Guest guest Posted March 22, 2011 Report Share Posted March 22, 2011 , so sorry to hear about how badly your dilatation went. I'm praying for you that it will heal well. In the meantime, I suggest that you eat pureed vegetable soups with a little meat. This will allow further healing and give you good nutrition. I've only had one dilatation and it went well. Hopefully, this won't happen again. Eva in Chicagoland. > > Well i went for my gastrscopy and dilatation yesterday and since i am alergic to Midazolam i was given Phentynnol instead. As regards the gastroscopy everything went fine and showed little damage caused by acid erosion. Since i was given the Phentynnol i was fully aware of what went on and heard everything that was said between the staff. You can imagine my horror when they infalted the dilatation baloon by first 2 bar and then upped it to 4 barr pressure. This pressure was kept for 5 minutes and was very painfull despite the painkilling drug and just when the time of 5 minutes was up BANG, the baloon exploded in my throat flooding my mouth, throat and went down into my lungs. This totally shocked the consultant who was performing the procedure and also 3 nurses who were nearby. Panics all round as the baloon was withdrawn and labelled up with a report of what happened and sent off to someone whom i do not know. The dilatation was declared successfull > and i was taken to the recovery room to rest for 10 minutes before i was allowed some fluid to try to swallow. That was ok to start with (further explanation later) and had a word with the doctor who did the procedure and had an appology for what happened but was warned that the scar tissue in the stricture was very tough and it did contribute to the baloon bursting. I was given what they call an SOS number to call should i feel i need further dilatation (which they told me would almost certainly happen in the near future).n They said the chances of my needing further dilatation was almost a certainty and that i must not delay in contacting them should the stricture tighten again as they can get me onto any of the consultants lists in the department. So i left the hospital and travelled home. On the way i took a few sips of water from a bottle that i carried in my bag and horror of horrors i had trouble swallowing the water as it would only gurggle as > it slowly passed through the strictue with what i might add pain. After arriving home and remember i was nil by mouth since midnight the previous night i felt hungry so i mashed a little bannana until it was very mushy and again horror of horrors it went stuck. This morning i am hungry again and dread trying to swallow some food although some tea went down very slowly first thing. > My worry is now that i seem to be on the road to one of possably many dilatations and the risks of perforation are getting greater (i was lucky yesterday tha the baloon exploding did not rupture my throat), what happens now? If i only have the minimum amount of oesophagus stump left after the ectomy what can they do? This is the dilema that i now face. As you can imagine i am a little upset about the whole thing now and i am going to wait a few days until any swelling from the dilatation subsides and see if the swallowing difficulty is still there and if so then i shall have to think about phoning that SOS number that the endoscopy department gave me yesterday and book a further dilatation. The consultant did say yesterday that the risk of rupture of the stricture is medium to high and will get higher the more dilatations that i have and warns me that with each dilatation they now have to prepare me for for admittance for surgery. Any advice would be > welcome as i am a little worried about where i can go from here to treat the sticture everytime that i have a dilatation. > > from the UK > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2011 Report Share Posted March 22, 2011 Hi Firstly can I say how sorry and appalled I am at your experience. My instinct is to say to you get yourself a consultation at the earliest opportunity (push for an emergency follow up) and discuss the procedure and the way forward. I know you did this at the time but I imagine there was an element of shock and also the effects of the drugs to deal with. The only way you are going to confidently approach another dilatation (or any surgery for that matter) is to have confidence in your medical team and I so I really hope that you can have a quick follow up to discuss all this. Your consultant's secretary should be able to book you in, particularly if you explain what has happened (really sorry if I am saying stuff that you already know, don't mean to irritate just want you to know I am with you in spirit). You are in my thoughts - I would be desperate if this had happened to me. Much love Kay > > Well i went for my gastrscopy and dilatation yesterday and since i am alergic to Midazolam i was given Phentynnol instead. As regards the gastroscopy everything went fine and showed little damage caused by acid erosion. Since i was given the Phentynnol i was fully aware of what went on and heard everything that was said between the staff. You can imagine my horror when they infalted the dilatation baloon by first 2 bar and then upped it to 4 barr pressure. This pressure was kept for 5 minutes and was very painfull despite the painkilling drug and just when the time of 5 minutes was up BANG, the baloon exploded in my throat flooding my mouth, throat and went down into my lungs. This totally shocked the consultant who was performing the procedure and also 3 nurses who were nearby. Panics all round as the baloon was withdrawn and labelled up with a report of what happened and sent off to someone whom i do not know. The dilatation was declared successfull > and i was taken to the recovery room to rest for 10 minutes before i was allowed some fluid to try to swallow. That was ok to start with (further explanation later) and had a word with the doctor who did the procedure and had an appology for what happened but was warned that the scar tissue in the stricture was very tough and it did contribute to the baloon bursting. I was given what they call an SOS number to call should i feel i need further dilatation (which they told me would almost certainly happen in the near future).n They said the chances of my needing further dilatation was almost a certainty and that i must not delay in contacting them should the stricture tighten again as they can get me onto any of the consultants lists in the department. So i left the hospital and travelled home. On the way i took a few sips of water from a bottle that i carried in my bag and horror of horrors i had trouble swallowing the water as it would only gurggle as > it slowly passed through the strictue with what i might add pain. After arriving home and remember i was nil by mouth since midnight the previous night i felt hungry so i mashed a little bannana until it was very mushy and again horror of horrors it went stuck. This morning i am hungry again and dread trying to swallow some food although some tea went down very slowly first thing. > My worry is now that i seem to be on the road to one of possably many dilatations and the risks of perforation are getting greater (i was lucky yesterday tha the baloon exploding did not rupture my throat), what happens now? If i only have the minimum amount of oesophagus stump left after the ectomy what can they do? This is the dilema that i now face. As you can imagine i am a little upset about the whole thing now and i am going to wait a few days until any swelling from the dilatation subsides and see if the swallowing difficulty is still there and if so then i shall have to think about phoning that SOS number that the endoscopy department gave me yesterday and book a further dilatation. The consultant did say yesterday that the risk of rupture of the stricture is medium to high and will get higher the more dilatations that i have and warns me that with each dilatation they now have to prepare me for for admittance for surgery. Any advice would be > welcome as i am a little worried about where i can go from here to treat the sticture everytime that i have a dilatation. > > from the UK > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2011 Report Share Posted March 22, 2011 Dear .. I am sooo sorry to hear about this.. I am shocked!! I am concerned at the moment about what happened to your ability to swallow? What happened from before to now to cause you not to be able to get anything down. I think you need either a barium or another scope. But I cannot help you very much as you are in the UK.. Maybe Pippa can or some of the others there can advise you? You need some help fast.. Waiting to hear... Carolyn mom of Cameron..  California Collegiate Shooting Sports 4-H All-Star Advisor to the most awesome  kids of Amador County! From: Kay Davies <kayf.davies@...> Subject: Re: 's horror dilatation achalasia Date: Tuesday, March 22, 2011, 9:02 AM  Hi Firstly can I say how sorry and appalled I am at your experience. My instinct is to say to you get yourself a consultation at the earliest opportunity (push for an emergency follow up) and discuss the procedure and the way forward. I know you did this at the time but I imagine there was an element of shock and also the effects of the drugs to deal with. The only way you are going to confidently approach another dilatation (or any surgery for that matter) is to have confidence in your medical team and I so I really hope that you can have a quick follow up to discuss all this. Your consultant's secretary should be able to book you in, particularly if you explain what has happened (really sorry if I am saying stuff that you already know, don't mean to irritate just want you to know I am with you in spirit). You are in my thoughts - I would be desperate if this had happened to me. Much love Kay > > Well i went for my gastrscopy and dilatation yesterday and since i am alergic to Midazolam i was given Phentynnol instead. As regards the gastroscopy everything went fine and showed little damage caused by acid erosion. Since i was given the Phentynnol i was fully aware of what went on and heard everything that was said between the staff. You can imagine my horror when they infalted the dilatation baloon by first 2 bar and then upped it to 4 barr pressure. This pressure was kept for 5 minutes and was very painfull despite the painkilling drug and just when the time of 5 minutes was up BANG, the baloon exploded in my throat flooding my mouth, throat and went down into my lungs. This totally shocked the consultant who was performing the procedure and also 3 nurses who were nearby. Panics all round as the baloon was withdrawn and labelled up with a report of what happened and sent off to someone whom i do not know. The dilatation was declared successfull > and i was taken to the recovery room to rest for 10 minutes before i was allowed some fluid to try to swallow. That was ok to start with (further explanation later) and had a word with the doctor who did the procedure and had an appology for what happened but was warned that the scar tissue in the stricture was very tough and it did contribute to the baloon bursting. I was given what they call an SOS number to call should i feel i need further dilatation (which they told me would almost certainly happen in the near future).n They said the chances of my needing further dilatation was almost a certainty and that i must not delay in contacting them should the stricture tighten again as they can get me onto any of the consultants lists in the department. So i left the hospital and travelled home. On the way i took a few sips of water from a bottle that i carried in my bag and horror of horrors i had trouble swallowing the water as it would only gurggle as > it slowly passed through the strictue with what i might add pain. After arriving home and remember i was nil by mouth since midnight the previous night i felt hungry so i mashed a little bannana until it was very mushy and again horror of horrors it went stuck. This morning i am hungry again and dread trying to swallow some food although some tea went down very slowly first thing. > My worry is now that i seem to be on the road to one of possably many dilatations and the risks of perforation are getting greater (i was lucky yesterday tha the baloon exploding did not rupture my throat), what happens now? If i only have the minimum amount of oesophagus stump left after the ectomy what can they do? This is the dilema that i now face. As you can imagine i am a little upset about the whole thing now and i am going to wait a few days until any swelling from the dilatation subsides and see if the swallowing difficulty is still there and if so then i shall have to think about phoning that SOS number that the endoscopy department gave me yesterday and book a further dilatation. The consultant did say yesterday that the risk of rupture of the stricture is medium to high and will get higher the more dilatations that i have and warns me that with each dilatation they now have to prepare me for for admittance for surgery. Any advice would be > welcome as i am a little worried about where i can go from here to treat the sticture everytime that i have a dilatation. >  > from the UK > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2011 Report Share Posted March 22, 2011 Hi , What a horrific experience! I have had at least 10 balloon dilatation's throughout the years before my esophagectomy and I have never experienced anything so scary. I was awake for mine and my Doctor was very calm. I think the Doctor panicking and the feel of the balloon exploding would be terrifying. You are probably going to be extra swollen. Drink a lot of soothing tea and tea biscuits that melt in your mouth for at least a few days. I am so sorry that this happened to you! I have followed your story for the past few years and sympathize greatly for all of the painful procedures that you have gone through. Rest and soak in the bathtub and drink a lot of tea, (((((( hugs ))))))) in Thunder Bay, Ontario Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2011 Report Share Posted March 22, 2011 , I am impressed with how you are coping with your traumatic procedure. Your calm, cool reflections are an inspiration to me. I've had several dilations without any mishap, but bad things can always happen. I like the suggestion to drink some soothing tea, have a hot bath and be gentle with yourself.   ________________________________ From: <_40@...> " achalasia " <achalasia > Sent: Tue, March 22, 2011 2:44:07 PM Subject: RE: Re: 's horror dilatation  Hi , What a horrific experience! I have had at least 10 balloon dilatation's throughout the years before my esophagectomy and I have never experienced anything so scary. I was awake for mine and my Doctor was very calm. I think the Doctor panicking and the feel of the balloon exploding would be terrifying. You are probably going to be extra swollen. Drink a lot of soothing tea and tea biscuits that melt in your mouth for at least a few days. I am so sorry that this happened to you! I have followed your story for the past few years and sympathize greatly for all of the painful procedures that you have gone through. Rest and soak in the bathtub and drink a lot of tea, (((((( hugs ))))))) in Thunder Bay, Ontario Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2011 Report Share Posted March 22, 2011 wrote: > I am a little worried about where i can go from here to treat the > sticture everytime that i have a dilatation. If I remember correctly Isabella had some kind of scar tissue removal done after many dilatations. You could check into other ways of dealing with the scar tissue than just busting it with dilatation every time. Otherwise you may be looking at learning to live with the dilatations. Even with the other methods there may still be some dilatations but hopefully they would less then. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 Thank you so much for your posative post. Although painfull at the time, the swelling seems to be going down now thank goodness although i still have problems with tablets as some cannot be crushed and are not available in liquid form. Thank you for your prayers and i also pray that i do not need to use that SOS number that they gave me to arrange another dilatation. I am having a small cup of english tea at the moment and will have something soft later. I was advised post op to stay on a sloppy diet for a few days and that is what i am doing. Still feel a lump in my throat. Things seem to be going wrong at the moment, too much of a coinsidence i fear. Never mind take each day as it comes is my motto. I am still seeing surgeon on May 23rd now as the date was changed from the 16th to the 23rd. from the UK From: eva_gaia <eva_gaia@...> achalasia Sent: Tuesday, March 22, 2011 3:36 PM Subject: Re: Re: 's horror dilatation  , so sorry to hear about how badly your dilatation went. I'm praying for you that it will heal well. In the meantime, I suggest that you eat pureed vegetable soups with a little meat. This will allow further healing and give you good nutrition. I've only had one dilatation and it went well. Hopefully, this won't happen again. Eva in Chicagoland. > > Well i went for my gastrscopy and dilatation yesterday and since i am alergic to Midazolam i was given Phentynnol instead. As regards the gastroscopy everything went fine and showed little damage caused by acid erosion. Since i was given the Phentynnol i was fully aware of what went on and heard everything that was said between the staff. You can imagine my horror when they infalted the dilatation baloon by first 2 bar and then upped it to 4 barr pressure. This pressure was kept for 5 minutes and was very painfull despite the painkilling drug and just when the time of 5 minutes was up BANG, the baloon exploded in my throat flooding my mouth, throat and went down into my lungs. This totally shocked the consultant who was performing the procedure and also 3 nurses who were nearby. Panics all round as the baloon was withdrawn and labelled up with a report of what happened and sent off to someone whom i do not know. The dilatation was declared successfull > and i was taken to the recovery room to rest for 10 minutes before i was allowed some fluid to try to swallow. That was ok to start with (further explanation later) and had a word with the doctor who did the procedure and had an appology for what happened but was warned that the scar tissue in the stricture was very tough and it did contribute to the baloon bursting. I was given what they call an SOS number to call should i feel i need further dilatation (which they told me would almost certainly happen in the near future).n They said the chances of my needing further dilatation was almost a certainty and that i must not delay in contacting them should the stricture tighten again as they can get me onto any of the consultants lists in the department. So i left the hospital and travelled home. On the way i took a few sips of water from a bottle that i carried in my bag and horror of horrors i had trouble swallowing the water as it would only gurggle as > it slowly passed through the strictue with what i might add pain. After arriving home and remember i was nil by mouth since midnight the previous night i felt hungry so i mashed a little bannana until it was very mushy and again horror of horrors it went stuck. This morning i am hungry again and dread trying to swallow some food although some tea went down very slowly first thing. > My worry is now that i seem to be on the road to one of possably many dilatations and the risks of perforation are getting greater (i was lucky yesterday tha the baloon exploding did not rupture my throat), what happens now? If i only have the minimum amount of oesophagus stump left after the ectomy what can they do? This is the dilema that i now face. As you can imagine i am a little upset about the whole thing now and i am going to wait a few days until any swelling from the dilatation subsides and see if the swallowing difficulty is still there and if so then i shall have to think about phoning that SOS number that the endoscopy department gave me yesterday and book a further dilatation. The consultant did say yesterday that the risk of rupture of the stricture is medium to high and will get higher the more dilatations that i have and warns me that with each dilatation they now have to prepare me for for admittance for surgery. Any advice would be > welcome as i am a little worried about where i can go from here to treat the sticture everytime that i have a dilatation. >  > from the UK > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 Hi Kay I have thought and thought of nothing else since the dilatation baloon burst and shocked not only the medical staff but me as well and i think that i will give things a few days to see if things will settle down and heal somewhat. I can always phone that SOS number that they gave me if i don't feel any better by the end of the week. I am having a cup of english tea at the moment and to be quite honest feel a lump in my throat but we'll see by the end of the week then i will decide. I seem to be having a few coinsidences lately as regards my health but i deal with things as they turn up and take each day as it comes as it feel it is the best way forward. from the UK From: Kay Davies <kayf.davies@...> achalasia Sent: Tuesday, March 22, 2011 4:02 PM Subject: Re: Re: 's horror dilatation  Hi Firstly can I say how sorry and appalled I am at your experience. My instinct is to say to you get yourself a consultation at the earliest opportunity (push for an emergency follow up) and discuss the procedure and the way forward. I know you did this at the time but I imagine there was an element of shock and also the effects of the drugs to deal with. The only way you are going to confidently approach another dilatation (or any surgery for that matter) is to have confidence in your medical team and I so I really hope that you can have a quick follow up to discuss all this. Your consultant's secretary should be able to book you in, particularly if you explain what has happened (really sorry if I am saying stuff that you already know, don't mean to irritate just want you to know I am with you in spirit). You are in my thoughts - I would be desperate if this had happened to me. Much love Kay > > Well i went for my gastrscopy and dilatation yesterday and since i am alergic to Midazolam i was given Phentynnol instead. As regards the gastroscopy everything went fine and showed little damage caused by acid erosion. Since i was given the Phentynnol i was fully aware of what went on and heard everything that was said between the staff. You can imagine my horror when they infalted the dilatation baloon by first 2 bar and then upped it to 4 barr pressure. This pressure was kept for 5 minutes and was very painfull despite the painkilling drug and just when the time of 5 minutes was up BANG, the baloon exploded in my throat flooding my mouth, throat and went down into my lungs. This totally shocked the consultant who was performing the procedure and also 3 nurses who were nearby. Panics all round as the baloon was withdrawn and labelled up with a report of what happened and sent off to someone whom i do not know. The dilatation was declared successfull > and i was taken to the recovery room to rest for 10 minutes before i was allowed some fluid to try to swallow. That was ok to start with (further explanation later) and had a word with the doctor who did the procedure and had an appology for what happened but was warned that the scar tissue in the stricture was very tough and it did contribute to the baloon bursting. I was given what they call an SOS number to call should i feel i need further dilatation (which they told me would almost certainly happen in the near future).n They said the chances of my needing further dilatation was almost a certainty and that i must not delay in contacting them should the stricture tighten again as they can get me onto any of the consultants lists in the department. So i left the hospital and travelled home. On the way i took a few sips of water from a bottle that i carried in my bag and horror of horrors i had trouble swallowing the water as it would only gurggle as > it slowly passed through the strictue with what i might add pain. After arriving home and remember i was nil by mouth since midnight the previous night i felt hungry so i mashed a little bannana until it was very mushy and again horror of horrors it went stuck. This morning i am hungry again and dread trying to swallow some food although some tea went down very slowly first thing. > My worry is now that i seem to be on the road to one of possably many dilatations and the risks of perforation are getting greater (i was lucky yesterday tha the baloon exploding did not rupture my throat), what happens now? If i only have the minimum amount of oesophagus stump left after the ectomy what can they do? This is the dilema that i now face. As you can imagine i am a little upset about the whole thing now and i am going to wait a few days until any swelling from the dilatation subsides and see if the swallowing difficulty is still there and if so then i shall have to think about phoning that SOS number that the endoscopy department gave me yesterday and book a further dilatation. The consultant did say yesterday that the risk of rupture of the stricture is medium to high and will get higher the more dilatations that i have and warns me that with each dilatation they now have to prepare me for for admittance for surgery. Any advice would be > welcome as i am a little worried about where i can go from here to treat the sticture everytime that i have a dilatation. >  > from the UK > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 Before they put the dilatation baloon down the side of the scope the doctor told me that the anastomosis join (from the ectomy done back in 2004) had closed somewhat and that they were going to proceed to dilate the area now as i had signed a consent form for him to carry on with the dilatation. You ask what happened to my ability to swallow before the dilatation? Well to be honest i don't know. All i know is that they are monitoring the stricture at the anastomosis with yearly endoscopies. I suppose that i lost the ability to swallow solids on a gradual slope if you know what i mean, it sort of gradually crept up on me and at the last consult i told them that i can only get food down by doing large hiccups or jumping up and down they immedietely knew it was a stricture and was clearly seen during the gastroscopy on Monday. For the past few weeks i have been on a sloppy diet and anyway i am lucky in that i have the use of a jejunostomy feeding tube to have overnight feeds and can monitor my weight and adjust the overnight volumne accordingly. from the UK From: Carolyn <wooleeacre@...> achalasia Sent: Tuesday, March 22, 2011 4:24 PM Subject: Re: Re: 's horror dilatation  Dear .. I am sooo sorry to hear about this.. I am shocked!! I am concerned at the moment about what happened to your ability to swallow? What happened from before to now to cause you not to be able to get anything down. I think you need either a barium or another scope. But I cannot help you very much as you are in the UK.. Maybe Pippa can or some of the others there can advise you? You need some help fast.. Waiting to hear... Carolyn mom of Cameron..  California Collegiate Shooting Sports 4-H All-Star Advisor to the most awesome  kids of Amador County! From: Kay Davies <kayf.davies@...> Subject: Re: 's horror dilatation achalasia Date: Tuesday, March 22, 2011, 9:02 AM  Hi Firstly can I say how sorry and appalled I am at your experience. My instinct is to say to you get yourself a consultation at the earliest opportunity (push for an emergency follow up) and discuss the procedure and the way forward. I know you did this at the time but I imagine there was an element of shock and also the effects of the drugs to deal with. The only way you are going to confidently approach another dilatation (or any surgery for that matter) is to have confidence in your medical team and I so I really hope that you can have a quick follow up to discuss all this. Your consultant's secretary should be able to book you in, particularly if you explain what has happened (really sorry if I am saying stuff that you already know, don't mean to irritate just want you to know I am with you in spirit). You are in my thoughts - I would be desperate if this had happened to me. Much love Kay > > Well i went for my gastrscopy and dilatation yesterday and since i am alergic to Midazolam i was given Phentynnol instead. As regards the gastroscopy everything went fine and showed little damage caused by acid erosion. Since i was given the Phentynnol i was fully aware of what went on and heard everything that was said between the staff. You can imagine my horror when they infalted the dilatation baloon by first 2 bar and then upped it to 4 barr pressure. This pressure was kept for 5 minutes and was very painfull despite the painkilling drug and just when the time of 5 minutes was up BANG, the baloon exploded in my throat flooding my mouth, throat and went down into my lungs. This totally shocked the consultant who was performing the procedure and also 3 nurses who were nearby. Panics all round as the baloon was withdrawn and labelled up with a report of what happened and sent off to someone whom i do not know. The dilatation was declared successfull > and i was taken to the recovery room to rest for 10 minutes before i was allowed some fluid to try to swallow. That was ok to start with (further explanation later) and had a word with the doctor who did the procedure and had an appology for what happened but was warned that the scar tissue in the stricture was very tough and it did contribute to the baloon bursting. I was given what they call an SOS number to call should i feel i need further dilatation (which they told me would almost certainly happen in the near future).n They said the chances of my needing further dilatation was almost a certainty and that i must not delay in contacting them should the stricture tighten again as they can get me onto any of the consultants lists in the department. So i left the hospital and travelled home. On the way i took a few sips of water from a bottle that i carried in my bag and horror of horrors i had trouble swallowing the water as it would only gurggle as > it slowly passed through the strictue with what i might add pain. After arriving home and remember i was nil by mouth since midnight the previous night i felt hungry so i mashed a little bannana until it was very mushy and again horror of horrors it went stuck. This morning i am hungry again and dread trying to swallow some food although some tea went down very slowly first thing. > My worry is now that i seem to be on the road to one of possably many dilatations and the risks of perforation are getting greater (i was lucky yesterday tha the baloon exploding did not rupture my throat), what happens now? If i only have the minimum amount of oesophagus stump left after the ectomy what can they do? This is the dilema that i now face. As you can imagine i am a little upset about the whole thing now and i am going to wait a few days until any swelling from the dilatation subsides and see if the swallowing difficulty is still there and if so then i shall have to think about phoning that SOS number that the endoscopy department gave me yesterday and book a further dilatation. The consultant did say yesterday that the risk of rupture of the stricture is medium to high and will get higher the more dilatations that i have and warns me that with each dilatation they now have to prepare me for for admittance for surgery. Any advice would be > welcome as i am a little worried about where i can go from here to treat the sticture everytime that i have a dilatation. >  > from the UK > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 Thank you for your wonderfull message. I shall pamper myself and keep an eye on my swallowing over the next coming days and i shall bear in mind the SOS number that they gave me in case i feel that i need another dilatation. Yes that baloon bursting was very scary as i was fully aware of what was going on and i think the medical staff were more suprised that shocked and the doctor told me afterwards that he personally will make sure that my surgeon is fully aware of what happened before i see him in May. Why wait and see him in May you may ask, well i know that he wants to wait for any test results to get bak to him before i see him and also he wants to allow time in case i need further dilatations before i see him. I shall of course talk about what happens next to treat the strictures when i see him. But at the moment i will just take things easy. So i see the surgeon (if nothing happens meantime) on May 23rd. From: <_40@...> " achalasia " <achalasia > Sent: Tuesday, March 22, 2011 8:44 PM Subject: Re: Re: 's horror dilatation  Hi , What a horrific experience! I have had at least 10 balloon dilatation's throughout the years before my esophagectomy and I have never experienced anything so scary. I was awake for mine and my Doctor was very calm. I think the Doctor panicking and the feel of the balloon exploding would be terrifying. You are probably going to be extra swollen. Drink a lot of soothing tea and tea biscuits that melt in your mouth for at least a few days. I am so sorry that this happened to you! I have followed your story for the past few years and sympathize greatly for all of the painful procedures that you have gone through. Rest and soak in the bathtub and drink a lot of tea, (((((( hugs ))))))) in Thunder Bay, Ontario Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 Hi Thanks for your encouragement to relax and have a soothing cup of tea and a soak in the bath as that is exactly what i have been doing since my return home on Monday. You know it is a privalige to be part of this group and talk of your worries and thoughts to other like minded Achalasains. It is alright to talk to family and friends but it is good to talk to someone who knows how you feel and knows what you are going through. Thak you all for your support as it is much appreciated right now.After what is now 8 dilatations, that was the worst one yet and the most scary as the doctor told me that i came within a very thin whisker of a rupture and surgey. Makes me wonder what will happen if i have another dilatation! from the UK From: Ottenheimer <hmottenheimer@...> achalasia Sent: Tuesday, March 22, 2011 10:56 PM Subject: Re: Re: 's horror dilatation  , I am impressed with how you are coping with your traumatic procedure. Your calm, cool reflections are an inspiration to me. I've had several dilations without any mishap, but bad things can always happen. I like the suggestion to drink some soothing tea, have a hot bath and be gentle with yourself.   ________________________________ From: <_40@...> " achalasia " <achalasia > Sent: Tue, March 22, 2011 2:44:07 PM Subject: RE: Re: 's horror dilatation  Hi , What a horrific experience! I have had at least 10 balloon dilatation's throughout the years before my esophagectomy and I have never experienced anything so scary. I was awake for mine and my Doctor was very calm. I think the Doctor panicking and the feel of the balloon exploding would be terrifying. You are probably going to be extra swollen. Drink a lot of soothing tea and tea biscuits that melt in your mouth for at least a few days. I am so sorry that this happened to you! I have followed your story for the past few years and sympathize greatly for all of the painful procedures that you have gone through. Rest and soak in the bathtub and drink a lot of tea, (((((( hugs ))))))) in Thunder Bay, Ontario Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 Oh, how silly and forgetfull of me ! How are you these days? Please keep in touch. from the UK From: Ottenheimer <hmottenheimer@...> achalasia Sent: Tuesday, March 22, 2011 10:56 PM Subject: Re: Re: 's horror dilatation  , I am impressed with how you are coping with your traumatic procedure. Your calm, cool reflections are an inspiration to me. I've had several dilations without any mishap, but bad things can always happen. I like the suggestion to drink some soothing tea, have a hot bath and be gentle with yourself.   ________________________________ From: <_40@...> " achalasia " <achalasia > Sent: Tue, March 22, 2011 2:44:07 PM Subject: RE: Re: 's horror dilatation  Hi , What a horrific experience! I have had at least 10 balloon dilatation's throughout the years before my esophagectomy and I have never experienced anything so scary. I was awake for mine and my Doctor was very calm. I think the Doctor panicking and the feel of the balloon exploding would be terrifying. You are probably going to be extra swollen. Drink a lot of soothing tea and tea biscuits that melt in your mouth for at least a few days. I am so sorry that this happened to you! I have followed your story for the past few years and sympathize greatly for all of the painful procedures that you have gone through. Rest and soak in the bathtub and drink a lot of tea, (((((( hugs ))))))) in Thunder Bay, Ontario Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 Thank you Notan. Yes i remember Isabella having a procedure done to eradicate the scar tissue from the anastomosis. I wonder what the procedure was called anyone in the group know? At the moment post dilatation the swelling and pain seam to be getting better but not the swallowing so yes i would be interested in learning what this procedure that Isabella had to eradicate the scar tissue. Can you remember Notan? from the UK From: notan ostrich <notan_ostrich@...> achalasia Sent: Wednesday, March 23, 2011 5:36 AM Subject: Re: 's horror dilatation  wrote: > I am a little worried about where i can go from here to treat the > sticture everytime that i have a dilatation. If I remember correctly Isabella had some kind of scar tissue removal done after many dilatations. You could check into other ways of dealing with the scar tissue than just busting it with dilatation every time. Otherwise you may be looking at learning to live with the dilatations. Even with the other methods there may still be some dilatations but hopefully they would less then. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 Hi I am so sorry to have pointed out the obvious, I was so shocked at what you had gone through. You have been in my thoughts and having read your other replies I have nothing but admiration for your courage. Keep up with the being kind to yourself and I send you my love. Kay > > > > Well i went for my gastrscopy and dilatation yesterday and since i am alergic to Midazolam i was given Phentynnol instead. As regards the gastroscopy everything went fine and showed little damage caused by acid erosion. Since i was given the Phentynnol i was fully aware of what went on and heard everything that was said between the staff. You can imagine my horror when they infalted the dilatation baloon by first 2 bar and then upped it to 4 barr pressure. This pressure was kept for 5 minutes and was very painfull despite the painkilling drug and just when the time of 5 minutes was up BANG, the baloon exploded in my throat flooding my mouth, throat and went down into my lungs. This totally shocked the consultant who was performing the procedure and also 3 nurses who were nearby. Panics all round as the baloon was withdrawn and labelled up with a report of what happened and sent off to someone whom i do not know. The dilatation was declared successfull > > and i was taken to the recovery room to rest for 10 minutes before i was allowed some fluid to try to swallow. That was ok to start with (further explanation later) and had a word with the doctor who did the procedure and had an appology for what happened but was warned that the scar tissue in the stricture was very tough and it did contribute to the baloon bursting. I was given what they call an SOS number to call should i feel i need further dilatation (which they told me would almost certainly happen in the near future).n They said the chances of my needing further dilatation was almost a certainty and that i must not delay in contacting them should the stricture tighten again as they can get me onto any of the consultants lists in the department. So i left the hospital and travelled home. On the way i took a few sips of water from a bottle that i carried in my bag and horror of horrors i had trouble swallowing the water as it would only gurggle as > > it slowly passed through the strictue with what i might add pain. After arriving home and remember i was nil by mouth since midnight the previous night i felt hungry so i mashed a little bannana until it was very mushy and again horror of horrors it went stuck. This morning i am hungry again and dread trying to swallow some food although some tea went down very slowly first thing. > > My worry is now that i seem to be on the road to one of possably many dilatations and the risks of perforation are getting greater (i was lucky yesterday tha the baloon exploding did not rupture my throat), what happens now? If i only have the minimum amount of oesophagus stump left after the ectomy what can they do? This is the dilema that i now face. As you can imagine i am a little upset about the whole thing now and i am going to wait a few days until any swelling from the dilatation subsides and see if the swallowing difficulty is still there and if so then i shall have to think about phoning that SOS number that the endoscopy department gave me yesterday and book a further dilatation. The consultant did say yesterday that the risk of rupture of the stricture is medium to high and will get higher the more dilatations that i have and warns me that with each dilatation they now have to prepare me for for admittance for surgery. Any advice would be > > welcome as i am a little worried about where i can go from here to treat the sticture everytime that i have a dilatation. > > Â > > from the UK > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 wrote: > > Yes i remember Isabella having a procedure done to eradicate the scar > tissue from the anastomosis. I wonder what the procedure was called > anyone in the group know? > I don't know if she ever said what the procedure was called. You could email her and ask her. Here are some links to messages about the procedure she had and her results. achalasia/message/53444 achalasia/message/53470 achalasia/message/53697 achalasia/message/53782 notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 Many thanks for your quick reply to my post. I will keep a copy of it along with the links to Isabella's procedure for reference. I must tell you that i may have jumped the gun so to speak and e-mailed Isabella personally earlier this afternoon and i wait with baited breath for her reply. Many thanks again Notan. Without the groups backing and being there for a chat and advice i may have got lost and not known what to do or learn how to cope. from the UK  From: notan ostrich <notan_ostrich@...> achalasia Sent: Wednesday, March 23, 2011 2:56 PM Subject: Re: 's horror dilatation  wrote: > > Yes i remember Isabella having a procedure done to eradicate the scar > tissue from the anastomosis. I wonder what the procedure was called > anyone in the group know? > I don't know if she ever said what the procedure was called. You could email her and ask her. Here are some links to messages about the procedure she had and her results. achalasia/message/53444 achalasia/message/53470 achalasia/message/53697 achalasia/message/53782 notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2011 Report Share Posted March 24, 2011 My guess is thatthe dilitation resulted in some swelling and it may be a few days before that resolves. Hopefully that is the case.  God bless you! From: Hulmes <christine.hulmes@...> Subject: 's horror dilatation " achalasia " <achalasia > Date: Tuesday, March 22, 2011, 3:36 AM  Well i went for my gastrscopy and dilatation yesterday and since i am alergic to Midazolam i was given Phentynnol instead. As regards the gastroscopy everything went fine and showed little damage caused by acid erosion. Since i was given the Phentynnol i was fully aware of what went on and heard everything that was said between the staff. You can imagine my horror when they infalted the dilatation baloon by first 2 bar and then upped it to 4 barr pressure. This pressure was kept for 5 minutes and was very painfull despite the painkilling drug and just when the time of 5 minutes was up BANG, the baloon exploded in my throat flooding my mouth, throat and went down into my lungs. This totally shocked the consultant who was performing the procedure and also 3 nurses who were nearby. Panics all round as the baloon was withdrawn and labelled up with a report of what happened and sent off to someone whom i do not know. The dilatation was declared successfull and i was taken to the recovery room to rest for 10 minutes before i was allowed some fluid to try to swallow. That was ok to start with (further explanation later) and had a word with the doctor who did the procedure and had an appology for what happened but was warned that the scar tissue in the stricture was very tough and it did contribute to the baloon bursting. I was given what they call an SOS number to call should i feel i need further dilatation (which they told me would almost certainly happen in the near future).n They said the chances of my needing further dilatation was almost a certainty and that i must not delay in contacting them should the stricture tighten again as they can get me onto any of the consultants lists in the department. So i left the hospital and travelled home. On the way i took a few sips of water from a bottle that i carried in my bag and horror of horrors i had trouble swallowing the water as it would only gurggle as it slowly passed through the strictue with what i might add pain. After arriving home and remember i was nil by mouth since midnight the previous night i felt hungry so i mashed a little bannana until it was very mushy and again horror of horrors it went stuck. This morning i am hungry again and dread trying to swallow some food although some tea went down very slowly first thing. My worry is now that i seem to be on the road to one of possably many dilatations and the risks of perforation are getting greater (i was lucky yesterday tha the baloon exploding did not rupture my throat), what happens now? If i only have the minimum amount of oesophagus stump left after the ectomy what can they do? This is the dilema that i now face. As you can imagine i am a little upset about the whole thing now and i am going to wait a few days until any swelling from the dilatation subsides and see if the swallowing difficulty is still there and if so then i shall have to think about phoning that SOS number that the endoscopy department gave me yesterday and book a further dilatation. The consultant did say yesterday that the risk of rupture of the stricture is medium to high and will get higher the more dilatations that i have and warns me that with each dilatation they now have to prepare me for for admittance for surgery. Any advice would be welcome as i am a little worried about where i can go from here to treat the sticture everytime that i have a dilatation.  from the UK Quote Link to comment Share on other sites More sharing options...
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