Re: One year on from Esophagectomy

[Guest guest]

Hello Tim

Good to hear that you are doing so well. Happy Anniversary! I am still getting

reflux problems which will be dealt with in due course but at the moment my

surgeon wants me to have another dilatation of my anastomosis and a good look

see down the endoscope at the pylorus sphincter to see if there is a reason for

the hold-up there that must be dealt with. The reflux is very bad at night.

Sometimes i jerk awake with a mouthfull of acid and the burning pain in my chest

and mouth is horrendus. When i mentioned that the only way i can get soft food

down is to force hiccups or jump on the spot, he immedietaly recommended an

endoscope and dilatation! I still use my jejunostomy tube for overnight feeds

though and eat what i can during the day but nothing after 6pm or i will pay for

it during the night. Due for the endoscope withing the next 6 weeks i hope and

if i have not heard of a date within the next 3 weeks i am to phone the surgeons

secretary up and not the

endoscopy unit. Please keep in touch. you are like a breath of fresh air to

this group.

from the UK

From: Tim <timwilson12@...>

achalasia

Sent: Saturday, February 19, 2011 11:22 AM

Subject: One year on from Esophagectomy

 

Hi!

Just a note to let the board know that I am doing really well one year on from

my Esophagectomy. Am able to eat any food I like no matter how hot or spicy it

is. Eat as late as I like with no reflux and am taking absolutely no medication

what so ever!! Though I do sleep on a wedge and cannot sleep on my left side as

I get a bit of acid pain then for some reason.

Feels like the 20+ years of Achalasia was a bad dream that happened to someone

else. Would still like to have more stamina but things are better than I can

remember. This week have been off work and eating out a bit and had Tapas,

Chinese and a Curry in resteraunts with no problems. Just eat a little less than

others but not so you would notice.

Have the odd issue with dumping, getting diarrhoea perhaps once or twice a month

- nothing I can't handle! I think having the esophagectomy was a good decision

for me, I have been thinking about the longer term consequences but so far so

good. I am lucky in that there is a regular meeting of the Oesophageal Patients

Association in the hospital where I had mine, [Oxford] where my surgeon Mr

Maynard regularly attends. Its good to meet others that have the 'ectomy, though

they all have had it due to cancer. We have about 40-50 people attending.

Still pop in here regularly for a quick read of the posts but not as often as I

used to. Its good to be an ex sufferer of Achalasia and its good that my op went

well. Happy swallowing to everyone on the board!!

regards

tim

[Guest guest]

Happy Anniversary Tim!

I am so thrilled for you! I am also doing fantastic and don't check in very

often on the board. I also have some dumping issues, but it's almost always my

own fault from eating too much sugar or having something greasy. I'm very happy

to hear that you are doing great! We both need to pass on all of our success to

though.

Congratulations & Best wishes to you as well,

Thunder Bay, Ontario

[Guest guest]

thanks to all of you who already had the HM surgery. What a nice support group,

next MOnday is my daughters surgery and I am  getting nervous, This disorder is

so horrible and I am so angry asking why did this happen to us. I hoep and pray

that the surgery will help her.

________________________________

From: <_40@...>

" achalasia " <achalasia >

Sent: Sat, February 19, 2011 11:56:09 AM

Subject: RE: One year on from Esophagectomy

 

Happy Anniversary Tim!

I am so thrilled for you! I am also doing fantastic and don't check in very

often on the board. I also have some dumping issues, but it's almost always my

own fault from eating too much sugar or having something greasy. I'm very happy

to hear that you are doing great! We both need to pass on all of our success to

though.

Congratulations & Best wishes to you as well,

Thunder Bay, Ontario

[Guest guest]

I'm sure it will go very well. I have had A since I was 13 years old, I'm now

46. During these 30 years I have just seen medicine getting better and better

for us. She will be great and you will see such a great difference in your

daughter when its done. I know how she feels.

All the best

________________________________

From: fe busse <bil45ohb@...>

achalasia

Sent: Sat, February 19, 2011 11:13:29 AM

Subject: Re: One year on from Esophagectomy

thanks to all of you who already had the HM surgery. What a nice support group,

next MOnday is my daughters surgery and I am getting nervous, This disorder is

so horrible and I am so angry asking why did this happen to us. I hoep and pray

that the surgery will help her.

________________________________

From: <_40@...>

" achalasia " <achalasia >

Sent: Sat, February 19, 2011 11:56:09 AM

Subject: RE: One year on from Esophagectomy

Happy Anniversary Tim!

I am so thrilled for you! I am also doing fantastic and don't check in very

often on the board. I also have some dumping issues, but it's almost always my

own fault from eating too much sugar or having something greasy. I'm very happy

to hear that you are doing great! We both need to pass on all of our success to

though.

Congratulations & Best wishes to you as well,

Thunder Bay, Ontario

[Guest guest]

It's good to hear from you Tim. I am so pleased that you are doing well and

getting out and about to Restaurants. What a treat that is for those of us who

are able to do it. We probably have a better time that non-achalasians, because

we know how much it means to us.

Please keep in touch occasionally.

Best Wishes to you from Ann xxx

From: Tim <timwilson12@...>

Subject: One year on from Esophagectomy

achalasia

Date: Saturday, 19 February, 2011, 11:22

 

Hi!

Just a note to let the board know that I am doing really well one year on from

my Esophagectomy. Am able to eat any food I like no matter how hot or spicy it

is. Eat as late as I like with no reflux and am taking absolutely no medication

what so ever!! Though I do sleep on a wedge and cannot sleep on my left side as

I get a bit of acid pain then for some reason.

Feels like the 20+ years of Achalasia was a bad dream that happened to someone

else. Would still like to have more stamina but things are better than I can

remember. This week have been off work and eating out a bit and had Tapas,

Chinese and a Curry in resteraunts with no problems. Just eat a little less than

others but not so you would notice.

Have the odd issue with dumping, getting diarrhoea perhaps once or twice a month

- nothing I can't handle! I think having the esophagectomy was a good decision

for me, I have been thinking about the longer term consequences but so far so

good. I am lucky in that there is a regular meeting of the Oesophageal Patients

Association in the hospital where I had mine, [Oxford] where my surgeon Mr

Maynard regularly attends. Its good to meet others that have the 'ectomy, though

they all have had it due to cancer. We have about 40-50 people attending.

Still pop in here regularly for a quick read of the posts but not as often as I

used to. Its good to be an ex sufferer of Achalasia and its good that my op went

well. Happy swallowing to everyone on the board!!

regards

tim

[Guest guest]

Hi Tim

I have been flicking back reading some of the older posts and came across yours.

Nick Maynard is my consultant also, what a great guy. I am suffering with really

severe difficulty getting food down (had a myotomy about 6 years ago). Really

interested in people's experiences of Esophagectomy. Havn't discussed it

seriously with Mr Maynard yet but seeing him in a few weeks time and definately

something I want to raise. I am so glad to read you are pleased you had it done

and are feeling so much better.

very best wishes

Kay

nr Oxford

>

> Hi!

>

> Just a note to let the board know that I am doing really well one year on from

my Esophagectomy. Am able to eat any food I like no matter how hot or spicy it

is. Eat as late as I like with no reflux and am taking absolutely no medication

what so ever!! Though I do sleep on a wedge and cannot sleep on my left side as

I get a bit of acid pain then for some reason.

>

> Feels like the 20+ years of Achalasia was a bad dream that happened to someone

else. Would still like to have more stamina but things are better than I can

remember. This week have been off work and eating out a bit and had Tapas,

Chinese and a Curry in resteraunts with no problems. Just eat a little less

than others but not so you would notice.

>

> Have the odd issue with dumping, getting diarrhoea perhaps once or twice a

month - nothing I can't handle! I think having the esophagectomy was a good

decision for me, I have been thinking about the longer term consequences but so

far so good. I am lucky in that there is a regular meeting of the Oesophageal

Patients Association in the hospital where I had mine, [Oxford] where my surgeon

Mr Maynard regularly attends. Its good to meet others that have the 'ectomy,

though they all have had it due to cancer. We have about 40-50 people

attending.

>

> Still pop in here regularly for a quick read of the posts but not as often as

I used to. Its good to be an ex sufferer of Achalasia and its good that my op

went well. Happy swallowing to everyone on the board!!

>

> regards

>

> tim

>