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Christi in NE

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I am so glad you are doing so well . For those of us who have

children with A you are hope that if it gets too bad there is an option that

will work for a lifetime.

Tonia I know how young is and how worried you stay about him. He is

paving the way for Cullen and I am and others are watching your every

move. I have heard many times the myo. can last 20 years. Well 20 years from

now Cullen will be my age. He will have a family of his own that he is

supporting. I worry what will he do if he needs an ectomy and has a wife and

kids to support. How will he take 6 months off of a job to recover. It is

so scary to me. I try not to think about it and live knowing that he is

okay today. I think it is a good thing that may be having it younger

rather than 10 years or 20 years from now when he has a family to support.

I am saying prayers for him and you. Keep us up to date on his choices and

how he is doing. Your A family cares about you and !

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