Thank you Rich

[Guest guest]

OPPS, My error!

I see with a little more research this morning that the SUOX +/+ is normal.

Good for you, it will make it easier!

Janet

rosebud1082001 <ganesh1008@...> wrote:

Hi,

Thanks so much, Rich, for taking the time and effort to analyse my

test and write up your comments. I really appreciate it. I guess I

will be spending my time trying to understand this and put it together.

One of the first things you recommended was physphatidalcholine, which

I've been taking for about 3 years and it's helped my brain fog a lot.

I haven't taken phosphatidylserine yet, or TMG.

About B12 and Folic acid, I have been taking low dose coenzymated B12

and coenzymated folic acid along with the other coenzymated B vitamins

for about a year on the recommendation of Gordon. They seem to

help quite a bit. The form of B12 is methylcobalamin. I *seem* to

tolerate these quite well. I don't know if it will mess things up if I

go off them or stay on them. I don't tolerate other forms of B

vitamins, probably because I can't process them because I have major

gut issues. I did IM injections about 4 years ago and they made me

ache all over. I had more energy, but got sick of poking myself and

aching.

This whole methylation issue and treatment makes sense to me both

intellectually and on a gut level (pardon the pun). I'm trying to be

cautiously optimistic, since this is my zillionth treatment.

Michele G

[Guest guest]

Rich

Thanks for your thoughts as well.

The difficulty with annual checks, and I don’t know if others in the UK

have found this, is that our National Health Service tend to advise people

to contact them when they have a problem, or at least that’s what I was

advised.

I have been told it is not necessary to come in each year for a barium or

indeed any achalasia monitoring.

Then again, it was me who raised the possibility of having a Heller’s in

the future – through learning about it on this group - otherwise I would

have carried on rolling up for an occasional dilatation when things got bad.

< And in case you need any further reinforcement of this point, I waited to

the point where even a myotomy could not be performed because my esophagus

became so dilated that if formed a J and the food had to come up before it

could reach the stomach. So I ended up with an esophajectomy exactly 5

months ago. In my case, I was getting very few symptoms. Never had spasms,

very rarely had to regurgetate. No chest pains. I could even eat late at

night. So my advice, if you have achalasia, have annual checks with your

GI. I don't know if a barium esophagram gives you much radiation but if

there is ANY reason at all to think that your esophagus is dilating more

than it should, get the barium esophagram.

< Peace,

< Rich from Michigan

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