Dr. Holzman and Cullen

[Guest guest]

Dr. Holzman responded to my emails and will be working Cullen in for more

testing and to maybe schedule surgery. He said he had done around 100 and that

his practice has done around 300 but in the past several years it has been him

doing the majority of these surgeries. I am happy to have to ball rolling but

scared at the same time. I was wondering if anyone could tell me how bad the

swallowing the tube is for the test they are going to do that checks the

pressure in your esphogus? I am so worried my son is going to freak. Also what

can we expect after surgery? Pain, eating, recovery? Nervous mom.

[Guest guest]

hey you told me to add cullen on facebook and i did

if he want to know about what to expect afterwards, just tell him to message me,

im happy to tell him what its like, and had my second surgery last wednesday

let me know if you would rather know before him ?

Vicky x

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> Dr. Holzman responded to my emails and will be working Cullen in for more

testing and to maybe schedule surgery. He said he had done around 100 and that

his practice has done around 300 but in the past several years it has been him

doing the majority of these surgeries. I am happy to have to ball rolling but

scared at the same time. I was wondering if anyone could tell me how bad the

swallowing the tube is for the test they are going to do that checks the

pressure in your esphogus? I am so worried my son is going to freak. Also what

can we expect after surgery? Pain, eating, recovery? Nervous mom.

>

[Guest guest]

I had the laproscopy Hellers last August, and it was amazing eating practicly

normally after it, unfortunatly mine didnt last long (problems started december)

but almost everyone i have spoke to said it did worked for years, i was jut

unlucky but i would still do it again if i went back a year, even just a few

months relief was worth it. And the problems from december werent as bad as

befoer the hellers. On wednesday i had the Nissens Fundoplication for the acid,

my doctor thinks that was why i was having more problems swallowing and with

pain, also adhesions had attached my liver to my abdominal wall and adhesions

were completly covering my esophagus to my stomach.

After the Hellers myotomy, i was in High Dependancy Unit, just so they kept a

closer eye on me, i recovered quite quickly i think, but i react badly to

morphine so that help me up a bit, The pain wasnt too bad, obviously it was sore

for a week or two, but when you have that first mouthful of food without pain or

being able to gulp water down without being sick, you realise how worth it, it

is.

erm im not sure what else you want to know, i tend to waffle on a bit feel

free to ask anything else you want to know,

take care

vicky x

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> > Dr. Holzman responded to my emails and will be working Cullen in for more

testing and to maybe schedule surgery. He said he had done around 100 and that

his practice has done around 300 but in the past several years it has been him

doing the majority of these surgeries. I am happy to have to ball rolling but

scared at the same time. I was wondering if anyone could tell me how bad the

swallowing the tube is for the test they are going to do that checks the

pressure in your esphogus? I am so worried my son is going to freak. Also what

can we expect after surgery? Pain, eating, recovery? Nervous mom.

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[Guest guest]

If you ask them to give him something to relax him they may do that.They

actually have had to give JAmes something everytime for the manometry test or

its just not getting done.He was 12 at the first one and even now at 16 he has

already said they better be ready to give him something. Its not painful just

uncomfortable for about 45 minutes.Im glad you got an appointment for your

son.PLease le t me know if I can be of any help.We are heading to Cleveland now

Monday to see whats going on with but I will have my phone on if ya need

to call. Good luck!

> >

> > Dr. Holzman responded to my emails and will be working Cullen in for more

testing and to maybe schedule surgery. He said he had done around 100 and that

his practice has done around 300 but in the past several years it has been him

doing the majority of these surgeries. I am happy to have to ball rolling but

scared at the same time. I was wondering if anyone could tell me how bad the

swallowing the tube is for the test they are going to do that checks the

pressure in your esphogus? I am so worried my son is going to freak. Also what

can we expect after surgery? Pain, eating, recovery? Nervous mom.

> >

>

[Guest guest]

I find the worst bit of a manometry is how nervous i get before i even go for

the test, i know i can cope with the tube and i have had bigger ones but i still

clam up and feel sick, and most likely cry lol.

the best thing to tell him to do is ; put your chin to your chest ( or as low as

your doctor lets you) and ask for some water to continuously swallow as it goes

down if the doctor wont let you just swallow saliva as quickly and hard as you

can, he will proberly retch as it gets to the back of the throat, and they sayy

not to but as you know its natural when something thats not meant to go down is

being forced. Just again relax (as much as possible) and everytime you think you

will retch try to swallow hard and push it down. Once the tube is past the back

of the throat, it will feel uncomfortable but you wont feel like you need to

throw it up.

I personally found the sedation made it worse, i woke up halfway through them

inserting it and didnt know what they were doing i kept pulling it out and

trying to hit people !!!! it was awful.

good luck

xx

> > >

> > > Dr. Holzman responded to my emails and will be working Cullen in for more

testing and to maybe schedule surgery. He said he had done around 100 and that

his practice has done around 300 but in the past several years it has been him

doing the majority of these surgeries. I am happy to have to ball rolling but

scared at the same time. I was wondering if anyone could tell me how bad the

swallowing the tube is for the test they are going to do that checks the

pressure in your esphogus? I am so worried my son is going to freak. Also what

can we expect after surgery? Pain, eating, recovery? Nervous mom.

> > >

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[Guest guest]

My first manometry was uncomfortable, but just at the beginning. That doctor

was wonderful.. she said almost all her achalasia patients gag up foam or

whatever is in the esophagus, be prepared... make sure that pan is close and a

towel. Don't freak.. kids copy our response to things, more likely the moms

need the sedative. It might even be better if you aren't in the room. Once the

tube is in, no big deal. There is a tiny moment when they pull it out, past the

gag reflex spot that is iffy also.

It is worth it to eat and drink. I'd seriously suggest you let the doctor coach

them through it and moms stay out of the room if your child is over 10 or so...

maybe even younger. I know it would be hard to do that. They react better

often if we aren't there, just ask their teachers. Saying that, I understand it

is your baby and it would be difficult not to be there, but our mom nervous

worry permeates everywhere I think, saying it as a mom and having gone through 2

manometries. The manometry isn't much different than a pap test, more gagging,

but for the first ones equally awkward. (Sorry guys, just trying to use a

reference point)

Sandy

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> > > > Dr. Holzman responded to my emails and will be working Cullen in for

more testing and to maybe schedule surgery. He said he had done around 100 and

that his practice has done around 300 but in the past several years it has been

him doing the majority of these surgeries. I am happy to have to ball rolling

but scared at the same time. I was wondering if anyone could tell me how bad

the swallowing the tube is for the test they are going to do that checks the

pressure in your esphogus? I am so worried my son is going to freak. Also what

can we expect after surgery? Pain, eating, recovery? Nervous mom.

> > > >

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[Guest guest]

I agree about not going into the room if possible as well.This time can go

in on his own and will more than likely do better.

Tonia

-- In achalasia , " toomuchclutter " <sandycarroll@...> wrote:

>

> My first manometry was uncomfortable, but just at the beginning. That doctor

was wonderful.. she said almost all her achalasia patients gag up foam or

whatever is in the esophagus, be prepared... make sure that pan is close and a

towel. Don't freak.. kids copy our response to things, more likely the moms

need the sedative. It might even be better if you aren't in the room. Once the

tube is in, no big deal. There is a tiny moment when they pull it out, past the

gag reflex spot that is iffy also.

>

> It is worth it to eat and drink. I'd seriously suggest you let the doctor

coach them through it and moms stay out of the room if your child is over 10 or

so... maybe even younger. I know it would be hard to do that. They react

better often if we aren't there, just ask their teachers. Saying that, I

understand it is your baby and it would be difficult not to be there, but our

mom nervous worry permeates everywhere I think, saying it as a mom and having

gone through 2 manometries. The manometry isn't much different than a pap test,

more gagging, but for the first ones equally awkward. (Sorry guys, just trying

to use a reference point)

>

> Sandy

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> > > > > Dr. Holzman responded to my emails and will be working Cullen in for

more testing and to maybe schedule surgery. He said he had done around 100 and

that his practice has done around 300 but in the past several years it has been

him doing the majority of these surgeries. I am happy to have to ball rolling

but scared at the same time. I was wondering if anyone could tell me how bad

the swallowing the tube is for the test they are going to do that checks the

pressure in your esphogus? I am so worried my son is going to freak. Also what

can we expect after surgery? Pain, eating, recovery? Nervous mom.

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