Guest guest Posted February 12, 2007 Report Share Posted February 12, 2007 That sounds very reasonable and proactive!! I hope his curvature does not progress, but if it does, it sounds like you're ready to treat it w/casting! Good luck and let us know how it goes with his f/u in 2 months (I surely think that being x-rayed again in 2mos as opposed to 3 mos is the way to go in your situation). and Evan Mohr <lisammohr@...> wrote: Thank you to all of you who recommended that we go see Dr. kson in Denver. He is wonderful and very informative. He explained everything very clearly. We also met with a Dr. Lu before we met with kson. He also seems very educated. To remind you of my son Connor's history - he is 26 months old. A year ago we noticed a curve and it was at 19 degrees. We had cord detethering in September. As of January his curve was at a 24. Dr. kson said it was relatively the same because of the 5 degrees of error. So now we were trying to decide - brace, cast or wait some more. Dr. kson was confindent that we should wait and that is what he would do if it was his son. We only are waiting 2 months since his last x-ray was in January, we will then take new ones and make another decision. His RVAD remains under 20 so he is still wondering if it could resolve. We made it very clear to him that when and if we need to treat it - then we are on board for the casting and definitely are not interested in bracing him to hold the curve. Thanks for the info and hooking me up with this doc. We are going to continue to see him. and Connor --------------------------------- Need a quick answer? Get one in minutes from people who know. Ask your question on Answers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2007 Report Share Posted February 12, 2007 , I'm glad you liked Dr. kson and that he was able to reassure you a little more. I think you have made a good decision to wait. Normally I would NEVER wait, but his numbers are very low and the RVAD is under 20. Two months will come fast, and you will be able to re-evaluate quickly at that time. Please keep us all posted. Thinks sound great. /Cole Mohr <lisammohr@...> wrote: Thank you to all of you who recommended that we go see Dr. kson in Denver. He is wonderful and very informative. He explained everything very clearly. We also met with a Dr. Lu before we met with kson. He also seems very educated. To remind you of my son Connor's history - he is 26 months old. A year ago we noticed a curve and it was at 19 degrees. We had cord detethering in September. As of January his curve was at a 24. Dr. kson said it was relatively the same because of the 5 degrees of error. So now we were trying to decide - brace, cast or wait some more. Dr. kson was confindent that we should wait and that is what he would do if it was his son. We only are waiting 2 months since his last x-ray was in January, we will then take new ones and make another decision. His RVAD remains under 20 so he is still wondering if it could resolve. We made it very clear to him that when and if we need to treat it - then we are on board for the casting and definitely are not interested in bracing him to hold the curve. Thanks for the info and hooking me up with this doc. We are going to continue to see him. and Connor --------------------------------- Expecting? Get great news right away with email Auto-Check. Try the Beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2009 Report Share Posted February 9, 2009 Our meeting was with a thoracic surgeon who does *all* the myotomies at this hospital - so he has experience. He does open myotomies thoracoscopically. He said we had two options with him: open myotomy or lower oesophagectomy. All the reading I've done is related to laparoscopic Heller-dor operation. So this thoracic surgeon is going to refer us to an abdominal surgeon in another city for a second opinion. This will take a few weeks. Thoracic surgeon says he will put us in touch with a person who has had both ops (we are assuming he will choose people who've had successful outcomes!) which may be helpful. I've obviously got more reading to do because I've hardly come across any thoracoscopic open myotomy research articles - probably because I've assumed the op would be laparoscopic. He says there is no need for a fundoplication or anti-reflux procedure when the surgery is entered via the thoracic route. This is from his own research: http://ejcts.ctsnetjournals.org/cgi/content/abstract/34/2/423 <http://ejcts.ctsnetjournals.org/cgi/content/abstract/34/2/423> This is from a separate article: " Although greater experience is required, the preliminary results of this study suggest that robot-assisted thoracoscopic Heller Myotomy without an antireflux procedure may represent an excellent alternative to laparoscopic myotomy with an antireflux procedure. " http://meeting.chestjournal.org/cgi/content/abstract/132/4/660 <http://meeting.chestjournal.org/cgi/content/abstract/132/4/660> Any ideas, please? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2009 Report Share Posted February 12, 2009 Good Luck on your 2nd opinion. ________________________________ From: melanie32uk <melanie32uk@...> achalasia Sent: Tuesday, February 10, 2009 4:30:48 PM Subject: Re: 2nd opinion Hi , The thoracic surgeon is , Royal Infirmary, Edinburgh. The 2nd opinion surgeon will be in Glasgow which is about 45min - 1 hour drive depending on which part of Glasgow. We don't know who or where exactly the 2nd opinion is yet. Just waiting on an appointment letter..... <christine.hulmes@ ...> wrote: > > Hi > Who is your surgeon and where does she/he propose to do the surgery? Is it far from where you live? Good Luck on your 2nd opinion. Keep us all informed. > Quote Link to comment Share on other sites More sharing options...
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