Guest guest Posted November 11, 1999 Report Share Posted November 11, 1999 Prayers and positive thoughts from our family for you and your family! ~,moma to (DS) & Sloan {18 months} Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2003 Report Share Posted July 16, 2003 In a message dated 7/16/2003 8:57:43 PM Pacific Standard Time, writes: > Speaking af eating and what folks eat....I have done things to add > extra protein to my food, but worry that the extra calories in the cheese > and > extras are gonna be the end of me...Thoughts anyone?? > EAT!!! LOL I eat everything and anything I want, especially if it has even a HINT of protein in it. Stop dieting! Start eating!!!!! love ya! Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2009 Report Share Posted January 30, 2009 Thanks . The NHS is free therefore you cannot pick and choose and waiting lists are long. You can ask for a 2nd opinion and they bring in another NHS consultant for that but we may wait weeks for an appointment. I already know he needs surgery either myotomy or - ectomy. I want to hear their rationale for whichever they decide to do before I know if I even need a 2nd opinion, because so far I've had no info from nursing (they don't know either) or medical staff. I've no idea how many otomies or ectomies he or she has done. Congratulations on getting rid of the Ghastly A. > > I don't always understand how the NHS works but you are welcome to get > 2nd and 3rd opinions, yes?? I would do so and quickly!! I am one of > those that had a total esophagectomy just over one year ago and I will > tell you that it was a godsend and I would do it again in a heartbeat > *but* I was able to go to a surgeon who does over 100/year. Even if > you're at a teaching hospital, there's got to be someone in your system > who has performed more than one!! I feel for your husband and I can > relate to his suffering and pain - been there, done that - but it will > be so worth it in the end to put the time into getting someone with > more experience to perform the surgery (myotomy or -ectomy). Maybe > someone in the UK can recommend someone for you. > Actually, isn't Tim in the UK? Search some posts from the last few > months if he doesn't respond to you. He needs and -ectomy and I'm > pretty sure he said his doctor performs them regularly. > Now you probably won't find a surgeon who performs them on A patients > regularly but alot of surgical oncologists do them for cancer of the E. > This is not saying that an experienced surgeon could not do a myo and > have it work well but the key to everything is holding out for the most > experienced doctor you can find. It will be all the difference in the > world in the long run. > > Good luck to you and keep us posted. > > - in NC > achalasia free since Jan. 11th, 2008 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 Hi Have just read your posts. A Mr Rivhard D. Page of the Liverpool Heart and Chest Hospital did my ectomy in October 2004. If I had to have it done again I would go to this surgeon who has performed over 1000 Oesophagectomies for cancer and performes about 5 every year for Achalasia patients alone. He is a well respected surgeon in his field and will consider patients from outside his catchment area in otherwords anywhere from the UK. He speaks to you and not down his nose to you if you know what I mean. Contact him at the Liverpool Heart and Chest Hospital, Drive, Liverpool L14 3PE. Phone no:- 0151 228 1616. If the Liverpool hospital is too far away from you consider Mr Mike from your area of Scotland. I am not sure of the hospital that he works at but you can find his details if you Google his name. Good Luck. Keep us posted. ________________________________ From: michelle <mcnairmichelle@...> achalasia Sent: Friday, January 30, 2009 2:25:17 PM Subject: melanie I don't always understand how the NHS works but you are welcome to get 2nd and 3rd opinions, yes?? I would do so and quickly!! I am one of those that had a total esophagectomy just over one year ago and I will tell you that it was a godsend and I would do it again in a heartbeat *but* I was able to go to a surgeon who does over 100/year. Even if you're at a teaching hospital, there's got to be someone in your system who has performed more than one!! I feel for your husband and I can relate to his suffering and pain - been there, done that - but it will be so worth it in the end to put the time into getting someone with more experience to perform the surgery (myotomy or -ectomy). Maybe someone in the UK can recommend someone for you. Actually, isn't Tim in the UK? Search some posts from the last few months if he doesn't respond to you. He needs and -ectomy and I'm pretty sure he said his doctor performs them regularly. Now you probably won't find a surgeon who performs them on A patients regularly but alot of surgical oncologists do them for cancer of the E. This is not saying that an experienced surgeon could not do a myo and have it work well but the key to everything is holding out for the most experienced doctor you can find. It will be all the difference in the world in the long run. Good luck to you and keep us posted. - in NC achalasia free since Jan. 11th, 2008 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 Dear , I am having a T.H.E [esophagectomy with anastomosis in the neck] on April 16th. My surgeon will be Nick Maynard at the Radcliffe Hospital in Oxford. He has done 500 of these, and is confident I shall be fine. I would be very sceptical about being operated on by somebody lacking in experience in this complicated operation. Regards Tim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2009 Report Share Posted February 2, 2009 Hi Tim Good Luck for your surgery on April 16th. Hope all goes well. I come from a small town within the Snowdonia National Park in North Wales. Beautifull countryside. My Oesophagectomy (with neck anastomosis)was done in the Liverpool Heart and Chest Hospital in Liverpool by Mr D. Page in October 2004 so I am an old hand in the group now and if i can answer any of your many to come questions then I will do my very best to answer them for you. ________________________________ From: timwilson12 <timwilson12@...> achalasia Sent: Sunday, February 1, 2009 3:14:49 AM Subject: Re: melanie Dear , I am having a T.H.E [esophagectomy with anastomosis in the neck] on April 16th. My surgeon will be Nick Maynard at the Radcliffe Hospital in Oxford. He has done 500 of these, and is confident I shall be fine. I would be very sceptical about being operated on by somebody lacking in experience in this complicated operation. Regards Tim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2009 Report Share Posted February 8, 2009 Thank you ! > > Hi > Have just read your posts. A Mr Rivhard D. Page of the Liverpool Heart and Chest Hospital did my ectomy in October 2004. If I had to have it done again I would go to this surgeon who has performed over 1000 Oesophagectomies for cancer and performes about 5 every year for Achalasia patients alone. He is a well respected surgeon in his field and will consider patients from outside his catchment area in otherwords anywhere from the UK. He speaks to you and not down his nose to you if you know what I mean. Contact him at the Liverpool Heart and Chest Hospital, Drive, Liverpool L14 3PE. Phone no:- 0151 228 1616. If the Liverpool hospital is too far away from you consider Mr Mike from your area of Scotland. I am not sure of the hospital that he works at but you can find his details if you Google his name. Good Luck. Keep us posted. > > > > Quote Link to comment Share on other sites More sharing options...
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