam the sedative that they use and their only other option is Pethadine a strong painkiller. As i have said i shall have to speak with the secretary next Monday to claify things a little. from the UK ________________________________ From: manchesterpippa <manchesterpippa@...> achalasia Sent: Wed, February 16, 2011 8:18:04 PM Subject: Re: 's ogd & dilatation  I had the same problem with my surgeon at Kettering the secretary only seamed to work a few days each week. I'm sure that you will get some answers Monday one option is to have your appointment early in the morning say the first or second appointment of the morning which will give you the rest of the day to get over the sedation. Although its still not really wise to drive yourself it really will depend on what sedation and how much they have to give you some can be out of your system quicker that others. Going on my past history thought I have always been told that I had to have someone with me for the following 24 hours after the procedure and no driving plus a list of other things that I wasn't suppose to do. Pippa > > > > From: Hulmes <christine.hulmes@> > > Subject: 's ogd & dilatation > > achalasia > > Date: Tuesday, 15 February, 2011, 12:18 > > > >  > > > > Hello > > I haven't posted in a while as i have had to concentrate on coping with very > >bad > > > > > > > > reflux and yes a stricture in my ectomy join in the neck. I have been on >Nexium > > > > > 40mg morning and night but still i have the reflux. So my GP faxed my surgeon > > >in > > > > > > > > Liverpool with urgency as i am having big issues with swallowing again and i > >saw > > > > > > > > my surgeon in Liverpool yesterday after getting an urgent letter to turn up >for > > > > > clinic last week. > > > > After describing that the only way i can get even soft food down is to hiccup > > >or > > > > > > > > jump up and down he immedietely mentioned that the acid that i am refluxing > > could have scarred the ectomy join in my neck and could have caused a >stricture > > > > > there. As i told him that i have about 10 reflux episodes a night when on > > jejunostomy overnight feeds and about 8 episodes during the day, he >imedietelly > > > > > said that i need a camera down to inspect the join and to check what the hold > > >up > > > > > > > > is at the bottom of the stomach tube as well as evaluate the damage done > >overall > > > > > > > > by the acid. > > > > So i am to have another dilatation and if i do not hear from them with a date > > > within 3 weeks i am to contact them urgently! After a break of 6 years >without > > > > needing a dilatation i am now back to having another. my only fear is that > > living a big distance (big for me) from the hospital is it wise to have > >sedation > > > > > > > > if i am to have the dilatation? Has anyone out there had a dilatation of the > > stricture without sedation? I don't know if i can handle that so may have to > > plump for the sedation and be kept in hospital overnight for recovery. Don't > > know. > > from the UK > > > > Quote Link to comment Share on other sites More sharing options...
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