Vicky

[Guest guest]

Thanks for the great words of encouragement. You

are right. I do know all that, but I guess it

still leaves me shaking my head in wonderment.

Makes me cringe too to think at some point I

might have been as stupid with someone. We'll be

fine this weekend, I'm sure. I think I feel a bit

creeped out about it all, and I do have a hyper

imagination sometimes. Pre-Worry! Becca

--- " Vicky P. " <gypsystar513@...> wrote:

>

> Hi Becca, you just had the answer in front of

> you.... This " friend " obviously not only can

> not understand what happened and happens to

> you, and will not try to , in order to support

> you and listen, really listen and cope along

> with you, as that is what you need from friends

> and people around you . Sometimes people can't

> cope for whatever reasons, and that is when you

> see true values of who will be there no matter

> what because that is what it is all about. If

> you can not receive understanding, caring, even

> some advise from a friend, then the way they

> can burden you by not really being there unless

> you can offer the carefree " friendship " , you

> don't need that now do you?.... It's not how

> many apples are in your basket, it's how many

> are really golden red (so to speak).... Don't

> let it get you down, there are people out there

> who even if they don't go through what you do,

> they will be there in all ways they can, it's

> just another way to see what is out there, and

> close to you, just keep your chin up at all

> times...

> On another note, good strength, paitence and

> power to you with your trip, hope it turns out

> for the best for you and your husband, and if

> not as much as you expect happens don't worry

> it will happen (come back to you ) when you are

> ready... I wish the very best Becca.... My

> guardian angel shall visit you and blow a kiss

> of strength and love as well as power, they

> think I'm nuts with my sayings, but it's true

> and that's the majic. Be well Becca

> Be Well, Good Heart, Many Smiles Vicky P.

> <beccageo1980@...>

> wrote: I am having trouble getting back into

> things

> after the weekend. Good to hear from both of

> you

> and it does me a lot of good too. Hearing about

> your experiences, and learning from them as

> well

> sure helps.

>

> We are headed back to the scene of the crime

> this

> next weekend. Going to Oriental, NC for a

> sailing

> weekend with members of the sailing club

> belongs to. Staying in the same little motel

> where I had my event, and even though I

> remember

> nothing of it, I am still a bit nervous about

> it.

> is looking forward to it because he has

> some ghosts to get rid of, and for him, it's

> worth it to me to go. I am drawing the line

> though on a whistle stop visit to the New Bern

> hospital. Don't like hospitals anyway, so the

> idea of moseying over there to say howdy is

> just

> not my thing.

>

> Had a strange conversation with a friend today

> that I thought you might be interested in. She

> sort of drifts in and out occasionally, and I

> always feel a tad off after speaking with her.

> Anyway, she asked me (before launching into her

> long bit about her) if I was back to normal

> yet.

> I found myself unable to answer since I am so

> different now after February. Way different! I

> think I made some sort of strangled noise that

> she took to mean that I was just hunky-dory.

> Afterwards, I kind of thought awhile on it, and

> realized that she was like so many folks who

> have

> never had a trauma of any kind in their lives;

> clueless. Had this happened to you? Becca

> --- Phylip Divine <jdivine@...> wrote:

> > Hi Becca-

> > Good to hear from you. Feel free to " sneak "

> in

> > on any email -- the whole gang is very

> > supportive. My open heart surgery was to

> > replace my pulmonary valve. (had it done on

> > May 20th) -- I was born with a condition

> called

> > tetralogy of fallot, but had it corrected

> when

> > I was a kid. I went for quite a long time

> > without any problems and pretty much had quit

> > thinking of myself as a " heart patient " -- in

> > fact, when all this stuff happened, we didn't

> > even have a cardiologist in the area (crazy,

> I

> > know, but I guess you just get busy with

> life)

> > -- I did all the normal stuff -- went to

> > college, got married, had a baby, worked

> crazy

> > long hours at various jobs etc. -- never

> really

> > noticed any symptoms, but came back from a

> trip

> > to Chicago with my 5 year old daughter and

> the

> > following Mon. went into v-tach -- had to

> call

> > an ambulance and be cardioverted and all that

> > good stuff. After a 10 day stay in the

> > hospital with 2 EP studies and trials on a

> > bunch of beta-blockers, I ended up with my

> " lil

> > buddy " . Got my first zap on my daughter's

> 5th

> > birthday. Fun times. They found out I was

> > having v-tach a lot (like 15 times in 4

> days),

> > so then I had an ablation -- helped with the

> > primary v-tach, but I was still having

> problems

> > and then was hospitalized several times for

> > tests and then an 8 day stay with chf type

> > symptoms -- got a series of 4 zaps that time

> --

> > again, not fun. Finally, they decided the

> > " underlying hemodynamic " was my pulmonary

> > valve, which, when they did a catherization,

> > they discovered had no function at all. I

> got

> > referred to a peds. card. at Children's

> > hospital and actually had the open heart

> there.

> > I'm now followed by both the adult and

> > children's hospital. (35 - young at heart).

> > Anyway, that's the long and short of it. The

> > open heart definitely has improved the

> > arrhythmia's, and they did an echo both pre

> and

> > post op and the right ventricle (which was

> very

> > enlarged) had already begun to shrink -- they

> > tell me I'll have lots more energy in about 3

> > months (can't wait), but already am noticing

> > little differences -- can go up stairs

> without

> > going into v-tach, and can now go step over

> > step (had to do one step at a time before

> > surgery). There might be something with that

> > mitral valve thing for you -- they told me

> that

> > if the heart is being " overworked " due to

> valve

> > dysfunction etc., the heart kind of rebels

> and

> > then you get arrhythmia's and other symptoms.

>

> > The " wine " thing is interesting too -- I

> really

> > didn't have any symptoms I could recall

> before

> > all the v-tach, but I do remember going out

> to

> > a restaurant with my husband in Feb. and

> having

> > a glass of wine and feeling like my heart was

> > doing funky things and I couldn't breathe --

> it

> > went away on it's own, though, so I didn't

> > think much more about it -- just kind of

> > avoided wine because it made me feel bad.

> > Don't know if it was an early warning sign or

> > not, but I wasn't really thinking about it

> > then. Anyway, sorry this is so long -- I

> just

> > started typing and my fingers ran away with

> me.

> > -- Glad you are on the board -- you'll

> find

> > lots of friends here -- everyone is great.

> > They even sent e-mails when I was in the

> > hospital various times and my husband would

> > print them and bring them up to me. Very

> > encouraging.

> > Anyway ...

> > Here's hoping that things go well for you and

> > that you avoid zaps etc. --

> > Talk to you soon -

> > ita in Ohio

> >

> > Re: Hey ita

> >

> >

> > I have to admit that I sneaked in on your

> > email

>

=== message truncated ===

__________________________________________________

[Guest guest]

Becca, you have not been stupid with someone they have been so with you....... that is the way to see it and the way it is, don't let it bother you too much just laugh at it.... Hope all went good this weekend and you are okay in every sense ... Hyper Imaginations are a good thing, it helps the mind see and create even understand the unseen You take good care of you and smile at the world it will smile back at you it has no choice! Angels of faith are all around you

hahaha my assistant at work just told me she wants to be a bird to fly away, and so I instinctly replied : " okay, but you must watch out for the tall buildings"!!! hmmmmm oh well go figure how the human brain works or doesn't!!! Smile out loud (get it)

Be Well, Good Heart, Many Smiles Vicky P.

<beccageo1980@...> wrote: Thanks for the great words of encouragement. Youare right. I do know all that, but I guess itstill leaves me shaking my head in wonderment.Makes me cringe too to think at some point Imight have been as stupid with someone. We'll befine this weekend, I'm sure. I think I feel a bitcreeped out about it all, and I do have a hyperimagination sometimes. Pre-Worry! Becca--- "Vicky P." <gypsystar513@...> wrote:> > Hi Becca, you just had the answer in front of> you.... This "friend" obviously not only can> not understand what happened and happens to> you, and will not try to , in order to support> you and listen, really listen and cope along> with you, as that is what you need from friends> and people around you . Sometimes people can't> cope for whatever reasons, and that is when you> see true values of who will be there no matter> what because that is what it is all about. If> you can not receive understanding, caring, even> some advise from a friend, then the way they> can burden you by not really being there unless> you can offer the carefree "friendship", you> don't need that now do you?.... It's not how> many apples are in your basket, it's how many> are really golden red (so to speak).... Don't> let it get you down, there are people out there> who even if they don't go through what you do,> they will be there in all ways they can, it's> just another way to see what is out there, and> close to you, just keep your chin up at all> times... > On another note, good strength, paitence and> power to you with your trip, hope it turns out> for the best for you and your husband, and if> not as much as you expect happens don't worry> it will happen (come back to you ) when you are> ready... I wish the very best Becca.... My> guardian angel shall visit you and blow a kiss> of strength and love as well as power, they> think I'm nuts with my sayings, but it's true> and that's the majic. Be well Becca > Be Well, Good Heart, Many Smiles Vicky P.> <beccageo1980@...>> wrote: I am having trouble getting back into> things> after the weekend. Good to hear from both of> you> and it does me a lot of good too. Hearing about> your experiences, and learning from them as> well> sure helps.> > We are headed back to the scene of the crime> this> next weekend. Going to Oriental, NC for a> sailing> weekend with members of the sailing club > belongs to. Staying in the same little motel> where I had my event, and even though I> remember> nothing of it, I am still a bit nervous about> it.> is looking forward to it because he has> some ghosts to get rid of, and for him, it's> worth it to me to go. I am drawing the line> though on a whistle stop visit to the New Bern> hospital. Don't like hospitals anyway, so the> idea of moseying over there to say howdy is> just> not my thing. > > Had a strange conversation with a friend today> that I thought you might be interested in. She> sort of drifts in and out occasionally, and I> always feel a tad off after speaking with her.> Anyway, she asked me (before launching into her> long bit about her) if I was back to normal> yet.> I found myself unable to answer since I am so> different now after February. Way different! I> think I made some sort of strangled noise that> she took to mean that I was just hunky-dory.> Afterwards, I kind of thought awhile on it, and> realized that she was like so many folks who> have> never had a trauma of any kind in their lives;> clueless. Had this happened to you? Becca> --- Phylip Divine <jdivine@...> wrote:> > Hi Becca-> > Good to hear from you. Feel free to "sneak"> in> > on any email -- the whole gang is very> > supportive. My open heart surgery was to> > replace my pulmonary valve. (had it done on> > May 20th) -- I was born with a condition> called> > tetralogy of fallot, but had it corrected> when> > I was a kid. I went for quite a long time> > without any problems and pretty much had quit> > thinking of myself as a "heart patient" -- in> > fact, when all this stuff happened, we didn't> > even have a cardiologist in the area (crazy,> I> > know, but I guess you just get busy with> life)> > -- I did all the normal stuff -- went to> > college, got married, had a baby, worked> crazy> > long hours at various jobs etc. -- never> really> > noticed any symptoms, but came back from a> trip> > to Chicago with my 5 year old daughter and> the> > following Mon. went into v-tach -- had to> call> > an ambulance and be cardioverted and all that> > good stuff. After a 10 day stay in the> > hospital with 2 EP studies and trials on a> > bunch of beta-blockers, I ended up with my> "lil> > buddy". Got my first zap on my daughter's> 5th> > birthday. Fun times. They found out I was> > having v-tach a lot (like 15 times in 4> days),> > so then I had an ablation -- helped with the> > primary v-tach, but I was still having> problems> > and then was hospitalized several times for> > tests and then an 8 day stay with chf type> > symptoms -- got a series of 4 zaps that time> --> > again, not fun. Finally, they decided the> > "underlying hemodynamic" was my pulmonary> > valve, which, when they did a catherization,> > they discovered had no function at all. I> got> > referred to a peds. card. at Children's> > hospital and actually had the open heart> there.> > I'm now followed by both the adult and> > children's hospital. (35 - young at heart). > > Anyway, that's the long and short of it. The> > open heart definitely has improved the> > arrhythmia's, and they did an echo both pre> and> > post op and the right ventricle (which was> very> > enlarged) had already begun to shrink -- they> > tell me I'll have lots more energy in about 3> > months (can't wait), but already am noticing> > little differences -- can go up stairs> without> > going into v-tach, and can now go step over> > step (had to do one step at a time before> > surgery). There might be something with that> > mitral valve thing for you -- they told me> that> > if the heart is being "overworked" due to> valve> > dysfunction etc., the heart kind of rebels> and> > then you get arrhythmia's and other symptoms.> > > The "wine" thing is interesting too -- I> really> > didn't have any symptoms I could recall> before> > all the v-tach, but I do remember going out> to> > a restaurant with my husband in Feb. and> having> > a glass of wine and feeling like my heart was> > doing funky things and I couldn't breathe --> it> > went away on it's own, though, so I didn't> > think much more about it -- just kind of> > avoided wine because it made me feel bad. > > Don't know if it was an early warning sign or> > not, but I wasn't really thinking about it> > then. Anyway, sorry this is so long -- I> just> > started typing and my fingers ran away with> me.> > -- Glad you are on the board -- you'll> find> > lots of friends here -- everyone is great. > > They even sent e-mails when I was in the> > hospital various times and my husband would> > print them and bring them up to me. Very> > encouraging. > > Anyway ...> > Here's hoping that things go well for you and> > that you avoid zaps etc. -- > > Talk to you soon -> > ita in Ohio> > > > Re: Hey ita> > > > > > I have to admit that I sneaked in on your> > email> === message truncated ===__________________________________________________

[Guest guest]

I think part of my trouble with yesterday's phone

call was just that ever since February things

have seemed the same, but not the same, and

either I am so changed by my experience that I

don't have too much patience anymore with what I

see as shallowness, or I have turned into an

arch-bitch who still doesn't have any patience

period, which is probably the case.

--- " Vicky P. " <gypsystar513@...> wrote:

>

> Becca, you have not been stupid with someone

> they have been so with you....... that is the

> way to see it and the way it is, don't let it

> bother you too much just laugh at it.... Hope

> all went good this weekend and you are okay in

> every sense ... Hyper Imaginations are a good

> thing, it helps the mind see and create even

> understand the unseen You take good care

> of you and smile at the world it will smile

> back at you it has no choice! Angels of faith

> are all around you

> hahaha my assistant at work just told me she

> wants to be a bird to fly away, and so I

> instinctly replied : " okay, but you must watch

> out for the tall buildings " !!! hmmmmm oh well

> go figure how the human brain works or

> doesn't!!! Smile out loud (get it)

> Be Well, Good Heart, Many Smiles Vicky P.

> <beccageo1980@...>

> wrote: Thanks for the great words of

> encouragement. You

> are right. I do know all that, but I guess it

> still leaves me shaking my head in wonderment.

> Makes me cringe too to think at some point I

> might have been as stupid with someone. We'll

> be

> fine this weekend, I'm sure. I think I feel a

> bit

> creeped out about it all, and I do have a hyper

> imagination sometimes. Pre-Worry! Becca

> --- " Vicky P. " <gypsystar513@...> wrote:

> >

> > Hi Becca, you just had the answer in front

> of

> > you.... This " friend " obviously not only can

> > not understand what happened and happens to

> > you, and will not try to , in order to

> support

> > you and listen, really listen and cope along

> > with you, as that is what you need from

> friends

> > and people around you . Sometimes people

> can't

> > cope for whatever reasons, and that is when

> you

> > see true values of who will be there no

> matter

> > what because that is what it is all about.

> If

> > you can not receive understanding, caring,

> even

> > some advise from a friend, then the way they

> > can burden you by not really being there

> unless

> > you can offer the carefree " friendship " , you

> > don't need that now do you?.... It's not how

> > many apples are in your basket, it's how many

> > are really golden red (so to speak)....

> Don't

> > let it get you down, there are people out

> there

> > who even if they don't go through what you

> do,

> > they will be there in all ways they can, it's

> > just another way to see what is out there,

> and

> > close to you, just keep your chin up at all

> > times...

> > On another note, good strength, paitence and

> > power to you with your trip, hope it turns

> out

> > for the best for you and your husband, and if

> > not as much as you expect happens don't worry

> > it will happen (come back to you ) when you

> are

> > ready... I wish the very best Becca.... My

> > guardian angel shall visit you and blow a

> kiss

> > of strength and love as well as power, they

> > think I'm nuts with my sayings, but it's true

> > and that's the majic. Be well Becca

> > Be Well, Good Heart, Many Smiles Vicky P.

> > <beccageo1980@...>

> > wrote: I am having trouble getting back into

> > things

> > after the weekend. Good to hear from both of

> > you

> > and it does me a lot of good too. Hearing

> about

> > your experiences, and learning from them as

> > well

> > sure helps.

> >

> > We are headed back to the scene of the crime

> > this

> > next weekend. Going to Oriental, NC for a

> > sailing

> > weekend with members of the sailing club

>

> > belongs to. Staying in the same little motel

> > where I had my event, and even though I

> > remember

> > nothing of it, I am still a bit nervous about

> > it.

> > is looking forward to it because he

> has

> > some ghosts to get rid of, and for him, it's

> > worth it to me to go. I am drawing the line

> > though on a whistle stop visit to the New

> Bern

> > hospital. Don't like hospitals anyway, so the

> > idea of moseying over there to say howdy is

> > just

> > not my thing.

> >

> > Had a strange conversation with a friend

> today

> > that I thought you might be interested in.

> She

> > sort of drifts in and out occasionally, and I

> > always feel a tad off after speaking with

> her.

> > Anyway, she asked me (before launching into

> her

> > long bit about her) if I was back to normal

> > yet.

> > I found myself unable to answer since I am so

> > different now after February. Way different!

> I

> > think I made some sort of strangled noise

> that

> > she took to mean that I was just hunky-dory.

> > Afterwards, I kind of thought awhile on it,

> and

> > realized that she was like so many folks who

> > have

> > never had a trauma of any kind in their

> lives;

> > clueless. Had this happened to you? Becca

> > --- Phylip Divine <jdivine@...> wrote:

> > > Hi Becca-

> > > Good to hear from you. Feel free to

> " sneak "

> > in

> > > on any email -- the whole gang is very

> > > supportive. My open heart surgery was to

> > > replace my pulmonary valve. (had it done

> on

> > > May 20th) -- I was born with a condition

> > called

> > > tetralogy of fallot, but had it corrected

> > when

> > > I was a kid. I went for quite a long time

> > > without any problems and pretty much had

> quit

> > > thinking of myself as a " heart patient " --

> in

> > > fact, when all this stuff happened, we

> didn't

> > > even have a cardiologist in the area

> (crazy,

> > I

> > > know, but I guess you just get busy with

> > life)

> > > -- I did all the normal stuff -- went to

> > > college, got married, had a baby, worked

> > crazy

> > > long hours at various jobs etc. -- never

> > really

> > > noticed any symptoms, but came back from a

> > trip

> > > to Chicago with my 5 year old daughter and

> > the

> > > following Mon. went into v-tach -- had to

> > call

> > > an ambulance and be cardioverted and all

> that

> > > good stuff. After a 10 day stay in the

> > > hospital with 2 EP studies and trials on a

> > > bunch of beta-blockers, I ended up with my

> > " lil

> > > buddy " . Got my first zap on my daughter's

> > 5th

> > > birthday. Fun times. They found out I was

> > > having v-tach a lot (like 15 times in 4

> > days),

> > > so then I had an ablation -- helped with

> the

> > > primary v-tach, but I was still having

> > problems

> > > and then was hospitalized several times for

> > > tests and then an 8 day stay with chf type

> > > symptoms -- got a series of 4 zaps that

> time

> > --

> > > again, not fun. Finally, they decided the

> > > " underlying hemodynamic " was my pulmonary

> > > valve, which, when they did a

> catherization,

> > > they discovered had no function at all. I

>

=== message truncated ===

__________________________________________________

[Guest guest]

Now now, there, lets not get all down, Becca it is perfectly okay for you to lose patience... You need people to understand and listen deep down, it's a huge load you are carrying so don't allow all this to bring you down people who care will and do understand, do not apologize to anyone of your feelings. You have patience to deal with all that has been dealt to you, so keep on going strong and do not feel shame for your emotions, you will be okay, the ones who care will understand, and you will grow stronger through support of all in this group and your loving husband and yourself foremost.... Be Well, Good Heart, Many Smiles Vicky P.

<beccageo1980@...> wrote: I think part of my trouble with yesterday's phonecall was just that ever since February thingshave seemed the same, but not the same, andeither I am so changed by my experience that Idon't have too much patience anymore with what Isee as shallowness, or I have turned into anarch-bitch who still doesn't have any patienceperiod, which is probably the case. --- "Vicky P." <gypsystar513@...> wrote:> > Becca, you have not been stupid with someone> they have been so with you....... that is the> way to see it and the way it is, don't let it> bother you too much just laugh at it.... Hope> all went good this weekend and you are okay in> every sense ... Hyper Imaginations are a good> thing, it helps the mind see and create even> understand the unseen You take good care> of you and smile at the world it will smile> back at you it has no choice! Angels of faith> are all around you > hahaha my assistant at work just told me she> wants to be a bird to fly away, and so I> instinctly replied : " okay, but you must watch> out for the tall buildings"!!! hmmmmm oh well> go figure how the human brain works or> doesn't!!! Smile out loud (get it)> Be Well, Good Heart, Many Smiles Vicky P.> <beccageo1980@...>> wrote: Thanks for the great words of> encouragement. You> are right. I do know all that, but I guess it> still leaves me shaking my head in wonderment.> Makes me cringe too to think at some point I> might have been as stupid with someone. We'll> be> fine this weekend, I'm sure. I think I feel a> bit> creeped out about it all, and I do have a hyper> imagination sometimes. Pre-Worry! Becca> --- "Vicky P." <gypsystar513@...> wrote:> > > > Hi Becca, you just had the answer in front> of> > you.... This "friend" obviously not only can> > not understand what happened and happens to> > you, and will not try to , in order to> support> > you and listen, really listen and cope along> > with you, as that is what you need from> friends> > and people around you . Sometimes people> can't> > cope for whatever reasons, and that is when> you> > see true values of who will be there no> matter> > what because that is what it is all about. > If> > you can not receive understanding, caring,> even> > some advise from a friend, then the way they> > can burden you by not really being there> unless> > you can offer the carefree "friendship", you> > don't need that now do you?.... It's not how> > many apples are in your basket, it's how many> > are really golden red (so to speak).... > Don't> > let it get you down, there are people out> there> > who even if they don't go through what you> do,> > they will be there in all ways they can, it's> > just another way to see what is out there,> and> > close to you, just keep your chin up at all> > times... > > On another note, good strength, paitence and> > power to you with your trip, hope it turns> out> > for the best for you and your husband, and if> > not as much as you expect happens don't worry> > it will happen (come back to you ) when you> are> > ready... I wish the very best Becca.... My> > guardian angel shall visit you and blow a> kiss> > of strength and love as well as power, they> > think I'm nuts with my sayings, but it's true> > and that's the majic. Be well Becca > > Be Well, Good Heart, Many Smiles Vicky P.> > <beccageo1980@...>> > wrote: I am having trouble getting back into> > things> > after the weekend. Good to hear from both of> > you> > and it does me a lot of good too. Hearing> about> > your experiences, and learning from them as> > well> > sure helps.> > > > We are headed back to the scene of the crime> > this> > next weekend. Going to Oriental, NC for a> > sailing> > weekend with members of the sailing club> > > belongs to. Staying in the same little motel> > where I had my event, and even though I> > remember> > nothing of it, I am still a bit nervous about> > it.> > is looking forward to it because he> has> > some ghosts to get rid of, and for him, it's> > worth it to me to go. I am drawing the line> > though on a whistle stop visit to the New> Bern> > hospital. Don't like hospitals anyway, so the> > idea of moseying over there to say howdy is> > just> > not my thing. > > > > Had a strange conversation with a friend> today> > that I thought you might be interested in.> She> > sort of drifts in and out occasionally, and I> > always feel a tad off after speaking with> her.> > Anyway, she asked me (before launching into> her> > long bit about her) if I was back to normal> > yet.> > I found myself unable to answer since I am so> > different now after February. Way different!> I> > think I made some sort of strangled noise> that> > she took to mean that I was just hunky-dory.> > Afterwards, I kind of thought awhile on it,> and> > realized that she was like so many folks who> > have> > never had a trauma of any kind in their> lives;> > clueless. Had this happened to you? Becca> > --- Phylip Divine <jdivine@...> wrote:> > > Hi Becca-> > > Good to hear from you. Feel free to> "sneak"> > in> > > on any email -- the whole gang is very> > > supportive. My open heart surgery was to> > > replace my pulmonary valve. (had it done> on> > > May 20th) -- I was born with a condition> > called> > > tetralogy of fallot, but had it corrected> > when> > > I was a kid. I went for quite a long time> > > without any problems and pretty much had> quit> > > thinking of myself as a "heart patient" --> in> > > fact, when all this stuff happened, we> didn't> > > even have a cardiologist in the area> (crazy,> > I> > > know, but I guess you just get busy with> > life)> > > -- I did all the normal stuff -- went to> > > college, got married, had a baby, worked> > crazy> > > long hours at various jobs etc. -- never> > really> > > noticed any symptoms, but came back from a> > trip> > > to Chicago with my 5 year old daughter and> > the> > > following Mon. went into v-tach -- had to> > call> > > an ambulance and be cardioverted and all> that> > > good stuff. After a 10 day stay in the> > > hospital with 2 EP studies and trials on a> > > bunch of beta-blockers, I ended up with my> > "lil> > > buddy". Got my first zap on my daughter's> > 5th> > > birthday. Fun times. They found out I was> > > having v-tach a lot (like 15 times in 4> > days),> > > so then I had an ablation -- helped with> the> > > primary v-tach, but I was still having> > problems> > > and then was hospitalized several times for> > > tests and then an 8 day stay with chf type> > > symptoms -- got a series of 4 zaps that> time> > --> > > again, not fun. Finally, they decided the> > > "underlying hemodynamic" was my pulmonary> > > valve, which, when they did a> catherization,> > > they discovered had no function at all. I> === message truncated ===__________________________________________________

[Guest guest]

In a message dated 27/10/2005 09:31:12 GMT Daylight Time, MaddiganV@... writes:

can't resist adding he is doing so incredibly well at the moment and would bore you all to death with his improvements.

>>>Spill the beans - we all get off on hearing about these improvements - we promise not to be bored

Mandi x

[Guest guest]

Well I'll try to be brief lol.

was dx at Prof Newsons clinic in Nottingham, they said he was profoundly autistic with severe learning difficulities over and above his autism.

The report they sent out began stating 's parents would need counselling to come to terms with how severely disabled he was!

After giving up GF I took a long break as I was to be honest gutted he hadn't improved.

Since then we have seen small gains with some biomed.

Then I started reading the mercury and enzymes lists and posting the occasional question, with more direction started to make more gains most notably with his gut issues and self injury.

After blood and urine tests to pinpoint s major deficiencies we have really leapt forward.

Stimming is virtually non existant, cross eyes have completely gone, no self inuury at all, he now actually feels pain! language comprehension gains are huge he understands almost everything said [some voices more than others, lol] appropriate play with toys, imaginative play, no more strange face pulling, teeth have appeared for the first time aged 8yrs, gains in height, looks healthy for the first time since anitbiotics, happy most of the time, far better BM's around 80% of the time[he used to pass gloop 6-7 times a day] no smearing, uses the toilet for wee, big efforts to communicate lots of gobbldeygoop babbling, sense of humour, does not like his own company wants to interact ALL the time, and we have naughty, not autistic misunderstanding but real little boy naughty who will run away laughing at his efforts!

Always responds to his name unless hiding in shame lol, sits and eats at the table, will accept the word "No"

All this would never have been possible without you people here sharing your experiences, I am confident there is much more to come but even if he plateud right now where he is, I have a happy healthy boy, who is such a joy to watch.

's supps are: Selenium, Taurine, Multi Flora, Colostrum, Enzymes [lots] Magnesium, Epsom Salt Baths, Krill and MB12.

Thanks Mandi for the permission to be a boastful mum lol.

Vicky

P.S. He dresses himself and keeps his clothes on all the time, the naked head banging, is over!

[Guest guest]

Hi again

This is wonderful and I am SO thrilled for you. There is loads more good stuff to come for sure but this is awesome. We too have seen some good stuff over this year but not so good as well. I wont post now as I am a bit superstitious and so amny times we have had some steps forward and lots backwards again. I have just taken off her medication for bowel troubles and I feel she is doing good. I am also terrified things might go wrong again and this is so not a good place to be, it kills me everytime she gets impacted, so cross evrything for me and I'll fill you all in ina few weeks.

But for you once again, pat yourself on the back... and KUTGW

Luv Caroline

[Guest guest]

Marvelous improvements, Vicky!

Re: Vicky

Well I'll try to be brief lol.

was dx at Prof Newsons clinic in Nottingham, they said he was profoundly autistic with severe learning difficulities over and above his autism.

The report they sent out began stating 's parents would need counselling to come to terms with how severely disabled he was!

After giving up GF I took a long break as I was to be honest gutted he hadn't improved.

Since then we have seen small gains with some biomed.

Then I started reading the mercury and enzymes lists and posting the occasional question, with more direction started to make more gains most notably with his gut issues and self injury.

After blood and urine tests to pinpoint s major deficiencies we have really leapt forward.

Stimming is virtually non existant, cross eyes have completely gone, no self inuury at all, he now actually feels pain! language comprehension gains are huge he understands almost everything said [some voices more than others, lol] appropriate play with toys, imaginative play, no more strange face pulling, teeth have appeared for the first time aged 8yrs, gains in height, looks healthy for the first time since anitbiotics, happy most of the time, far better BM's around 80% of the time[he used to pass gloop 6-7 times a day] no smearing, uses the toilet for wee, big efforts to communicate lots of gobbldeygoop babbling, sense of humour, does not like his own company wants to interact ALL the time, and we have naughty, not autistic misunderstanding but real little boy naughty who will run away laughing at his efforts!

Always responds to his name unless hiding in shame lol, sits and eats at the table, will accept the word "No"

All this would never have been possible without you people here sharing your experiences, I am confident there is much more to come but even if he plateud right now where he is, I have a happy healthy boy, who is such a joy to watch.

's supps are: Selenium, Taurine, Multi Flora, Colostrum, Enzymes [lots] Magnesium, Epsom Salt Baths, Krill and MB12.

Thanks Mandi for the permission to be a boastful mum lol.

Vicky

P.S. He dresses himself and keeps his clothes on all the time, the naked head banging, is over!

[Guest guest]

Well done you and your family. So good to hear, and like with other

postings sure the speech will come soon.

Kind regards

>

> Well I'll try to be brief lol.

> was dx at Prof Newsons clinic in Nottingham, they said he was

> profoundly autistic with severe learning difficulities over and

above his autism.

> The report they sent out began stating 's parents would need

counselling

> to come to terms with how severely disabled he was!

> After giving up GF I took a long break as I was to be honest

gutted he

> hadn't improved.

> Since then we have seen small gains with some biomed.

> Then I started reading the mercury and enzymes lists and posting

the

> occasional question, with more direction started to make more

gains most

> notably with his gut issues and self injury.

> After blood and urine tests to pinpoint s major deficiencies we

have

> really leapt forward.

> Stimming is virtually non existant, cross eyes have completely

gone, no

> self inuury at all, he now actually feels pain! language

comprehension gains are

> huge he understands almost everything said [some voices more than

others,

> lol] appropriate play with toys, imaginative play, no more strange

face pulling,

> teeth have appeared for the first time aged 8yrs, gains in height,

looks

> healthy for the first time since anitbiotics, happy most of the

time, far better

> BM's around 80% of the time[he used to pass gloop 6-7 times a day]

no

> smearing, uses the toilet for wee, big efforts to communicate lots

of gobbldeygoop

> babbling, sense of humour, does not like his own company wants to

interact

> ALL the time, and we have naughty, not autistic misunderstanding

but real

> little boy naughty who will run away laughing at his efforts!

> Always responds to his name unless hiding in shame lol, sits and

eats at

> the table, will accept the word " No "

> All this would never have been possible without you people here

sharing your

> experiences, I am confident there is much more to come but even if

he

> plateud right now where he is, I have a happy healthy boy, who is

such a joy to

> watch.

> 's supps are: Selenium, Taurine, Multi Flora, Colostrum,

Enzymes [lots]

> Magnesium, Epsom Salt Baths, Krill and MB12.

> Thanks Mandi for the permission to be a boastful mum lol.

> Vicky

> P.S. He dresses himself and keeps his clothes on all the time, the

naked

> head banging, is over!

>

[Guest guest]

Wow! You must be thrilled - I am thrilled just reading about it.

Tom was also diagnosed at the NOttingham diagnostic centre - which I

think is a good centre. But it sounds as if your is just miles

ahead of the boy he was, how utterly brilliant. One of the staff

from the school affiliated to the Nottingham diagnostic centre

(where Tom goes to school and who is wonderful, working closely with

Tom) was at the biomedical conference in Edinburgh. And has taken

Dr McCandless's book into school as a refernce for staff. Education

has to be particularly cautious but I'm really impressed that she

came and that she is so taken with the improvements in Tom that she

wants to know more. now - the paeds....

>

> Well I'll try to be brief lol.

> was dx at Prof Newsons clinic in Nottingham, they said he

was

> profoundly autistic with severe learning difficulities over and

above his autism.

> The report they sent out began stating 's parents would need

counselling

> to come to terms with how severely disabled he was!

> After giving up GF I took a long break as I was to be honest

gutted he

> hadn't improved.

> Since then we have seen small gains with some biomed.

> Then I started reading the mercury and enzymes lists and posting

the

> occasional question, with more direction started to make more

gains most

> notably with his gut issues and self injury.

> After blood and urine tests to pinpoint s major deficiencies

we have

> really leapt forward.

> Stimming is virtually non existant, cross eyes have completely

gone, no

> self inuury at all, he now actually feels pain! language

comprehension gains are

> huge he understands almost everything said [some voices more than

others,

> lol] appropriate play with toys, imaginative play, no more strange

face pulling,

> teeth have appeared for the first time aged 8yrs, gains in

height, looks

> healthy for the first time since anitbiotics, happy most of the

time, far better

> BM's around 80% of the time[he used to pass gloop 6-7 times a

day] no

> smearing, uses the toilet for wee, big efforts to communicate

lots of gobbldeygoop

> babbling, sense of humour, does not like his own company wants to

interact

> ALL the time, and we have naughty, not autistic misunderstanding

but real

> little boy naughty who will run away laughing at his efforts!

> Always responds to his name unless hiding in shame lol, sits and

eats at

> the table, will accept the word " No "

> All this would never have been possible without you people here

sharing your

> experiences, I am confident there is much more to come but even if

he

> plateud right now where he is, I have a happy healthy boy, who is

such a joy to

> watch.

> 's supps are: Selenium, Taurine, Multi Flora, Colostrum,

Enzymes [lots]

> Magnesium, Epsom Salt Baths, Krill and MB12.

> Thanks Mandi for the permission to be a boastful mum lol.

> Vicky

> P.S. He dresses himself and keeps his clothes on all the time, the

naked

> head banging, is over!

>

[Guest guest]

In a message dated 27/10/2005 12:27:48 GMT Daylight Time, MaddiganV@... writes:

Stimming is virtually non existant, cross eyes have completely gone, no self inuury at all, he now actually feels pain! language comprehension gains are huge he understands almost everything said [some voices more than others, lol] appropriate play with toys, imaginative play, no more strange face pulling, teeth have appeared for the first time aged 8yrs, gains in height, looks healthy for the first time since anitbiotics, happy most of the time, far better BM's around 80% of the time[he used to pass gloop 6-7 times a day] no smearing, uses the toilet for wee, big efforts to communicate lots of gobbldeygoop babbling, sense of humour, does not like his own company wants to interact ALL the time, and we have naughty, not autistic misunderstanding but real little boy naughty who will run away laughing at his efforts!

Always responds to his name unless hiding in shame lol, sits and eats at the table, will accept the word "No"

All this would never have been possible without you people here sharing your experiences, I am confident there is much more to come but even if he plateud right now where he is, I have a happy healthy boy, who is such a joy to watch.

's supps are: Selenium, Taurine, Multi Flora, Colostrum, Enzymes [lots] Magnesium, Epsom Salt Baths, Krill and MB12.

Thanks Mandi for the permission to be a boastful mum lol.

>>>.No permission required - its compulsory LOL This is just wonderful - will you write your story for the Treating Autism website?

Mandi x

[Guest guest]

Would be a pleasure.

Vicky

xx

[Guest guest]

In a message dated 24/11/2005 21:38:16 GMT Standard Time, MaddiganV@... writes:

Oh and while I'm here, we have hide and seek, yippee, seeking and hiding, never in a million yrs did I think we would ever see that, the game lasted a good hour.

>>.This is wonderful

Smiling in Dorset!

[Guest guest]

Hi Vicky

The Selenium was brilliant, but if it's a toss up between arthritic arms or migraine I'll take the arms, pity really because I felt all round good taking it, and could swear my lines looked less noticeable too.

>>Now what you want for the lines is Evening Primrose Oil - the stuff from Holland and Barrett is cheap and works just GREAT. Prick a capsule and spread it all over face and neck before bed - wake up - wronkles nearly gone - do for a few more nights and voila!

I realise I'm not on my own ignoring my own health and really it's a very silly thing to do because the kids need us so much, my husband wouldn't know the first thing about all the stuff I give , which makes me wonder, do any of the rest of you get your husband involved and knowledgeable about the supp and diet regime your doing?

>> understands the basics - enzymes with every drink, why a chelation dose has to be given on time and how to give night doses but he needs detailed lists, times and all the pots in the right order if I am away. Usually means Sam gets less supp wise if I'm gone.

I would hope that if anything sudden happened to me, wold be on here asking you lot what to do!

Mandi x

[Guest guest]

Right then Holland and Barret here I come, it's one thing feeling like and old wreck but the icing on the cake to look the part as well lol.

Mandi, Liam wouldn't even know how to switch the computer on to do the asking!!!!

Vicky

xx

[Guest guest]

no matter what you decide - to really preserve the health of you E - plan on

regular follow ups - that way you can be aware of any changes - however small

and then choose follow up treatments as necessary. Unfortunately for us,

sometimes your E can become grossly dilated without any change in symptoms so

monitor every 2-3 years or so with a barium swallow and scope.

Something we all should be doing...