Guest guest Posted September 19, 2008 Report Share Posted September 19, 2008 hi i was wondering if any one has been to a london? i realy want to go soon and see a show  lauramechelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2008 Report Share Posted September 20, 2008 Hey ! I've already been to London. Feel free to email me. tte 2008/9/19 as if <xx_laura_s_xx@...> > hi i was wondering if any one has been to a london? i realy want to go soon > and see a show > > lauramechelle > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2008 Report Share Posted September 21, 2008 I used to work in the travel industry. Fly Virgin Airlines not British Airways. Virgin's way better according to frequent flyers from here to England. Better food, individual T.V.s for all passengers, lay down seats, etc. London is a tough city to tackle because of the very old buildings, sidewalks ect. However it's not impossible. I warn all SMAers where ever they journey to be very vigilant about pulmonary issues and airplane travel. Years ago all my specialists said 'sure flying is fine go ahead' and then I ended up passing out the minute the plane reached cruising altitude and was turning blue and struggling for every breath while the plane dropped back into landing sequece. The crew wouldn't give me any oxygen and the passengers actually stampeded over, delayed, and blocked the paramedics who met the plane on the runway to get me to a hospital. {An asshole businessman's justification was " You people are supposed to get off the plane after the normal people are done " }. When all of this was over {and I was $1,500 in debt from the expense of getting back home via a uhaul rental cargo van, motorcycle ramp, cargo straps, and over three days of land travel} my primary dr {who'd been on vacation during my clearance to fly} flipped out that I flew and explained to me how air is recycled in the cabin during flight and that my airway was weak and collapses in high altitude. Once the collapse happens no oxegen mask will work because the airway would be closed and suffocating me. Another air travel situation was a school mate who had SMA and ended up on a vent and spent weeks in the hospital after the cripplearium we were incarcerated in declared him able to fly on the senior trip to Disney World. His parents had to drop everything and get to Florida, it took months till he got home and all he saw of his trip was the view he had from the ambulance and his hospital room. To add insult to injury the Florida drs had no clue about SMA health issues. So basically what I'm saying is check out every asect of your travel. Do a lot of websearching of what you'll have access to in London and make sure your health will be up to it. And when you do get to London please send me a post card [smilie]. > > hi i was wondering if any one has been to a london? i realy want to go soon and see a show > Â > lauramechelle > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2008 Report Share Posted September 21, 2008 oh that must have realy sucked !!  luckly am fine with flying tend to go on holiday on a plane about 3 or 4 times a year i live in scotland so its quite easy to get a flite im more consernd about hotels if any one knows any ??  lauramechelle From: Amy <charmedcripchic@...> Subject: Re: london Date: Sunday, 21 September, 2008, 10:30 PM I used to work in the travel industry. Fly Virgin Airlines not British Airways. Virgin's way better according to frequent flyers from here to England. Better food, individual T.V.s for all passengers, lay down seats, etc. London is a tough city to tackle because of the very old buildings, sidewalks ect. However it's not impossible. I warn all SMAers where ever they journey to be very vigilant about pulmonary issues and airplane travel. Years ago all my specialists said 'sure flying is fine go ahead' and then I ended up passing out the minute the plane reached cruising altitude and was turning blue and struggling for every breath while the plane dropped back into landing sequece. The crew wouldn't give me any oxygen and the passengers actually stampeded over, delayed, and blocked the paramedics who met the plane on the runway to get me to a hospital. {An asshole businessman' s justification was " You people are supposed to get off the plane after the normal people are done " }. When all of this was over {and I was $1,500 in debt from the expense of getting back home via a uhaul rental cargo van, motorcycle ramp, cargo straps, and over three days of land travel} my primary dr {who'd been on vacation during my clearance to fly} flipped out that I flew and explained to me how air is recycled in the cabin during flight and that my airway was weak and collapses in high altitude. Once the collapse happens no oxegen mask will work because the airway would be closed and suffocating me. Another air travel situation was a school mate who had SMA and ended up on a vent and spent weeks in the hospital after the cripplearium we were incarcerated in declared him able to fly on the senior trip to Disney World. His parents had to drop everything and get to Florida, it took months till he got home and all he saw of his trip was the view he had from the ambulance and his hospital room. To add insult to injury the Florida drs had no clue about SMA health issues. So basically what I'm saying is check out every asect of your travel. Do a lot of websearching of what you'll have access to in London and make sure your health will be up to it. And when you do get to London please send me a post card [smilie]. > > hi i was wondering if any one has been to a london? i realy want to go soon and see a show >  > lauramechelle > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2008 Report Share Posted September 21, 2008 The Tara in Kensington was great, I did a press release there some ago, and they were great. If you need hoist/extra equipment, try the DLF (Disabled Living Foundation – Google them) for rental companies – I remember there was a company that even rented power chairs based in London. I haven’t lived there for years, but I think RADAR can also be handy for info. Of course all the taxis are accessible, and I never had much hassle getting to where I wanted to go, even the tube (I was carried a lot). Just Google ‘accessible London’. Have fun, From: [mailto: ] On Behalf Of as if Sent: 21 September 2008 21:51 Subject: Re: london __________ Information from ESET NOD32 Antivirus, version of virus signature database 3458 (20080921) __________ The message was checked by ESET NOD32 Antivirus. http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2008 Report Share Posted September 21, 2008 I know chain hotels are usually alike at at whatever location you go to. So if say Hilton hotels were accessible to you look up if there's a Hilton in London. {so to speak} Web search but also call the hotels staff at the location phone number not the toll free chain clearing house number. Ask the management about amenities for wheelchair using guests, access, bathroom features, etc. > > > > hi i was wondering if any one has been to a london? i realy want to > go soon and see a show > >  > > lauramechelle > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2009 Report Share Posted June 29, 2009 Hi there: Ihave had 2 dilations with Dr Bloom at the UCL and it's bad again. A surgeon named Hashemi has offered me a Lap Heller.. Any one knows him at all? Who is the best in the UK? Thanks Dor Quote Link to comment Share on other sites More sharing options...
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