Re: Re: PLEASE HELP!!! FROM MIAMI FLORIDA

[Guest guest]

Hi Philip,

My name is Becca. I'm seventeen years old, and I have had Achalasia for about 11

years now approx (I wasn't diagnosed until I was 8). I had a Hellers with a

partial fundo when I was almost nine. At that time I weighed only 40 lbs, and

was extremely malnourished. I have had Achalasia for as long as I can remember

now, but I can't say I'm the best eater. I eat small amounts frequently

throughout the day whenever I feel hungry, but I find I get full pretty fast so

I don't end up eating much at one time. I'm 5' 2 " and weigh 93 lbs. I am

supposed to stay away from foods that are sticky or foods that have a tough skin

like apples, hot dogs, and grapes. The worst thing for me is popcorn, but I have

to admit I cheat (but I pay for it later). The worst two symptoms I have still

are esophageal spasms (which I am sure you are more than familiar with) and this

nasty syndrome called dumping syndrome which has pretty much rendered my lactose

intolerant.

As far as gaining weight back, I highly suggest getting some of those ensure

shakes. I pretty much lived off of them when i was younger, and in a sense, they

saved my life by helping me gain enough weigh to have the Hellers. If your

weight loss becomes extremely severe (and I cannot believe I am recommending

this because it is one of the most hated moments of my childhood) you may want

to look into a feeding tube. I don't know what your situation is exactly, but it

is an option if you absolutely cannot get food or liquid down.

Best of luck!

Becca

________________________________

From: <empirelimo@...>

achalasia

Sent: Thu, February 3, 2011 5:09:58 PM

Subject: Re: PLEASE HELP!!! FROM MIAMI FLORIDA

Hi Philip,

Greetings!Welcome. Well..you probably will never be able to wolf down

cheeseburgers with reckless abandon but there is a wealth of info on this site

regarding diets. You can use keywords to search previous posts and even diet

lists on the database.There's also an address

list in the database of Florida members.

How, when and what you can eat varies from person to person. You'll get 200

different answers. Here's the first one.

For me, sometimes are better than others for food to go down. If I get " corked "

up from a hard to digest food which gets stuck,I can't eat for a day or two and

nothing takes which sucks. I do get some relief from fizzy water and alka

seltzer.

Again,works for me but can excacerbate the condition in others. I've had luck

with weight gain from modifying my diet with more liquids and supplements mixed

with juice or milk. GNC has a 2200 Supplement mix which can provide Kcals when

the noodles aren't working. It is.. Different for everyone !

I had numerous dilations starting when I was 22 and a Heller in 2001, when I was

41. I was getting concerned about the increased chance of

a torn esophagus. Surgery helped, but for me, it was not a cure all.

so...I've learned to accept my condition rather than opt for more radical

treatment.

Again, resources on this website will enable you to research info

and find others who we share this odd condition with. I have a place

in Sanibel Island so I'll holla the next time I'm down u Miami way.

Best Wishes

M (D Mac)

Santa

>

> Hi, My name is Philip . Im 24 years old and i live in Miami, Florida! I

>was diagnosed with Achalasia almost 1 1/2 ago! I really need some new tips on

>how i should eat! What i should eat? When i should eat? How often? Any advice

is

>helpful! Some days are good and somedays are bad! Somedays im able to eat like

2

>meals and somedays im not able to eat a thing! Does this happen to anyone? I

>happen to snack alot also as opposed to eating full set meals! Im a dance

>instructor, so i burn alot of calories already! Im about 150lbs. Before i was

>170lbs. So ive lost 20lbs! How can i regain this weight? Ive had one Heller

>Myotomy last Feb 2010! And thats it! Nevertheless i still have problems day in

>and day out!

> Also is there anyone from Miami that i can talk to personally to help me?

>PLEASE HELP!!! FROM MIAMI FLORIDA!

>

>

>

>

>