Re: AW:

[Guest guest]

Pardon me for sticking my nose in here but I have a thought. In the

BioReview screen each facet of the assessment has a box to check. In

the report screen the default is that some are not checked, on mine, it

was all the coherance and Peak Alpha material. I have no idea if this

is true but I carefully checked everything in sight (thus making the

report chart totally unreadable) and then exported it. You could see if

there are unchecked boxes and check them and then export and see if it

shows up.

On Mar 2, 2004, at 12:50 AM, Dr. Reginas Mayer-Jaekel wrote:

Dear Pete,

 

We used TLC Assess BE and all seems to work except the raw data in the

Process sheet dont turn up - its just ###### and on the report page

there is #### for coherence,  alpha peak frequency and tot. The

original data look OK its all there. Is it ok to bring just the

BioExplorer data, or the Bioreview export file?-

 

Regina  

-----Ursprüngliche Nachricht-----

Von: Van Deusen [mailto:pvdtlc@...]

Gesendet: Montag, 1. März 2004 18:51

An:

Betreff: Re:

Regina,

Are you using the special TLC Assess BE version?  You must use that to

see the data correctly from BioExplorer.

Pete

>

> From: " Dr. Reginas Mayer-Jaekel " <Regina@...>

> Date: 2004/02/29 Sun AM 08:06:31 EST

> < >

> Subject:

>

>

>

>   Dear Pete,

>

>   I need some help for Bioexplorer assessment. I did an assessment

with a

> collegue and when we load the export data in Exel and process, the

peak

> frequency and coherence data dont appear. Since these are data you

were

> supposed to see in the trainer course this week it would be great to

know

> how to fix this before doing more assessments.

>

>   I hope this is a trivial question,

>

>   thanks

>

>   Regina

>

>

[Guest guest]

Hi ,

As soon as there is any news on the translation I'll let you know. It's

something I'll definitely will discuss with Hartwig and Dr. Schulz at the

conference in Mainz.

As for the question how I am doing... GREAT!!! That's the only word I can think

of... No it isn't... MARVELLOUS!!! Really, that's the truth, . The doc

that cut away the scar tissue has performed a miracle. I just have a fantastic

team at my hospital, they have worked so well together to get me to this point.

I am really happy that I have had my -ectomy done and that I got rid of my

J-tube.

, I've said it before and once more I'll repeat it: go to another

hospital, girl. They are destroying you over there. I absolutely refuse to

believe that you cannot get to the point where I am at right now. Just look at

the effort my hospital put in my case to help me and compare it to the effort

your hospital put in my case... need I say more???

Yes, I know it's difficult insurance wise, but hey, this way you cost your

insurance heaps of extra money and it won't stop untill things finally change

for the better. If you put it that way, no way insurance will refuse to get you

to another hospital. And whether it's a long way from your home shouldn't matter

to you, as it will save you so much trouble and time in the end.

Again: I refuse to believe the way you live your life now is the best it can

get, I think you could be helped very very well.

You say they tell you you have cycro... (I hate that word, always spell it

wrong) achalasia, but based on what do they tell you that? And why only so few

dilatations and so far apart? And why not cut away tissue like they did in my

case? And why no stent?

Questions, questions, questions, . You should go for it. You only have

one life to live (is what I believe), so you better try to make the best of it

and you need good docs to help you on that one.

Love,

Isabella

________________________________

From: Hulmes <christine.hulmes@...>

achalasia

Sent: Tuesday, April 14, 2009 2:51:26 PM

Subject: Re: AW: Isabella / German achalasia conference -

translation

Dear Hartwig and Isabella

I would dearly love a copy of the book when translated into English. Let me

know if and when this happens. How are things with you Isabella?

from the UK

____________ _________ _________ __

From: Isabella Arnold <arnoldisabella>

achalasia@grou ps.com

Cc: hruetze (DOT) de; Hartwig Rutze <achalasieweb (DOT) de>; EvK Castrop-Rauxel Dr.

Henning G. Schulz <dr.h.g.schulz@ gmx.de>

Sent: Tuesday, April 14, 2009 12:08:22 PM

Subject: Re: AW: Isabella / German achalasia conference -

translation

Hi Hartwig and a.o. ,

I've been thinking about this for quite a while now. How do we get this book

translated and how do we get the German website on achalasia translated.. .

Of course I could do it, both my English and German would be more than

sufficient to do this job. But I've started translation of the German website a

while ago and it costs sooooo much time and energy, that I have stopped working

on this translation (especially regarding my health issues of course).

My company often has manuals translated. There is a special office we hire for

doing that. Would it be an option to get a professional translation office to

translate both website and book for us? I could find out what the costs would be

when we hire the translater through the company I work for, but it's cheaper to

get things translated by a German office (as it's the source language). If I'm

correct we had to pay about € 0,01 per word for the last translation we had

done for our company. Of course it depends on the amount of words you need to

have translated, as well as the period of time that you want to have the job

done in. Often you can negotiate about the price.

Hartwig, would you be interested in talking about this further when we meet in

Mainz? There must be a way we could get this financed, don't you think?

Isabella

 

____________ _________ _________ __

From: Hartwig Rütze <hruetze (DOT) de>

achalasia@grou ps.com

Sent: Monday, April 13, 2009 9:13:59 PM

Subject: AW: Isabella / German achalasia conference

Hi ,

I try to read in this group, but my english is very bad. When I find a

translator, in`t no problem the book " A Live With Achalasia " to send for

interesting People.

But I thing, it`s a long way.

Hartwig from Germany

____________ _________ _________ __

Von: Hulmes <christine.hulmes>

An: achalasia@grou ps.com

Gesendet: Donnerstag, den 2. April 2009, 09:48:57 Uhr

Betreff: Re: Isabella / German achalasia conference

Hi Isabella

I would be very, very intereeested on getting hold of an English translation of

the book that you mention in your post. Is it at all possable in the future

sometime??

____________ _________ _________ __

From: Isabella Arnold <arnoldisabella>

achalasia@grou ps.com

Sent: Thursday, April 2, 2009 7:53:12 AM

Subject: Re: Isabella / German achalasia conference

Hi ,

The international Achalasia conference is merely meant for achalasians

themselves. It is held in Mainz, Germany on Saturday 2 May next.

Dr..'s to attend are:

Dr. Müller, DKD Wiesbaden:

how to diagnose achalasia / non surgical approach, botox or dilatation?

Dr. Schulz, Ev. Krh. Castrop-Rauxel:

what are the pro's of a myotomy?

PD Dr. Gockel, Uniklinik Mainz:

when is an esophagectomy needed?

Mrs Steinke, diaticean, Uniklinik Mainz:

food advice

Dr. Hemminghaus, Marienhospital Herne:

dilatations at child age

Prof. Dr. Schier, Uniklinik Mainz:

laparoscopic surgery for achalasia at child age

Dr. Müller, Uniklinik Mainz:

newest findings and researches concerning the cause of achalasia

The conference starts of with the (short) presentations of above mentioned

doc's. After that there will be a stage discussion, after which we will have

dinner together (great eh, about 100/200 achalasians dining together!). After

that we will have time to talk to each other, but not group wise.

It's about 4 hours drive from my home, so I'll drive up there May 1st and return

home May 3rd. Romeo won't be joining me, he stays home with the boys. I share a

hotel room with Gesche, my dear German friend. I got to know her through the

German board as she went through the 2nd myotomy at the same time I did (hers in

Germany, mine in Holland). We are in touch daily and have become dear friends of

each other. We stay in the same hotel as some other friends we met earlier on,

some of them at the 1st conference, others on the German board. I really look

forward to this day. Both for seeing my friends again and for hearing and

speaking to those docs.

There is no need to spread more info on this -group on the German

conference, since they already know all about this group. Yet, for many over

there the German board (which is pretty huge) is sufficient and the language is

a problem as well in some cases. I found this -board through the German

group, since there is a link on it that directs to our -Group!

I don't know what literature will be given on the conference. I think it will at

least be the leaflet on achalasia. In Germany they have produced a leaflet and

spread it under doc's etc. Pretty good! Furthermore I think there will be an

opportunity to get the achalasia book written by Dr. Schulz and Hartwig Rütze.

I already got that few hundred pages book, it's a good one! It writes about all

medical aspects of achalasia (research for cause, diagnosis, treatments) and it

gives stories of achalasians themselves. It includes a few pages written by me

concerning the first post -ectomy period.

Of course I will speak to Dr. Gockel in person coming May at the conference and

we'll discuss the research. Since Dr. Müller, the pathologist, is also there we

might get a good discussion started.

I'll let you know how things went.

Love,

Isabella

____________ _________ _________ __

From: michelle <mcnairmichelle@ aol.com>

achalasia@grou ps.com

Sent: Wednesday, April 1, 2009 2:49:06 PM

Subject: Isabella

about the international A conference, where is it and who attends? is there any

literature that gets passed out to the attendees? How about programs or

magazines? I ask because I'm wondering if there would be some opportunity for us

to distribute some information about this group to somehow make these doctors

aware that we exist so they could send their patients our way. We are a large

group and many people seem to find us on their own but I always worry about the

ones who do NOT find us.

Have you heard any more from Dr. Gockel about the research she is starting?

- in NC