Ray

[Guest guest]

Her sinuses are draining, but there is no sinus infection. Until this

morning, I thought it was all due to drainage--now I think she may be mildly

constipated also. I really detest the mineral oil " trick, " so I'm thinking

of buying some Senekot for her this evening to see if that works. I'll need

to check in with the ped to verify dosage since we haven't done Senekot in

over a year. Last time it was 1/2 tablet & I think we may need 1 tablet a

day until she's no longer constipated.

I've instructed the preschool to let her drink twice as much water as she

normally drinks through the day & no milk at all with her lunch. Maybe this

will help.

Does anyone know if Bactrim will cause constipation? She's taking it for 30

days.

Ray, mother to Tabitha (age 6), Autumn, age 4 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan (9 months)

[Guest guest]

Her sinuses are draining, but there is no sinus infection. Until this

morning, I thought it was all due to drainage--now I think she may be mildly

constipated also. I really detest the mineral oil " trick, " so I'm thinking

of buying some Senekot for her this evening to see if that works. I'll need

to check in with the ped to verify dosage since we haven't done Senekot in

over a year. Last time it was 1/2 tablet & I think we may need 1 tablet a

day until she's no longer constipated.

I've instructed the preschool to let her drink twice as much water as she

normally drinks through the day & no milk at all with her lunch. Maybe this

will help.

Does anyone know if Bactrim will cause constipation? She's taking it for 30

days.

Ray, mother to Tabitha (age 6), Autumn, age 4 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan (9 months)

[Guest guest]

So sorry to hear everyone is sick at your house! and ph have fevers

and ph is needing breathing treatments, but it isn;t anything too serious.

I hope you all get well SOON! Sending healing thoughts nad get well wishes your

way.

Pattie

Ray

Thank you! I am thrilled just to have another chance. I started the

heparin injections yesterday--strange, but i'm getting used to it pretty

quickly...

All three of my boys are sick as dogs, raging sinus infection, Wesley was

on suprax when it hit him...not a good sign!! has had some high

fevers and i'm getting suspicious of bronchopnuemonia...and jsut waiting

for a pid to present with him. We took the day off school today, too

many times i've pushed them thru when they were sick, today i finally let

them off the hook!!

Thanks again for your kindness! Maurita, IgA def, mom to Welsey, Iga

def,

, and

[Guest guest]

Sandi,

Autumn is only 4 so that's why I gave her a couple of months. Since

is older, he should catch on much quicker. A few months ago,

Autumn posted a website where you can go learn more about peak

flows. I think the subject line is peak flow meters, but I could be

wrong. I suggest a search of the archives to find out. I'm not at

my regular computer or I could post the link.

Ray, mother to Tabitha (age 6), Autumn, age 4 (IgG def.,

asthma, chronic sinusitis, and allergies), and Duncan (11 months)

[Guest guest]

Definitely not the chicken pox. Both Tabitha & Autumn have had them

& I'd recognize them in a minute!

Whatever it is, it's still there, but not spreading. He's got 2

spots on his scalp & they're all over his tummy & back. Nowhere

else. So. . .I'm still watching. He's sleeping, but if he wakes up

in the middle of the night, I'll check in to see how they're

progressing.

Ray, mother to Tabitha (age 6), Autumn, age 4 (IgG def.,

asthma, chronic sinusitis, and allergies), and Duncan (11 months)

Are you sure it's not the Chicken Pox?? You've probably already

ruled this

> out, but when my daughter (age 21) had them, she had them on her

scalp.

[Guest guest]

Sandi,

Actually, I wasn't worried about this group when I sent that out. I

mailed that same message to all 200+ people in my address book.

PedPid can't accept attachments so you were safe. If you were in my

address book as an individual. . .that would be a different story.

Glad to hear you didn't get it!!!

Ray

> Hello,

> I just scanned for viruses, and Norton didn't find anything on

this end.

> Thank you for the warning, but no harm done.

> Sandi, 's Mom

>

[Guest guest]

Tell he's welcome! I'm glad it worked.

Autumn woke up this morning & her peak flow was horrible. We had a bad

thunderstorm here last night, so I'm guessing that the wonderful rain (we

really needed it, btw!), brought in the allergens as well. We're doing

treatments every 6 hours to see how she does. Autumn reminded me this

morning about drinking 7-up when she had her treatment. Amazing what we'll

go through to get our kids to take their meds!

Ray, mother to Tabitha (age 6), Autumn, age 4 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan (12 months)

[Guest guest]

Wenoka,

It took right at 6 days for my mom's biopsy reports to be back from the lab

& in the doctor's office. I would definitely call since the doc could wait

until the next appt.

Thanks for the support. I went looking for cars again this afternoon, so

let's keep hoping. I've had this one car for 7 years & it's definitely time

for another one. I just can't afford new & probably can't afford one with a

warranty. We'll see.

Ray, mother to Tabitha (age 7), Autumn, age 4 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan (15 months)

[Guest guest]

My mom has her last chemo treatment on 10/22. She then will visit with the

radiation dr to see whether or not she needs it. She's a borderline case,

so they'll probably do lots of testing after she's done with chemo.

Luckily, in late July, her insurance went to 100% so she hasn't been out of

pocket for the chemo & testing--very expensive!

My husband's still self-employed. He's really enjoying this job more than

any of the others he's had in the past. If he can just keep it up and make

a good living at it. . .so far the jury's still out on that one. Some weeks

are better than others.

Thanks for asking!

Ray, mother to Tabitha (age 7), Autumn, age 4 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan (16 months)

[Guest guest]

Ray:

Please call your doctor to have the bruising checked out. Unless you're on

blood thinning meds and know to look for that side effect, you should tell

your doctor. They'll probably want to check your platelets at the very least.

Don't NOT do it because you're too busy -- mommies cannot afford to let their

own health come last, there are too many people depending on them!

(mom to Kate, born 9/19/02; and , age 3-1/2 -- currently has

polysaccharide antibody def, previously had transient IgG, IgA, t-cell &

other defs)

[Guest guest]

Ray,

I would at least bring it up with you Doc. If it is anemia that is

causing the bruising, at least you could start to do something about it. I

have a rare clotting disorder, and the reason I know about the anemia thing

is because my clotting problem mimics anemia. I get huge/purple bruises and

don't know where! Plus, they take quite awhile to heal. Please tell me

you'll get it checked it?? Got to take care of the Mom

Sandi, 's Mom

[Guest guest]

Oh, Sandi. . .fatigue is nothing new to me, so I wouldn't know if it were

new fatigue or just the same old stuff LOL!

I do feel tired, but I'm working late on articles/books/research, plus just

the general parenting stuff. Duncan sleeps well for a week and then wakes

up constantly like he has the past two nights. This morning, he was up at 5

a.m. and ready to go!

I know my iron level has always been lower than the blood donation people

like, but nothing drastic. During pregnancy I was anemic, but my iron

rebounded once I delivered all three children. It generally stays in the

33-35 range. I haven't checked it lately, though.

I don't feel sick. . .I am running around like crazy trying to get new

programs up and running at my day job. I haven't even had a sniffle, except

for the occasional allergy outbreaks. I'm not a person to bruise so lightly

and it has me bothered a little bit. The last thing I need at this point is

to get sick.

In the past, I've had problems with high cholesterol and probably still do.

I quit taking my medicine when I got pregnant with Duncan, nursed him for

13.5 months and then haven't gone back to the dr to restart. Maybe that's

related? It certainly doesn't ring a bell, though.

Ray, mother to Tabitha (age 7), Autumn, age 4 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan (17 months)

[Guest guest]

OK, you guys! I'll make an appt for next week!

I'm moving furniture into a new office building tomorrow for a program I've

worked 6 years to build from the ground up. I'm not about to miss this day,

although now I wonder how many other strange bruises I'll have tomorrow

night. Friday's hectic too, but next week slows down quite a bit.

I'll let you guys know what happens. BTW, did I neglect to mention Autumn's

" almost " asthma cough from this morning. I'm checking on her soon & the

preschool has watched her all day. Let's hope it's just that early morning

cough & not something else.

Ray, mother to Tabitha (age 7), Autumn, age 4 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan (17 months)

[Guest guest]

,

I am glad that you are going to see the doctor. Let us know how things turn

out. Hopefully, it is something that is easily treated.

Our prayers are with Autumn also. How is she doing tonight?

Belinda Rose,

Mom to Allyssa 10, and Cassie 8, igg immunodeficient, asthma, sinusitis, IVIG

for 6 years, heart condition

[Guest guest]

At one point Macey was rotating between Bactrim, Augmentin and Zithromax on a

monthly basis. After the first week of

Augmentin she had a serum sickness reaction and then we just rotated between the

Bactrim & Zithromax. This went on

until she was about 4 and then they put her on just Septra. Les is on monthly

Biaxin and it's doing ok so far but may

need to be rotated also because he has a breakthrough infection right now. He

actually admitted this week for the first

time that he was considering starting infusions.

Ursula Holleman

Macey's mom (7 yr. old with CVID, asthma, sinus disease, GERD, Diabetes

Insipidus, colonic inertia)

http://members.cox.net/maceyh

Immune Deficiency Foundation - Peer Contact for GA

http://www.primaryimmune.org

/

[Guest guest]

No, the week he quit nursing he was well.

Duncan and I had a rocky nursing relationship anyway because of the reflux

problems and my diet. He would nurse great for weeks & then just quit. One

nursing strike lasted six weeks I finally coaxed him back to nursing but

it was never the same. He would only nurse in my room, lying down in an

almost dark room. The least little bit of noise & he would stop. He

learned to drink from a sippy cup at six months & that was our undoing, I

think. I pumped for him while at work, but it just wasn't enough. Finally,

he was 13.5 months old, I went to a four day conference. I pumped the

entire time to keep my supply up, but when I got back he wasn't interested

in nursing. Just too busy, I guess.

The chronic stuffy nose started about two weeks ago. The day care called me

a little bit ago and thought he might be starting to run a fever, but he's

not to the point where I have to pick him up. Could be an ear infection,

although he has no symptoms yet. I'll pick him up early today and see what

happens.

Ray, mother to Tabitha (age 7), Autumn, age 5 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan (18 months)

> If Duncan has a chronic stuffy nose, maybe that's why he quit nursing???

[Guest guest]

In a message dated 11/19/2002 9:43:35 AM Central Standard Time,

sandraray@... writes:

> Makes me even more fearful of the immune problems if he's

> not going to run a fever when he's sick

:

They told me at the peds that you don't always get a fever with an ear or

sinus infection. Hope that makes you feel a little better. And I hope

Duncan's better soon.

(mom to Kate, born 9/19/02; and , age 3-3/4 -- currently has

polysaccharide antibody def, previously had transient IgG, IgA, t-cell &

other defs)

[Guest guest]

,

rarley has a fever with his sinus infections. He

is in the middle of one right now........complains his

head hurts when he jumps up and down. He is having a

lot of drainage in the back of his throat, feeling

very tired. I had to go to the school yesterday to

give him something for pain.

He has been on Biaxin for 8 days but doesn't seem to

phase him.

I believe he may have a lot of scar tissue due to the

fact he has had 6 sinus surgerys when he was younger.

He is due for IVIG next Friday. We will probably need

to do a CAT scan to see what is going on...........for

noww he is trying to ride it out.

le

[Guest guest]

As far as write off. I believe expenses for conferences related to medical

care can also be written off on your taxes. Atleast that is what our

accountant told us. BARBIE

[Guest guest]

Thanks, .

Autumn was pretty mad when we got home too. She asked if we could just call

her doctor even though he was out of town. She told me, " That cough medicine

won't help. Doctor tells me it's good to cough. "

She's so right. The ped and the allergist both told us that Autumn doesn't

need a cough syrup to stop her from coughing unless she's completely

miserable and needs a little rest. Otherwise, coughing is the best way to

get rid of all that stuff.

She was running fever again tonight, so I know it's more than just a viral

infection. Autumn doesn't normally run a temp, so when she does, we watch it

carefully. Another 30 minutes to go before the next treatment and I can fall

into bed for four hours. If you're staying up late tonight, think of us

Ray, mother to Tabitha (age 7), Autumn, age 5 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan (22 months)

[Guest guest]

Christy,

Thanks for the suggestions! I'll keep them in mind. I need discuss with my

husband which appointments we want for the children this summer in that area so

we can align our summer schedules. He works there, of course, but I need to

plan out my vacation and see if it can coincide with the dr. appointments.

If we get that way for an extended period, I'll be sure to let you know.

Ray, mother to Tabitha (age 7), Autumn, age 5 (IgG def., asthma, chronic

sinusitis, and allergies), and Duncan (age 2)

[Guest guest]

Hi Ray,

i was wondering what you did about your bed?

I have a vinyl cover on mine, but I think they are

still living in it and coming out thru the zipper.

I ozonated a few weeks ago and that got rid of them

for a while...but now it seems they are back....I WAS

doing so well until yesterday- I spent the whole day

in bed because I am sick- and I got pinpricks in the

bed.

I would ozonate it every day if i could but we live in

a small studio apt with no separation from the rest of

the the small living area. I am going to get a tarp

and tape it all around the bed area and then ozonate

the mattress tomorrow...but what can I do today?

Should i put Borax under the vinyl cover?

What do you think would happen if i sprayed the

mattress with clorox bleach/ water? Would it eat away

and ruin the mattress?

Love your advice, LL

--- castiar <castiar@...> wrote:

> I had put borax under the sofa and a lot under the

> cushions.

>

> You could do the same and you could even put some

> under the slip

> covers and still spray the top with the bleach

> water.

>

>

>

>

> >

> > Hi all,

> > For those of you who use windex on your floors,do

> you use straight

> > windex or do you add water?I have wood floors,

> will windex stain

> them?

> > Any suggestions for slipcovered sofas? Right now I

> usually bleach

> the

> > covers with clorox(Thank Goodness I choose

> White)but I have no idea

> how

> > to treat the rest of the sofa. I have small kids

> who climb over

> them

> > everyday so it would have to be non toxic.For

> those of you who have

> > internal mites, what were your symptoms? Sorry

> about all the

> questions

> > but I have been dealing with this for so long I'm

> getting to the

> point

> > that I feel I'll never be rid of them and even

> though my problems

> is

> > somewhat under control I want to completely rid

> myself of them if

> > that's possible.

> > TIA

> >

>

>

>

> ------------------------------------

>

>

[Guest guest]

Lucy Lu-

I am glad you were at least doing good for a while.

My wife bought our matress cover at bed bath and beyond and it really

helped but others have posted about mites maybe coming through the

zipper.

Some people have put duct tape on the zipper and when you get a

chance you can buy another matress cover so it will make it that much

harder for the mites to get in and out of the actual matress.

We would just strip the bed and spray it like 3 times a day with

Windex. Morning, after work and before bed right before putting the

sheets on but since you are sick you need some where to lay down.

If you have duct tape I would try to just do that and then spray the

matress cover with bleach water or Windex and put on some clean

sheets.

You could always open up the zipper and put some borax inside if you

wnat but hopefully you will not just be letting a new group of mites

out. I wouldn't really want to chance that.

Hopefully you can get out tomorrow and run the ozone generator as

long as possible.

I feel so bad for you but you are doing something right if they are

leaving you alone for days at a time.

Keep up the fight.

Ray

> > >

> > > Hi all,

> > > For those of you who use windex on your floors,do

> > you use straight

> > > windex or do you add water?I have wood floors,

> > will windex stain

> > them?

> > > Any suggestions for slipcovered sofas? Right now I

> > usually bleach

> > the

> > > covers with clorox(Thank Goodness I choose

> > White)but I have no idea

> > how

> > > to treat the rest of the sofa. I have small kids

> > who climb over

> > them

> > > everyday so it would have to be non toxic.For

> > those of you who have

> > > internal mites, what were your symptoms? Sorry

> > about all the

> > questions

> > > but I have been dealing with this for so long I'm

> > getting to the

> > point

> > > that I feel I'll never be rid of them and even

> > though my problems

> > is

> > > somewhat under control I want to completely rid

> > myself of them if

> > > that's possible.

> > > TIA

> > >

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

Hi Ray,

Thanx for your suggestions ...

I just looked at the mattress covers at Bed Bath and

Beyond and they only have the expensive one that is

part cotton...

is that the one you have?

Couldnt the mites get through that one???

Wouldnt plastic or vinyl be better?

LL

--- castiar <castiar@...> wrote:

> Lucy Lu-

>

>

> I am glad you were at least doing good for a while.

>

> My wife bought our matress cover at bed bath and

> beyond and it really

> helped but others have posted about mites maybe

> coming through the

> zipper.

>

> Some people have put duct tape on the zipper and

> when you get a

> chance you can buy another matress cover so it will

> make it that much

> harder for the mites to get in and out of the actual

> matress.

>

> We would just strip the bed and spray it like 3

> times a day with

> Windex. Morning, after work and before bed right

> before putting the

> sheets on but since you are sick you need some where

> to lay down.

>

> If you have duct tape I would try to just do that

> and then spray the

> matress cover with bleach water or Windex and put on

> some clean

> sheets.

>

> You could always open up the zipper and put some

> borax inside if you

> wnat but hopefully you will not just be letting a

> new group of mites

> out. I wouldn't really want to chance that.

>

> Hopefully you can get out tomorrow and run the ozone

> generator as

> long as possible.

>

> I feel so bad for you but you are doing something

> right if they are

> leaving you alone for days at a time.

>

> Keep up the fight.

>

> Ray

>

>

>

>

> > > >

> > > > Hi all,

> > > > For those of you who use windex on your

> floors,do

> > > you use straight

> > > > windex or do you add water?I have wood floors,

> > > will windex stain

> > > them?

> > > > Any suggestions for slipcovered sofas? Right

> now I

> > > usually bleach

> > > the

> > > > covers with clorox(Thank Goodness I choose

> > > White)but I have no idea

> > > how

> > > > to treat the rest of the sofa. I have small

> kids

> > > who climb over

> > > them

> > > > everyday so it would have to be non toxic.For

> > > those of you who have

> > > > internal mites, what were your symptoms? Sorry

> > > about all the

> > > questions

> > > > but I have been dealing with this for so long

> I'm

> > > getting to the

> > > point

> > > > that I feel I'll never be rid of them and even

> > > though my problems

> > > is

> > > > somewhat under control I want to completely

> rid

> > > myself of them if

> > > > that's possible.

> > > > TIA

> > > >

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > >

[Guest guest]

No don't buy that one.

Ours is plastic.

Maybe they don't list it online or they don't sell it anymore.

> > > > >

> > > > > Hi all,

> > > > > For those of you who use windex on your

> > floors,do

> > > > you use straight

> > > > > windex or do you add water?I have wood floors,

> > > > will windex stain

> > > > them?

> > > > > Any suggestions for slipcovered sofas? Right

> > now I

> > > > usually bleach

> > > > the

> > > > > covers with clorox(Thank Goodness I choose

> > > > White)but I have no idea

> > > > how

> > > > > to treat the rest of the sofa. I have small

> > kids

> > > > who climb over

> > > > them

> > > > > everyday so it would have to be non toxic.For

> > > > those of you who have

> > > > > internal mites, what were your symptoms? Sorry

> > > > about all the

> > > > questions

> > > > > but I have been dealing with this for so long

> > I'm

> > > > getting to the

> > > > point

> > > > > that I feel I'll never be rid of them and even

> > > > though my problems

> > > > is

> > > > > somewhat under control I want to completely

> > rid

> > > > myself of them if

> > > > > that's possible.

> > > > > TIA

> > > > >

> > > >

> > > >

> > > >

> > > > ------------------------------------

> > > >

> > > >