Guest guest Posted January 17, 2000 Report Share Posted January 17, 2000 When you cannot describe something it means you are a very long way from explaining it. I think CFS will be tackled but not for at least 5 or 10 years. However it may be that many of us will find relief, if not recovery, by trying this, that, or the other. I do not think consumers will make the scientific break through. Nor will clinicians. Researcher will eventually find the answer, but of course, they will be guided by the observations of consumers and clinicians. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2000 Report Share Posted January 17, 2000 In a message dated 1/17/00 3:20:42 PM Eastern Standard Time, moores@... writes: << When you cannot describe something it means you are a very long way from explaining it. >> But what if you can? Our next newsletter will give the cause that's been kept from patients for years and will apply to about 80% of those with the diagnosis. Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2000 Report Share Posted January 17, 2000 In a message dated 1/17/2000 6:32:34 PM Pacific Standard Time, GAILRONDA@... writes: << Our next newsletter will give the cause that's been kept from patients for years and will apply to about 80% of those with the diagnosis. Gail >> Gail when is this newsletter available? Is it available online? How does one read it? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2000 Report Share Posted January 18, 2000 Please tell us NOW. Steve Inthepresent@... wrote: > From: Inthepresent@... > > In a message dated 1/17/2000 6:32:34 PM Pacific Standard Time, > GAILRONDA@... writes: > > << Our next newsletter will give the cause that's been > kept from patients for years and will apply to about 80% of those with the > diagnosis. > Gail >> > Gail when is this newsletter available? Is it available online? How > does one read it? Thanks, > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2000 Report Share Posted February 19, 2000 Hi, Research sites presented here document various causes of the Mystery Disease(s) - viral, bacterial infection among other things, but traditional med just doesn't seem to take it seriously for most part. I have seen people dx'ed with infection, tick-borne diseases, autoimmune disorders, and now mitochrondrial diseases that used to be mainly seen in children. It is amazing that we continue to attempt to help ourselves in spite of terrible odds and am glad that we do. On this site Ken is putting together CFS info and others as Axfords has great research and information. It would be nice to link all the links - but that would take a better computer mind than mine!! take care, Christie At 07:14 PM 1/16/00 EST, you wrote: >From: MCamp10139@... > >In a message dated 1/16/00 6:23:53 PM Eastern Standard Time, >onelist writes: > >> Hello All: >> >> Any idea if there is a location web or otherwise that >> lists the current subsets/subgroups of CFIDS that have >> been identified? >> >> Thanks >Diane, I don't think you will find any sites because nobody has done this >work yet >and I believe it is a very important area. There are PWCs who gain weight >and some >that lose. Some have IBS and some don't. Some have chemical sensitivities >and >some don't and on and on. It would be very useful to put PWCs into subgroups >and I will bet you that you find that certain treatments help certain >subgroups. This >would tremendously shorten the time that it takes to find a treatment that >works, >not to mention the cost involved. I am glad you asked this question, am >awaiting >responses from others and would like to know who wants to volunteer to set up >the subgroups parameters and start finding out how many fit into which group. > > >Mike > >--------------------------- Quote Link to comment Share on other sites More sharing options...
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