Re: My wife has been diagnosed

[Guest guest]

Thanks for the input on Aloe Vera juice. They have a more concentrated juice

from Texas. I will see if i can get some locally.

http://www.chayacorp.com/Merchant2/merchant.mv?Screen=SFNT & Store_Code=CC

I use 100% Pomergrante juice every day, Costco has it.

rayme

>

> Hi Everyone

> My wife has finally been diagnosed after 8 months of tests

> And a specialist who knocked her back as a routeen patient " due to no cancer

seen " was the excuse given.

> It is very hard on my wife to talk about this and now she is going through all

sorts of emotions and has good/bad days with this as well

> Friends and me have talked her into taking Alo Veria Juice every day

> It " seems " to help so we keep on for her to take it every day

> I was shocked to learn how many pepole are affected by this 1=100,000 so

research says. A very rare thing indeed. The options for cure are limited. Just

" quick or partial fixes "

> Having lost over 4 stone whilst all the tests were carried out i can say now

over the last 2 months my wife has put on 2KG in weight not a lot but this is

better than still loosing weight. Our friends and family continue to help and

support her in any way they can. BIG THANKS to them all i would be lost without

this help.

> I wish all who have this the best possible life they can have. As an onlooker

i can see the effects in both pain and mind that you all go through.

> All my best to you all

> Daveyb

>

[Guest guest]

Hello Daveyb,

Sorry to hear about your wife and her situation with achalasia.  Yes it is a

very hard thing to deal with, as she is finding out.  BUT, please educate

yourself on this disease.  I have had it for 22yrs!  The biggest concern is

that

over time without some type of relief to the lower spincter, the esophagus can

dilate over time and that can make things MUCH worse.  It's important to

remember that achalasia means that the esophagus is " DEAD " and no longer has any

motility...therefore food will accumulate and stretch the esophagus over time. 

Please keep that in mind, as the most important thing.  She needs to get some

type of help. 

Most types of help are either " pneumatic dilation " which is also called the

balloon dilation, or a Hellers Myotomy.  This group can offer you testimonies

of

both.  Finding an expert doctor who deals with achalasia is also extremely

important for good results.  Sorry to say that Aloe Veria juice though it may

comfort for a bit, won't work for this disease. 

Best regards, Julee So Calif. 

 

________________________________

From: " d_r_electrical@... " <d_r_electrical@...>

achalasia

Sent: Sun, September 5, 2010 2:43:41 AM

Subject: My wife has been diagnosed

 

Hi Everyone

My wife has finally been diagnosed after 8 months of tests

And a specialist who knocked her back as a routeen patient " due to no cancer

seen " was the excuse given.

It is very hard on my wife to talk about this and now she is going through all

sorts of emotions and has good/bad days with this as well

Friends and me have talked her into taking Alo Veria Juice every day

It " seems " to help so we keep on for her to take it every day

I was shocked to learn how many pepole are affected by this 1=100,000 so

research says. A very rare thing indeed. The options for cure are limited. Just

" quick or partial fixes "

Having lost over 4 stone whilst all the tests were carried out i can say now

over the last 2 months my wife has put on 2KG in weight not a lot but this is

better than still loosing weight. Our friends and family continue to help and

support her in any way they can. BIG THANKS to them all i would be lost without

this help.

I wish all who have this the best possible life they can have. As an onlooker i

can see the effects in both pain and mind that you all go through.

All my best to you all

Daveyb

[Guest guest]

Hi yes we know the Alo Vera is not a cure but it helps with her digesting the

food she eats. She also feels it helps which is a good thing. Regarding doctors

who are specialists for this we are in the uk so we will be doing a lot of

research to find them over here. We know about the balloon treatment and botox

injections as well but the after effects are not promising either. Lorrain is

being monitered by our local hospital on a regular basis for the rest of her

life. Another thing she uses is Ensure plus this was given to her whilst she was

in hospital. It is a suppliment in liquid form that keeps you boosted when you

cannot eat food. Just things we have learned since this all started.

Daveyb

>

> Hello Daveyb,

>

> Sorry to hear about your wife and her situation with achalasia.  Yes it is a

> very hard thing to deal with, as she is finding out.  BUT, please educate

> yourself on this disease.  I have had it for 22yrs!  The biggest concern is

that

> over time without some type of relief to the lower spincter, the esophagus can

> dilate over time and that can make things MUCH worse.  It's important to

> remember that achalasia means that the esophagus is " DEAD " and no longer has

any

> motility...therefore food will accumulate and stretch the esophagus over

time. 

> Please keep that in mind, as the most important thing.  She needs to get some

> type of help. 

>

>

> Most types of help are either " pneumatic dilation " which is also called the

> balloon dilation, or a Hellers Myotomy.  This group can offer you

testimonies of

> both.  Finding an expert doctor who deals with achalasia is also extremely

> important for good results.  Sorry to say that Aloe Veria juice though it may

> comfort for a bit, won't work for this disease. 

>

>

> Best regards, Julee So Calif. 

>

>

>  

>

>

>

> ________________________________

> From: " d_r_electrical@... " <d_r_electrical@...>

> achalasia

> Sent: Sun, September 5, 2010 2:43:41 AM

> Subject: My wife has been diagnosed

>

>  

> Hi Everyone

> My wife has finally been diagnosed after 8 months of tests

> And a specialist who knocked her back as a routeen patient " due to no cancer

> seen " was the excuse given.

> It is very hard on my wife to talk about this and now she is going through all

> sorts of emotions and has good/bad days with this as well

> Friends and me have talked her into taking Alo Veria Juice every day

> It " seems " to help so we keep on for her to take it every day

> I was shocked to learn how many pepole are affected by this 1=100,000 so

> research says. A very rare thing indeed. The options for cure are limited.

Just

> " quick or partial fixes "

> Having lost over 4 stone whilst all the tests were carried out i can say now

> over the last 2 months my wife has put on 2KG in weight not a lot but this is

> better than still loosing weight. Our friends and family continue to help and

> support her in any way they can. BIG THANKS to them all i would be lost

without

> this help.

> I wish all who have this the best possible life they can have. As an onlooker

i

> can see the effects in both pain and mind that you all go through.

> All my best to you all

> Daveyb

>

>

>

>

>

>

>

>

[Guest guest]

I hope it helps you. I do not know about the amount each day but the Alo Vera

juise comes with a plastic cup over the bottle top so my wife takes 2 " cups " per

day

Daveyb

> >

> > Hi Everyone

> > My wife has finally been diagnosed after 8 months of tests

> > And a specialist who knocked her back as a routeen patient " due to no cancer

seen " was the excuse given.

> > It is very hard on my wife to talk about this and now she is going through

all sorts of emotions and has good/bad days with this as well

> > Friends and me have talked her into taking Alo Veria Juice every day

> > It " seems " to help so we keep on for her to take it every day

> > I was shocked to learn how many pepole are affected by this 1=100,000 so

research says. A very rare thing indeed. The options for cure are limited. Just

" quick or partial fixes "

> > Having lost over 4 stone whilst all the tests were carried out i can say now

over the last 2 months my wife has put on 2KG in weight not a lot but this is

better than still loosing weight. Our friends and family continue to help and

support her in any way they can. BIG THANKS to them all i would be lost without

this help.

> > I wish all who have this the best possible life they can have. As an

onlooker i can see the effects in both pain and mind that you all go through.

> > All my best to you all

> > Daveyb

> >

>

[Guest guest]

I'm glad that you understand about the Aloe Vera, glad that it helps her to

digest food better.  Seems that you are learning about this and that is the

key.  All my best to you, please keep us posted, I hope that she finds relief

soon.  Many have used the Ensure, while waiting to get treatment.  Has she had

a

manometry test?  That is the test that will diagnosis along with barium

swallow. 

Keep moving forward, I found that many doctors always wanted to monitor me, but

in the end, as the condition became worse, I can see how that was not very

productive to the condition of my esophagus over time.  Please find relief so

that the food goes down.  

Best regards,

Julee, So Calif.

________________________________

From: " d_r_electrical@... " <d_r_electrical@...>

achalasia

Sent: Sun, September 5, 2010 11:39:45 AM

Subject: Re: My wife has been diagnosed

 

Hi yes we know the Alo Vera is not a cure but it helps with her digesting the

food she eats. She also feels it helps which is a good thing. Regarding doctors

who are specialists for this we are in the uk so we will be doing a lot of

research to find them over here. We know about the balloon treatment and botox

injections as well but the after effects are not promising either. Lorrain is

being monitered by our local hospital on a regular basis for the rest of her

life. Another thing she uses is Ensure plus this was given to her whilst she was

in hospital. It is a suppliment in liquid form that keeps you boosted when you

cannot eat food. Just things we have learned since this all started.

Daveyb

>

> Hello Daveyb,

>

> Sorry to hear about your wife and her situation with achalasia.  Yes it is

a

> very hard thing to deal with, as she is finding out.  BUT, please educate

> yourself on this disease.  I have had it for 22yrs!  The biggest concern

is

>that

>

> over time without some type of relief to the lower spincter, the esophagus can

> dilate over time and that can make things MUCH worse.  It's important to

> remember that achalasia means that the esophagus is " DEAD " and no longer has

>any

>

> motility...therefore food will accumulate and stretch the esophagus over

>time. 

>

> Please keep that in mind, as the most important thing.  She needs to get

some

> type of help. 

>

>

> Most types of help are either " pneumatic dilation " which is also called the

> balloon dilation, or a Hellers Myotomy.  This group can offer you

>testimonies of

>

> both.  Finding an expert doctor who deals with achalasia is also extremely

> important for good results.  Sorry to say that Aloe Veria juice though it

may

> comfort for a bit, won't work for this disease. 

>

>

> Best regards, Julee So Calif. 

>

>

>  

>

>

>

> ________________________________

> From: " d_r_electrical@... " <d_r_electrical@...>

> achalasia

> Sent: Sun, September 5, 2010 2:43:41 AM

> Subject: My wife has been diagnosed

>

>  

> Hi Everyone

> My wife has finally been diagnosed after 8 months of tests

> And a specialist who knocked her back as a routeen patient " due to no cancer

> seen " was the excuse given.

> It is very hard on my wife to talk about this and now she is going through all

> sorts of emotions and has good/bad days with this as well

> Friends and me have talked her into taking Alo Veria Juice every day

> It " seems " to help so we keep on for her to take it every day

> I was shocked to learn how many pepole are affected by this 1=100,000 so

> research says. A very rare thing indeed. The options for cure are limited.

Just

>

> " quick or partial fixes "

> Having lost over 4 stone whilst all the tests were carried out i can say now

> over the last 2 months my wife has put on 2KG in weight not a lot but this is

> better than still loosing weight. Our friends and family continue to help and

> support her in any way they can. BIG THANKS to them all i would be lost

without

>

> this help.

> I wish all who have this the best possible life they can have. As an onlooker

i

>

> can see the effects in both pain and mind that you all go through.

> All my best to you all

> Daveyb

>

>

>

>

>

>

>

>

[Guest guest]

Hi yes Lorrain has had all the tests inc barium swallow 3 times CT scan xray

ultrasound blood tests also.

Like you i hope you live a " good " life the best you can

Daveyb

> >

> > Hello Daveyb,

> >

> > Sorry to hear about your wife and her situation with achalasia.  Yes it

is a

> > very hard thing to deal with, as she is finding out.  BUT, please educate

> > yourself on this disease.  I have had it for 22yrs!  The biggest

concern is

> >that

> >

> > over time without some type of relief to the lower spincter, the esophagus

can

>

> > dilate over time and that can make things MUCH worse.  It's important to

> > remember that achalasia means that the esophagus is " DEAD " and no longer has

> >any

> >

> > motility...therefore food will accumulate and stretch the esophagus over

> >time. 

> >

> > Please keep that in mind, as the most important thing.  She needs to get

some

>

> > type of help. 

> >

> >

> > Most types of help are either " pneumatic dilation " which is also called the

> > balloon dilation, or a Hellers Myotomy.  This group can offer you

> >testimonies of

> >

> > both.  Finding an expert doctor who deals with achalasia is also

extremely

> > important for good results.  Sorry to say that Aloe Veria juice though it

may

>

> > comfort for a bit, won't work for this disease. 

> >

> >

> > Best regards, Julee So Calif. 

> >

> >

> >  

> >

> >

> >

> > ________________________________

> > From: " d_r_electrical@ " <d_r_electrical@>

> > achalasia

> > Sent: Sun, September 5, 2010 2:43:41 AM

> > Subject: My wife has been diagnosed

> >

> >  

> > Hi Everyone

> > My wife has finally been diagnosed after 8 months of tests

> > And a specialist who knocked her back as a routeen patient " due to no cancer

> > seen " was the excuse given.

> > It is very hard on my wife to talk about this and now she is going through

all

>

> > sorts of emotions and has good/bad days with this as well

> > Friends and me have talked her into taking Alo Veria Juice every day

> > It " seems " to help so we keep on for her to take it every day

> > I was shocked to learn how many pepole are affected by this 1=100,000 so

> > research says. A very rare thing indeed. The options for cure are limited.

Just

> >

> > " quick or partial fixes "

> > Having lost over 4 stone whilst all the tests were carried out i can say now

> > over the last 2 months my wife has put on 2KG in weight not a lot but this

is

> > better than still loosing weight. Our friends and family continue to help

and

> > support her in any way they can. BIG THANKS to them all i would be lost

without

> >

> > this help.

> > I wish all who have this the best possible life they can have. As an

onlooker i

> >

> > can see the effects in both pain and mind that you all go through.

> > All my best to you all

> > Daveyb

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Daveyb,

Make sure she gets a manometry test, okay?  That is the ultimate test for

achalasia, it will show the pressure inside and helps a surgeon if she should

need surgery.  For me, I struggled along for a long time (22yrs) and thankfully

was able to get surgery when the past few years nothing was going down very well

and lots of regurgitation was constant.  I had surgery 2 weeks ago at long last

and can swallow like normal right now, it is fantastic relief.  Surgery was

Heller's Myotomy with Dor wrap. 

Best regards,

Julee, So Calif.

________________________________

From: " d_r_electrical@... " <d_r_electrical@...>

achalasia

Sent: Sun, September 5, 2010 12:16:30 PM

Subject: Re: My wife has been diagnosed

 

Hi yes Lorrain has had all the tests inc barium swallow 3 times CT scan xray

ultrasound blood tests also.

Like you i hope you live a " good " life the best you can

Daveyb

> >

> > Hello Daveyb,

> >

> > Sorry to hear about your wife and her situation with achalasia.  Yes

it is

>a

>

> > very hard thing to deal with, as she is finding out.  BUT, please

educate

> > yourself on this disease.  I have had it for 22yrs!  The

biggest

>concern is

>

> >that

> >

> > over time without some type of relief to the lower spincter, the esophagus

>can

>

>

> > dilate over time and that can make things MUCH worse.  It's

important to

> > remember that achalasia means that the esophagus is " DEAD " and no longer has

> >any

> >

> > motility...therefore food will accumulate and stretch the esophagus over

> >time. 

> >

> > Please keep that in mind, as the most important thing.  She needs to

get

>some

>

>

> > type of help. 

> >

> >

> > Most types of help are either " pneumatic dilation " which is also called the

> > balloon dilation, or a Hellers Myotomy.  This group

can offer you

> >testimonies of

> >

> > both.  Finding an expert doctor who deals with achalasia is also

extremely

>

> > important for good results.  Sorry to say that Aloe Veria juice

though it

>may

>

>

> > comfort for a bit, won't work for this disease. 

> >

> >

> > Best regards, Julee So Calif. 

> >

> >

> >  

> >

> >

> >

> > ________________________________

> > From: " d_r_electrical@ " <d_r_electrical@>

> > achalasia

> > Sent: Sun, September 5, 2010 2:43:41 AM

> > Subject: My wife has been diagnosed

> >

> >  

> > Hi Everyone

> > My wife has finally been diagnosed after 8 months of tests

> > And a specialist who knocked her back as a routeen patient " due to no cancer

> > seen " was the excuse given.

> > It is very hard on my wife to talk about this and now she is going through

>all

>

>

> > sorts of emotions and has good/bad days with this as well

> > Friends and me have talked her into taking Alo Veria Juice every day

> > It " seems " to help so we keep on for her to take it every day

> > I was shocked to learn how many pepole are affected by this 1=100,000 so

> > research says. A very rare thing indeed. The options for cure are limited.

>Just

>

> >

> > " quick or partial fixes "

> > Having lost over 4 stone whilst all the tests were carried out i can say now

> > over the last 2 months my wife has put on 2KG in weight not a lot but this

is

>

> > better than still loosing weight. Our friends and family continue to help

and

>

> > support her in any way they can. BIG THANKS to them all i would be lost

>without

>

> >

> > this help.

> > I wish all who have this the best possible life they can have. As an

onlooker

>i

>

> >

> > can see the effects in both pain and mind that you all go through.

> > All my best to you all

> > Daveyb

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

That sounds like the last test Lorrain had. With what you had is that permanant

or are you still monitered on a regular basis ?. Also glad to hear you eat a lot

better as well.

Daveyb

> > >

> > > Hello Daveyb,

> > >

> > > Sorry to hear about your wife and her situation with achalasia. 

Yes it is

> >a

> >

> > > very hard thing to deal with, as she is finding out.  BUT, please

educate

>

> > > yourself on this disease.  I have had it for 22yrs!  The

biggest

> >concern is

> >

> > >that

> > >

> > > over time without some type of relief to the lower spincter, the esophagus

> >can

> >

> >

> > > dilate over time and that can make things MUCH worse.  It's

important to

> > > remember that achalasia means that the esophagus is " DEAD " and no longer

has

>

> > >any

> > >

> > > motility...therefore food will accumulate and stretch the esophagus over

> > >time. 

> > >

> > > Please keep that in mind, as the most important thing.  She needs

to get

> >some

> >

> >

> > > type of help. 

> > >

> > >

> > > Most types of help are either " pneumatic dilation " which is also called

the

> > > balloon dilation, or a Hellers Myotomy.  This

group can offer you

> > >testimonies of

> > >

> > > both.  Finding an expert doctor who deals with achalasia is also

extremely

> >

> > > important for good results.  Sorry to say that Aloe Veria juice

though it

> >may

> >

> >

> > > comfort for a bit, won't work for this disease. 

> > >

> > >

> > > Best regards, Julee So Calif. 

> > >

> > >

> > >  

> > >

> > >

> > >

> > > ________________________________

> > > From: " d_r_electrical@ " <d_r_electrical@>

> > > achalasia

> > > Sent: Sun, September 5, 2010 2:43:41 AM

> > > Subject: My wife has been diagnosed

> > >

> > >  

> > > Hi Everyone

> > > My wife has finally been diagnosed after 8 months of tests

> > > And a specialist who knocked her back as a routeen patient " due to no

cancer

>

> > > seen " was the excuse given.

> > > It is very hard on my wife to talk about this and now she is going through

> >all

> >

> >

> > > sorts of emotions and has good/bad days with this as well

> > > Friends and me have talked her into taking Alo Veria Juice every day

> > > It " seems " to help so we keep on for her to take it every day

> > > I was shocked to learn how many pepole are affected by this 1=100,000 so

> > > research says. A very rare thing indeed. The options for cure are limited.

> >Just

> >

> > >

> > > " quick or partial fixes "

> > > Having lost over 4 stone whilst all the tests were carried out i can say

now

>

> > > over the last 2 months my wife has put on 2KG in weight not a lot but this

is

> >

> > > better than still loosing weight. Our friends and family continue to help

and

> >

> > > support her in any way they can. BIG THANKS to them all i would be lost

> >without

> >

> > >

> > > this help.

> > > I wish all who have this the best possible life they can have. As an

onlooker

> >i

> >

> > >

> > > can see the effects in both pain and mind that you all go through.

> > > All my best to you all

> > > Daveyb

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Daveyb,

The surgery is permanent!  You can look it up and read about it.  All other

treatments are usually temporary, and these other treatments " can " affect the

outcome of surgery...so be careful.  Many times if botox is used, surgery could

be compromised.  That is why I say research it and ask an EXPERT doctor that

treats many cases of achalasia...no novice.  

The surgery is not that bad at all, they are done laprascopically which means

usually a one night stay and rest for a week or 10 days at the most.  I feel

wonderful. 

Julee, So Calif. 

________________________________

From: " d_r_electrical@... " <d_r_electrical@...>

achalasia

Sent: Sun, September 5, 2010 12:39:06 PM

Subject: Re: My wife has been diagnosed

 

That sounds like the last test Lorrain had. With what you had is that permanant

or are you still monitered on a regular basis ?. Also glad to hear you eat a lot

better as well.

Daveyb

> > >

> > > Hello Daveyb,

> > >

> > > Sorry to hear about your wife and her situation with

achalasia. 

>Yes it is

>

> >a

> >

> > > very hard thing to deal with, as she is finding out. 

BUT, please

>educate

>

>

> > > yourself on this disease.  I have had it for

22yrs!  The

>biggest

>

> >concern is

> >

> > >that

> > >

> > > over time without some type of relief to the lower spincter, the esophagus

> >can

> >

> >

> > > dilate over time and that can make things MUCH worse. 

It's

>important to

>

> > > remember that achalasia means that the esophagus is " DEAD " and no longer

>has

>

>

> > >any

> > >

> > > motility...therefore food will accumulate and stretch the esophagus over

> > >time. 

> > >

> > > Please keep that in mind, as the most important thing. 

She needs

>to get

>

> >some

> >

> >

> > > type of help. 

> > >

> > >

> > > Most types of help are either " pneumatic dilation " which is also called

the

>

> > > balloon dilation, or a Hellers

Myotomy.  This group

>can offer you

>

> > >testimonies of

> > >

> > > both.  Finding an expert doctor who deals with

achalasia is also

>extremely

>

> >

> > > important for good results.  Sorry to say that Aloe

Veria juice

>though it

>

> >may

> >

> >

> > > comfort for a bit, won't work for this disease. 

> > >

> > >

> > > Best regards, Julee So Calif. 

> > >

> > >

> > >  

> > >

> > >

> > >

> > > ________________________________

> > > From: " d_r_electrical@ " <d_r_electrical@>

> > > achalasia

> > > Sent: Sun, September 5, 2010 2:43:41 AM

> > > Subject: My wife has been diagnosed

> > >

> > >  

> > > Hi Everyone

> > > My wife has finally been diagnosed after 8 months of tests

> > > And a specialist who knocked her back as a routeen patient " due to no

>cancer

>

>

> > > seen " was the excuse given.

> > > It is very hard on my wife to talk about this and now she is going through

> >all

> >

> >

> > > sorts of emotions and has good/bad days with this as well

> > > Friends and me have talked her into taking Alo Veria Juice every day

> > > It " seems " to help so we keep on for her to take it every day

> > > I was shocked to learn how many pepole are affected by this 1=100,000 so

> > > research says. A very rare thing indeed. The options for cure are limited.

> >Just

> >

> > >

> > > " quick or partial fixes "

> > > Having lost over 4 stone whilst all the tests were carried out i can say

>now

>

>

> > > over the last 2 months my wife has put on 2KG in weight not a lot but this

>is

>

> >

> > > better than still loosing weight. Our friends and family continue to help

>and

>

> >

> > > support her in any way they can. BIG THANKS to them all i would be lost

> >without

> >

> > >

> > > this help.

> > > I wish all who have this the best possible life they can have. As an

>onlooker

>

> >i

> >

> > >

> > > can see the effects in both pain and mind that you all go through.

> > > All my best to you all

> > > Daveyb

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Julee, it's such great news that your surgery was a success. Very encouraging

for all of us waiting & I'm sorry you suffered so long.

Best to you, Susie

>

> Daveyb,

> The surgery is permanent!  You can look it up and read about it.  All other

> treatments are usually temporary, and these other treatments " can " affect the

> outcome of surgery...so be careful.  Many times if botox is used, surgery

could

> be compromised.  That is why I say research it and ask an EXPERT doctor that

> treats many cases of achalasia...no novice.  

>

>

> The surgery is not that bad at all, they are done laprascopically which means

> usually a one night stay and rest for a week or 10 days at the most.  I feel

> wonderful. 

>

>

> Julee, So Calif. 

>

[Guest guest]

The surgery is not permanent, but it does produce the longest lasting successful

result of the 3 treatments.

" Montoya " <medhelpinfo@...> wrote:

>Daveyb,

>The surgery is permanent!  You can look it up and read about it.  All other

>treatments are usually temporary, and these other treatments " can " affect the

>outcome of surgery...so be careful.  Many times if botox is used, surgery

could

>be compromised.  That is why I say research it and ask an EXPERT doctor that

>treats many cases of achalasia...no novice.  

>

>

>The surgery is not that bad at all, they are done laprascopically which means

>usually a one night stay and rest for a week or 10 days at the most.  I feel

>wonderful. 

>

>

>Julee, So Calif. 

>

>

>

>

>________________________________

>From: " d_r_electrical@... " <d_r_electrical@...>

>achalasia

>Sent: Sun, September 5, 2010 12:39:06 PM

>Subject: Re: My wife has been diagnosed

>

> 

>That sounds like the last test Lorrain had. With what you had is that permanant

>or are you still monitered on a regular basis ?. Also glad to hear you eat a

lot

>better as well.

>

>Daveyb

>

>

>> > >

>> > > Hello Daveyb,

>> > >

>> > > Sorry to hear about your wife and her situation with

achalasia. 

>>Yes it is

>>

>> >a

>> >

>> > > very hard thing to deal with, as she is finding out. 

BUT, please

>>educate

>>

>>

>> > > yourself on this disease.  I have had it for

22yrs!  The

>>biggest

>>

>> >concern is

>> >

>> > >that

>> > >

>> > > over time without some type of relief to the lower spincter, the

esophagus

>

>> >can

>> >

>> >

>> > > dilate over time and that can make things MUCH worse. 

It's

>>important to

>>

>> > > remember that achalasia means that the esophagus is " DEAD " and no longer

>>has

>>

>>

>> > >any

>> > >

>> > > motility...therefore food will accumulate and stretch the esophagus over

>> > >time. 

>> > >

>> > > Please keep that in mind, as the most important

thing.  She needs

>>to get

>>

>> >some

>> >

>> >

>> > > type of help. 

>> > >

>> > >

>> > > Most types of help are either " pneumatic dilation " which is also called

the

>>

>> > > balloon dilation, or a Hellers

Myotomy.  This group

>>can offer you

>>

>> > >testimonies of

>> > >

>> > > both.  Finding an expert doctor who deals with

achalasia is also

>>extremely

>>

>> >

>> > > important for good results.  Sorry to say that Aloe

Veria juice

>>though it

>>

>> >may

>> >

>> >

>> > > comfort for a bit, won't work for this disease. 

>> > >

>> > >

>> > > Best regards, Julee So Calif. 

>> > >

>> > >

>> > >  

>> > >

>> > >

>> > >

>> > > ________________________________

>> > > From: " d_r_electrical@ " <d_r_electrical@>

>> > > achalasia

>> > > Sent: Sun, September 5, 2010 2:43:41 AM

>> > > Subject: My wife has been diagnosed

>> > >

>> > >  

>> > > Hi Everyone

>> > > My wife has finally been diagnosed after 8 months of tests

>> > > And a specialist who knocked her back as a routeen patient " due to no

>>cancer

>>

>>

>> > > seen " was the excuse given.

>> > > It is very hard on my wife to talk about this and now she is going

through

>

>> >all

>> >

>> >

>> > > sorts of emotions and has good/bad days with this as well

>> > > Friends and me have talked her into taking Alo Veria Juice every day

>> > > It " seems " to help so we keep on for her to take it every day

>> > > I was shocked to learn how many pepole are affected by this 1=100,000 so

>> > > research says. A very rare thing indeed. The options for cure are

limited.

>

>> >Just

>> >

>> > >

>> > > " quick or partial fixes "

>> > > Having lost over 4 stone whilst all the tests were carried out i can say

>>now

>>

>>

>> > > over the last 2 months my wife has put on 2KG in weight not a lot but

this

>>is

>>

>> >

>> > > better than still loosing weight. Our friends and family continue to help

>>and

>>

>> >

>> > > support her in any way they can. BIG THANKS to them all i would be lost

>> >without

>> >

>> > >

>> > > this help.

>> > > I wish all who have this the best possible life they can have. As an

>>onlooker

>>

>> >i

>> >

>> > >

>> > > can see the effects in both pain and mind that you all go through.

>> > > All my best to you all

>> > > Daveyb

>> > >

>> > >

>> > >

>> > >

>> > >

>> > >

>> > >

>> > >

[Guest guest]

Tell your wife to hang in there.  DIfferent things work for different people. 

For me, a drug called LEVBID worked WONDERS until I had my surgery.  Once you

start it (twice a day) the relief will come in about 3 or 4 days and then should

stay as long as you maintain the therapy.  The other beneift is that it dries

up bodily secretions so no more nighttime aspiration.

 

Tell her to remember that although this is an unkind disease, it is not a

fatal disease.  It can be managed through a number of options, but ultimately

surgery will enter the picture.

 

Like everything else opposing you in life, face it head on.  Take it by the

throat and bend it to YOUR will.  She can do it, as evidenced by the people on

this board.

 

We will all be around to support her if she wants it.

 

Best,

 

 

From: d_r_electrical@... <d_r_electrical@...>

Subject: My wife has been diagnosed

achalasia

Date: Sunday, September 5, 2010, 4:43 AM

 

Hi Everyone

My wife has finally been diagnosed after 8 months of tests

And a specialist who knocked her back as a routeen patient " due to no cancer

seen " was the excuse given.

It is very hard on my wife to talk about this and now she is going through all

sorts of emotions and has good/bad days with this as well

Friends and me have talked her into taking Alo Veria Juice every day

It " seems " to help so we keep on for her to take it every day

I was shocked to learn how many pepole are affected by this 1=100,000 so

research says. A very rare thing indeed. The options for cure are limited. Just

" quick or partial fixes "

Having lost over 4 stone whilst all the tests were carried out i can say now

over the last 2 months my wife has put on 2KG in weight not a lot but this is

better than still loosing weight. Our friends and family continue to help and

support her in any way they can. BIG THANKS to them all i would be lost without

this help.

I wish all who have this the best possible life they can have. As an onlooker i

can see the effects in both pain and mind that you all go through.

All my best to you all

Daveyb

[Guest guest]

_Click here: Achalasia_

(http://my.clevelandclinic.org/disorders/achalasia/ts_overview.aspx)

The link above will take you to a better explanation of Achalasia, the test

and the treatments. I found this on the Cleveland Clinic site and I

suspect they have as many or more patients with achalasia than most other

hospitals

Please read it carefully, especially the part about there being no

permanent cure

and the part about dysphagia. I think this will also give you a better

understanding of the terminology.

I have had no experience with the Aloe Vera juice, but I do know that your

wife could reach the stage where she might be unable to even swallow that.

Before I had my dilation, I could not even keep water down. I may have

missed part of your

mails, but please if you are not already seeing a doctor with a lot of

experience with achalasia, please get her to one before it gets worse than it

is.

I am sure there are others here that could send you some websites that

might be written in layman's language.

My best to you both,

Maggie

[Guest guest]

Hi DaveyB

I'm in the Uk there are quite a few of us in this group from the UK I to had to

wait over 8 months before I finally got the right diagnosis. Went to my GP in

December 2005 had tests in July and August and finally got my answers in

September 2006 when I had an open Myotomy.

I thought there was a list of Surgeons from the US and Uk in the file section

here in the group but can't find it right now there are several consultants in

the uk who know a lot about Achalasia.

Where abouts in the Uk are you?

You can asked to be referred to other consultants in the UK if you want GPs

don't like you asking but its your right to seek more than one opionon on

treatment.

Pippa (UK)

>

> Hi Everyone

> My wife has finally been diagnosed after 8 months of tests

> And a specialist who knocked her back as a routeen patient " due to no cancer

seen " was the excuse given.

> It is very hard on my wife to talk about this and now she is going through all

sorts of emotions and has good/bad days with this as well

> Friends and me have talked her into taking Alo Veria Juice every day

> It " seems " to help so we keep on for her to take it every day

> I was shocked to learn how many pepole are affected by this 1=100,000 so

research says. A very rare thing indeed. The options for cure are limited. Just

" quick or partial fixes "

> Having lost over 4 stone whilst all the tests were carried out i can say now

over the last 2 months my wife has put on 2KG in weight not a lot but this is

better than still loosing weight. Our friends and family continue to help and

support her in any way they can. BIG THANKS to them all i would be lost without

this help.

> I wish all who have this the best possible life they can have. As an onlooker

i can see the effects in both pain and mind that you all go through.

> All my best to you all

> Daveyb

>

[Guest guest]

Notan

that is beautiful. It brought tears to my eyes. Thank goodness for those

patient and understanding spouses/significant others who stand by us. thank

you.

Take heed all ye A's and A-supporters!

in SB

In a message dated 9/6/2010 11:17:45 P.M. Pacific Daylight Time,

notan_ostrich@... writes:

Davey wrote:

> Hi Everyone

>

Hi, welcome to the group.

> It is very hard on my wife to talk about this and now she is going

through all sorts of emotions and has good/bad days with this as well

> Friends and me have talked her into taking Alo Veria Juice every day

>

I hope she is glad for the help. Often what we get from others is advice

that is useless. It may have worked for someone, or at least they

thought it did, but often those things don't work for all of us and it

gets old being told what we should try. Don't get me wrong. One of the

reasons for this group is so we can share those things that we find help

or we think they do. But often in the other parts of our lives we don't

want to hear about achalasia or be told we need to do something specific

about it. When we are having trouble swallowing we just want everyone

else there to just ignore us unless we indicate we want help, which is

almost never. We especially don't want others to tell us what to eat or

not to eat. Just because there was a day when I had some trouble with a

certain food does not mean today is going to be the same.

More important than having our loved ones solve the achalasia problem is

that they love us when; it makes us crazy, or we don't want to go out

for dinner, or we avoid social events with food, or we make disgusting

noises and action while eating that may embarrass them, and when

achalasia takes up so much of our lives that it seems like everything is

about us. Believe we are doing our best when we say we are.

Hopefully she will get treatment soon that makes her as good as new, but

be prepared for this to last much longer than you would think and to not

let you forget it is still there even when things are good.

When you look at the options for treatment you will wish you could

provide something else for her. Don't let it make you crazy. There is an

option for her. It may not be perfect. It may be complicated working

with the system to get it. It may be confusing. It may be scary. There

is an option for her. We can tell you which options we chose. We don't

know which is the one for her.

As a man I am sure you would like to be in the driver's seat at this

time. Sometimes we need to just share the ride.

I don't know you so don't take any of this too personally. It is just my

2 cents for anyone in your shoes. It may not even be worth that much.

> I was shocked to learn how many pepole are affected by this 1=100,000

> so research says.

There are two numbers about how common achalasia is. That is one the

other is 1 in 10,000. 1/10,000 is how many people in a large population

have it. 1/100,000 is how many new cases in a year their are for a large

population. In other words, in the US there are probably something like

30,000 people with it and there will be about 3000 new cases each year.

It is considered rare.

One more thing, relax. I hope in time you will look back and think it

doesn't look nearly as bad from the other side of treatment. That is

what many find.

notan

[Guest guest]

Davey wrote:

> Hi Everyone

>

Hi, welcome to the group.

> It is very hard on my wife to talk about this and now she is going through all

sorts of emotions and has good/bad days with this as well

> Friends and me have talked her into taking Alo Veria Juice every day

>

I hope she is glad for the help. Often what we get from others is advice

that is useless. It may have worked for someone, or at least they

thought it did, but often those things don't work for all of us and it

gets old being told what we should try. Don't get me wrong. One of the

reasons for this group is so we can share those things that we find help

or we think they do. But often in the other parts of our lives we don't

want to hear about achalasia or be told we need to do something specific

about it. When we are having trouble swallowing we just want everyone

else there to just ignore us unless we indicate we want help, which is

almost never. We especially don't want others to tell us what to eat or

not to eat. Just because there was a day when I had some trouble with a

certain food does not mean today is going to be the same.

More important than having our loved ones solve the achalasia problem is

that they love us when; it makes us crazy, or we don't want to go out

for dinner, or we avoid social events with food, or we make disgusting

noises and action while eating that may embarrass them, and when

achalasia takes up so much of our lives that it seems like everything is

about us. Believe we are doing our best when we say we are.

Hopefully she will get treatment soon that makes her as good as new, but

be prepared for this to last much longer than you would think and to not

let you forget it is still there even when things are good.

When you look at the options for treatment you will wish you could

provide something else for her. Don't let it make you crazy. There is an

option for her. It may not be perfect. It may be complicated working

with the system to get it. It may be confusing. It may be scary. There

is an option for her. We can tell you which options we chose. We don't

know which is the one for her.

As a man I am sure you would like to be in the driver's seat at this

time. Sometimes we need to just share the ride.

I don't know you so don't take any of this too personally. It is just my

2 cents for anyone in your shoes. It may not even be worth that much.

> I was shocked to learn how many pepole are affected by this 1=100,000

> so research says.

There are two numbers about how common achalasia is. That is one the

other is 1 in 10,000. 1/10,000 is how many people in a large population

have it. 1/100,000 is how many new cases in a year their are for a large

population. In other words, in the US there are probably something like

30,000 people with it and there will be about 3000 new cases each year.

It is considered rare.

One more thing, relax. I hope in time you will look back and think it

doesn't look nearly as bad from the other side of treatment. That is

what many find.

notan

[Guest guest]

Hi Pippa we are south east UK. Have been looking around for surgen here not

found yet. Will do more searching on the net thanks Davyb

> >

> > Hi Everyone

> > My wife has finally been diagnosed after 8 months of tests

> > And a specialist who knocked her back as a routeen patient " due to no cancer

seen " was the excuse given.

> > It is very hard on my wife to talk about this and now she is going through

all sorts of emotions and has good/bad days with this as well

> > Friends and me have talked her into taking Alo Veria Juice every day

> > It " seems " to help so we keep on for her to take it every day

> > I was shocked to learn how many pepole are affected by this 1=100,000 so

research says. A very rare thing indeed. The options for cure are limited. Just

" quick or partial fixes "

> > Having lost over 4 stone whilst all the tests were carried out i can say now

over the last 2 months my wife has put on 2KG in weight not a lot but this is

better than still loosing weight. Our friends and family continue to help and

support her in any way they can. BIG THANKS to them all i would be lost without

this help.

> > I wish all who have this the best possible life they can have. As an

onlooker i can see the effects in both pain and mind that you all go through.

> > All my best to you all

> > Daveyb

> >

>

[Guest guest]

Hi

Havent been around for a while

Update my wife still is holding her own with the weight

So happy about this

But she still wont read about this so still working on her to get on here and

talk to you

She still has good / bad days

Making the best of it and keeping upbeat

All my best to you all and keep strong

Daveyb

>

> Hi Everyone

> My wife has finally been diagnosed after 8 months of tests

> And a specialist who knocked her back as a routeen patient " due to no cancer

seen " was the excuse given.

> It is very hard on my wife to talk about this and now she is going through all

sorts of emotions and has good/bad days with this as well

> Friends and me have talked her into taking Alo Veria Juice every day

> It " seems " to help so we keep on for her to take it every day

> I was shocked to learn how many pepole are affected by this 1=100,000 so

research says. A very rare thing indeed. The options for cure are limited. Just

" quick or partial fixes "

> Having lost over 4 stone whilst all the tests were carried out i can say now

over the last 2 months my wife has put on 2KG in weight not a lot but this is

better than still loosing weight. Our friends and family continue to help and

support her in any way they can. BIG THANKS to them all i would be lost without

this help.

> I wish all who have this the best possible life they can have. As an onlooker

i can see the effects in both pain and mind that you all go through.

> All my best to you all

> Daveyb

>

[Guest guest]

Hi everyone

Well another year and we still living with this

My wife has had a few checkups at hospital

She tries different things to eat which i am glad to see

She has sort of maintained her weight with ups and downs

The dietatian at hospital seems happy with this also.

Her GP is very distant toward this help is not forth coming at all

Having lived with my wife with this condition now i find it is very life

restricting for the person who has it, also for family members as well

Being unable to say in advance about " going out " for an evening with friends and

family, not knowing how that person " feels " on a day to day basis.

She has taken to liquidising her morning bananna into a milkshake and this works

well for her.

She eats small and as often as possible during the day.

Cut of time for eating is now 5pm which we make our eating time at home now.

She has the Ensure as backup. She loves the choc one.

I keep getting the updates from here and it makes great reading, i try to tell

her but still she does not want to know.

I would like to wish everyone here a great 2011 and to say keep strong and dont

let it get you down.

All my best

Daveyb

> > >

> > > Hi Everyone

> > > My wife has finally been diagnosed after 8 months of tests

> > > And a specialist who knocked her back as a routeen patient " due to no

cancer seen " was the excuse given.

> > > It is very hard on my wife to talk about this and now she is going through

all sorts of emotions and has good/bad days with this as well

> > > Friends and me have talked her into taking Alo Veria Juice every day

> > > It " seems " to help so we keep on for her to take it every day

> > > I was shocked to learn how many pepole are affected by this 1=100,000 so

research says. A very rare thing indeed. The options for cure are limited. Just

" quick or partial fixes "

> > > Having lost over 4 stone whilst all the tests were carried out i can say

now over the last 2 months my wife has put on 2KG in weight not a lot but this

is better than still loosing weight. Our friends and family continue to help and

support her in any way they can. BIG THANKS to them all i would be lost without

this help.

> > > I wish all who have this the best possible life they can have. As an

onlooker i can see the effects in both pain and mind that you all go through.

> > > All my best to you all

> > > Daveyb

> > >

> >

>

[Guest guest]

Happy New Year Daveyb! 

You are being very supportive to your wife, I'm sure she appreciates it more

than you know.  It took me a REALLY long time to make progress towards getting

the help I needed, I suffered for 22yrs so I can fully understand.  Hopefully,

she will come to the point that she is sick and tired of it and will move

forward and start talking to some surgeons and see what could be done???  It's

all step by step, and very scary.  Hang in there, glad that you are here and

able to read and feel some understanding.  Let us know if there is anything we

can do? 

Best regards, Julee So Calif.

________________________________

From: " d_r_electrical@... " <d_r_electrical@...>

achalasia

Sent: Mon, January 3, 2011 1:41:44 PM

Subject: Re: My wife has been diagnosed

 

Hi everyone

Well another year and we still living with this

My wife has had a few checkups at hospital

She tries different things to eat which i am glad to see

She has sort of maintained her weight with ups and downs

The dietatian at hospital seems happy with this also.

Her GP is very distant toward this help is not forth coming at all

Having lived with my wife with this condition now i find it is very life

restricting for the person who has it, also for family members as well

Being unable to say in advance about " going out " for an evening with friends and

family, not knowing how that person " feels " on a day to day basis.

She has taken to liquidising her morning bananna into a milkshake and this works

well for her.

She eats small and as often as possible during the day.

Cut of time for eating is now 5pm which we make our eating time at home now.

She has the Ensure as backup. She loves the choc one.

I keep getting the updates from here and it makes great reading, i try to tell

her but still she does not want to know.

I would like to wish everyone here a great 2011 and to say keep strong and dont

let it get you down.

All my best

Daveyb

> > >

> > > Hi Everyone

> > > My wife has finally been diagnosed after 8 months of tests

> > > And a specialist who knocked her back as a routeen patient " due to no

>cancer seen " was the excuse given.

> > > It is very hard on my wife to talk about this and now she is going through

>all sorts of emotions and has good/bad days with this as well

> > > Friends and me have talked her into taking Alo Veria Juice every day

> > > It " seems " to help so we keep on for her to take it every day

> > > I was shocked to learn how many pepole are affected by this 1=100,000 so

>research says. A very rare thing indeed. The options for cure are limited. Just

> " quick or partial fixes "

> > > Having lost over 4 stone whilst all the tests were carried out i can say

>now over the last 2 months my wife has put on 2KG in weight not a lot but this

>is better than still loosing weight. Our friends and family continue to help

and

>support her in any way they can. BIG THANKS to them all i would be lost without

>this help.

> > > I wish all who have this the best possible life they can have. As an

>onlooker i can see the effects in both pain and mind that you all go through.

> > > All my best to you all

> > > Daveyb

> > >

> >

>

[Guest guest]

Hi Everyone

Well we have moved forward with getting my wife to talk about this

It has brought her down so much it has come to that point of needing help to

cope with this

I took her to see her GP today, and plans to see a counciler and other things

organised as well have been put into place

Hopefully she will open up even more now and get the help she clearly needs

She has the same weight as when she came out of hospital in september 2010 which

i am very happy about

I will show her this forum and let her decide how she wants to go forward

She did say she would like to talk to others who have this, people who

understand what she goes through every day

If anyone feels this way e mail me so i can pass it on to her

As ever all my best to you all

Daveyb

> > > >

> > > > Hi Everyone

> > > > My wife has finally been diagnosed after 8 months of tests

> > > > And a specialist who knocked her back as a routeen patient " due to no

cancer seen " was the excuse given.

> > > > It is very hard on my wife to talk about this and now she is going

through all sorts of emotions and has good/bad days with this as well

> > > > Friends and me have talked her into taking Alo Veria Juice every day

> > > > It " seems " to help so we keep on for her to take it every day

> > > > I was shocked to learn how many pepole are affected by this 1=100,000 so

research says. A very rare thing indeed. The options for cure are limited. Just

" quick or partial fixes "

> > > > Having lost over 4 stone whilst all the tests were carried out i can say

now over the last 2 months my wife has put on 2KG in weight not a lot but this

is better than still loosing weight. Our friends and family continue to help and

support her in any way they can. BIG THANKS to them all i would be lost without

this help.

> > > > I wish all who have this the best possible life they can have. As an

onlooker i can see the effects in both pain and mind that you all go through.

> > > > All my best to you all

> > > > Daveyb

> > > >

> > >

> >

>

[Guest guest]

Hi Notan

So sorry i did not reply to you eariler

I fully understand your wise comments here

I did as you say try to " tell " Lorrain what to eat and how to live

True i did not get it at all

Now after a year i do get it

Lorrain has a very good idea what she will eat and when

Also how to pace her day out

As her husband i do worry a lot but put that worry to the back burner for me to

sort out " later " lol

I live for her and do everything i can to make life easy for her

I have learned to listen a lot and take it in from Lorrain

I feel so lucky that Lorrain is now opening up a bit as denial and not accepting

the condition has brought her down so much

Today feels like a new start for Lorrain and i hope it florishes for her

As always my best to everyone

Daveyb

>

> > Hi Everyone

> >

>

> Hi, welcome to the group.

>

> > It is very hard on my wife to talk about this and now she is going through

all sorts of emotions and has good/bad days with this as well

> > Friends and me have talked her into taking Alo Veria Juice every day

> >

>

> I hope she is glad for the help. Often what we get from others is advice

> that is useless. It may have worked for someone, or at least they

> thought it did, but often those things don't work for all of us and it

> gets old being told what we should try. Don't get me wrong. One of the

> reasons for this group is so we can share those things that we find help

> or we think they do. But often in the other parts of our lives we don't

> want to hear about achalasia or be told we need to do something specific

> about it. When we are having trouble swallowing we just want everyone

> else there to just ignore us unless we indicate we want help, which is

> almost never. We especially don't want others to tell us what to eat or

> not to eat. Just because there was a day when I had some trouble with a

> certain food does not mean today is going to be the same.

>

> More important than having our loved ones solve the achalasia problem is

> that they love us when; it makes us crazy, or we don't want to go out

> for dinner, or we avoid social events with food, or we make disgusting

> noises and action while eating that may embarrass them, and when

> achalasia takes up so much of our lives that it seems like everything is

> about us. Believe we are doing our best when we say we are.

>

> Hopefully she will get treatment soon that makes her as good as new, but

> be prepared for this to last much longer than you would think and to not

> let you forget it is still there even when things are good.

>

> When you look at the options for treatment you will wish you could

> provide something else for her. Don't let it make you crazy. There is an

> option for her. It may not be perfect. It may be complicated working

> with the system to get it. It may be confusing. It may be scary. There

> is an option for her. We can tell you which options we chose. We don't

> know which is the one for her.

>

> As a man I am sure you would like to be in the driver's seat at this

> time. Sometimes we need to just share the ride.

>

> I don't know you so don't take any of this too personally. It is just my

> 2 cents for anyone in your shoes. It may not even be worth that much.

>

> > I was shocked to learn how many pepole are affected by this 1=100,000

> > so research says.

>

> There are two numbers about how common achalasia is. That is one the

> other is 1 in 10,000. 1/10,000 is how many people in a large population

> have it. 1/100,000 is how many new cases in a year their are for a large

> population. In other words, in the US there are probably something like

> 30,000 people with it and there will be about 3000 new cases each year.

> It is considered rare.

>

> One more thing, relax. I hope in time you will look back and think it

> doesn't look nearly as bad from the other side of treatment. That is

> what many find.

>

> notan

>

[Guest guest]

hey Daveyb - I would suggest to her that she come here and read some posts for

awhile - that way she can read all she wants, learn and gather support for it

and then when she's ready, she can post and say hi! If there is someone specific

she would like to post to - you can click on the 'send email' link to that

person specifically.

If it's easier to start with one person, she is welcome to email me - my

personal email is mcnairmichelle @ aol.com (take out the spaces)

I hope she comes by - it opens up a whole new world when you find so many people

who really GET it!!

~ in NC

> > > > >

> > > > > Hi Everyone

> > > > > My wife has finally been diagnosed after 8 months of tests

> > > > > And a specialist who knocked her back as a routeen patient " due to no

cancer seen " was the excuse given.

> > > > > It is very hard on my wife to talk about this and now she is going

through all sorts of emotions and has good/bad days with this as well

> > > > > Friends and me have talked her into taking Alo Veria Juice every day

> > > > > It " seems " to help so we keep on for her to take it every day

> > > > > I was shocked to learn how many pepole are affected by this 1=100,000

so research says. A very rare thing indeed. The options for cure are limited.

Just " quick or partial fixes "

> > > > > Having lost over 4 stone whilst all the tests were carried out i can

say now over the last 2 months my wife has put on 2KG in weight not a lot but

this is better than still loosing weight. Our friends and family continue to

help and support her in any way they can. BIG THANKS to them all i would be lost

without this help.

> > > > > I wish all who have this the best possible life they can have. As an

onlooker i can see the effects in both pain and mind that you all go through.

> > > > > All my best to you all

> > > > > Daveyb

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Dear Davyb,

It is interesting we all feel the same about outsiders suggesting what we can

eat, and it is annoying. In this group it isn't annoying.

Achalasia can be depressing. One of the most helpful things ever to many here

is to meet in person. There is a relaxation as soon as you meet someone else.

No matter the different backgrounds or any other differences, there is just a

calm feeling that comes from seeing and talking to someone else. Much like one

pregnant woman running into another in the grocery store, there is an instant

bond. Perhaps one of us lives close by and could meet your wife, even if just

for a moment and maybe they will click. Tell us again where you live, and maybe

mention some interests your wife has and maybe one of us can help.

I've had the privilege of meeting about 10 or so of us in person, from 14 years

old to 70's, they are forever close to me, no matter what, even though we may

not talk for a few years. That is the good side of achalasia. Many others

share that feeling, once they make the connection. Your wife may find some

comfort in getting to know us, maybe in person is easier than coming here.

Sandy

> > > > >

> > > > > Hi Everyone

> > > > > My wife has finally been diagnosed after 8 months of tests

> > > > > And a specialist who knocked her back as a routeen patient " due to no

cancer seen " was the excuse given.

> > > > > It is very hard on my wife to talk about this and now she is going

through all sorts of emotions and has good/bad days with this as well

> > > > > Friends and me have talked her into taking Alo Veria Juice every day

> > > > > It " seems " to help so we keep on for her to take it every day

> > > > > I was shocked to learn how many pepole are affected by this 1=100,000

so research says. A very rare thing indeed. The options for cure are limited.

Just " quick or partial fixes "

> > > > > Having lost over 4 stone whilst all the tests were carried out i can

say now over the last 2 months my wife has put on 2KG in weight not a lot but

this is better than still loosing weight. Our friends and family continue to

help and support her in any way they can. BIG THANKS to them all i would be lost

without this help.

> > > > > I wish all who have this the best possible life they can have. As an

onlooker i can see the effects in both pain and mind that you all go through.

> > > > > All my best to you all

> > > > > Daveyb

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Always willing to talk to someone and help in any way!  As Sandy said, it

really

helps to just talk to someone who can relate! 

Julee So Calif.

________________________________

From: " d_r_electrical@... " <d_r_electrical@...>

achalasia

Sent: Thu, January 13, 2011 4:17:20 AM

Subject: Re: My wife has been diagnosed

 

Hi Everyone

Well we have moved forward with getting my wife to talk about this

It has brought her down so much it has come to that point of needing help to

cope with this

I took her to see her GP today, and plans to see a counciler and other things

organised as well have been put into place

Hopefully she will open up even more now and get the help she clearly needs

She has the same weight as when she came out of hospital in september 2010 which

i am very happy about

I will show her this forum and let her decide how she wants to go forward

She did say she would like to talk to others who have this, people who

understand what she goes through every day

If anyone feels this way e mail me so i can pass it on to her

As ever all my best to you all

Daveyb

> > > >

> > > > Hi Everyone

> > > > My wife has finally been diagnosed after 8 months of tests

> > > > And a specialist who knocked her back as a routeen patient " due to no

>cancer seen " was the excuse given.

> > > > It is very hard on my wife to talk about this and now she is going

>through all sorts of emotions and has good/bad days with this as well

> > > > Friends and me have talked her into taking Alo Veria Juice every day

> > > > It " seems " to help so we keep on for her to take it every day

> > > > I was shocked to learn how many pepole are affected by this 1=100,000 so

>research says. A very rare thing indeed. The options for cure are limited. Just

> " quick or partial fixes "

> > > > Having lost over 4 stone whilst all the tests were carried out i can say

>now over the last 2 months my wife has put on 2KG in weight not a lot but this

>is better than still loosing weight. Our friends and family continue to help

and

>support her in any way they can. BIG THANKS to them all i would be lost without

>this help.

> > > > I wish all who have this the best possible life they can have. As an

>onlooker i can see the effects in both pain and mind that you all go through.

> > > > All my best to you all

> > > > Daveyb

> > > >

> > >

> >

>