Re: Lyme/tick exposure

[Guest guest]

Steve,

I live in CT, and deer graze in my back yard, less than thirty feet from my

back door. I also used to be a long distance backpacker. I thought more

about contaminated water as a source of my problems than lyme disease, but

since last winter when my semi annual lyme test turned up " inconclusive " for

the first time, I began to think more about deer ticks. Only deer ticks

carry lyme. My doc has been treating me with antibiotics since last winter

and my pain level has gone from hellish with plenty of pain medication, to

not so bad with NO pain medication.

For good info on lyme check out

Lots of Links to Lyme

geocities.com/HotSprings/oasis/6455/Lyme-links.html

I don't know if lyme is my main problem or if it came along more recently, or

if it is even a problem at all. I tested positive for C. Pneumoniae and also

for HHV6. I also had a serious car accident with neck and head injuries in

1980. The list goes on and on...

I'm just glad that the antibiotics are helping. Now if I could just get my

energy level up, and my liver to stop aching, I'd be able to get on with my

life. That NMH problem just doesn't want to go away.

Since chronic lyme is such a nasty politically incorrect condition, believe

me, people in CT look at me as if I'm crazy when I tell them about my being

sick. There is no social advantage to having Lyme over having CFS. I

suppose if I were convinced that my enemy had a face (lyme) I might have some

psychological comfort. But since I don't remember having any deer tick

bites, no characteristic bulls eye rash, and no definitely positive lab

tests, I'm not convinced. I live in such an infested area, I have to suspend

my disbelief so that I can go on with my treatment.

I'm starting on Amoxil tomorrow 1600 mg twice a day. A large enough dose

that the pharmacist wouldn't fill the prescription without talking to my doc.

I took doxycycline for six plus months, zithromax for six weeks, Cipro for

four weeks. Hope that I can tolerate the Amoxil and that it does the job.

Doc says that she may add Plaquinil, which is an antimalerial that is also

used to treat lupus. Lyme specialists are prescribing Plaquinil fairly

frequently.

Barb

[Guest guest]

> the first time, I began to think more about deer ticks. Only

> deer ticks

> carry lyme.

Ticks carry diseases other than lyme so just because its not

a deer tick doesn't mean its not carrying a disease.

Patti

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[Guest guest]

Sure but everybody (where I live) gets ticks but they do not get CFS. Also why

is CFS more prevalent among women.

Steve

" Skari, M " wrote:

> From: " Skari, M " <SkariPM@...>

>

> > the first time, I began to think more about deer ticks. Only

> > deer ticks

> > carry lyme.

>

> Ticks carry diseases other than lyme so just because its not

> a deer tick doesn't mean its not carrying a disease.

>

> Patti

> --

>

> > This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

> Sure but everybody (where I live) gets ticks but they do not

> get CFS.

Not everyone has low CMI. Not everyone has hypercoag genetic

defect.

> Also why is CFS more prevalent among women.

Probably because women have lower blood volume (volume

theory) also because estrogen increases NO production

(NO -> cytokine balance -> low CMI).

Patti

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[Guest guest]

> From: " Dr. Steve " <moores@...>

>

> but why would one get tick all there life & suddenly get CFS

> in middle age?

A triggering event. If you read the hypercoag stuff

you'll see that the hypercoag state can be latent.

There are scads of infectious agents in the average

person " laying in wait " for a triggering event.

Patti

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