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FAO Pippa

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Hi Pippa. Just to add my reassurance that I too had an endoscopy

with sedation in the last couple of years and didn't feel anything.

I was very nervous beforehand, and, bizarrely, appeared to be fully

conscious the second the endoscopist told me it was all over! I got

up straight away, had a cuppa, and then went out to lunch with my

husband!

It's very often true, isn't it, that anticipation of an event is far

worse than the reality. Thank the Lord for sedation! Will be

thinking of you on 6th.

Love, Jane xx

> > > >

> > > >

> > > > I was very fortunate that the nifedipine pulled me through.

All

> > > of your

> > > > posts, which I read after coming home later warmed my heart,

> plus

> > > the

> > > > advice I read in dealing with spasms I will try when the

> inevitable

> > > > returns. Tonya, you were correct about the nifedipine not

> being a

> > > > factor in have an endoscopy.

> > > >

> > > > As you all probably know, " normal " patients are told " No

> eating or

> > > > drinking after midnight before the day of the endoscopy. "

Last

> > > year I

> > > > followed their dictates, and my doctor reported back to me

> about

> > > all the

> > > > " shmutz " in my E, that she could not see as well as needed.

> This

> > > year I

> > > > gave myself almost 4 days of liquid diet and my E looked

like

> it

> > > had

> > > > gone thru a car wash! Crystal clear! She was happy, I was

> > > thrilled!

> > > >

> > > > " Bad results " and it would be back to the endless debate of

the

> > > ectomy;

> > > > " good results " and I continue doing what I have been doing.

My

> > > doctor

> > > > was most pleased to tell me that there was no deterioration

of

> my

> > > E from

> > > > last year to this, and if anything, even looked a bit

better!

> She

> > > > strongly suggested that I switch to liquid vitamins, that

> > > vitamins, C &

> > > > E, in particular, that dissolve in the E could bring on

> negative

> > > changes

> > > > to the esophagus over time. Naturally, any food that sits in

> the

> > > E

> > > > deprives us of nutrition, energy, and just rots there.

> > > >

> > > > Right now my throat feels fine, my E feels fine, but more

> > > importantly, I

> > > > feel great, from the results today and from the compassionate

> > > posts and

> > > > understanding thoughts from my dear friends. Thank you Ann,

> Notan,

> > > > Isabella, Maggie, , Tonia, , Pippa, Anita (the

> > > actress!),

> > > > Anita (my favorite Aussie), Sandy, Lisbeth, Lily, and for

> everyone

> > > else

> > > > who sent kind thoughts my way.

> > > >

> > > > We are no longer alone. The collective wisdom and support

this

> > > group

> > > > supplies to ourselves is " medicine " unto itself.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > There have been some amazing posts in the last few days

> leading up

> > > to

> > > > today.

> > > >

> > >

> >

>

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  • 6 months later...

Pippa,

Just nipping in here, Astrid won’t mind. Did your surgeon

give you any advice about contacting him should you have any problems after your

myotomy. I would assume we have to go back to our GP.

Andy

From: achalasia

[mailto:achalasia ] On Behalf Of Pippa

Sent: 07 February 2008 20:11

achalasia

Subject: Re: FAO Astrid

Hi Astrid

Glad to hear that the test went well yesterday even though you were

given news that you thought you would not hear.

Do you take medication when you have your spasms maybe Dr Schulz

should perscribe you some to help cope with the spasms when you get

them.

Its good to see that he wants to carry out tests again in 6 months at

least he is going to continue to monitor your problems that you are

having at the moment.

There are other members who are more informed about achalasia that I

will ever be and am glad that some of them have been able to help

answer your questions.

I understand your fears and worries maybe you should ask Dr Schulz

some of these questions too and see what he says.

Don't worry about venting off thats what we are all here for.

Love

Pippa x

>

> Hi Pippa,

>

> Thanks for the message. I had the test in Germany again and the

staff there is very nice and skilled, so no complaints whatso ever

about the test itself.

>

> I asked for the test as my issues got worse in a short period of

time. I had my surgery almost a year ago, on 27 February. Initially I

was doing great, no issues eating or swallowing and no spaspms. If I

look back, the symptoms returned slowly: a few spasms here and there

and occasional regurgitation. Also, I couldn't lie flat anymore while

sleeping and feel like I am pushing my stomach contents back up if I

put any pressure on my chest. You don't realise how often you do that

(shopping, lifting, dog walking, house keeping, gardening) I was

looking forward to the check up in November, which would tell me what

was going on.

>

> The November tests basically came back okay. Then, since mid

december, the symptoms got worse. The spasms suddenly were the type

that would last for hours and were extremely painful. Also I found

myself regurgitating not just every few days, but nearly every day. I

kept a diary, to give me insight of what happened when and what

triggered it. When I regurgitate, I keep most of the food in. It's

only a small bit or foam that comes back up. However, I remember this

is how it started when things got worse last time.

>

> The test I had yesterday showed nothing particular. At least

nothing uncommon for Achalasians: some uncoordinated contractions,

some (slightly) wider and some narrower parts in the E. No problems

with the fundoplication. Basically all good news. BUT, why am I

having these symptoms so often then?? As it was not long after

surgery and everything is okay now, Dr.Schulz advised me to come back

in six months to do the endoscope again and the barium swallow to see

if anything has changed.

>

> Why this long story? I hope you and other board members can help me

with some questions:

> Is it possible these issues will continue even when the E. is in a

good condition?

> I have read 's story about her husband. He had the same

symptoms I do now, but his E. was in a good condition. Can one have

Achalasia and DES at the same time?

> I have been through this before and know Achalasia is a progressive

disease. I am worried things are getting worse again. Am I a

pessimist or a realist here?

> Does this mean that, at best, things will be like they are now?

> Could this be just in my head?

> It may sound stupid, but I would have preferred them telling me

something was wrong with the wrap or something else " mechanical " .

This is something that can be fixed and everyting would be back to

relatively normal again. I am just a bit sad I guess....

>

> Thanks again for asking and sorry for me moaning!

>

> Love,

> Astrid

>

> FAO Astrid

>

> Hi Astrid

>

> I know that you are having problems with some of your emails so am

> posting this on the board.

>

> I hope that all goes well today with your meeting with the Doctors

and

> your endascope.

>

> Let us know how you get on.

>

> Love

>

> Pippa x

>

>

>

>

>

>

__________________________________________________________

______________

> Never miss a thing. Make your home page.

> http://www./r/hs

>

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