Becca

[Guest guest]

Welcome!! I am so glad you found us. I was also diagnosed as a teenager. Had

symptoms starting about age 12, not properly diagnosed until 15 - like Jan -

doctors attributed my issues to being a teenaged girl (quacks!!). I am now

almost 43 and yes, A is a royal pain in the backside but it is liveable. I have

a full time job, 2 kids (mostly easy pregnancies, even with the morning

sickness) a house, a husband - all the normal things. You are very fortunate

that you have the internet - you can find info and support and other people who

'get it'.

As far as other teens, we don't have a bunch that post here but we have quite a

few moms and I " m sure that once they see your posts - they'll have their kids

all meet up with you on facebook. It is really great to be able to 'talk' with

other people who understand.

As far as spasms go - what worked best for me was yoplait vanilla yogurt - the

full fat, custard kind with the gold lid. At work or out in public, I always had

either saltines or shredded wheat worked really well too. Are you still in HS?

do your teachers give you crap about food in class? I'd keep a baggy of

something crunchy and dry - some people like triscuits also - in your bookbag

because if you can catch them early, it's easier to get rid of them quickly

before they take hold.

Funny thing is that for the last 3 years I've worked at a high school and I

always let my kids eat (as long as they don't make a mess) because back in my

high school years, I even had a note from the nurse in my purse allowing me to

eat frequently and teachers STILL woulnd't let me eat in class.

As far as the dumping goes - try this - do NOT have any coffee, chocolate or

dairy until about 20 minutes after you have some protein in the morning. I

cannot wake up and chug coffee but I eat peanut butter on 12 grain bread for

breakfast and then about 20 min later I can drink a nice big cup of coffee and

RARELY get dumping. I can also eat chocolate ice cream at night as long as I've

eaten plenty of protein with dinner. You may need to experiment a bit with that.

Also, lower fat dairy products have more lactose in them so you may do better

with full fat dairy. Sometimes it's combinations of things that get you and it

may take some trial and error. If you can eat cheese on a burger with no issues

- I'd say it's a protein thing and keep high level of protein in your diet. Does

that make sense?

Glad you found us!

~ in NC