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Re: Drs out West

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jagd41 wrote:

> ... I would hope some of our local drs have learned about this

> problem.

>

Be careful here. You don't just want someone that has just learned about

it. You want someone that has done lots of Heller myotomies. There are

articles written by surgeons that describe how their second fifty

myotomies were better than their first fifty. There are studies that

show two important factors in the outcome are, the experience of the

surgeon with this surgery and the volume of myotomies the medical center

does. Unless you live in a very large metropolitan area it is unlikely

that there will be enough myotomies done in the area to keep volume up.

The rate of new achalasia cases is 1 in 100,000 per year, and not all of

those will receive myotomies. A center that serves a population of

500,000 would only have 5 new cases a year and less myotomies. Remember

too that children have about a tenth as much of a chance of getting

achalasia. So a population of 500,000 may go a year without even having

a new case of a child with achalasia. Places like CC and Mayo keeps

their volume up by taking patients from all over the world. For volume,

few centers come close to what CC does.

notan

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In 1997, Drs. Vogt D, Curet M, Pitcher D, Josloff R, Milne RL,

and Zucker K. of the Department of Surgery, University of New

Mexico, Presbyterian Medical Center, Albuquerque 87131-5341

published a study on 20 cases of laparoscopic Heller myotomy for

achalasia. They must have done many more since then, but you'd

have to find out whether the surgeon(s) among them are still

there.

If you're determined to see a top specialist, Drs. DeMeester and

Maish in Los Angeles, or Dr. Patti in San Francisco would be

closer than Cleveland, with the same level of experience.

in PA

Drs out West

> , I will be looking into drs at UNMH. Our insurance is

> with

> PHP. I would hope some of our local drs have learned about this

> problem.

>

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> > ... I would hope some of our local drs have learned about this

> > problem.

> >

>

> Be careful here. You don't just want someone that has just learned

about

> it. You want someone that has done lots of Heller myotomies. There

are

> articles written by surgeons that describe how their second fifty

> myotomies were better than their first fifty. There are studies

that

> show two important factors in the outcome are, the experience of

the

> surgeon with this surgery and the volume of myotomies the medical

center

> does. Unless you live in a very large metropolitan area it is

unlikely

> that there will be enough myotomies done in the area to keep

volume up.

> The rate of new achalasia cases is 1 in 100,000 per year, and not

all of

> those will receive myotomies. A center that serves a population of

> 500,000 would only have 5 new cases a year and less myotomies.

Remember

> too that children have about a tenth as much of a chance of

getting

> achalasia. So a population of 500,000 may go a year without even

having

> a new case of a child with achalasia. Places like CC and Mayo

keeps

> their volume up by taking patients from all over the world. For

volume,

> few centers come close to what CC does.

>

> notan

>

Notan, thank you, I hear you loud and clear. My concern is just that

I hope they have heard enough about it to realize what a special

problem it is, and respond accordingly. Thanks for keeping me on my

toes!

Adam's dad

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>

> In 1997, Drs. Vogt D, Curet M, Pitcher D, Josloff R, Milne RL,

> and Zucker K. of the Department of Surgery, University of New

> Mexico, Presbyterian Medical Center, Albuquerque 87131-5341

> published a study on 20 cases of laparoscopic Heller myotomy for

> achalasia. They must have done many more since then, but you'd

> have to find out whether the surgeon(s) among them are still

> there.

>

> If you're determined to see a top specialist, Drs. DeMeester and

> Maish in Los Angeles, or Dr. Patti in San Francisco would be

> closer than Cleveland, with the same level of experience.

>

> in PA

>

> Drs out West

>

>

> > , I will be looking into drs at UNMH. Our insurance is

> > with

> > PHP. I would hope some of our local drs have learned about this

> > problem.

> >

>

, Thank you for the info on the Drs in Ca.

Adam's dad

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I also have PHP. I know that they use Case Managers and I'd request

one. They can check with the docs, in the system, to help determine

who has experience with Achalasia. If there is not one with good

experience, then you can begin to work with the insurance company to

go out of network.

>

> In 1997, Drs. Vogt D, Curet M, Pitcher D, Josloff R, Milne RL,

> and Zucker K. of the Department of Surgery, University of New

> Mexico, Presbyterian Medical Center, Albuquerque 87131-5341

> published a study on 20 cases of laparoscopic Heller myotomy for

> achalasia. They must have done many more since then, but you'd

> have to find out whether the surgeon(s) among them are still

> there.

>

> If you're determined to see a top specialist, Drs. DeMeester and

> Maish in Los Angeles, or Dr. Patti in San Francisco would be

> closer than Cleveland, with the same level of experience.

>

> in PA

>

> Drs out West

>

>

> > , I will be looking into drs at UNMH. Our insurance is

> > with

> > PHP. I would hope some of our local drs have learned about this

> > problem.

> >

>

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I'd be curious to know what you find out. Good luck! I'll also ask

around; I know a Pediatrician and he may have some ideas.

>

> , I will be looking into drs at UNMH. Our insurance is with

> PHP. I would hope some of our local drs have learned about this

> problem.

>

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I just spoke to the Pediatrician I know, and he mentioned a couple of

ppedicatric surgeons he likes from Presbyterian: Dr. Hatch and Dr

Buntain. He also mentioned a Dr. Lemon, from UNMH. I don't know

how much experience these doctors have with achalasia, but these are

the names he was familiar with. At least it's a place to start.

> >

> > , I will be looking into drs at UNMH. Our insurance is

with

> > PHP. I would hope some of our local drs have learned about this

> > problem.

> >

>

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