Guest guest Posted June 13, 2007 Report Share Posted June 13, 2007 In a message dated 6/13/2007 9:35:55 A.M. Pacific Daylight Time, mcnairmichelle@... writes: I had also thought of printing out a photo of one and putting together a flier that we could send to childrens hospitals for parents of other kids with gastro problems.Anyone into taking on some more advocacy and work for the Achalasia cause?? Aw shucks, , you made me blush. Thanks for the kudos. If anyone is interested in the springboard idea, here is one to study. My husband is involved in Houston Transportation Professionals Club which raised funds to put a new playground together for Mc House here in Houston. They created a "Hawaiian Holiday' feast for the children and their families for a ribbon cutting ceremony to launch the playground, and passed out Dundy Dolls to each of the children, their brothers and sisters. The smiles were endless as were the happy tears. Not a dry eye to be found at the International Transportation meeting was held and a film clip of the event was shown. Here is Dundy Doll: http://www.ccdundy.com/cc_story.html I think you may find the story interesting. The possibilities are endless to help advocate for Achalasia but it will take organization, the chance to grow and develop strength and capabilities over time. I am a strong believer that working together... we can make a difference... for ourselves (hope it's okay to include myself) ... and for the future. I think the Village is here :-) Though we are sadly, in a way, growing in numbers, we could muster strength enough to give back and help make the future much brighter, Encouraging and fostering strength & knowledge only makes us stronger as individuals, and as a group. Make it a great day, everyone! PegSee what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2007 Report Share Posted June 13, 2007 OMG! You and I think so alike sometimes. I too have been thinking about Francesca alot. I was also thinking in terms of dolls for children who are now in or will be in the hospital. My grandmother crochets these little dolls for my girls, they're probably about 16 inches long and she puts different color hair on them and makes them clothes and whatnot. I called my Grandmother yesterday and asked her to make a few for me but explained that I wanted to somehow put removable " ng tubes " in them. I'm thinking like using a small length of the tubing you use in fish aquariums - the thought being that a 5 year old (or whatever age) might like a friend who has the same thing she/he does. She's going to pull out her pattern and get started while she figures out the ng tube thing - I think I threw her for a loop on that one (lol). I have another friend who does quite a bit of sewing and I'm going to ask her to make little hospital gowns. I figure once I have one, I'll take a photo and post it. Any parents out there who might be interested in one? Benito - if you will send me your address, I'll make sure that Francesca gets the first one. It may take a couple of weeks to make it, work out the ng tube issue and get it sent to you. you can email me offline if you'd prefer mcnairmichelle at aol.com Anyone else have suggestions along that same line? Anyone else crochet? My grandmother loves havinng projects but she isn't able to keep up as much as she used to. I had also thought of printing out a photo of one and putting together a flier that we could send to childrens hospitals for parents of other kids with gastro problems. Anyone into taking on some more advocacy and work for the Achalasia cause?? Happy Swallowing! - in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 , It is wonderful to hear that you are fully on the mend. I have worried about you (though silently), consistently sending Zen and prayers for a speedy recovery. Still am! ROTFL about your having an -ectomy for your megaE. I tried to address that topic on Eva's page. See: http://www.caninemegaesophagus.org/Greenough_EvaDiva_OurStory.html I also have started a section on the " What is it " page, trying to draw the correlation between the two conditions (human vs. canine) and while I have a start on that analogy, I haven't been able to get back there to finish it off. Notan -- can you help? Anyone? The URL for that page is: http://www.caninemegaesophagus.org/What_is_MegaEsophagus.html (see towards the bottom of the page) In a nutshell to answer your Q , the first surgical specialiast suggested that I consider E-ectomy for E (I have always found it bemusing that I called her E for short and there were so many other Es or near misses of Es in her life). I opted not to go this direction because (1) it's been tried before but the dog has died each time, though this specialist told me techniques had advanced, etc. (2) She obviously had never done one before, and (3) though I agreed that removing her E might be prudent, one of the underlying factors that was equally important was the diaphragmatic herniation -- without fixing that, her E or psuedo E would not have proper support and we would have been back at square 1. This particular surgeon did not seem to place high importance on the diaphragmatic herniation, though possibly she did and just didn't tell me. Second opinions seemed the best way to go. I asked Dr. Hobson, surgeon at A & M if he was willing to do an E-ectomy on E and he decided that it would be best to leave well enough alone -- we could consider that on down the line and her body would already have enough to recover from with what was to be done for the diaphgragmatic plus the separate, hiatal herniation. We just never revisited an E-ectomy for E. I was determined she would get well based on my ability to manage the disorder and we met with, by all standards, excellent success (she lived and gained weight, though experiencing intermittent difficulties with regurges.) Hugs to you ! I am so happy to be back in touch with you and the group! I missed you guyz! Peg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 p_mc4031 wrote: > ... trying to > draw the correlation between the two conditions (human vs. canine)... > The canine conditions have not been my focus so you probably know better than I do, but as I understand it, the canine condition does not respond like human primary achalasia in response to methacholine chloride. This implies a fundamental neurological difference. While the canine condition can be idiopathic it often seems to be genetic whereas the human condition rarely seems to have a genetic bases though AAA syndrome and a few other very rare version do. In a gross way the conditions seem similar but they also have these and other differences. What correlation do you wish to make and what message do wish to convey with it? Just wondering how to respond to your request. notan Quote Link to comment Share on other sites More sharing options...
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