Guest guest Posted August 8, 2000 Report Share Posted August 8, 2000 Hi Lori, I don't remember! I think it was about a dollar a packet. I really don't remember. Does that sound right? Try emailing me at jane_doe_press@... and see if that works. I will mail you out the immunocal. Glad to help. Do you want just a few packets to see how you tolerate it? What ever you want. > , > I cannot send you mail privately, keeps coming back!! Anyhow how much did > you pay for the Immunocal? FISHL@... > thank you > Lori > > > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2001 Report Share Posted February 19, 2001 , I have only had two colds during the past six years. I got one cold during a brief remission of my illness. Are you taking heparin in addition to the TF or just the TF? Steve B. Re: Re: do people with cfs get the flu/ > , I got a cold after not having one for 5 years of CFS after going on > Transfer Factor. > > > Rich, > > Thanks for asking that question. This makes sense. Your note prompted me > > to go back and reread the transcript of Carol's visit with CHeney when > they > > discussed the immune system. > > I'm one of those that NEVER EVER gets a cold. I could go out in -100 > > degrees and nothing. > > > > > > > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2001 Report Share Posted February 19, 2001 Thanks Steve, I'll keep track of what he suggests at our next meet. > > I am amazed that you have a doctor who will put you on heparin but won't do an ISAC test. I predict your doctor will get sued for malpractice one day. There is probably a 50% to 60% probability you have ISAC but I would find a doctor who will order the ISAC for you to make sure. Heparin is not without risks. If you do not suffer from ISAC and are on heparin and get in a car accident or something you could suffer from internal bleeding and die. The only thing I can think of is that your doc is going to let you try micro doses of the heparin which will be inadequate if you have ISAC and reasonably safe if you don't. Steve B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 Thanks for the information, . I am considering a second med to control the seizures that phenobarb doesn't. I think I'll run it by my doc! Sandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 Hello 's Mom, Well, basically Trileptal is the newest anticonvulsant on the market. I couldn't take the others, I could not tolerate 6 other meds, so he tried me on this; I am thrilled. But it is IMPERATIVE that the med be titrated over at least 6 weeks so avoid side effects; I was started on 1/2 tablet every day for a week then 1 tablet for a week and so on until I reached my therapeutic level. With my prescription coverage I pay 39.00/month and I take 1200 mg/ day divided in two 600 mg doses. Without insurance it would cost me about 250.00/ month. I have never been seizure free for more than a month; with this medication, I haven't had a seizure in over 6 months- doing the happy dance. If you have any other questions I would be HAPPY to help. I have struggled with epilepsy for over 15 years and finally have control. In Him, > Hi , > I'm 's Mom, and I have seizures. I hope you don't mind me asking, but > basically I want to know everything about the Trileptal. I now have some > decent health insurance, and I can afford more expensive meds. I am willing > to try something besides phenobarb--the docs aren't too happy about that > idea. How much/often do you take? I'm amazed that you are taking something > with NO side effects for you. Is it expensive? Any info you can give me > would be greatly appreciated. > Thank you, > Sandi > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 Wow, that is amazing! I am so glad that you found a medication that works for you! Awesome! I love hearing stuff like that, gives you a pinch of hope that a new medication will help our kids!! ) Diane Mom to Kody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 Thank you for the gentle reminder and for making me feel important. So much energy has been focused on that I've forgotten about myself. You are right though three strikes plus one more, I am in school right now so I am trying to focus a little bit on studying. In Him, > Hi , > I am so happy to hear of your news. It must be much less scary for > now. I just wanted to remind you that you're working with three strikes > against your seizures right now: Stress, lack of sleep and (I'm guessing) > not eating as well as you should be. So, take care of yourself also! I have > had gran mals when Bri was a baby and in the hospital. So, the second time, > I was much more careful. As a member of your e-mail family, I would like to > kindly remind you that you count, too We're still praying. > Sandi, 's Mom > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2009 Report Share Posted November 30, 2009 Hi, , I can sympathize over your worries because I was very worried about my myotomy and had some sleepless nights over it, for months before I did it. But I've got to say that the advice I received from this group was the deciding factor. Keep the faith, ask a lot of questions here, read the older posts and articles. We all have this weird thing called Achalasia and not being able to swallow is a really crummy bummer, to put it mildly. When I felt food and liquid go down into my stomach after surgery, I couldn't believe the difference. Amazing! My Hellers was in Jan. 2006. Hang in there. Deborah, still at the beach Quote Link to comment Share on other sites More sharing options...
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