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Re: Malo and research and suggestions.

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Guest guest

Thank you so much! I would gladly take any names you can find for second

opinions. I don't want to just send him under the knife without thoroughly

discussing all his options. I will look online as well, but if you come up with

anyone please let me know.

Thanks again!

>

> >

>

> > From: Malo <grneyegrrl@>

>

> > Subject: Re: child with recurring symptoms after Heller Myotomy

>

> > achalasia

>

> > Date: Tuesday, March 8, 2011, 8:12 AM

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> > He's 11 now. We live in DC. The doc we have is amazing. He's been

treated at Children's Hospital for the length of this. The dilations have never

worked in the past. He had a lot of scar tissue that they were never able to

break. My fear of course is another myotomy. I really just want him to not have

to deal with this anymore. It breaks my heart to see him like that, and it's

unbearable to see him after surgery. It's one of those things that as a Mom you

can't make better, you know?

>

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> > > From: " Malo " <grneyegrrl@>

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> >

>

> > > Sent: Tuesday, March 08, 2011 10:43 AM

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> >

>

> > > <achalasia >

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> >

>

> > > Subject: child with recurring symptoms after Heller Myotomy

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> > > > Hello all-

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> > > >

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> > > > New to the group here and hoping to find some info/support, really

>

> >

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> > > > anything at this point. Can't find a lot of info on the web.

>

> >

>

> > > > My son was born w/achalasia but wasn't diagnosed until he was 9. He was

56

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> >

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> > > > pounds when we found out. We've gone through feeding tubes, supplements,

>

> >

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> > > > all of that. He had 4 dilations before they determined those weren't

>

> >

>

> > > > working. He finally had a myotomy about 2 years ago.

>

> >

>

> > > > He's been doing GREAT until recently. I've noticed the same things: not

>

> >

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> > > > eating a lot, frequent trips to the bathroom during meals, rushing for a

>

> >

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> > > > drink while eating.

>

> >

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> > > > We go back to the doctor in a week. My question is what's the next

option?

>

> >

>

> > > > I read something about an open Heller's Myotomy, which terrifies me.

>

> >

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> > > > Has anyone else been through this? Any advice would be greatly

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> > > > appreciated!

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Guest guest

Dear Malo,

Something you said really caught my attention, that your current doctors are

great. I totally understand they may have great bedside manners and you like

them, but you absolutely have to go to the TOP doctors that do many of these

surgeries. You are attached to them, but you may have reached the limit of

their espertise. You may need to travel.

I would suggest going to the most experienced achalasia gi/surgeon combination

and bring in a pediatric specialist. There just are not nearly enough pediatric

surgeons that could have enough experience with young kids. I would go with the

achalasia experience first then let them pick a pediatric surgeon to assist.

In a perfect world your son should be doing better. Saying that, I totally

understand your bond with your current doctors, but gather up your last tests

and make a little summary of his condition and email it to the top names here.

You will get phone calls and emails back. Then see what they say and make a

decision if you should continue with your current doctors. The latest barium

swallow tests are probably the most descriptive to them.

good luck

Sandy

>

> >

>

> > From: Malo <grneyegrrl@>

>

> > Subject: Re: child with recurring symptoms after Heller Myotomy

>

> > achalasia

>

> > Date: Tuesday, March 8, 2011, 8:12 AM

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> > He's 11 now. We live in DC. The doc we have is amazing. He's been

treated at Children's Hospital for the length of this. The dilations have never

worked in the past. He had a lot of scar tissue that they were never able to

break. My fear of course is another myotomy. I really just want him to not have

to deal with this anymore. It breaks my heart to see him like that, and it's

unbearable to see him after surgery. It's one of those things that as a Mom you

can't make better, you know?

>

> >

>

> >

>

> >

>

> > > From: " Malo " <grneyegrrl@>

>

> >

>

> > > Sent: Tuesday, March 08, 2011 10:43 AM

>

> >

>

> > > <achalasia >

>

> >

>

> > > Subject: child with recurring symptoms after Heller Myotomy

>

> >

>

> > >

>

> >

>

> > > > Hello all-

>

> >

>

> > > >

>

> >

>

> > > > New to the group here and hoping to find some info/support, really

>

> >

>

> > > > anything at this point. Can't find a lot of info on the web.

>

> >

>

> > > > My son was born w/achalasia but wasn't diagnosed until he was 9. He was

56

>

> >

>

> > > > pounds when we found out. We've gone through feeding tubes, supplements,

>

> >

>

> > > > all of that. He had 4 dilations before they determined those weren't

>

> >

>

> > > > working. He finally had a myotomy about 2 years ago.

>

> >

>

> > > > He's been doing GREAT until recently. I've noticed the same things: not

>

> >

>

> > > > eating a lot, frequent trips to the bathroom during meals, rushing for a

>

> >

>

> > > > drink while eating.

>

> >

>

> > > > We go back to the doctor in a week. My question is what's the next

option?

>

> >

>

> > > > I read something about an open Heller's Myotomy, which terrifies me.

>

> >

>

> > > > Has anyone else been through this? Any advice would be greatly

>

> >

>

> > > > appreciated!

>

> >

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Guest guest

100%    AGREE with Sandy.

________________________________

From: Sandy <sandycarroll@...>

achalasia

Sent: Wed, March 9, 2011 4:00:19 PM

Subject: Re: Malo and research and suggestions.

 

Dear Malo,

Something you said really caught my attention, that your current doctors are

great. I totally understand they may have great bedside manners and you like

them, but you absolutely have to go to the TOP doctors that do many of these

surgeries. You are attached to them, but you may have reached the limit of their

espertise. You may need to travel.

I would suggest going to the most experienced achalasia gi/surgeon combination

and bring in a pediatric specialist. There just are not nearly enough pediatric

surgeons that could have enough experience with young kids. I would go with the

achalasia experience first then let them pick a pediatric surgeon to assist.

In a perfect world your son should be doing better. Saying that, I totally

understand your bond with your current doctors, but gather up your last tests

and make a little summary of his condition and email it to the top names here.

You will get phone calls and emails back. Then see what they say and make a

decision if you should continue with your current doctors. The latest barium

swallow tests are probably the most descriptive to them.

good luck

Sandy

>

> >

>

> > From: Malo <grneyegrrl@>

>

> > Subject: Re: child with recurring symptoms after Heller Myotomy

>

> > achalasia

>

> > Date: Tuesday, March 8, 2011, 8:12 AM

>

> >

>

> >

>

> >

>

> >

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> >

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> >

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>

> > He's 11 now. We live in DC. The doc we have is amazing. He's been treated at

>Children's Hospital for the length of this. The dilations have never worked in

>the past. He had a lot of scar tissue that they were never able to break. My

>fear of course is another myotomy. I really just want him to not have to deal

>with this anymore. It breaks my heart to see him like that, and it's unbearable

>to see him after surgery. It's one of those things that as a Mom you can't make

>better, you know?

>

> >

>

> >

>

> >

>

> > > From: " Malo " <grneyegrrl@>

>

> >

>

> > > Sent: Tuesday, March 08, 2011 10:43 AM

>

> >

>

> > > <achalasia >

>

> >

>

> > > Subject: child with recurring symptoms after Heller Myotomy

>

> >

>

> > >

>

> >

>

> > > > Hello all-

>

> >

>

> > > >

>

> >

>

> > > > New to the group here and hoping to find some info/support, really

>

> >

>

> > > > anything at this point. Can't find a lot of info on the web.

>

> >

>

> > > > My son was born w/achalasia but wasn't diagnosed until he was 9. He was

>56

>

>

> >

>

> > > > pounds when we found out. We've gone through feeding tubes, supplements,

>

> >

>

> > > > all of that. He had 4 dilations before they determined those weren't

>

> >

>

> > > > working. He finally had a myotomy about 2 years ago.

>

> >

>

> > > > He's been doing GREAT until recently. I've noticed the same things: not

>

> >

>

> > > > eating a lot, frequent trips to the bathroom during meals, rushing for a

>

> >

>

> > > > drink while eating.

>

> >

>

> > > > We go back to the doctor in a week. My question is what's the next

>option?

>

>

> >

>

> > > > I read something about an open Heller's Myotomy, which terrifies me.

>

> >

>

> > > > Has anyone else been through this? Any advice would be greatly

>

> >

>

> > > > appreciated!

>

> >

>

> > > >

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Guest guest

I will see who else I can find in my area but ravel isnt a viable option for me.

I'm not sure my insurance would cover someone out of my network. Not sure I can

afford the cost associated with both the travel and the medical expense. I will

check Hopkins though

Sent from my iPhone

On Mar 9, 2011, at 6:39 PM, fe busse <bil45ohb@...> wrote:

> 100% AGREE with Sandy.

>

> ________________________________

> From: Sandy <sandycarroll@...>

> achalasia

> Sent: Wed, March 9, 2011 4:00:19 PM

> Subject: Re: Malo and research and suggestions.

>

>

> Dear Malo,

>

> Something you said really caught my attention, that your current doctors are

> great. I totally understand they may have great bedside manners and you like

> them, but you absolutely have to go to the TOP doctors that do many of these

> surgeries. You are attached to them, but you may have reached the limit of

their

> espertise. You may need to travel.

>

> I would suggest going to the most experienced achalasia gi/surgeon combination

> and bring in a pediatric specialist. There just are not nearly enough

pediatric

> surgeons that could have enough experience with young kids. I would go with

the

> achalasia experience first then let them pick a pediatric surgeon to assist.

>

> In a perfect world your son should be doing better. Saying that, I totally

> understand your bond with your current doctors, but gather up your last tests

> and make a little summary of his condition and email it to the top names here.

> You will get phone calls and emails back. Then see what they say and make a

> decision if you should continue with your current doctors. The latest barium

> swallow tests are probably the most descriptive to them.

>

> good luck

>

> Sandy

>

>

> >

> > >

> >

> > > From: Malo <grneyegrrl@>

> >

> > > Subject: Re: child with recurring symptoms after Heller

Myotomy

> >

> > > achalasia

> >

> > > Date: Tuesday, March 8, 2011, 8:12 AM

> >

> > >

> >

> > >

> >

> > >

> >

> > >

> >

> > >

> >

> > >

> >

> > >

> >

> > > ÂÂ

> >

> > >

> >

> > >

> >

> > >

> >

> > >

> >

> > >

> >

> > >

> >

> > >

> >

> > >

> >

> > >

> >

> > > He's 11 now. We live in DC. The doc we have is amazing. He's been treated

at

> >Children's Hospital for the length of this. The dilations have never worked

in

> >the past. He had a lot of scar tissue that they were never able to break. My

> >fear of course is another myotomy. I really just want him to not have to deal

> >with this anymore. It breaks my heart to see him like that, and it's

unbearable

> >to see him after surgery. It's one of those things that as a Mom you can't

make

> >better, you know?

> >

> > >

> >

> > >

> >

> > >

> >

> > > > From: " Malo " <grneyegrrl@>

> >

> > >

> >

> > > > Sent: Tuesday, March 08, 2011 10:43 AM

> >

> > >

> >

> > > > <achalasia >

> >

> > >

> >

> > > > Subject: child with recurring symptoms after Heller Myotomy

> >

> > >

> >

> > > >

> >

> > >

> >

> > > > > Hello all-

> >

> > >

> >

> > > > >

> >

> > >

> >

> > > > > New to the group here and hoping to find some info/support, really

> >

> > >

> >

> > > > > anything at this point. Can't find a lot of info on the web.

> >

> > >

> >

> > > > > My son was born w/achalasia but wasn't diagnosed until he was 9. He

was

> >56

> >

> >

> > >

> >

> > > > > pounds when we found out. We've gone through feeding tubes,

supplements,

>

> >

> > >

> >

> > > > > all of that. He had 4 dilations before they determined those weren't

> >

> > >

> >

> > > > > working. He finally had a myotomy about 2 years ago.

> >

> > >

> >

> > > > > He's been doing GREAT until recently. I've noticed the same things:

not

> >

> > >

> >

> > > > > eating a lot, frequent trips to the bathroom during meals, rushing for

a

>

> >

> > >

> >

> > > > > drink while eating.

> >

> > >

> >

> > > > > We go back to the doctor in a week. My question is what's the next

> >option?

> >

> >

> > >

> >

> > > > > I read something about an open Heller's Myotomy, which terrifies me.

> >

> > >

> >

> > > > > Has anyone else been through this? Any advice would be greatly

> >

> > >

> >

> > > > > appreciated!

> >

> > >

> >

> > > > >

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Guest guest

,

Trust me on this. Don't worry about the insurance out of network thing. Pick

the BEST surgeon, even if it means traveling. They all have financial depts that

WILL work with you to get you in network. Even payment plans!!!

I was out if network with dr. L at upmc but they worked their magic and all I

paid was $12 for cable access for 2 days. Total costs for my surgery were

$35,000.

You can do this. The finances can be worked out. Many people on this board will

tell you similar insurance stories.

C

> > >

> > > >

> > >

> > > > From: Malo <grneyegrrl@>

> > >

> > > > Subject: Re: child with recurring symptoms after Heller

Myotomy

> > >

> > > > achalasia

> > >

> > > > Date: Tuesday, March 8, 2011, 8:12 AM

> > >

> > > >

> > >

> > > >

> > >

> > > >

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> > > > ÂÂ

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> > >

> > > > He's 11 now. We live in DC. The doc we have is amazing. He's been

treated at

> > >Children's Hospital for the length of this. The dilations have never worked

in

> > >the past. He had a lot of scar tissue that they were never able to break.

My

> > >fear of course is another myotomy. I really just want him to not have to

deal

> > >with this anymore. It breaks my heart to see him like that, and it's

unbearable

> > >to see him after surgery. It's one of those things that as a Mom you can't

make

> > >better, you know?

> > >

> > > >

> > >

> > > >

> > >

> > > >

> > >

> > > > > From: " Malo " <grneyegrrl@>

> > >

> > > >

> > >

> > > > > Sent: Tuesday, March 08, 2011 10:43 AM

> > >

> > > >

> > >

> > > > > <achalasia >

> > >

> > > >

> > >

> > > > > Subject: child with recurring symptoms after Heller

Myotomy

> > >

> > > >

> > >

> > > > >

> > >

> > > >

> > >

> > > > > > Hello all-

> > >

> > > >

> > >

> > > > > >

> > >

> > > >

> > >

> > > > > > New to the group here and hoping to find some info/support, really

> > >

> > > >

> > >

> > > > > > anything at this point. Can't find a lot of info on the web.

> > >

> > > >

> > >

> > > > > > My son was born w/achalasia but wasn't diagnosed until he was 9. He

was

> > >56

> > >

> > >

> > > >

> > >

> > > > > > pounds when we found out. We've gone through feeding tubes,

supplements,

> >

> > >

> > > >

> > >

> > > > > > all of that. He had 4 dilations before they determined those weren't

> > >

> > > >

> > >

> > > > > > working. He finally had a myotomy about 2 years ago.

> > >

> > > >

> > >

> > > > > > He's been doing GREAT until recently. I've noticed the same things:

not

> > >

> > > >

> > >

> > > > > > eating a lot, frequent trips to the bathroom during meals, rushing

for a

> >

> > >

> > > >

> > >

> > > > > > drink while eating.

> > >

> > > >

> > >

> > > > > > We go back to the doctor in a week. My question is what's the next

> > >option?

> > >

> > >

> > > >

> > >

> > > > > > I read something about an open Heller's Myotomy, which terrifies me.

> > >

> > > >

> > >

> > > > > > Has anyone else been through this? Any advice would be greatly

> > >

> > > >

> > >

> > > > > > appreciated!

> > >

> > > >

> > >

> > > > > >

> > >

> > > >

> > >

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Guest guest

I totally understand about the cost, but it is absolutely critical you get the

best surgeon/gi combination. There are many stories here of members that had

achalasia as a youngster and maybe had less than wonderful treatment because

their parents just didn't know. comes to mind.

I would even go out on a limb and guess that one of us would help you find a

place to stay if hotels are just out of the question.

You CAN get out of the network! With persistence your insurance will refer you

out.

Your son has already had enough work that may have made future treatments more

difficult. It is not the same problems as one of us over 50 faces.

Look back on ' story, his mother Tonia.. they started out with a local

surgeon then tried another and even the last surgery has not been totally

successful. I don't think he is even 20 years old yet. Tonia doesn't come back

here much, but it has been very rough for them. Everyone is different, but they

stayed local for a long time before they went outside their area. No one knows,

but many of us have the opinion that if they had gone to experts earlier things

would be better now.

I don't want to freak you out and seem heavy handed. Local doctors are great at

what they do, but achalasia takes a specialist with a lot of experience. If I

had to choose between things like cable tv, steak vs. hamburger, I would take

the less expensive choices and go out of network. It is the best investment you

will make in your son's future.

Achalasia can be very depressing and we can become very isolated. Not only is

eating difficult, but even talking and breathing can become difficult because

the saliva doesn't go down our throats well and we can end up coughing to clear

our airways. having people make suggestions about what is good to eat,

suggesting Slim Fast or a blender makes us want to throw things at them... so we

just start avoiding people. It is hard for even us old ones. Can't imagine what

it is like for a young person.

My surgeon's wife is a pediatric surgeon, so when he has done pediatric

surgeries he has his wife assist, even though she is in a different hospital.

Please call one of us and arrange to meet one of us in person. I think it helps

a lot. There are some kids that pop in here every once in a while. There is

also a group on facebook. Personally i wouldn't want to type these things on

Facebook so like the relative privacy here more. Kids may feel the same.

Sandy

> > >

> > > >

> > >

> > > > From: Malo <grneyegrrl@>

> > >

> > > > Subject: Re: child with recurring symptoms after Heller

Myotomy

> > >

> > > > achalasia

> > >

> > > > Date: Tuesday, March 8, 2011, 8:12 AM

> > >

> > > >

> > >

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> > >

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> > >

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> > >

> > > > ÂÂ

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> > > > He's 11 now. We live in DC. The doc we have is amazing. He's been

treated at

> > >Children's Hospital for the length of this. The dilations have never worked

in

> > >the past. He had a lot of scar tissue that they were never able to break.

My

> > >fear of course is another myotomy. I really just want him to not have to

deal

> > >with this anymore. It breaks my heart to see him like that, and it's

unbearable

> > >to see him after surgery. It's one of those things that as a Mom you can't

make

> > >better, you know?

> > >

> > > >

> > >

> > > >

> > >

> > > >

> > >

> > > > > From: " Malo " <grneyegrrl@>

> > >

> > > >

> > >

> > > > > Sent: Tuesday, March 08, 2011 10:43 AM

> > >

> > > >

> > >

> > > > > <achalasia >

> > >

> > > >

> > >

> > > > > Subject: child with recurring symptoms after Heller

Myotomy

> > >

> > > >

> > >

> > > > >

> > >

> > > >

> > >

> > > > > > Hello all-

> > >

> > > >

> > >

> > > > > >

> > >

> > > >

> > >

> > > > > > New to the group here and hoping to find some info/support, really

> > >

> > > >

> > >

> > > > > > anything at this point. Can't find a lot of info on the web.

> > >

> > > >

> > >

> > > > > > My son was born w/achalasia but wasn't diagnosed until he was 9. He

was

> > >56

> > >

> > >

> > > >

> > >

> > > > > > pounds when we found out. We've gone through feeding tubes,

supplements,

> >

> > >

> > > >

> > >

> > > > > > all of that. He had 4 dilations before they determined those weren't

> > >

> > > >

> > >

> > > > > > working. He finally had a myotomy about 2 years ago.

> > >

> > > >

> > >

> > > > > > He's been doing GREAT until recently. I've noticed the same things:

not

> > >

> > > >

> > >

> > > > > > eating a lot, frequent trips to the bathroom during meals, rushing

for a

> >

> > >

> > > >

> > >

> > > > > > drink while eating.

> > >

> > > >

> > >

> > > > > > We go back to the doctor in a week. My question is what's the next

> > >option?

> > >

> > >

> > > >

> > >

> > > > > > I read something about an open Heller's Myotomy, which terrifies me.

> > >

> > > >

> > >

> > > > > > Has anyone else been through this? Any advice would be greatly

> > >

> > > >

> > >

> > > > > > appreciated!

> > >

> > > >

> > >

> > > > > >

> > >

> > > >

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> > >

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Guest guest

Any suggestions on where I might find some names? I appreciate all of this. I

just sat my son down to talk and he told me even liquids are getting stuck

again. So the brave face is on in front of him and then I freak out behind

closed doors. We all know what that's like right? Thanks again guys this has

been a huge help for me :)

Sent from my iPhone

On Mar 9, 2011, at 10:23 PM, " Sandy " <sandycarroll@...> wrote:

> I totally understand about the cost, but it is absolutely critical you get the

best surgeon/gi combination. There are many stories here of members that had

achalasia as a youngster and maybe had less than wonderful treatment because

their parents just didn't know. comes to mind.

>

> I would even go out on a limb and guess that one of us would help you find a

place to stay if hotels are just out of the question.

>

> You CAN get out of the network! With persistence your insurance will refer you

out.

>

> Your son has already had enough work that may have made future treatments more

difficult. It is not the same problems as one of us over 50 faces.

>

> Look back on ' story, his mother Tonia.. they started out with a local

surgeon then tried another and even the last surgery has not been totally

successful. I don't think he is even 20 years old yet. Tonia doesn't come back

here much, but it has been very rough for them. Everyone is different, but they

stayed local for a long time before they went outside their area. No one knows,

but many of us have the opinion that if they had gone to experts earlier things

would be better now.

>

> I don't want to freak you out and seem heavy handed. Local doctors are great

at what they do, but achalasia takes a specialist with a lot of experience. If I

had to choose between things like cable tv, steak vs. hamburger, I would take

the less expensive choices and go out of network. It is the best investment you

will make in your son's future.

>

> Achalasia can be very depressing and we can become very isolated. Not only is

eating difficult, but even talking and breathing can become difficult because

the saliva doesn't go down our throats well and we can end up coughing to clear

our airways. having people make suggestions about what is good to eat,

suggesting Slim Fast or a blender makes us want to throw things at them... so we

just start avoiding people. It is hard for even us old ones. Can't imagine what

it is like for a young person.

>

> My surgeon's wife is a pediatric surgeon, so when he has done pediatric

surgeries he has his wife assist, even though she is in a different hospital.

>

> Please call one of us and arrange to meet one of us in person. I think it

helps a lot. There are some kids that pop in here every once in a while. There

is also a group on facebook. Personally i wouldn't want to type these things on

Facebook so like the relative privacy here more. Kids may feel the same.

>

> Sandy

>

>

> > > >

> > > > >

> > > >

> > > > > From: Malo <grneyegrrl@>

> > > >

> > > > > Subject: Re: child with recurring symptoms after Heller

Myotomy

> > > >

> > > > > achalasia

> > > >

> > > > > Date: Tuesday, March 8, 2011, 8:12 AM

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > > ÂÂ

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > > He's 11 now. We live in DC. The doc we have is amazing. He's been

treated at

> > > >Children's Hospital for the length of this. The dilations have never

worked in

> > > >the past. He had a lot of scar tissue that they were never able to break.

My

> > > >fear of course is another myotomy. I really just want him to not have to

deal

> > > >with this anymore. It breaks my heart to see him like that, and it's

unbearable

> > > >to see him after surgery. It's one of those things that as a Mom you

can't make

> > > >better, you know?

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > > > From: " Malo " <grneyegrrl@>

> > > >

> > > > >

> > > >

> > > > > > Sent: Tuesday, March 08, 2011 10:43 AM

> > > >

> > > > >

> > > >

> > > > > > <achalasia >

> > > >

> > > > >

> > > >

> > > > > > Subject: child with recurring symptoms after Heller

Myotomy

> > > >

> > > > >

> > > >

> > > > > >

> > > >

> > > > >

> > > >

> > > > > > > Hello all-

> > > >

> > > > >

> > > >

> > > > > > >

> > > >

> > > > >

> > > >

> > > > > > > New to the group here and hoping to find some info/support, really

> > > >

> > > > >

> > > >

> > > > > > > anything at this point. Can't find a lot of info on the web.

> > > >

> > > > >

> > > >

> > > > > > > My son was born w/achalasia but wasn't diagnosed until he was 9.

He was

> > > >56

> > > >

> > > >

> > > > >

> > > >

> > > > > > > pounds when we found out. We've gone through feeding tubes,

supplements,

> > >

> > > >

> > > > >

> > > >

> > > > > > > all of that. He had 4 dilations before they determined those

weren't

> > > >

> > > > >

> > > >

> > > > > > > working. He finally had a myotomy about 2 years ago.

> > > >

> > > > >

> > > >

> > > > > > > He's been doing GREAT until recently. I've noticed the same

things: not

> > > >

> > > > >

> > > >

> > > > > > > eating a lot, frequent trips to the bathroom during meals, rushing

for a

> > >

> > > >

> > > > >

> > > >

> > > > > > > drink while eating.

> > > >

> > > > >

> > > >

> > > > > > > We go back to the doctor in a week. My question is what's the next

> > > >option?

> > > >

> > > >

> > > > >

> > > >

> > > > > > > I read something about an open Heller's Myotomy, which terrifies

me.

> > > >

> > > > >

> > > >

> > > > > > > Has anyone else been through this? Any advice would be greatly

> > > >

> > > > >

> > > >

> > > > > > > appreciated!

> > > >

> > > > >

> > > >

> > > > > > >

> > > >

> > > > >

> > > >

> > > > > >

> > > >

> > > > >

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> > > > >

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