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I do think about that... Time is on our side. Thanks for the response.

Makes me feel better that you guys get it. Have a Happy New Year Ann.

In a message dated 1/5/2010 9:56:45 A.M. Central Standard Time,

lilac_blossom_lady@... writes:

Dear ,

Please try not to be so fearful about his future and his responsibilities.

In 20 years time, medical knowledge will have advanced SO much. The

younger members of this Group may be the ones to see either a much better

treatment, or even a cure.

From Ann xx

From: _shark13sr@..._ (mailto:shark13sr@...) <_shark13sr@..._

(mailto:shark13sr@...) >

Subject: Christi in NE

_achalasia@grouachala_ (mailto:achalasia )

Date: Monday, 4 January, 2010, 16:20

I am so glad you are doing so well . For those of us who have

children with A you are hope that if it gets too bad there is an option

that

will work for a lifetime.

Tonia I know how young is and how worried you stay about him. He is

paving the way for Cullen and I am and others are watching your every

move. I have heard many times the myo. can last 20 years. Well 20 years

from

now Cullen will be my age. He will have a family of his own that he is

supporting. I worry what will he do if he needs an ectomy and has a wife

and

kids to support. How will he take 6 months off of a job to recover. It is

so scary to me. I try not to think about it and live knowing that he is

okay today. I think it is a good thing that may be having it younger

rather than 10 years or 20 years from now when he has a family to support.

I am saying prayers for him and you. Keep us up to date on his choices and

how he is doing. Your A family cares about you and !

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

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Dear ,

 

Please try not to be so fearful about his future and his responsibilities. In 20

years time, medical knowledge will have advanced SO much. The younger members

of this Group may be the ones to see either a much better treatment, or even a

cure.

 

From Ann xx

From: shark13sr@... <shark13sr@...>

Subject: Christi in NE

achalasia

Date: Monday, 4 January, 2010, 16:20

 

I am so glad you are doing so well . For those of us who have

children with A you are hope that if it gets too bad there is an option that

will work for a lifetime.

Tonia I know how young is and how worried you stay about him. He is

paving the way for Cullen and I am and others are watching your every

move. I have heard many times the myo. can last 20 years. Well 20 years from

now Cullen will be my age. He will have a family of his own that he is

supporting. I worry what will he do if he needs an ectomy and has a wife and

kids to support. How will he take 6 months off of a job to recover. It is

so scary to me. I try not to think about it and live knowing that he is

okay today. I think it is a good thing that may be having it younger

rather than 10 years or 20 years from now when he has a family to support.

I am saying prayers for him and you. Keep us up to date on his choices and

how he is doing. Your A family cares about you and !

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