Re: Achalasia, Weight issues

[Guest guest]

In reference to your comment:

It is also pervasively written in all the medical research reports that extreme weight loss and anorexia are key symptoms/results of the illness.

Peg, this statement is correct. But a 200 lb woman who loses

50 lbs in a two/three month period is extreme weight loss. If

you are at a normal weight when you start regurging your

food and don't get proper treatment right away then you would

become anorexia. A doctor should, and I think probably most

doctors who understand Achalasia do, look at whether we are

maintaining our weight.

Maggie

AlabamaSee what's free at AOL.com.

[Guest guest]

,

Just read the discussion with your weight story and I have to ask - did

your surgeon tell you to lose weight before the surgery? And what effect

has the weight had on the myotomy?

Dr. Rosemurgy told me that I had to get to 170 before he would operate

on me (190 at the visit). While that would be hard, it would be

possible for just a moment in time, but then he said I would have to

maintain my weight below 170 for LIFE.

I have maintained my weight from (185-195 - height 5'3 " ) for the past 4

years but always overweight. Achalasia has been misdiagnosed as GERD

for over 20 years (but did not become severely constricted until 2 years

ago).

He said that I was probably " eating around the disease " - but I don't

think I am, really. I do eat pretty much oatmeal, frozen yogurt and

soups but only about 1400-1600 calories a day.

I am really depressed because I don't think that I can meet his

criteria. And the flip side is that if I lose the weight just to get

the surgery, will gaining it back cause problems (rupture, severe GERD

etc). I am an apple shaped girl not a pear shape but only a size 16.

Thanks to everyone for bringing up this subject - I thought I was the

only fat achalasian.

Stephany

> > >

> > > I'm writing this because I'm wondering if anyone else has this

> > issue.

> > >

> > > I haven't quite got my head wrapped around it yet, but basically

> > I'm

> > > scared of gaining weight after my upcoming myotomy.

> > >

> > > I was dieting and lost 20 pounds, then A got severe and I lost 20

> > > more. Now I'm eating at least two real meals a day (thanks to

> > > Nifedipine) and weight loss has slowed down considerably. I would

> > love

> > > to lose another 10 but am grateful for what I have - as many have

> > said

> > > before me- the only good thing about A.

> > >

> > > Before nifedipine (and sometimes now between pills), I sometimes

> > eat

> > > very unhealthy food, like chocolate, ice cream, fries - what have

> > you

> > > - because I think " what the hey, I'll just regurgitate it anyway "

> > but

> > > isn't this type of behavior rather bulemic?

> > >

> > > Is it bad to fill your E knowing you are only going to give it

> > back?

> > > It can't be healthy for the tone of the muscle or for the psyche.

> > >

> > > Any words of wisdom from those of you who may be dealing with this

> > > sort of thing, or have dealt with it in the past?

> > >

> > > Thanks

> > > Donna

> > >

> >

>

>

>

>

>

>

> ---------------------------------

> Finding fabulous fares is fun.

> Let FareChase search your favorite travel sites to find flight

and hotel bargains.

>

[Guest guest]

Hi ,

Happy birthday, 34 is a great age!

I liked Dr. Rice. He was very professional and very thorough. It

just seems like everything is going so fast. I saw him on May 4th

and I already have all my tests scheduled, my pre-op appointment and

my surgery scheduled. Fortunately, I only need a myotomy, how has

it been with the E? What did you think of Dr. Rice?

Thnks,

Corri in MI

-- In achalasia , Isabella Arnold

<arnoldisabella@...> wrote:

>

> Hey ,

>

> Congratulations on your 34th birtdhday!!! This is really a happy

birthday for you, isn't it? Having the whole surgery behind you!

>

> Love,

> Isabella

>

> tracylb@... wrote:

> Corri,

> The body is an amazing thing, and as we that suffer from achalasia

> know, we can adapt and make due with whatever we can manage. I

think

> one reason that some people tend to maintain or even gain weight

with

> achalasia is because they find that a lot of the higher calorie,

not

> so good for us foods are the ones that go down the best, therefore

> that's what we end up eating. Also, it depends on how severe your

> achalasia is.

> I was diagnosed with Achalasia when I was 16, and I turned 34

today.

> Before I was diagnosed with A, I was accused of having an eating

> disorder as I was throwing up all my food and my weight dropped

down

> to 90 pounds - of course, what else could possibly be wrong with a

16

> year old girl that loses that much weight?!?!?! (Idiots)

> Once they figured it out, I had a couple dilitations and they sent

me

> on my way with no follow up plan. Over the years I kept my weight

> relatively stable. I have had two kids, gained normal weight

during

> pregnancy and started having issues again after the birth of my

> youngest 2 1/2 years ago. Needless to say, tomorrow is 10 weeks

since

> my esophagectomy by Dr. Rice - I went into it at a normal weight

and

> have lost a total of about 8-10 pounds since surgery and am at

about

> 120 pounds. Eating is finally going relatively well for me, so I

am

> hoping to put a few pounds back on and get back to my normal

130ish

> range.

> On that note, everyone's body reacts differently to this disease

and

> can handle the flow of calories differently.

> I'm glad you are going to Dr. Rice - he is simply the best there

is.

> What do you think of him so far?

>

> in NY

>

> Re: Achalasia, Weight issues

> achalasia

>

> > Hi All,

> >

> > I am so glad we are actually talking about this!

> >

> > I have actually put on weight since I was diagnosed with A back

in

> > 2004. I also have the attitude, who cares what I eat, I will

just

> > regurgitate it. I just don't understand how I am not losing

> > weight!!!! I am over 200LBS, and I just quit smoking because I

> > have

> > my myotomy schedlued with Dr. Rice on June 27th. Dr. Rice was

> > like

> > well you are still eating enough to gain weight. It boggles my

> > mind..............

> >

> > Corri in MI

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > > > >

> > > > > I'm writing this because I'm wondering if anyone else has

> > this

> > > > issue.

> > > > >

> > > > > I haven't quite got my head wrapped around it yet, but

> > basically

> > > > I'm

> > > > > scared of gaining weight after my upcoming myotomy.

> > > > >

> > > > > I was dieting and lost 20 pounds, then A got severe and I

> > lost

> > 20

> > > > > more. Now I'm eating at least two real meals a day (thanks

to

> > > > > Nifedipine) and weight loss has slowed down considerably.

I

> > would

> > > > love

> > > > > to lose another 10 but am grateful for what I have - as

many

> > have

> > > > said

> > > > > before me- the only good thing about A.

> > > > >

> > > > > Before nifedipine (and sometimes now between pills), I

> > sometimes

> > > > eat

> > > > > very unhealthy food, like chocolate, ice cream, fries -

what

> > have

> > > > you

> > > > > - because I think " what the hey, I'll just regurgitate it

> > anyway "

> > > > but

> > > > > isn't this type of behavior rather bulemic?

> > > > >

> > > > > Is it bad to fill your E knowing you are only going to

give

> > it

> > > > back?

> > > > > It can't be healthy for the tone of the muscle or for the

> > psyche.

> > > > >

> > > > > Any words of wisdom from those of you who may be dealing

> > with

> > this

> > > > > sort of thing, or have dealt with it in the past?

> > > > >

> > > > > Thanks

> > > > > Donna

> > > > >

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > Finding fabulous fares is fun.

> > > Let FareChase search your favorite travel sites to find

> > flight and hotel bargains.

> > >

> > >

> > >

> > >

> > __________________________________________________________

> > > is the world's favourite email. Don't settle for

> > less,

> > sign up for

> > > your free account today

> >

http://uk.rd./evt=44106/*http://uk.docs./mail/winte

> > r07.html

> > >

> >

> >

> >

>

>

>

>

>

> ---------------------------------

> No need to miss a message. Get email on-the-go

> with for Mobile. Get started.

>

[Guest guest]

I'm sure it's because we eat high calorie foods. We think - hope -

pray that having A will make us lose weight but then we continue to

make bad choices about diet & exercise.

At least I do!!! LOL

Take care and good luck with your surgery.

Donna

> > > > > >

> > > > > > I'm writing this because I'm wondering if anyone else has

> this

> > > > > issue.

> > > > > >

> > > > > > I haven't quite got my head wrapped around it yet, but

> > > basically

> > > > > I'm

> > > > > > scared of gaining weight after my upcoming myotomy.

> > > > > >

> > > > > > I was dieting and lost 20 pounds, then A got severe and I

> lost

> > > 20

> > > > > > more. Now I'm eating at least two real meals a day (thanks

> to

> > > > > > Nifedipine) and weight loss has slowed down considerably.

> I

> > > would

> > > > > love

> > > > > > to lose another 10 but am grateful for what I have - as

> many

> > > have

> > > > > said

> > > > > > before me- the only good thing about A.

> > > > > >

> > > > > > Before nifedipine (and sometimes now between pills), I

> > > sometimes

> > > > > eat

> > > > > > very unhealthy food, like chocolate, ice cream, fries -

> what

> > > have

> > > > > you

> > > > > > - because I think " what the hey, I'll just regurgitate it

> > > anyway "

> > > > > but

> > > > > > isn't this type of behavior rather bulemic?

> > > > > >

> > > > > > Is it bad to fill your E knowing you are only going to

> give it

> > > > > back?

> > > > > > It can't be healthy for the tone of the muscle or for the

> > > psyche.

> > > > > >

> > > > > > Any words of wisdom from those of you who may be dealing

> with

> > > this

> > > > > > sort of thing, or have dealt with it in the past?

> > > > > >

> > > > > > Thanks

> > > > > > Donna

> > > > > >

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > Finding fabulous fares is fun.

> > > > Let FareChase search your favorite travel sites to find

> > > flight and hotel bargains.

> > > >

> > > >

> > > >

> > > >

> ___________________________________________________________

> > > > is the world's favourite email. Don't settle for

> less,

> > > sign up for

> > > > your free account today

> > >

> http://uk.rd./evt=44106/*http://uk.docs./mail/winte

> > > r07.html

> > > >

> > >

> >

>

[Guest guest]

LOL well your not the only one!!! The doctor told me that, my

diet was the demise of my gall bladder!!!!

From:

achalasia [mailto:achalasia ] On Behalf Of Donna

King

Sent: Thursday, June 07, 2007 5:11 PM

achalasia

Subject: Re: Achalasia, Weight issues

I'm sure it's because we eat high calorie

foods. We think - hope -

pray that having A will make us lose weight but then we continue to

make bad choices about diet & exercise.

At least I do!!! LOL

Take care and good luck with your surgery.

Donna

> > > > > >

> > > > > > I'm writing this because I'm wondering if anyone

else has

> this

> > > > > issue.

> > > > > >

> > > > > > I haven't quite got my head wrapped around it

yet, but

> > > basically

> > > > > I'm

> > > > > > scared of gaining weight after my upcoming

myotomy.

> > > > > >

> > > > > > I was dieting and lost 20 pounds, then A got

severe and I

> lost

> > > 20

> > > > > > more. Now I'm eating at least two real meals a

day (thanks

> to

> > > > > > Nifedipine) and weight loss has slowed down

considerably.

> I

> > > would

> > > > > love

> > > > > > to lose another 10 but am grateful for what I

have - as

> many

> > > have

> > > > > said

> > > > > > before me- the only good thing about A.

> > > > > >

> > > > > > Before nifedipine (and sometimes now between

pills), I

> > > sometimes

> > > > > eat

> > > > > > very unhealthy food, like chocolate, ice cream,

fries -

> what

> > > have

> > > > > you

> > > > > > - because I think " what the hey, I'll just

regurgitate it

> > > anyway "

> > > > > but

> > > > > > isn't this type of behavior rather bulemic?

> > > > > >

> > > > > > Is it bad to fill your E knowing you are only

going to

> give it

> > > > > back?

> > > > > > It can't be healthy for the tone of the muscle or

for the

> > > psyche.

> > > > > >

> > > > > > Any words of wisdom from those of you who may be

dealing

> with

> > > this

> > > > > > sort of thing, or have dealt with it in the past?

> > > > > >

> > > > > > Thanks

> > > > > > Donna

> > > > > >

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > Finding fabulous fares is fun.

> > > > Let FareChase search your favorite travel sites to

find

> > > flight and hotel bargains.

> > > >

> > > >

> > > >

> > > >

> __________________________________________________________

> > > > is the world's favourite email. Don't settle

for

> less,

> > > sign up for

> > > > your free account today

> > >

> http://uk.rd./evt=44106/*http://uk.docs./mail/winte

> > > r07.html

> > > >

> > >

> >

>

[Guest guest]

Hey - I asked my doctor if this was going to make my stomach any

smaller and he said 10%. (I should've negotiated for 50% LOL) anyway

maybe that explains your loss of appetite.

Take care,

Donna

> > > >

> > > > I'm writing this because I'm wondering if anyone else has this

> > > issue.

> > > >

> > > > I haven't quite got my head wrapped around it yet, but basically

> > > I'm

> > > > scared of gaining weight after my upcoming myotomy.

> > > >

> > > > I was dieting and lost 20 pounds, then A got severe and I lost 20

> > > > more. Now I'm eating at least two real meals a day (thanks to

> > > > Nifedipine) and weight loss has slowed down considerably. I would

> > > love

> > > > to lose another 10 but am grateful for what I have - as many have

> > > said

> > > > before me- the only good thing about A.

> > > >

> > > > Before nifedipine (and sometimes now between pills), I sometimes

> > > eat

> > > > very unhealthy food, like chocolate, ice cream, fries - what have

> > > you

> > > > - because I think " what the hey, I'll just regurgitate it anyway "

> > > but

> > > > isn't this type of behavior rather bulemic?

> > > >

> > > > Is it bad to fill your E knowing you are only going to give it

> > > back?

> > > > It can't be healthy for the tone of the muscle or for the psyche.

> > > >

> > > > Any words of wisdom from those of you who may be dealing with this

> > > > sort of thing, or have dealt with it in the past?

> > > >

> > > > Thanks

> > > > Donna

> > > >

> > >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Finding fabulous fares is fun.

> > Let FareChase search your favorite travel sites to find flight

> and hotel bargains.

> >

>

>

>

>

>

>

> ---------------------------------

> Boardwalk for $500? In 2007? Ha!

> Play Monopoly Here and Now (it's updated for today's economy) at

Games.

>

[Guest guest]

Good morning to you all,

I have read all your messages on weight. I am 42yr young and weigh

eleven stone which I think is around 170lb, I was diagnosed with

achalasia in 1995, which happened just after the death of my father.

My first experience of having difficulty in swallowing was at the age

of 14yr. As a boy I would eat loads and drink milk, a pint of with all

meals. I was always generously proportioned as a young man, and at the

age of 22 maintained the weight of 13.5 stone and nearly topping 14

stone. I had huge problems in 1995, and lost weight quickly in no time

at all I was 10.5 stone. I joined a gym and got myself fit and gained

weight to what I am now 11 stone. The more weight you carry the more

problems you will have in swallowing, and the attacks are more severe.

I eat at this time pretty much what I like but will confess to you

that I do regurgitate often. I would say all in all I manage the

condition very well. I was asked to have the Hellier myotomy and

nissan fundaplication back in 1995 but declined. I am glad I have as I

feel the success is not that good after a 5 hour operation together

with any other treatments like dilatation. I would suggest to others

reduce weight drink plenty of liquid with all meals and be positive

and in control. i would like to speak to others who have had the

surgery 5 years post op.

I hope to speak to as many of you as possible in the future.

Take care all.

Paddy

> > > >

> > > > I'm writing this because I'm wondering if anyone else has this

> > > issue.

> > > >

> > > > I haven't quite got my head wrapped around it yet, but basically

> > > I'm

> > > > scared of gaining weight after my upcoming myotomy.

> > > >

> > > > I was dieting and lost 20 pounds, then A got severe and I lost 20

> > > > more. Now I'm eating at least two real meals a day (thanks to

> > > > Nifedipine) and weight loss has slowed down considerably. I would

> > > love

> > > > to lose another 10 but am grateful for what I have - as many have

> > > said

> > > > before me- the only good thing about A.

> > > >

> > > > Before nifedipine (and sometimes now between pills), I sometimes

> > > eat

> > > > very unhealthy food, like chocolate, ice cream, fries - what have

> > > you

> > > > - because I think " what the hey, I'll just regurgitate it anyway "

> > > but

> > > > isn't this type of behavior rather bulemic?

> > > >

> > > > Is it bad to fill your E knowing you are only going to give it

> > > back?

> > > > It can't be healthy for the tone of the muscle or for the psyche.

> > > >

> > > > Any words of wisdom from those of you who may be dealing with this

> > > > sort of thing, or have dealt with it in the past?

> > > >

> > > > Thanks

> > > > Donna

> > > >

> > >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Finding fabulous fares is fun.

> > Let FareChase search your favorite travel sites to find flight

> and hotel bargains.

> >

>

>

>

>

>

>

> ---------------------------------

> Boardwalk for $500? In 2007? Ha!

> Play Monopoly Here and Now (it's updated for today's economy) at

Games.

>

[Guest guest]

Paddy,

I am 5 years post op now (as of September this year). I have

issues still sometimes, but NOTHING like before!! Stress seems to bring my

issues on and once the stress passes so does the problems.

From: achalasia

[mailto:achalasia ] On Behalf Of paddypower2468

Sent: Friday, June 08, 2007 7:30 AM

achalasia

Subject: Re: Achalasia, Weight issues

Good morning to you all,

I have read all your messages on weight. I am 42yr young and weigh

eleven stone which I think is around 170lb, I was diagnosed with

achalasia in 1995, which happened just after the death of my father.

My first experience of having difficulty in swallowing was at the age

of 14yr. As a boy I would eat loads and drink milk, a pint of with all

meals. I was always generously proportioned as a young man, and at the

age of 22 maintained the weight of 13.5 stone and nearly topping 14

stone. I had huge problems in 1995, and lost weight quickly in no time

at all I was 10.5 stone. I joined a gym and got myself fit and gained

weight to what I am now 11 stone. The more weight you carry the more

problems you will have in swallowing, and the attacks are more severe.

I eat at this time pretty much what I like but will confess to you

that I do regurgitate often. I would say all in all I manage the

condition very well. I was asked to have the Hellier myotomy and

nissan fundaplication back in 1995 but declined. I am glad I have as I

feel the success is not that good after a 5 hour operation together

with any other treatments like dilatation. I would suggest to others

reduce weight drink plenty of liquid with all meals and be positive

and in control. i would like to speak to others who have had the

surgery 5 years post op.

I hope to speak to as many of you as possible in the future.

Take care all.

Paddy

> > > >

> > > > I'm writing this because I'm wondering if anyone else has

this

> > > issue.

> > > >

> > > > I haven't quite got my head wrapped around it yet, but

basically

> > > I'm

> > > > scared of gaining weight after my upcoming myotomy.

> > > >

> > > > I was dieting and lost 20 pounds, then A got severe and I

lost 20

> > > > more. Now I'm eating at least two real meals a day (thanks

to

> > > > Nifedipine) and weight loss has slowed down considerably. I

would

> > > love

> > > > to lose another 10 but am grateful for what I have - as

many have

> > > said

> > > > before me- the only good thing about A.

> > > >

> > > > Before nifedipine (and sometimes now between pills), I

sometimes

> > > eat

> > > > very unhealthy food, like chocolate, ice cream, fries -

what have

> > > you

> > > > - because I think " what the hey, I'll just regurgitate

it anyway "

> > > but

> > > > isn't this type of behavior rather bulemic?

> > > >

> > > > Is it bad to fill your E knowing you are only going to give

it

> > > back?

> > > > It can't be healthy for the tone of the muscle or for the

psyche.

> > > >

> > > > Any words of wisdom from those of you who may be dealing

with this

> > > > sort of thing, or have dealt with it in the past?

> > > >

> > > > Thanks

> > > > Donna

> > > >

> > >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Finding fabulous fares is fun.

> > Let FareChase search your favorite travel sites to find flight

> and hotel bargains.

> >

>

>

>

>

>

>

> ---------------------------------

> Boardwalk for $500? In 2007? Ha!

> Play Monopoly Here and Now (it's updated for today's economy) at

Games.

>

[Guest guest]

Thanks Donna!

> > > > > > >

> > > > > > > I'm writing this because I'm wondering if anyone else

has

> > this

> > > > > > issue.

> > > > > > >

> > > > > > > I haven't quite got my head wrapped around it yet, but

> > > > basically

> > > > > > I'm

> > > > > > > scared of gaining weight after my upcoming myotomy.

> > > > > > >

> > > > > > > I was dieting and lost 20 pounds, then A got severe

and I

> > lost

> > > > 20

> > > > > > > more. Now I'm eating at least two real meals a day

(thanks

> > to

> > > > > > > Nifedipine) and weight loss has slowed down

considerably.

> > I

> > > > would

> > > > > > love

> > > > > > > to lose another 10 but am grateful for what I have -

as

> > many

> > > > have

> > > > > > said

> > > > > > > before me- the only good thing about A.

> > > > > > >

> > > > > > > Before nifedipine (and sometimes now between pills), I

> > > > sometimes

> > > > > > eat

> > > > > > > very unhealthy food, like chocolate, ice cream, fries -

> > what

> > > > have

> > > > > > you

> > > > > > > - because I think " what the hey, I'll just regurgitate

it

> > > > anyway "

> > > > > > but

> > > > > > > isn't this type of behavior rather bulemic?

> > > > > > >

> > > > > > > Is it bad to fill your E knowing you are only going to

> > give it

> > > > > > back?

> > > > > > > It can't be healthy for the tone of the muscle or for

the

> > > > psyche.

> > > > > > >

> > > > > > > Any words of wisdom from those of you who may be

dealing

> > with

> > > > this

> > > > > > > sort of thing, or have dealt with it in the past?

> > > > > > >

> > > > > > > Thanks

> > > > > > > Donna

> > > > > > >

> > > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > Finding fabulous fares is fun.

> > > > > Let FareChase search your favorite travel sites to

find

> > > > flight and hotel bargains.

> > > > >

> > > > >

> > > > >

> > > > >

> > __________________________________________________________

> > > > > is the world's favourite email. Don't settle

for

> > less,

> > > > sign up for

> > > > > your free account today

> > > >

> >

http://uk.rd./evt=44106/*http://uk.docs./mail/winte

>

<http://uk.rd./evt=44106/*http:/uk.docs./mail/winte

>

> > > > r07.html

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Hi Marie, I find dealing with my weight very confusing. Eating and your needs are also highly influenced by your brain. Before I had Achalasia I weighed about 220 pounds. I had to watch my diet and could/should not eat high calory food. Then, due to the Achalasia, my weight dropped to 139 pounds in 18 months. By that time I could hardly keep any food inside and my diet consisted of cream, chips in lots of mayonnaise and chocolate (which I melted in my mouth). I also ate baby food, but then spiced up with lots of ketchup and cheese. Looking back, I am glad I had the extra pounds, as they made me last as long as I did! After my surgery eating has improved considerably, but I don't want to gain all of my weight back. BUT, some of my symptoms are coming back, which makes me wonder if I should create another buffer for when I will have difficulty eating again. Confusing, confusing,

confusing. Also for my brain, which is still asking for chocolate. I currently weigh 145 pounds and have decided to ask for help from a dietitian. She can now help me find food that gives me energy, but not gives me all the extra poungs back. And should my condition get worse, help me find food which will give me energy and keeps me from loosing weight. I have four different wardrobes in my cupboards and would like to get rid of some! Our weights will probably always remain an issue... Greetings from Holland!AstridMarie McBride <magicmarieuk@...> wrote: I was always slim, when I first realised I was suffering from Achalasia I couldn't even hold down water, After my first dilitation 12 years ago I found it such a relief to be able to eat that i just put weight on , so for the past 10 or so years it has been creeping up on me. I always thought that someone suffering with this condition would be rake thin , but not so. Im hoping that I can sort myself out now that my last dilitation (last week ) seems to have worked , Maybe I can deal with it better now that Im eating a lot better and so I can control it more , Ive actually had some silly people saying to me ...oh I wish I couldn't swallow and maybe I could get some of this weight off... unbelievable .. Marie achalasia From: bbm_1999 (DOT) co.ukDate: Wed, 6

Jun 2007 17:04:20 +0000Subject: Re: Re: Achalasia, Weight issues I have a weight problem too. My surgeon says its beacasue my body always thinks its starving, casue the food takes so long to get where it needs too and sometimes infrequently, that it holds onto the calories. I had my surgery, and well, the weight dropped off for a bit, but now its back up again. I am currently working with my doctor to find a solution. I still don't eat much about 1650 cals a day and i have a very active job. its driving me nuts. Re: Re: Achalasia, Weight issues Hi donna, Just saw this post re weight. I will give me history with weight. I have weight issues, but with gaining it and not losing. Before diagnosis I weighed 235 lbs. Once I got sick, (20 years ago) I went to 159 lbs in 2 months. Because I was heavy to begin with nobody paid attention, then finally someone did and I got my diagnosis. I

couldn't even swallow water. Then I had my 1st dilitation and I was so glas I could swallow that I put all the weight back on. I have been heavy every since. Only losing 11 to 20 lbs before getting dilitated again. Now with the myotomy, I was 255 when I entered hospital, 258 when I came home, and am now 253. Even after only having liquids for a week in hospital I gained, go figure. I think the weight will come off for me this time because I'm finding I don't really want to eat that much and if I do my stomach hurts. That's probably from the partial fundoplication. I know it's only been two weeks, but my brain really is not friendly with food right now. I eat because I have to, not because I want to.I use a small bread and butter plate as my dinner plae. I'm sticking with fish, chicken and soft veggies and foods. I think I'm afraid to try anything other than that. Tha'ts okay because I will lose because I want to not because my body is

rejecting it.I find that most foods are going down 95% with a little patience. I put my fork down between each bite and that helps. One snack food I found, (but not healthy) is Cheese Puffs or Cheesies or Cheetos. Whatever anyone might call them. They are crunchy and melt in your mouth. No problem swallowing. I have to cut back as I eat too many of those lol. I find it very strange to have A and have a weight problem. Is anyone else out there like me? I think it is because food would go down, but take forever to go through to stomach and I would always feel hungry. I will be so glad when I can al least get on my treadmill so I can add some exercise to my regime. Just thought I would ad to your post Donna. I am feeling much better, but the side I have in incicsion on is still painful. Must be the muscle as they went in on my left side in the back, just below the

shoulder blade. The did this because of the weight I carry on my stomach. Less risk of error. Well everyone, have a great day and hope you have much success in swallowing. Donna King <freyascloak> wrote: Hi - I've been away for a few days and posted this before Iwent away...anyway I just got back and wanted to say thank you forreplying to my post.I'm glad to hear that I'm not the only one out there is who is havingfood/weight issues. After having your myotomy, are you swallowing at 100%, 80%, or????How long have you had achalasia, how much weight did you lose intotal, and do you think you had a "normal" relationship with foodbeforehand?I

don't know why I'm so curious about other people's experience.. .justseeking some understanding, I suppose. I know the phrase "your mileage may vary" always comes to mine whenthinking of A - everyone is so different - anyway it helps just to beable to think out loud, so to speak, and talk about it.Take care,Donna> >> > I'm writing this because I'm wondering if anyone else has this > issue.> > > > I haven't quite got my head wrapped around it yet, but basically > I'm> > scared of gaining weight after

my upcoming myotomy. > > > > I was dieting and lost 20 pounds, then A got severe and I lost 20> > more. Now I'm eating at least two real meals a day (thanks to> > Nifedipine) and weight loss has slowed down considerably. I would > love> > to lose another 10 but am grateful for what I have - as many have > said> > before me- the only good thing about A.> > > > Before nifedipine (and sometimes now between pills), I sometimes > eat> > very unhealthy food, like chocolate, ice cream, fries - what have > you> > - because I think "what the hey, I'll just regurgitate it anyway" > but> > isn't this type of behavior rather bulemic? > > > > Is it bad to fill your E knowing you are only going to give it > back?> > It can't be healthy for the tone of the muscle or for the psyche.> > > >

Any words of wisdom from those of you who may be dealing with this> > sort of thing, or have dealt with it in the past?> > > > Thanks> > Donna> >> Finding fabulous fares is fun.Let FareChase search your favorite travel sites to find flight and hotel bargains. Answers - Get better answers from someone who knows. Try it now.

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[Guest guest]

Sounds to me like it's time for a new GI doc if that's how he's

treating you.

in NY

Re: Re: Achalasia, Weight issues

> Hi donna,

>

> Just saw this post re weight. I will give me history with weight.

> I have weight issues, but with gaining it and not losing. Before

> diagnosis I weighed 235 lbs. Once I got sick, (20 years ago) I

> went to 159 lbs in 2 months. Because I was heavy to begin with

> nobody paid attention, then finally someone did and I got my

> diagnosis. I couldn't even swallow water. Then I had my 1st

> dilitation and I was so glas I could swallow that I put all the

> weight back on. I have been heavy every since. Only losing 11 to

> 20 lbs before getting dilitated again.

>

> Now with the myotomy, I was 255 when I entered hospital, 258 when

> I came home, and am now 253. Even after only having liquids for a

> week in hospital I gained, go figure. I think the weight will come

> off for me this time because I'm finding I don't really want to

> eat that much and if I do my stomach hurts. That's probably from

> the partial fundoplication. I know it's only been two weeks, but

> my brain really is not friendly with food right now. I eat because

> I have to, not because I want to.I use a small bread and butter

> plate as my dinner plae. I'm sticking with fish, chicken and soft

> veggies and foods. I think I'm afraid to try anything other than

> that. Tha'ts okay because I will lose because I want to not

> because my body is rejecting it.I find that most foods are going

> down 95% with a little patience. I put my fork down between each

> bite and that helps. One snack food I found, (but not healthy) is

> Cheese Puffs or Cheesies or Cheetos. Whatever anyone might call

> them. They

> are crunchy and melt in your mouth. No problem swallowing. I have

> to cut back as I eat too many of those lol.

>

>

> I find it very strange to have A and have a weight problem. Is

> anyone else out there like me? I think it is because food would go

> down, but take forever to go through to stomach and I would always

> feel hungry. I will be so glad when I can al least get on my

> treadmill so I can add some exercise to my regime.

>

> Just thought I would ad to your post Donna. I am feeling much

> better, but the side I have in incicsion on is still painful. Must

> be the muscle as they went in on my left side in the back, just

> below the shoulder blade. The did this because of the weight I

> carry on my stomach. Less risk of error.

>

> Well everyone, have a great day and hope you have much success in

> swallowing.

>

>

>

>

>

>

> Donna King <freyascloak> wrote:

> Hi - I've been away for a few days and posted this before I

> went away...anyway I just got back and wanted to say thank you for

> replying to my post.

>

> I'm glad to hear that I'm not the only one out there is who is having

> food/weight issues.

>

> After having your myotomy, are you swallowing at 100%, 80%, or????

>

> How long have you had achalasia, how much weight did you lose in

> total, and do you think you had a " normal " relationship with food

> beforehand?

>

> I don't know why I'm so curious about other people's experience..

> .justseeking some understanding, I suppose.

>

> I know the phrase " your mileage may vary " always comes to mine when

> thinking of A - everyone is so different - anyway it helps just to be

> able to think out loud, so to speak, and talk about it.

>

> Take care,

> Donna

>

>

> > >

> > > I'm writing this because I'm wondering if anyone else has this

> > issue.

> > >

> > > I haven't quite got my head wrapped around it yet, but

> basically

> > I'm

> > > scared of gaining weight after my upcoming myotomy.

> > >

> > > I was dieting and lost 20 pounds, then A got severe and I lost 20

> > > more. Now I'm eating at least two real meals a day (thanks to

> > > Nifedipine) and weight loss has slowed down considerably. I

> would

> > love

> > > to lose another 10 but am grateful for what I have - as many

> have

> > said

> > > before me- the only good thing about A.

> > >

> > > Before nifedipine (and sometimes now between pills), I

> sometimes

> > eat

> > > very unhealthy food, like chocolate, ice cream, fries - what

> have

> > you

> > > - because I think " what the hey, I'll just regurgitate it

> anyway "

> > but

> > > isn't this type of behavior rather bulemic?

> > >

> > > Is it bad to fill your E knowing you are only going to give it

> > back?

> > > It can't be healthy for the tone of the muscle or for the psyche.

> > >

> > > Any words of wisdom from those of you who may be dealing with

this

> > > sort of thing, or have dealt with it in the past?

> > >

> > > Thanks

> > > Donna

> > >

> >

>

>

>

>

> Finding fabulous fares is fun.

> Let FareChase search your favorite travel sites to find

> flight and hotel bargains.

>

>

>

>

>

>

> Answers - Get better answers from someone who knows. Try it

> now.

>

>

>

>

>

> Take the Internet to Go: Go puts the Internet in your

> pocket: mail, news, photos more.

>

>

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7.html

[Guest guest]

Hi , I'm new to this site but when I read your post I had to respond. I was diagnosed in March of this year after going to the hospital with an elective surgery to remove part of my thyroid because of it getting bigger and my gaining a bunch of weight. In 1998 (when i think i first realized something was wrong and didn't do anything about it) I weighed more than 220lbs. and in that year I ended up weighing120 lbs. Mostly from not being able to keep anything down. I'd eat something and it would immediately come right back up. i thought it was great because i was finally skinny after years of being big. But since 2005 i was having more trouble swallowing and gained back all the weight. Thought it was my thyroid and was going to have it taken care of, but of course went in for surgery and ended up in the ICU because of aspirating. (had aspirated before back in 2001 when i had surgery but they thought i just ate before

surgery) but this time ended up in the hosp. for a week before they finally knew what was wrong with me. That whole time i was there i was only given clear liquids and lost only 5 pounds. Since being home Ive gained that weight back and then some. I thought i was the only one who could actually gain weight with achalasia, but i read what you wrote and wanted to let you know that you're not the only one. I'm scheduled for a laparoscopic Heller with partial fundo in august, I can eat now. but i don't follow any sort of diet except for what I've taught myself (staying away from icy cold drinks and not eating a lot of meat) i still have some pains once in awhile, and swallowing is difficult if i don't drink a lot of water to force food down. and sometimes it feels like a heavy weight in my chest to where its hard to breathe but I've been living with this for awhile and have learned to eat slowly, chew chew chew and take it a step (

or swallow) at a time. Whew! I'm glad i finally got up the courage to write. Just wanted to let you guys know thanks for having this site because i thought i was alone. Thanks again Kris

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[Guest guest]

Hi , thank you so much for your response. Just so you know, since I've come home I've been able to lose weight. I am keeping foods down, but I'm finding that I don't want to eat as much. I keep a small plate an that's what I use. So far so good. I eat mostly mushed veggies, fish and chicken. My breakfast is usually oatmeal. I gained weight also in hospital when only on fluids for a week, I think that's because they have the IV going. I think overall, we just have to concentrate on being happy and healthy and if the weight comes off, good. If not, you're health and can eat. Good luck with your myotomy and if you need to talk don't be afraid, we are all friends. I know I was a nervous wreck leading up to my surgery and this site was an amazing source of

support. So you take care and keep us update. kristin flamenco <krlofl@...> wrote: Hi , I'm new to this site but when I read your post I had to respond. I was diagnosed in March of this year after going to the hospital with an elective surgery to remove part of my thyroid because of it getting bigger and my gaining a bunch of weight. In 1998 (when i think i first realized something was wrong and didn't do anything about

it) I weighed more than 220lbs. and in that year I ended up weighing120 lbs. Mostly from not being able to keep anything down. I'd eat something and it would immediately come right back up. i thought it was great because i was finally skinny after years of being big. But since 2005 i was having more trouble swallowing and gained back all the weight. Thought it was my thyroid and was going to have it taken care of, but of course went in for surgery and ended up in the ICU because of aspirating. (had aspirated before back in 2001 when i had surgery but they thought i just ate before surgery) but this time ended up in the hosp. for a week before they finally knew what was wrong with me. That whole time i was there i was only given clear liquids and lost only 5 pounds. Since being home Ive gained that weight back and then some. I thought i was the only one who could actually gain weight with achalasia, but i read what

you wrote and wanted to let you know that you're not the only one. I'm scheduled for a laparoscopic Heller with partial fundo in august, I can eat now. but i don't follow any sort of diet except for what I've taught myself (staying away from icy cold drinks and not eating a lot of meat) i still have some pains once in awhile, and swallowing is difficult if i don't drink a lot of water to force food down. and sometimes it feels like a heavy weight in my chest to where its hard to breathe but I've been living with this for awhile and have learned to eat slowly, chew chew chew and take it a step ( or swallow) at a time. Whew! I'm glad i finally got up the courage to write. Just wanted to let you guys know thanks for having this site because i thought i was alone. Thanks again Kris Get the toolbar and be alerted to new email wherever you're surfing.

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[Guest guest]

did I already tell you that my surgeon says after the wrap your

stomach is 10% smaller???

My joke is that I want to negotiate for 50% LOL

> Hi ,

> I'm new to this site but when I read your post I had to respond. I

was diagnosed in March of this year after going to the hospital with

an elective surgery to remove part of my thyroid because of it getting

bigger and my gaining a bunch of weight. In 1998 (when i think i first

realized something was wrong and didn't do anything about it) I

weighed more than 220lbs. and in that year I ended up weighing120 lbs.

Mostly from not being able to keep anything down. I'd eat something

and it would immediately come right back up. i thought it was great

because i was finally skinny after years of being big. But since 2005

i was having more trouble swallowing and gained back all the weight.

Thought it was my thyroid and was going to have it taken care of, but

of course went in for surgery and ended up in the ICU because of

aspirating. (had aspirated before back in 2001 when i had surgery but

they thought i just ate before surgery) but this time ended up in the

hosp. for a week

> before they finally knew what was wrong with me. That whole time i

was there i was only given clear liquids and lost only 5 pounds.

Since being home Ive gained that weight back and then some. I thought

i was the only one who could actually gain weight with achalasia, but

i read what you wrote and wanted to let you know that you're not the

only one. I'm scheduled for a laparoscopic Heller with partial fundo

in august, I can eat now. but i don't follow any sort of diet except

for what I've taught myself (staying away from icy cold drinks and not

eating a lot of meat) i still have some pains once in awhile, and

swallowing is difficult if i don't drink a lot of water to force food

down. and sometimes it feels like a heavy weight in my chest to where

its hard to breathe but I've been living with this for awhile and have

learned to eat slowly, chew chew chew and take it a step ( or swallow)

at a time.

> Whew! I'm glad i finally got up the courage to write. Just wanted

to let you guys know thanks for having this site because i thought i

was alone.

>

> Thanks again

> Kris

>

> ---------------------------------

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surfing.

>

>

>

>

> ---------------------------------

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new Car Finder tool.

>

[Guest guest]

Hi Donna, Yeah, I'm with you there. Mine acutally feels more than 10%. I'm not complaining. lol You take care and have a great day. Jamiw"Donna K." <freyascloak@...> wrote: did I already tell you that my surgeon says after the wrap yourstomach is 10% smaller???My joke is that I want to negotiate for 50% LOL> Hi ,> I'm new to this site but when I read your post I had to respond. Iwas diagnosed in March of this year after going to the hospital withan elective surgery to remove part of my thyroid because of it gettingbigger and my gaining a bunch of weight. In 1998 (when i think i firstrealized something was wrong and didn't do anything about it) Iweighed more than 220lbs. and in that year I ended up weighing120 lbs.Mostly from not being able to keep anything down. I'd eat somethingand it would immediately come right back up. i thought it was greatbecause i was finally skinny after years of being big. But since 2005i was having more trouble swallowing and gained back all the weight. Thought it was my thyroid and was going to have it taken care of, butof course went in for surgery and ended

up in the ICU because ofaspirating. (had aspirated before back in 2001 when i had surgery butthey thought i just ate before surgery) but this time ended up in thehosp. for a week> before they finally knew what was wrong with me. That whole time iwas there i was only given clear liquids and lost only 5 pounds. Since being home Ive gained that weight back and then some. I thoughti was the only one who could actually gain weight with achalasia, buti read what you wrote and wanted to let you know that you're not theonly one. I'm scheduled for a laparoscopic Heller with partial fundoin august, I can eat now. but i don't follow any sort of diet exceptfor what I've taught myself (staying away from icy cold drinks and noteating a lot of meat) i still have some pains once in awhile, andswallowing is difficult if i don't drink a lot of water to force fooddown. and sometimes it feels like a heavy weight in my chest to

whereits hard to breathe but I've been living with this for awhile and havelearned to eat slowly, chew chew chew and take it a step ( or swallow)at a time. > Whew! I'm glad i finally got up the courage to write. Just wantedto let you guys know thanks for having this site because i thought iwas alone.> > Thanks again> Kris> > ---------------------------------> Get the toolbar and be alerted to new email wherever you'resurfing. > > > > > ---------------------------------> Choose the right car based on your needs. Check out Autosnew Car Finder tool.>

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Oh my goodness having just read this i now feel like (and I know everyone always says this on this site!) soemone actually understands!! and i kindof know what to expect. I have shrunk and shrunk and had my fist dialisation about a month ago. it's been amazing and torture all at once. I am thoroughly enjoying food. it's great. my quantities are still small and i'm still get burps/abit of trouble and a new addition of crippling heartburn but overall i can't believe how much energy i now have. i feel 'me' again! but i'm also chubbing up. despite eating mainly fruit and veg (it's all i crave now- but still soft) it's still coming on fast and even though part of me is glad, part of me is so scared of just not being in control- i have all clothes sizes in my wardrobe and excess skin from having lost weight too quickly. what will happen now? and if/when it comes back will that lead to further baggy skin and

me looking older than my years? i'm only 25. i'm finding it quite hard to accept that i will never be in charge of my weight and appearance. and it's made me aware of how very shallow people can be. being slim has made me feel confident in some respects, but i also feel ashamed that it's happened in a horrible way. it's also strange how i've had to go from a super high fat diet to watching what i eat to try and be healthy and in control. i can totally see why there'd be eating-disorder type symptoms. i'm just lucky i have very good friends who are all shapes and sizes and who just encourage me to be me. but it's a strange battle that i never thought i'd be fighting. gxSonya Lawley <bbm_1999@...> wrote: its the Yo-Yo thats killing me too. I just was at the GI doc and he looked at me with disgust - and said you can't possibly have A. What a Jerk. I have 4 sets of clothes and its fustrating. I don't eat badly. I wish there was a solution. Re: Re: Achalasia, Weight issues Hi donna, Just saw this post re weight. I will give me history with weight. I have weight issues, but with gaining it and not losing. Before diagnosis I weighed 235 lbs. Once I got sick, (20 years ago) I went to 159 lbs in 2 months. Because I was heavy to begin with nobody paid attention, then finally someone did and I got my diagnosis. I couldn't even swallow water. Then I had my 1st dilitation and I was so glas I could swallow that I put all the weight back on. I have been heavy every since. Only losing 11 to 20

lbs before getting dilitated again. Now with the myotomy, I was 255 when I entered hospital, 258 when I came home, and am now 253. Even after only having liquids for a week in hospital I gained, go figure. I think the weight will come off for me this time because I'm finding I don't really want to eat that much and if I do my stomach hurts. That's probably from the partial fundoplication. I know it's only been two weeks, but my brain really is not friendly with food right now. I eat because I have to, not because I want to.I use a small bread and butter plate as my dinner plae. I'm sticking with fish, chicken and soft veggies and foods. I think I'm afraid to try anything other than that. Tha'ts okay because I will lose because I want to not because my body is rejecting it.I find that most foods are going down 95% with a little patience. I put my fork down between each bite

and that helps. One snack food I found, (but not healthy) is Cheese Puffs or Cheesies or Cheetos. Whatever anyone might call them. They are crunchy and melt in your mouth. No problem swallowing. I have to cut back as I eat too many of those lol. I find it very strange to have A and have a weight problem. Is anyone else out there like me? I think it is because food would go down, but take forever to go through to stomach and I would always feel hungry. I will be so glad when I can al least get on my treadmill so I can add some exercise to my regime. Just thought I would ad to your post Donna. I am feeling much better, but the side I have in incicsion on is still painful. Must be the muscle as they went in on my left side in the

back, just below the shoulder blade. The did this because of the weight I carry on my stomach. Less risk of error. Well everyone, have a great day and hope you have much success in swallowing. Donna King <freyascloak> wrote: Hi - I've been away for a few days and posted this before Iwent away...anyway I just got back and wanted to say thank you forreplying to my post.I'm glad to hear that I'm not the only one out there is who is

havingfood/weight issues. After having your myotomy, are you swallowing at 100%, 80%, or????How long have you had achalasia, how much weight did you lose intotal, and do you think you had a "normal" relationship with foodbeforehand?I don't know why I'm so curious about other people's experience.. .justseeking some understanding, I suppose. I know the phrase "your mileage may vary" always comes to mine whenthinking of A - everyone is so different - anyway it helps just to beable to think out loud, so to speak, and talk about it.Take care,Donna> >> > I'm writing this because I'm wondering if anyone else has this > issue.> > > > I haven't quite got my head wrapped around it yet, but basically > I'm> > scared of gaining weight after my upcoming myotomy. > > > > I was dieting and lost 20 pounds, then A got severe and I lost 20> > more. Now I'm eating at least two real meals a day (thanks to> > Nifedipine) and weight loss has slowed down considerably. I would > love> > to lose another 10 but am grateful for what I have - as many have > said> > before me- the only good thing about A.> > > > Before nifedipine (and sometimes now between pills), I sometimes > eat> > very unhealthy food, like chocolate, ice cream, fries - what have > you> > - because I think "what the hey, I'll just

regurgitate it anyway" > but> > isn't this type of behavior rather bulemic? > > > > Is it bad to fill your E knowing you are only going to give it > back?> > It can't be healthy for the tone of the muscle or for the psyche.> > > > Any words of wisdom from those of you who may be dealing with this> > sort of thing, or have dealt with it in the past?> > > > Thanks> > Donna> >> Finding fabulous fares is fun.Let FareChase search your favorite travel

sites to find flight and hotel bargains. Answers - Get better answers from someone who knows. Try it now. Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos

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[Guest guest]

Hi Gwenan, I am sorry to hear about your weight issues, but know so much how it feels. That is so wonderful about this group. Even though we all have our different symptoms and reactions, there are always some people who have the same issue you (and this case I) have. We tend to just look at and post about physical symptoms, but Achalasia also has an enormous effect on our emotions and behaviour. And it helps me a lot to share some of these issues and feel other have them too. I too was happy shrinking. I lost a third of my body weight and people wanted to know about my miracle diet! I then mostly tell them what is the cause and that the weight loss was the only good things about it. Of course the fat cells are still there and very hungry - they have their mouths wide open LOL! The body is still in "emergency mode" so still eager to create a buffer for the bad times to come. I too have some issues eating again (burps, the feeling it is still hanging there and regurgitation), which makes me wonder how long I still can enjoy eating. So, whenever I have a good day and eating goes well, I tend to stuff myself with the thought "while I still can". Which I regret shortly after. I did get rid of the XXL sized clothes recently, but am still hanging on to the rest. I am going to see a dietitian to help me with my diet. First I had to stay away from the fat and sweet food, then I HAD to eat them to stop me from loosing weight and now I have to avoid them again. Aaaaargh!!! Although I find it frustrating, I do try to enjoy eating and life! Unfortunately, we live in a time where appearance is very important, but our loved ones will still love us if we would gain back some (or more) extra pounds! Good luck and thanks for sharing with

us! Greetings from Holland, Astrid Gwenan Davies <gwenaned@...> wrote: Oh my goodness having just read this i now feel like (and I know everyone always says this on this site!) soemone actually understands!! and i kindof know what to expect. I have shrunk and shrunk and had my fist dialisation about a month ago. it's been amazing and torture all at once. I am thoroughly enjoying food.

it's great. my quantities are still small and i'm still get burps/abit of trouble and a new addition of crippling heartburn but overall i can't believe how much energy i now have. i feel 'me' again! but i'm also chubbing up. despite eating mainly fruit and veg (it's all i crave now- but still soft) it's still coming on fast and even though part of me is glad, part of me is so scared of just not being in control- i have all clothes sizes in my wardrobe and excess skin from having lost weight too quickly. what will happen now? and if/when it comes back will that lead to further baggy skin and me looking older than my years? i'm only 25. i'm finding it quite hard to accept that i will never be in charge of my weight and appearance. and it's made me aware of how very shallow people can be. being slim has made me feel confident in some respects, but i also feel ashamed that it's happened in a horrible way.

it's also strange how i've had to go from a super high fat diet to watching what i eat to try and be healthy and in control. i can totally see why there'd be eating-disorder type symptoms. i'm just lucky i have very good friends who are all shapes and sizes and who just encourage me to be me. but it's a strange battle that i never thought i'd be fighting. gxSonya Lawley <bbm_1999 (DOT) co.uk> wrote: its the Yo-Yo thats killing me too. I just was at the GI doc and he looked at me with disgust - and said you can't possibly have A. What a

Jerk. I have 4 sets of clothes and its fustrating. I don't eat badly. I wish there was a solution. Re: Re: Achalasia, Weight issues Hi donna, Just saw this post re weight. I will give me history with weight. I have weight issues, but with gaining it and not losing. Before diagnosis I weighed 235 lbs. Once I got sick, (20

years ago) I went to 159 lbs in 2 months. Because I was heavy to begin with nobody paid attention, then finally someone did and I got my diagnosis. I couldn't even swallow water. Then I had my 1st dilitation and I was so glas I could swallow that I put all the weight back on. I have been heavy every since. Only losing 11 to 20 lbs before getting dilitated again. Now with the myotomy, I was 255 when I entered hospital, 258 when I came home, and am now 253. Even after only having liquids for a week in hospital I gained, go figure. I think the weight will come off for me this time because I'm finding I don't really want to eat that much and if I do my stomach hurts. That's probably from the partial fundoplication. I know it's only been two weeks, but my brain really is not friendly with food right now. I eat because I have to, not because I want to.I use a small bread and butter

plate as my dinner plae. I'm sticking with fish, chicken and soft veggies and foods. I think I'm afraid to try anything other than that. Tha'ts okay because I will lose because I want to not because my body is rejecting it.I find that most foods are going down 95% with a little patience. I put my fork down between each bite and that helps. One snack food I found, (but not healthy) is Cheese Puffs or Cheesies or Cheetos. Whatever anyone might call them. They are crunchy and melt in your mouth. No problem swallowing. I have to cut back as I eat too many of those lol. I find it very strange to have A and have a weight problem. Is anyone else out there like me? I think it is because food would go down, but take forever to go through to stomach and I would always feel hungry. I will be so glad when I can al

least get on my treadmill so I can add some exercise to my regime. Just thought I would ad to your post Donna. I am feeling much better, but the side I have in incicsion on is still painful. Must be the muscle as they went in on my left side in the back, just below the shoulder blade. The did this because of the weight I carry on my stomach. Less risk of error. Well everyone, have a great day and hope you have much success in swallowing. Donna King <freyascloak> wrote: Hi - I've been away for a few days and posted this before Iwent away...anyway I just got back and wanted to say thank you forreplying to my post.I'm glad to hear that I'm not the only one out there is who is havingfood/weight issues. After having your myotomy, are you swallowing at 100%, 80%, or????How long have you had achalasia, how much weight did you lose intotal, and do you think you had a "normal" relationship with foodbeforehand?I don't know why I'm so curious about other people's experience.. .justseeking some understanding, I suppose. I know the phrase "your mileage may vary" always comes to mine whenthinking of A - everyone is so different - anyway it helps just to beable to think out loud, so to speak, and talk about it.Take care,Donna> >> > I'm writing this because I'm wondering if anyone else has this > issue.> > > > I haven't quite got my head wrapped around it yet, but basically > I'm> > scared of gaining weight after my upcoming myotomy. > > > > I was dieting and lost 20 pounds, then A got severe and I lost 20> > more. Now I'm eating at least two real meals a day (thanks to> > Nifedipine) and weight loss has slowed down considerably. I would > love> > to lose another 10 but am grateful for

what I have - as many have > said> > before me- the only good thing about A.> > > > Before nifedipine (and sometimes now between pills), I sometimes > eat> > very unhealthy food, like chocolate, ice cream, fries - what have > you> > - because I think "what the hey, I'll just regurgitate it anyway" > but> > isn't this type of behavior rather bulemic? > > > > Is it bad to fill your E knowing you are only going to give it > back?> > It can't be healthy for the tone of the muscle or for the psyche.> > > > Any words of wisdom from those of you who may be dealing with this> > sort of thing, or have dealt with it in the past?> > > > Thanks> > Donna> >> Finding fabulous fares is fun.Let FareChase search your favorite travel sites to find flight and hotel bargains. Answers - Get better answers from someone who knows. Try it now. Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more. What kind of emailer are you? Find out today - get a free analysis of your email personality. Take the quiz at the Championship. is the world's favourite email. Don't settle for less, sign up for your free account today.

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[Guest guest]

Gwenan -- (pretty, that's the first time I've ever seen your name -

though I did know a Gwenm.

I am so with you! I have three sizes of clothes and want to stay in

the size I'm in.

Something that's helping me a lot is this book, you can find the link

at www.beckdietsolution.com it's not a diet book, it's a book about

changing your psychology around eating.

Good luck to you sweetie-

Donna

p.s. are you in the UK? I thought maybe so because you said veg

> > >

> > > I'm writing this because I'm wondering if anyone else has this

> > issue.

> > >

> > > I haven't quite got my head wrapped around it yet, but basically

> > I'm

> > > scared of gaining weight after my upcoming myotomy.

> > >

> > > I was dieting and lost 20 pounds, then A got severe and I lost 20

> > > more. Now I'm eating at least two real meals a day (thanks to

> > > Nifedipine) and weight loss has slowed down considerably. I would

> > love

> > > to lose another 10 but am grateful for what I have - as many have

> > said

> > > before me- the only good thing about A.

> > >

> > > Before nifedipine (and sometimes now between pills), I sometimes

> > eat

> > > very unhealthy food, like chocolate, ice cream, fries - what have

> > you

> > > - because I think " what the hey, I'll just regurgitate it anyway "

> > but

> > > isn't this type of behavior rather bulemic?

> > >

> > > Is it bad to fill your E knowing you are only going to give it

> > back?

> > > It can't be healthy for the tone of the muscle or for the psyche.

> > >

> > > Any words of wisdom from those of you who may be dealing with this

> > > sort of thing, or have dealt with it in the past?

> > >

> > > Thanks

> > > Donna

> > >

> >

>

>

>

>

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