Guest guest Posted February 3, 2011 Report Share Posted February 3, 2011 Hi! I am 17 years old and I was diagnosed with Achalasia when I was 8, though I have had symptoms since I was 5. So obviously us teen and child Achalasians are super rare, but i was just wondering if there was anyone else out there I could talk to. I sometimes feel like a bit of a freak when trying to explain my disease to people (especially when they freak out at the word disease, and I have to explain that it's not contagious). So do any of you want to share your story? It would be great to have a peer to talk to, and even if some of you adults want to jump in I would love to hear your stories and advice. The most troubling thing for me right now are the infamous spasms. They pretty much ruin me. I had a really bad bout last night that left me crying in a ball in the hallway at 3:00 AM. What do you do to keep them at bay? What do you think causes these stupid little devil spasms? And another thing is the dumping syndrome which has pretty much rendered me lactose intolerant. Does anyone else experience this problem with dairy.. and coffee for that matter? Well, I would love to hear from anyone honestly. Teens and adults alike. I kinda just want to talk, swap stories, and trade remedies. Thanks so much! Becca from AZ Quote Link to comment Share on other sites More sharing options...
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