Guest guest Posted December 20, 1999 Report Share Posted December 20, 1999 Karin- Could you tell me what you are about again....I know you have adopted children, how many? Do they all have Ds? I know I am awful but I can't remember 5 minutes ago half the time. Thanks Rosie Karin, What an incrediable experience. I loved reading both your messages about the camera crew and the actual show. Can't wait to tape it on the 23rd. I also love your sense of humor - with all those wonderful children I know its comes in handy. Can't believe they though you might trip - at the same time you wouldn't think they would give people ideas. If it was me I would be terrified that just because they said that even though it would never have occured to me to do this to anyone but being nervous I might have done it as in subconscience planted thought or at least then would have worried I might. Anyway what an experience of a lifetime!! Oh by the way couldn't wait to tell my husband what you named the new baby - his name is Drew also. Thanks for sharing everything. See you on TV on the 23. Margaret w/ Greyson and - 3 and Annice 18mos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2003 Report Share Posted September 24, 2003 I just got to talk to her for the 1st time after the Southern New England picnic.... Three hours later... LOL Gee.... maybe we can plan the SNE picnic close to your gathering, and ask them to hop over here for a play date, too! <g> Or, I take a LOT of drugs and make it to NY. I'll ask or Becky to take me. LOL Just that old panic disorder/agoraphobia thing. Or, Ela. BTW... if you feel the ned to divulge any more secrets.. feel free!!! Deb > I just love Rosie to pieces ; ) Her warm southern drawl in messages > left on my phone machine make me smile. She's such a sweet heart. And > Tony & Rosie plan on attending next year's gathering via this group > in NYS....I'm looking forward to meeting her face to face ; ) All of > you!!!!!! > Huggs, Bekka Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2006 Report Share Posted September 11, 2006 Rosie Have u improved on Dr. Myhill's protocol at all? Louella --------------------------------- Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2006 Report Share Posted September 12, 2006 Hi Luella, I'm sorry to say; no. But I suspect alot of that is due to the fact that I couldn't really take anything long enough for positive effect because I reacted so badly to everything. I had the ATP profile done which shows, in Dr Myhills words; 'disastrously low levels of ATP'. She thinks that I have allergies which are preventing me from tolerating these supplements - hence the EPD. I do know that I am chemically sensitive and this has become worse over the last few years, but I'm pretty ok with most foods.. so the jury is out as to how beneficial EPD may be for me. From what I understand from other patients with difficult cases of ME, some supplements are helping a bit, though I am not really aware of anyone who can say they are substantially better because of them. Dr Myhill is very upbeat and says that alot of her patients are doing very well, but I haven't 'spoken' to any in that category yet. That's not to say they don't exist, they simply may not be on lists like this talking about it; either because they are now well, or were never so unwell and desperate as to be searching in the way that many who access lists inevitably are (if that makes sense?) Hope this helps.. not sure it does really :-( BW Rosie > > Rosie > > Have u improved on Dr. Myhill's protocol at all? > > Louella > > > > > --------------------------------- > Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2006 Report Share Posted September 12, 2006 Thanks Rosie. I hiope you find something that helps.... Louella --------------------------------- Get your own web address for just $1.99/1st yr. We'll help. Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2006 Report Share Posted December 2, 2006 Actually, in this case the " queen of nice " would be a bad thing. The " queen of nice " would ignore common sense and would listen to popular beliefs or would be concerned to bring up such a controversial issue As to your point, though. I'm definately NOT putting too much faith in her in terms of being a huge advocate or anything... but perhaps just in a sense of bringing more attention to the issue. A step in the right direction would be to do a full hour on autism - which I'm sure that she had a hand in pushing for (if it actually happens). Again, it could be all fluff... time will tell. Sue M. > > I wouldn't put too much faith in Rosie. I've met a few people who > either worked with her or met her and they all said she is definitely > not the " queen of nice " in reality. Rosie is the type to get > involved in her OWN issues. She does a lot for gay rights, her > mother died of cancer, she's got this new job with The View... I > doubt she'll want to take on autism in any real way. I'm not saying > don't try- but don't take it personally when you get no response. I > would target the famous people who have family members with autism- > the list is growing. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 I see that Notan found quite a bit on your guy at Shands. Sounds like he's got some good experience, you should go meet with him and see how you feel when you are done. Just try to get an idea from him how many myo's he does yearly. If it's at least 50 - 100 and you like him, schedule it! the VAST majority of myo's can be performed laproscopically now so you shouldn't be in the hospital for more than 1-2 nights and on mild painkillers for about 1 week. You'll be eating soft and mushy for a few weeks but then you should be back to a pretty normal diet. Do you have any family or friends who can come stay with you to help with the kids? I'm sure this all seems very overwhelming as a single mom but really, you NEED to be able to eat. A good myo from an experienced surgeon is not a cure but should provide you with relief for many years. Keep us posted. - in NC Quote Link to comment Share on other sites More sharing options...
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