Guest guest Posted January 4, 2009 Report Share Posted January 4, 2009 I have had achalasia for awhile now had all the tests, but decided to put off any surgery. I've learned to live with it for the most part. In order to get food down I use a bottle of water and down a enormous amount of water to force the food into my stomach. I usually go through about 3/4 of a liter bottle for most meals. It's been working ok, besides from some looks if I eat out, I actually could stand to loose some weight. Of course as all you know, no matter how you try achalasia is on your mind most of the time, even trying to live a relatively " normal " life. I'm getting nervous the closer I get to my wisdom teeth removal, that this may really make it hard for me to eat. The pain of the extraction area or the problem with dry sockets, because i have to really chug the water to get the food to get in my stomach. Most " normal " people would be able to drink shakes or things like boost to get nutrition. But foods like these are actually worse because the more liquid a substance is the harder it is to get into my stomach with the water and it's not getting in there without any help. Maybe a little bit of liquid food gets into my stomach without any assistance but I'm not sure how much. I guess I don't know what to expect and don't always think of how my swallowing issues will effect me until it happens. I really can't skip the removal I need my wisdom teeth out. I guess i don't know what to expect out of this message (I get nervous posting for some reason) But if anyone has any feedback. ?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2009 Report Share Posted January 4, 2009 Hi Thank god someone else is holding off on an operation,guess we are in the 1% group, once the LES is cut it will be impossible for a cure. I have had two 16 mm dialations last year and the year before and lost 35 lbs, but now much better and gaining weight several lbs. My cure is Coke 2-3 a day, Ensure plus 2-3 a day, soups, pasta with olive oil,mashed potatoe with gravy,ice cream, milk and chocolate and a bit of chili at lunch with a coke.It has to be ground meat or very tender turkey mixed with the beans, some times the bean shell comes up. Somebody on this site said that magnesium 500 mg helped so I started this several monhs ago, also Vit D3 2000 iu. These two really helped.Also take Arginine Tr plus from CVS 2 a day, 500 mg, most days. They are large but the weight causes them to go down. When you look at all the problems that the operation causes, that for some, maybe 25%, they are no better off than I. I am almost normal most times, of course once in awhile I would like to shoot myself. When I go to a restaruent I get thin soup and take a cold Coke if I have any problem. You have to get into a routine of what works like Coke the CO2 part at Mcs every morning during my walk, then I can get 20-30 ounces down. I used to have coffee but it came up after 1/3 cup. Then I go home and have milk and cereal, follow later with Ensure. Before I go to bed I have a Coke or Ensure and regurgitate any thing left in the E. I used to spit up on the sheets 12 months ago. I have also found that breathing deep, many times during a meal like pasta or chili helps a lot, suddenly the food goes down, of course with a Coke. I stopped taking Nexium a year ago as my GI prescribed it 3 years ago for my GERD in the middle of the night. My belief is that Nexium may have caused the Achalasia which I got diagnosed last March with a manometry test ( my 4th GI). rayme CA OC 78 > > I have had achalasia for awhile now had all the tests, but decided to > put off any surgery. I've learned to live with it for the most part. > In order to get food down I use a bottle of water and down a enormous > amount of water to force the food into my stomach. I usually go > through about 3/4 of a liter bottle for most meals. It's been working > ok, besides from some looks if I eat out, I actually could stand to > loose some weight. Of course as all you know, no matter how you try > achalasia is on your mind most of the time, even trying to live a > relatively " normal " life. I'm getting nervous the closer I get to my > wisdom teeth removal, that this may really make it hard for me to eat. > The pain of the extraction area or the problem with dry sockets, > because i have to really chug the water to get the food to get in my > stomach. Most " normal " people would be able to drink shakes or things > like boost to get nutrition. But foods like these are actually worse > because the more liquid a substance is the harder it is to get into my > stomach with the water and it's not getting in there without any help. > Maybe a little bit of liquid food gets into my stomach without any > assistance but I'm not sure how much. I guess I don't know what to > expect and don't always think of how my swallowing issues will effect > me until it happens. I really can't skip the removal I need my wisdom > teeth out. I guess i don't know what to expect out of this message (I > get nervous posting for some reason) But if anyone has any feedback. ?? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 Have you ever seen a surgeon? When I saw mine he said none of this patients had ever closed after his surgery and the oldest patient had the surgery 20 years ago. He said I could expect the surgery to last until I was at least 80 and probably longer. Don't take the success rate in this group as the success rate you might have. We are too varied in cause. Find out what the success rate is for your surgeon and for your individual case and then make a decision. Don't make it based on what you read here. Maureen > > Hi Thank god someone else is holding off on an operation,guess we are in the 1% group, once the LES is cut it will be impossible for a cure. I have had two 16 mm dialations last year and the year before and lost 35 lbs, but now much better and gaining weight several lbs. My cure is Coke 2-3 a day, Ensure plus 2-3 a day, soups, pasta with olive oil,mashed potatoe with gravy,ice cream, milk and chocolate and a bit of chili at lunch with a coke.It has to be ground meat or very tender turkey mixed with the beans, some times the bean shell comes up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 I've had all four of mine removed. The bottom two were fully encased in my jaw and the upper two just had to be pulled. Needed lots of the pain meds for the first removal but none for the second. My mouth actually felt better afterward and the teeth had not been hurting me. You can get some strong pain relievers in liquid form. Ask if he can prescribe that ahead of time. Then take it on an empty stomach so it gets through right away and sleep for a day or two. You will be fine. Maureen The pain of the extraction area or the problem with dry sockets, because i have to really chug the water to get the food to get in my stomach. Most " normal " people would be able to drink shakes or things like boost to get nutrition. But foods like these are actually worse because the more liquid a substance is the harder it is to get into my stomach with the water and it's not getting in there without any help. Maybe a little bit of liquid food gets into my stomach without any assistance but I'm not sure how much. I guess I don't know what to expect and don't always think of how my swallowing issues will effect me until it happens. I really can't skip the removal I need my wisdom teeth out. I guess i don't know what to expect out of this message (I get nervous posting for some reason) But if anyone has any feedback. ?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009 hi ive never really been in a group i ve had this for7 or 8 years and i cant belive how simaliar your eating rutine is to mine.well i have alot to say but not sure how this group thing works > > > > I have had achalasia for awhile now had all the tests, but decided > to > > put off any surgery. I've learned to live with it for the most part. > > In order to get food down I use a bottle of water and down a > enormous > > amount of water to force the food into my stomach. I usually go > > through about 3/4 of a liter bottle for most meals. It's been > working > > ok, besides from some looks if I eat out, I actually could stand to > > loose some weight. Of course as all you know, no matter how you try > > achalasia is on your mind most of the time, even trying to live a > > relatively " normal " life. I'm getting nervous the closer I get to my > > wisdom teeth removal, that this may really make it hard for me to > eat. > > The pain of the extraction area or the problem with dry sockets, > > because i have to really chug the water to get the food to get in my > > stomach. Most " normal " people would be able to drink shakes or > things > > like boost to get nutrition. But foods like these are actually worse > > because the more liquid a substance is the harder it is to get into > my > > stomach with the water and it's not getting in there without any > help. > > Maybe a little bit of liquid food gets into my stomach without any > > assistance but I'm not sure how much. I guess I don't know what to > > expect and don't always think of how my swallowing issues will > effect > > me until it happens. I really can't skip the removal I need my > wisdom > > teeth out. I guess i don't know what to expect out of this message > (I > > get nervous posting for some reason) But if anyone has any > feedback. ?? > > > Quote Link to comment Share on other sites More sharing options...
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