Re: Achalasia, Weight issues

[Guest guest]

In a message dated 6/1/2007 2:01:26 P.M. Pacific Daylight Time, kristinmari2@... writes:

hey Donna,I'm surprised more people haven't created posts like this. Before my surgery, I was losing about a lb a day. The one part of my brain was thinking, "This is HORRIBLE! I can't eat ANYTHING!" The other part of my brain was like, "cool. I'll be super thin." Even though I *know* it's wrong to think like that, I'll admit I was a *little* bit happy with the weight loss.Since I've had my myotomy 6 weeks ago, I feel my obsession with food borders on unhealthy. I KNOW I can eat now but when I start eating, I want to hord food. Before the myotomy, for every good day I was able to eat, I would have 3 bad ones where I couldn't eat anything. So in my mind, I want to continue to do that but since I can eat i everyday, I'll admit to a modest 3 lb weight gain post surgery. I'm really interested in hearing from other people on this. Just so you know, you are not alone!, FL

I have some observations to share from the 4-legged camp. Things go in cycles with Eva. She can go upwards of 2 weeks without any interest in food (question below). From that 'phase' she eventually

bounces to the other side and all of a sudden even non food items -- rocks, twigs, for example apparently look really good because I am forever having to snatch them out of her mouth. She eats ravenously during this time -- being fed many meals throughout the day. Eventually it all settles back to normalcy.

There are times that I believe there is a definite disconnect. She does not even avert her head, no 'fighting', no spitting food back out either. But she will not open her mouth to take it in and the look in her eyes isn't there -- she's blank. Even after I place food gently in her mouth there is oft times no reaction for a few moments. Eventually she'll move her tongue a bit and I can see the 'oh, yea... eating... okay... and then we can get her through a meal. The non-existent 'look' and body language would be similar to a stroke victim, for example. She has been tested for epilepsy -- all it okay.

Does anyone ever get to the point that there is absolutely no (!) reaction to food? Not good, not bad, just nothing??

PegSee what's free at AOL.com.

[Guest guest]

hey Donna,

I'm surprised more people haven't created posts like this. Before

my surgery, I was losing about a lb a day. The one part of my brain

was thinking, " This is HORRIBLE! I can't eat ANYTHING! " The other

part of my brain was like, " cool. I'll be super thin. " Even though

I *know* it's wrong to think like that, I'll admit I was a *little*

bit happy with the weight loss.

Since I've had my myotomy 6 weeks ago, I feel my obsession with food

borders on unhealthy. I KNOW I can eat now but when I start eating,

I want to hord food. Before the myotomy, for every good day I was

able to eat, I would have 3 bad ones where I couldn't eat anything.

So in my mind, I want to continue to do that but since I can eat

everyday, I'll admit to a modest 3 lb weight gain post surgery. I'm

really interested in hearing from other people on this. Just so you

know, you are not alone!

, FL

>

> I'm writing this because I'm wondering if anyone else has this

issue.

>

> I haven't quite got my head wrapped around it yet, but basically

I'm

> scared of gaining weight after my upcoming myotomy.

>

> I was dieting and lost 20 pounds, then A got severe and I lost 20

> more. Now I'm eating at least two real meals a day (thanks to

> Nifedipine) and weight loss has slowed down considerably. I would

love

> to lose another 10 but am grateful for what I have - as many have

said

> before me- the only good thing about A.

>

> Before nifedipine (and sometimes now between pills), I sometimes

eat

> very unhealthy food, like chocolate, ice cream, fries - what have

you

> - because I think " what the hey, I'll just regurgitate it anyway "

but

> isn't this type of behavior rather bulemic?

>

> Is it bad to fill your E knowing you are only going to give it

back?

> It can't be healthy for the tone of the muscle or for the psyche.

>

> Any words of wisdom from those of you who may be dealing with this

> sort of thing, or have dealt with it in the past?

>

> Thanks

> Donna

>

[Guest guest]

hey Donna,

I'm surprised more people haven't created posts like this. Before

my surgery, I was losing about a lb a day. The one part of my brain

was thinking, " This is HORRIBLE! I can't eat ANYTHING! " The other

part of my brain was like, " cool. I'll be super thin. " Even though

I *know* it's wrong to think like that, I'll admit I was a *little*

bit happy with the weight loss.

Since I've had my myotomy 6 weeks ago, I feel my obsession with food

borders on unhealthy. I KNOW I can eat now but when I start eating,

I want to hord food. Before the myotomy, for every good day I was

able to eat, I would have 3 bad ones where I couldn't eat anything.

So in my mind, I want to continue to do that but since I can eat

everyday, I'll admit to a modest 3 lb weight gain post surgery. I'm

really interested in hearing from other people on this. Just so you

know, you are not alone!

, FL

>

> I'm writing this because I'm wondering if anyone else has this

issue.

>

> I haven't quite got my head wrapped around it yet, but basically

I'm

> scared of gaining weight after my upcoming myotomy.

>

> I was dieting and lost 20 pounds, then A got severe and I lost 20

> more. Now I'm eating at least two real meals a day (thanks to

> Nifedipine) and weight loss has slowed down considerably. I would

love

> to lose another 10 but am grateful for what I have - as many have

said

> before me- the only good thing about A.

>

> Before nifedipine (and sometimes now between pills), I sometimes

eat

> very unhealthy food, like chocolate, ice cream, fries - what have

you

> - because I think " what the hey, I'll just regurgitate it anyway "

but

> isn't this type of behavior rather bulemic?

>

> Is it bad to fill your E knowing you are only going to give it

back?

> It can't be healthy for the tone of the muscle or for the psyche.

>

> Any words of wisdom from those of you who may be dealing with this

> sort of thing, or have dealt with it in the past?

>

> Thanks

> Donna

>

[Guest guest]

Hi - I've been away for a few days and posted this before I

went away...anyway I just got back and wanted to say thank you for

replying to my post.

I'm glad to hear that I'm not the only one out there is who is having

food/weight issues.

After having your myotomy, are you swallowing at 100%, 80%, or????

How long have you had achalasia, how much weight did you lose in

total, and do you think you had a " normal " relationship with food

beforehand?

I don't know why I'm so curious about other people's experience...just

seeking some understanding, I suppose.

I know the phrase " your mileage may vary " always comes to mine when

thinking of A - everyone is so different - anyway it helps just to be

able to think out loud, so to speak, and talk about it.

Take care,

Donna

> >

> > I'm writing this because I'm wondering if anyone else has this

> issue.

> >

> > I haven't quite got my head wrapped around it yet, but basically

> I'm

> > scared of gaining weight after my upcoming myotomy.

> >

> > I was dieting and lost 20 pounds, then A got severe and I lost 20

> > more. Now I'm eating at least two real meals a day (thanks to

> > Nifedipine) and weight loss has slowed down considerably. I would

> love

> > to lose another 10 but am grateful for what I have - as many have

> said

> > before me- the only good thing about A.

> >

> > Before nifedipine (and sometimes now between pills), I sometimes

> eat

> > very unhealthy food, like chocolate, ice cream, fries - what have

> you

> > - because I think " what the hey, I'll just regurgitate it anyway "

> but

> > isn't this type of behavior rather bulemic?

> >

> > Is it bad to fill your E knowing you are only going to give it

> back?

> > It can't be healthy for the tone of the muscle or for the psyche.

> >

> > Any words of wisdom from those of you who may be dealing with this

> > sort of thing, or have dealt with it in the past?

> >

> > Thanks

> > Donna

> >

>

[Guest guest]

, did your thyroid panels results come back as within the normal range?

Best,

PegSee what's free at AOL.com.

[Guest guest]

Hi donna, Just saw this post re weight. I will give me history with weight. I have weight issues, but with gaining it and not losing. Before diagnosis I weighed 235 lbs. Once I got sick, (20 years ago) I went to 159 lbs in 2 months. Because I was heavy to begin with nobody paid attention, then finally someone did and I got my diagnosis. I couldn't even swallow water. Then I had my 1st dilitation and I was so glas I could swallow that I put all the weight back on. I have been heavy every since. Only losing 11 to 20 lbs before getting dilitated again. Now with the myotomy, I was 255 when I entered hospital, 258 when I came home, and am now 253. Even after only having liquids for a week in hospital I gained, go figure. I think the weight will come off for me this time because I'm finding I don't really want to eat that much and if I do my stomach hurts. That's probably from the partial fundoplication. I

know it's only been two weeks, but my brain really is not friendly with food right now. I eat because I have to, not because I want to.I use a small bread and butter plate as my dinner plae. I'm sticking with fish, chicken and soft veggies and foods. I think I'm afraid to try anything other than that. Tha'ts okay because I will lose because I want to not because my body is rejecting it.I find that most foods are going down 95% with a little patience. I put my fork down between each bite and that helps. One snack food I found, (but not healthy) is Cheese Puffs or Cheesies or Cheetos. Whatever anyone might call them. They are crunchy and melt in your mouth. No problem swallowing. I have to cut back as I eat too many of those lol. I find it very strange to have A and have a weight problem. Is anyone else out there like me? I think it is because food would go down, but take forever to go

through to stomach and I would always feel hungry. I will be so glad when I can al least get on my treadmill so I can add some exercise to my regime. Just thought I would ad to your post Donna. I am feeling much better, but the side I have in incicsion on is still painful. Must be the muscle as they went in on my left side in the back, just below the shoulder blade. The did this because of the weight I carry on my stomach. Less risk of error. Well everyone, have a great day and hope you have much success in swallowing. Donna King <freyascloak@...> wrote: Hi - I've been away for a few days and posted this before Iwent away...anyway I just got back and wanted to say thank you forreplying to my post.I'm glad to hear that I'm not the only one out there is who is havingfood/weight issues. After having your myotomy, are you swallowing at 100%, 80%, or????How long have you had achalasia, how much weight did you lose intotal, and do you think you had a "normal" relationship with foodbeforehand?I don't know why I'm so curious about other people's experience...justseeking some understanding, I suppose. I know the phrase "your mileage may vary" always comes to mine whenthinking of A - everyone is so different - anyway it helps just to

beable to think out loud, so to speak, and talk about it.Take care,Donna> >> > I'm writing this because I'm wondering if anyone else has this > issue.> > > > I haven't quite got my head wrapped around it yet, but basically > I'm> > scared of gaining weight after my upcoming myotomy. > > > > I was dieting and lost 20 pounds, then A got severe and I lost 20> > more. Now I'm eating at least two real meals a day (thanks to> > Nifedipine) and weight loss has slowed down

considerably. I would > love> > to lose another 10 but am grateful for what I have - as many have > said> > before me- the only good thing about A.> > > > Before nifedipine (and sometimes now between pills), I sometimes > eat> > very unhealthy food, like chocolate, ice cream, fries - what have > you> > - because I think "what the hey, I'll just regurgitate it anyway" > but> > isn't this type of behavior rather bulemic? > > > > Is it bad to fill your E knowing you are only going to give it > back?> > It can't be healthy for the tone of the muscle or for the psyche.> > > > Any words of wisdom from those of you who may be dealing with this> > sort of thing, or have dealt with it in the past?> > > > Thanks> > Donna>

>>

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[Guest guest]

McRae wrote:

> ...I'm finding I don't really want to eat that much and if I do my

> stomach hurts. That's probably from the partial fundoplication. ...

The fundoplication can do that. You can use this to your advantage. In

time your stomach is going to stretch and you will be able to eat more

without the discomfort. Now, before that happens, you may be able to

reset your mental impression of how much should be on a plate or in your

stomach. We get used to a lot being on the plate and then when there is

less on it we feel we didn't get enough. The discomfort you have now can

be used to tell your mind that less is enough. The trick is to learn

that so later when there is no discomfort you can believe you have

enough when you have less that you used to. Easier said than done, but

it can work.

notan

[Guest guest]

I have a weight problem too. My surgeon says its beacasue my body always thinks its starving, casue the food takes so long to get where it needs too and sometimes infrequently, that it holds onto the calories.

I had my surgery, and well, the weight dropped off for a bit, but now its back up again. I am currently working with my doctor to find a solution.

I still don't eat much about 1650 cals a day and i have a very active job. its driving me nuts.

Re: Re: Achalasia, Weight issues

Hi donna,

Just saw this post re weight. I will give me history with weight. I have weight issues, but with gaining it and not losing. Before diagnosis I weighed 235 lbs. Once I got sick, (20 years ago) I went to 159 lbs in 2 months. Because I was heavy to begin with nobody paid attention, then finally someone did and I got my diagnosis. I couldn't even swallow water. Then I had my 1st dilitation and I was so glas I could swallow that I put all the weight back on. I have been heavy every since. Only losing 11 to 20 lbs before getting dilitated again.

Now with the myotomy, I was 255 when I entered hospital, 258 when I came home, and am now 253. Even after only having liquids for a week in hospital I gained, go figure. I think the weight will come off for me this time because I'm finding I don't really want to eat that much and if I do my stomach hurts. That's probably from the partial fundoplication. I know it's only been two weeks, but my brain really is not friendly with food right now. I eat because I have to, not because I want to.I use a small bread and butter plate as my dinner plae. I'm sticking with fish, chicken and soft veggies and foods. I think I'm afraid to try anything other than that. Tha'ts okay because I will lose because I want to not because my body is rejecting it.I find that most foods are going down 95% with a little patience. I put my fork down between each bite and that helps. One snack food I found, (but not healthy) is Cheese Puffs or Cheesies or Cheetos. Whatever anyone might

call them. They are crunchy and melt in your mouth. No problem swallowing. I have to cut back as I eat too many of those lol.

I find it very strange to have A and have a weight problem. Is anyone else out there like me? I think it is because food would go down, but take forever to go through to stomach and I would always feel hungry. I will be so glad when I can al least get on my treadmill so I can add some exercise to my regime.

Just thought I would ad to your post Donna. I am feeling much better, but the side I have in incicsion on is still painful. Must be the muscle as they went in on my left side in the back, just below the shoulder blade. The did this because of the weight I carry on my stomach. Less risk of error.

Well everyone, have a great day and hope you have much success in swallowing.

Donna King <freyascloak> wrote:

Hi - I've been away for a few days and posted this before Iwent away...anyway I just got back and wanted to say thank you forreplying to my post.I'm glad to hear that I'm not the only one out there is who is havingfood/weight issues. After having your myotomy, are you swallowing at 100%, 80%, or????How long have you had achalasia, how much weight did you lose intotal, and do you think you had a "normal" relationship with foodbeforehand?I don't know why I'm so curious about other people's experience.. .justseeking some understanding, I suppose. I know the phrase "your mileage may vary" always comes to mine whenthinking of A - everyone is so different - anyway it helps just to beable to think out loud, so to speak, and talk about it.Take care,Donna> >> > I'm writing this because I'm wondering if anyone else has this > issue.> > > > I haven't quite got my head wrapped around it yet, but basically > I'm> > scared of gaining weight after my upcoming myotomy. > > > > I was dieting and lost 20 pounds, then A got severe and I lost 20> > more. Now I'm eating at least two real meals a day (thanks to> > Nifedipine) and weight loss has slowed down considerably. I would > love> > to lose another 10 but am grateful for what I have - as many have > said> > before me- the only good thing about A.> >

> > Before nifedipine (and sometimes now between pills), I sometimes > eat> > very unhealthy food, like chocolate, ice cream, fries - what have > you> > - because I think "what the hey, I'll just regurgitate it anyway" > but> > isn't this type of behavior rather bulemic? > > > > Is it bad to fill your E knowing you are only going to give it > back?> > It can't be healthy for the tone of the muscle or for the psyche.> > > > Any words of wisdom from those of you who may be dealing with this> > sort of thing, or have dealt with it in the past?> > > > Thanks> > Donna> >>

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[Guest guest]

I was always slim, when I first realised I was suffering from Achalasia I couldn't even hold down water, After my first dilitation 12 years ago I found it such a relief to be able to eat that i just put weight on , so for the past 10 or so years it has been creeping up on me. I always thought that someone suffering with this condition would be rake thin , but not so. Im hoping that I can sort myself out now that my last dilitation (last week ) seems to have worked , Maybe I can deal with it better now that Im eating a lot better and so I can control it more , Ive actually had some silly people saying to me ...oh I wish I couldn't swallow and maybe I could get some of this weight off... unbelievable .. Marie

achalasia From: bbm_1999@...Date: Wed, 6 Jun 2007 17:04:20 +0000Subject: Re: Re: Achalasia, Weight issues

I have a weight problem too. My surgeon says its beacasue my body always thinks its starving, casue the food takes so long to get where it needs too and sometimes infrequently, that it holds onto the calories.

I had my surgery, and well, the weight dropped off for a bit, but now its back up again. I am currently working with my doctor to find a solution.

I still don't eat much about 1650 cals a day and i have a very active job. its driving me nuts.

Re: Re: Achalasia, Weight issues

Hi donna,

Just saw this post re weight. I will give me history with weight. I have weight issues, but with gaining it and not losing. Before diagnosis I weighed 235 lbs. Once I got sick, (20 years ago) I went to 159 lbs in 2 months. Because I was heavy to begin with nobody paid attention, then finally someone did and I got my diagnosis. I couldn't even swallow water. Then I had my 1st dilitation and I was so glas I could swallow that I put all the weight back on. I have been heavy every since. Only losing 11 to 20 lbs before getting dilitated again.

Now with the myotomy, I was 255 when I entered hospital, 258 when I came home, and am now 253. Even after only having liquids for a week in hospital I gained, go figure. I think the weight will come off for me this time because I'm finding I don't really want to eat that much and if I do my stomach hurts. That's probably from the partial fundoplication. I know it's only been two weeks, but my brain really is not friendly with food right now. I eat because I have to, not because I want to.I use a small bread and butter plate as my dinner plae. I'm sticking with fish, chicken and soft veggies and foods. I think I'm afraid to try anything other than that. Tha'ts okay because I will lose because I want to not because my body is rejecting it.I find that most foods are going down 95% with a little patience. I put my fork down between each bite and that helps. One snack food I found, (but not healthy) is Cheese Puffs or Cheesies or Cheetos. Whatever anyone might call them. They are crunchy and melt in your mouth. No problem swallowing. I have to cut back as I eat too many of those lol.

I find it very strange to have A and have a weight problem. Is anyone else out there like me? I think it is because food would go down, but take forever to go through to stomach and I would always feel hungry. I will be so glad when I can al least get on my treadmill so I can add some exercise to my regime.

Just thought I would ad to your post Donna. I am feeling much better, but the side I have in incicsion on is still painful. Must be the muscle as they went in on my left side in the back, just below the shoulder blade. The did this because of the weight I carry on my stomach. Less risk of error.

Well everyone, have a great day and hope you have much success in swallowing.

Donna King <freyascloak> wrote:

Hi - I've been away for a few days and posted this before Iwent away...anyway I just got back and wanted to say thank you forreplying to my post.I'm glad to hear that I'm not the only one out there is who is havingfood/weight issues. After having your myotomy, are you swallowing at 100%, 80%, or????How long have you had achalasia, how much weight did you lose intotal, and do you think you had a "normal" relationship with foodbeforehand?I don't know why I'm so curious about other people's experience.. .justseeking some understanding, I suppose. I know the phrase "your mileage may vary" always comes to mine whenthinking of A - everyone is so different - anyway it helps just to beable to think out loud, so to speak, and talk about it.Take care,Donna> >> > I'm writing this because I'm wondering if anyone else has this > issue.> > > > I haven't quite got my head wrapped around it yet, but basically > I'm> > scared of gaining weight after my upcoming myotomy. > > > > I was dieting and lost 20 pounds, then A got severe and I lost 20> > more. Now I'm eating at least two real meals a day (thanks to> > Nifedipine) and weight loss has slowed down considerably. I would > love> > to lose another 10 but am grateful for what I have - as many have > said> > before me- the only good thing about A.> > > > Before nifedipine (and sometimes now between pills), I sometimes > eat> > very unhealthy food, like chocolate, ice cream, fries - what have > you> > - because I think "what the hey, I'll just regurgitate it anyway" > but> > isn't this type of behavior rather bulemic? > > > > Is it bad to fill your E knowing you are only going to give it > back?> > It can't be healthy for the tone of the muscle or for the psyche.> > > > Any words of wisdom from those of you who may be dealing with this> > sort of thing, or have dealt with it in the past?> > > > Thanks> > Donna> >>

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[Guest guest]

Hi All,

I am so glad we are actually talking about this!

I have actually put on weight since I was diagnosed with A back in

2004. I also have the attitude, who cares what I eat, I will just

regurgitate it. I just don't understand how I am not losing

weight!!!! I am over 200LBS, and I just quit smoking because I have

my myotomy schedlued with Dr. Rice on June 27th. Dr. Rice was like

well you are still eating enough to gain weight. It boggles my

mind..............

Corri in MI

> > >

> > > I'm writing this because I'm wondering if anyone else has this

> > issue.

> > >

> > > I haven't quite got my head wrapped around it yet, but

basically

> > I'm

> > > scared of gaining weight after my upcoming myotomy.

> > >

> > > I was dieting and lost 20 pounds, then A got severe and I lost

20

> > > more. Now I'm eating at least two real meals a day (thanks to

> > > Nifedipine) and weight loss has slowed down considerably. I

would

> > love

> > > to lose another 10 but am grateful for what I have - as many

have

> > said

> > > before me- the only good thing about A.

> > >

> > > Before nifedipine (and sometimes now between pills), I

sometimes

> > eat

> > > very unhealthy food, like chocolate, ice cream, fries - what

have

> > you

> > > - because I think " what the hey, I'll just regurgitate it

anyway "

> > but

> > > isn't this type of behavior rather bulemic?

> > >

> > > Is it bad to fill your E knowing you are only going to give it

> > back?

> > > It can't be healthy for the tone of the muscle or for the

psyche.

> > >

> > > Any words of wisdom from those of you who may be dealing with

this

> > > sort of thing, or have dealt with it in the past?

> > >

> > > Thanks

> > > Donna

> > >

> >

>

>

>

>

>

>

> Finding fabulous fares is fun.

> Let FareChase search your favorite travel sites to find

flight and hotel bargains.

>

>

>

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[Guest guest]

Corri,

The body is an amazing thing, and as we that suffer from achalasia

know, we can adapt and make due with whatever we can manage. I think

one reason that some people tend to maintain or even gain weight with

achalasia is because they find that a lot of the higher calorie, not

so good for us foods are the ones that go down the best, therefore

that's what we end up eating. Also, it depends on how severe your

achalasia is.

I was diagnosed with Achalasia when I was 16, and I turned 34 today.

Before I was diagnosed with A, I was accused of having an eating

disorder as I was throwing up all my food and my weight dropped down

to 90 pounds - of course, what else could possibly be wrong with a 16

year old girl that loses that much weight?!?!?! (Idiots)

Once they figured it out, I had a couple dilitations and they sent me

on my way with no follow up plan. Over the years I kept my weight

relatively stable. I have had two kids, gained normal weight during

pregnancy and started having issues again after the birth of my

youngest 2 1/2 years ago. Needless to say, tomorrow is 10 weeks since

my esophagectomy by Dr. Rice - I went into it at a normal weight and

have lost a total of about 8-10 pounds since surgery and am at about

120 pounds. Eating is finally going relatively well for me, so I am

hoping to put a few pounds back on and get back to my normal 130ish

range.

On that note, everyone's body reacts differently to this disease and

can handle the flow of calories differently.

I'm glad you are going to Dr. Rice - he is simply the best there is.

What do you think of him so far?

in NY

Re: Achalasia, Weight issues

achalasia

> Hi All,

>

> I am so glad we are actually talking about this!

>

> I have actually put on weight since I was diagnosed with A back in

> 2004. I also have the attitude, who cares what I eat, I will just

> regurgitate it. I just don't understand how I am not losing

> weight!!!! I am over 200LBS, and I just quit smoking because I

> have

> my myotomy schedlued with Dr. Rice on June 27th. Dr. Rice was

> like

> well you are still eating enough to gain weight. It boggles my

> mind..............

>

> Corri in MI

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> > > >

> > > > I'm writing this because I'm wondering if anyone else has

> this

> > > issue.

> > > >

> > > > I haven't quite got my head wrapped around it yet, but

> basically

> > > I'm

> > > > scared of gaining weight after my upcoming myotomy.

> > > >

> > > > I was dieting and lost 20 pounds, then A got severe and I

> lost

> 20

> > > > more. Now I'm eating at least two real meals a day (thanks to

> > > > Nifedipine) and weight loss has slowed down considerably. I

> would

> > > love

> > > > to lose another 10 but am grateful for what I have - as many

> have

> > > said

> > > > before me- the only good thing about A.

> > > >

> > > > Before nifedipine (and sometimes now between pills), I

> sometimes

> > > eat

> > > > very unhealthy food, like chocolate, ice cream, fries - what

> have

> > > you

> > > > - because I think " what the hey, I'll just regurgitate it

> anyway "

> > > but

> > > > isn't this type of behavior rather bulemic?

> > > >

> > > > Is it bad to fill your E knowing you are only going to give

> it

> > > back?

> > > > It can't be healthy for the tone of the muscle or for the

> psyche.

> > > >

> > > > Any words of wisdom from those of you who may be dealing

> with

> this

> > > > sort of thing, or have dealt with it in the past?

> > > >

> > > > Thanks

> > > > Donna

> > > >

> > >

> >

> >

> >

> >

> >

> >

> > Finding fabulous fares is fun.

> > Let FareChase search your favorite travel sites to find

> flight and hotel bargains.

> >

> >

> >

> >

> ___________________________________________________________

> > is the world's favourite email. Don't settle for

> less,

> sign up for

> > your free account today

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> r07.html

> >

>

>

>

[Guest guest]

Hi - I can't believe you actually gained weight after coming

home from the hospital! How frustrating. It was probably all water,

though. Perhaps you were well hydrated from the IV!

The thing I'm realizing is that I feel like I'm invincible lately

where weight is concerned. I'm trying to prevent a weight gain after

my upcoming surgery.

I've just found a book that I'm hoping will help me change my

relationship with food. It's called the Beck Diet Solution and it

focuses on changing our thoughts around food (based on cognitive

therapy). I've read about 10 pages so far and it seems really good. I

found it at the library.

I think having achalasia is a good opportunity to learn to eat

healthier for me. I just personally know that I've been using it as an

excuse to eat really bad food, rationalizing that either I'm going to

re-gurg it or that it may be the only thing I hold down today (that

was pre-nifedipine, however - now I don't re-gurg like I did before

the medicine).

As a woman who has had weight issues all my life, I'm finding that

though I've lost some weight, it's bringing my issues out front and

center.

Well it helps to vent and to hear other's experiences.

Take care. I'm so glad to hear you're feeling better.

Donna

> > >

> > > I'm writing this because I'm wondering if anyone else has this

> > issue.

> > >

> > > I haven't quite got my head wrapped around it yet, but basically

> > I'm

> > > scared of gaining weight after my upcoming myotomy.

> > >

> > > I was dieting and lost 20 pounds, then A got severe and I lost 20

> > > more. Now I'm eating at least two real meals a day (thanks to

> > > Nifedipine) and weight loss has slowed down considerably. I would

> > love

> > > to lose another 10 but am grateful for what I have - as many have

> > said

> > > before me- the only good thing about A.

> > >

> > > Before nifedipine (and sometimes now between pills), I sometimes

> > eat

> > > very unhealthy food, like chocolate, ice cream, fries - what have

> > you

> > > - because I think " what the hey, I'll just regurgitate it anyway "

> > but

> > > isn't this type of behavior rather bulemic?

> > >

> > > Is it bad to fill your E knowing you are only going to give it

> > back?

> > > It can't be healthy for the tone of the muscle or for the psyche.

> > >

> > > Any words of wisdom from those of you who may be dealing with this

> > > sort of thing, or have dealt with it in the past?

> > >

> > > Thanks

> > > Donna

> > >

> >

>

>

>

>

>

>

> ---------------------------------

> Finding fabulous fares is fun.

> Let FareChase search your favorite travel sites to find

flight and hotel bargains.

>

[Guest guest]

My friends have been commenting on how good I look too - I just

consider myself lucky that I don't have a condition that causes me to

gain - my friend is on Prednisone for Crohns disease and she has

gained about 40 pounds. I definitely got the better deal.

Always look on the bright side!

Take care,

Donna

> >> > I'm writing this because I'm

wondering if anyone else has this > issue.> > > > I haven't quite got

my head wrapped around it yet, but basically > I'm> > scared of

gaining weight after my upcoming myotomy. > > > > I was dieting and

lost 20 pounds, then A got severe and I lost 20> > more. Now I'm

eating at least two real meals a day (thanks to> > Nifedipine) and

weight loss has slowed down considerably. I would > love> > to lose

another 10 but am grateful for what I have - as many have > said> >

before me- the only good thing about A.> > > > Before nifedipine (and

sometimes now between pills), I sometimes > eat> > very unhealthy

food, like chocolate, ice cream, fries - what have > you> > - because

I think " what the hey, I'll just regurgitate it anyway " > but> > isn't

this type of behavior rather bulemic? > > > > Is it bad to fill your E

knowing you are only going to give it > back?> > It can't be healthy

for the tone of the muscle or for the psyche.> > > > Any words of

wisdom from those of you who may be dealing with this> > sort of

thing, or have dealt with it in the past?> > > > Thanks> > Donna> >>

>

>

> Finding fabulous fares is fun.Let FareChase search your

favorite travel sites to find flight and hotel bargains.

>

>

>

> Answers - Get better answers from someone who knows. Try it now.

>

[Guest guest]

I guess it just goes to show that we can't be all in denial about what

we're eating.

I thank my lucky stars that I'm down to 145 (highest weight 182). Even

so, I feel I should have lost more weight, with the way things have

been, not keeping food down and re-gurg, etc.

Someone, I cant remember who? brought up having a slow metabolism from

not having enough calories! I believe it.

Have you ever tried posting what you eat on fitday.com, just to see

what your calories add up to?

I can see that the problem with that would be that if we think we are

regurgitating some of it, it would be difficult to get a clear picture.

Corri - what is your status as far as treatment? Have you had surgery

or dilation?

I have come to the conclusion that after my surgery I really need to

watch my weight very carefully. I'll let you know how it's going with

this book I'm reading as well. I have high hopes for it, as it's about

our relationship with food, and things like negative self talk,

denial, etc.

Thanks for jumping into this thread, it's so good to know I'm not

alone in this.

Take care,

Donna

> > > >

> > > > I'm writing this because I'm wondering if anyone else has this

> > > issue.

> > > >

> > > > I haven't quite got my head wrapped around it yet, but

> basically

> > > I'm

> > > > scared of gaining weight after my upcoming myotomy.

> > > >

> > > > I was dieting and lost 20 pounds, then A got severe and I lost

> 20

> > > > more. Now I'm eating at least two real meals a day (thanks to

> > > > Nifedipine) and weight loss has slowed down considerably. I

> would

> > > love

> > > > to lose another 10 but am grateful for what I have - as many

> have

> > > said

> > > > before me- the only good thing about A.

> > > >

> > > > Before nifedipine (and sometimes now between pills), I

> sometimes

> > > eat

> > > > very unhealthy food, like chocolate, ice cream, fries - what

> have

> > > you

> > > > - because I think " what the hey, I'll just regurgitate it

> anyway "

> > > but

> > > > isn't this type of behavior rather bulemic?

> > > >

> > > > Is it bad to fill your E knowing you are only going to give it

> > > back?

> > > > It can't be healthy for the tone of the muscle or for the

> psyche.

> > > >

> > > > Any words of wisdom from those of you who may be dealing with

> this

> > > > sort of thing, or have dealt with it in the past?

> > > >

> > > > Thanks

> > > > Donna

> > > >

> > >

> >

> >

> >

> >

> >

> >

> > Finding fabulous fares is fun.

> > Let FareChase search your favorite travel sites to find

> flight and hotel bargains.

> >

> >

> >

> > ___________________________________________________________

> > is the world's favourite email. Don't settle for less,

> sign up for

> > your free account today

> http://uk.rd./evt=44106/*http://uk.docs./mail/winte

> r07.html

> >

>

[Guest guest]

And a big huge CONGRATULATIONS on quitting smoking! Good on ya!

> > > >

> > > > I'm writing this because I'm wondering if anyone else has this

> > > issue.

> > > >

> > > > I haven't quite got my head wrapped around it yet, but

> basically

> > > I'm

> > > > scared of gaining weight after my upcoming myotomy.

> > > >

> > > > I was dieting and lost 20 pounds, then A got severe and I lost

> 20

> > > > more. Now I'm eating at least two real meals a day (thanks to

> > > > Nifedipine) and weight loss has slowed down considerably. I

> would

> > > love

> > > > to lose another 10 but am grateful for what I have - as many

> have

> > > said

> > > > before me- the only good thing about A.

> > > >

> > > > Before nifedipine (and sometimes now between pills), I

> sometimes

> > > eat

> > > > very unhealthy food, like chocolate, ice cream, fries - what

> have

> > > you

> > > > - because I think " what the hey, I'll just regurgitate it

> anyway "

> > > but

> > > > isn't this type of behavior rather bulemic?

> > > >

> > > > Is it bad to fill your E knowing you are only going to give it

> > > back?

> > > > It can't be healthy for the tone of the muscle or for the

> psyche.

> > > >

> > > > Any words of wisdom from those of you who may be dealing with

> this

> > > > sort of thing, or have dealt with it in the past?

> > > >

> > > > Thanks

> > > > Donna

> > > >

> > >

> >

> >

> >

> >

> >

> >

> > Finding fabulous fares is fun.

> > Let FareChase search your favorite travel sites to find

> flight and hotel bargains.

> >

> >

> >

> > ___________________________________________________________

> > is the world's favourite email. Don't settle for less,

> sign up for

> > your free account today

> http://uk.rd./evt=44106/*http://uk.docs./mail/winte

> r07.html

> >

>

[Guest guest]

I have had 2 dilatations, and I am scheduled for a myotomy this

month at the Cleveland clinic. I know Dr, Rice mentioned something

about my weight and it kind of through me for a loop. I knoew I am

not the only overweight person with this disease. At least I think

I'm not.

Corri in MI

> > > > >

> > > > > I'm writing this because I'm wondering if anyone else has

this

> > > > issue.

> > > > >

> > > > > I haven't quite got my head wrapped around it yet, but

> > basically

> > > > I'm

> > > > > scared of gaining weight after my upcoming myotomy.

> > > > >

> > > > > I was dieting and lost 20 pounds, then A got severe and I

lost

> > 20

> > > > > more. Now I'm eating at least two real meals a day (thanks

to

> > > > > Nifedipine) and weight loss has slowed down considerably.

I

> > would

> > > > love

> > > > > to lose another 10 but am grateful for what I have - as

many

> > have

> > > > said

> > > > > before me- the only good thing about A.

> > > > >

> > > > > Before nifedipine (and sometimes now between pills), I

> > sometimes

> > > > eat

> > > > > very unhealthy food, like chocolate, ice cream, fries -

what

> > have

> > > > you

> > > > > - because I think " what the hey, I'll just regurgitate it

> > anyway "

> > > > but

> > > > > isn't this type of behavior rather bulemic?

> > > > >

> > > > > Is it bad to fill your E knowing you are only going to

give it

> > > > back?

> > > > > It can't be healthy for the tone of the muscle or for the

> > psyche.

> > > > >

> > > > > Any words of wisdom from those of you who may be dealing

with

> > this

> > > > > sort of thing, or have dealt with it in the past?

> > > > >

> > > > > Thanks

> > > > > Donna

> > > > >

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > Finding fabulous fares is fun.

> > > Let FareChase search your favorite travel sites to find

> > flight and hotel bargains.

> > >

> > >

> > >

> > >

___________________________________________________________

> > > is the world's favourite email. Don't settle for

less,

> > sign up for

> > > your free account today

> >

http://uk.rd./evt=44106/*http://uk.docs./mail/winte

> > r07.html

> > >

> >

>

[Guest guest]

Thank you Donna

> > > > >

> > > > > I'm writing this because I'm wondering if anyone else has

this

> > > > issue.

> > > > >

> > > > > I haven't quite got my head wrapped around it yet, but

> > basically

> > > > I'm

> > > > > scared of gaining weight after my upcoming myotomy.

> > > > >

> > > > > I was dieting and lost 20 pounds, then A got severe and I

lost

> > 20

> > > > > more. Now I'm eating at least two real meals a day (thanks

to

> > > > > Nifedipine) and weight loss has slowed down considerably.

I

> > would

> > > > love

> > > > > to lose another 10 but am grateful for what I have - as

many

> > have

> > > > said

> > > > > before me- the only good thing about A.

> > > > >

> > > > > Before nifedipine (and sometimes now between pills), I

> > sometimes

> > > > eat

> > > > > very unhealthy food, like chocolate, ice cream, fries -

what

> > have

> > > > you

> > > > > - because I think " what the hey, I'll just regurgitate it

> > anyway "

> > > > but

> > > > > isn't this type of behavior rather bulemic?

> > > > >

> > > > > Is it bad to fill your E knowing you are only going to

give it

> > > > back?

> > > > > It can't be healthy for the tone of the muscle or for the

> > psyche.

> > > > >

> > > > > Any words of wisdom from those of you who may be dealing

with

> > this

> > > > > sort of thing, or have dealt with it in the past?

> > > > >

> > > > > Thanks

> > > > > Donna

> > > > >

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > Finding fabulous fares is fun.

> > > Let FareChase search your favorite travel sites to find

> > flight and hotel bargains.

> > >

> > >

> > >

> > >

___________________________________________________________

> > > is the world's favourite email. Don't settle for

less,

> > sign up for

> > > your free account today

> >

http://uk.rd./evt=44106/*http://uk.docs./mail/winte

> > r07.html

> > >

> >

>

[Guest guest]

I have never had a problem with my thyroid. I think I just have to be more active. I have a tread mill and think I will try starting with 15 min a day since my myotomy was only 2 weeks ago. I have lost what I gain in hospital. I just need to jump start my metabolism I think. Thank for your thought, that was mine too. pegmcintyre1@... wrote: , did your

thyroid panels results come back as within the normal range? Best, Peg See what's free at AOL.com.

Choose the right car based on your needs. Check out Autos new Car Finder tool.

[Guest guest]

Thanks Notan, I am trying to do that by using a much smaller plate and I'm not snacking. You're right it is a good time to reset my mind re-food. What I would normally eat before, I can't even think of eating now. I'm still cautious about certain foods. It's only been 2 weeks. I eat 1/2 a sandwich without the crusts, lots of soup and my favourite is butternut squash and fish. Before things started getting worse again we had switched to all whole grains, veggies, and more fish and chicken and less red meat. We have no junk food in the house. Our problems were we would not have time to cook and then would just pick something up. Not anymore. Maybe once a week, and the rest home made. I will have to take a before and after and see how things go. Once again, the support on this site is amazing. notan ostrich

<notan_ostrich@...> wrote: McRae wrote:> ...I'm finding I don't really want to eat that much and if I do my > stomach hurts. That's probably from the partial fundoplication. ...The fundoplication can do that. You can use this to your advantage. In time your stomach is going to stretch and you will be able to eat more without the discomfort. Now, before that happens, you may be able to reset your mental impression of how much should be on a plate or in your stomach. We get used to a lot

being on the plate and then when there is less on it we feel we didn't get enough. The discomfort you have now can be used to tell your mind that less is enough. The trick is to learn that so later when there is no discomfort you can believe you have enough when you have less that you used to. Easier said than done, but it can work.notan

Be a better Globetrotter. Get better travel answers from someone who knows. Answers - Check it out.

[Guest guest]

Hi Sonya, I know what you mean. It is almost to the point where you think I might be better losing weight than doing anything about it. I have always had a weight problem though. I'm sure it's because I don't drink or smoke so food is my vice. I have been really good since I've come home so I hope I can stick to it. I wish you luck too. It's one of the hardest things you'll do as you can't go without eating. All the best and good luck. Sonya Lawley <bbm_1999@...> wrote: I have a weight problem too. My surgeon says its beacasue my body always thinks its starving, casue the food takes so long to get where it needs too and sometimes infrequently, that it holds onto the calories. I had my surgery, and well, the weight dropped off for a bit, but now its back up again. I am currently working with my doctor to find a solution. I still don't eat much about 1650 cals a day and i have a very active job. its driving me nuts. Re: Re: Achalasia, Weight issues Hi donna, Just saw this post re weight. I will give me history with weight. I have weight issues, but with gaining it and not losing. Before diagnosis I weighed 235 lbs. Once I got sick, (20 years ago) I went to 159 lbs in 2 months. Because I was heavy to begin with nobody paid attention, then finally someone did and I got my diagnosis. I couldn't even swallow water. Then

I had my 1st dilitation and I was so glas I could swallow that I put all the weight back on. I have been heavy every since. Only losing 11 to 20 lbs before getting dilitated again. Now with the myotomy, I was 255 when I entered hospital, 258 when I came home, and am now 253. Even after only having liquids for a week in hospital I gained, go figure. I think the weight will come off for me this time because I'm finding I don't really want to eat that much and if I do my stomach hurts. That's probably from the partial fundoplication. I know it's only been two weeks, but my brain really is not friendly with food right now. I eat because I have to, not because I want to.I use a small bread and butter plate as my dinner plae. I'm sticking with fish, chicken and soft veggies and foods. I think I'm afraid to try anything other than that. Tha'ts okay because I will lose because I want to not because my body is rejecting it.I find that most foods

are going down 95% with a little patience. I put my fork down between each bite and that helps. One snack food I found, (but not healthy) is Cheese Puffs or Cheesies or Cheetos. Whatever anyone might call them. They are crunchy and melt in your mouth. No problem swallowing. I have to cut back as I eat too many of those lol. I find it very strange to have A and have a weight problem. Is anyone else out there like me? I think it is because food would go down, but take forever to go through to stomach and I would always feel hungry. I will be so glad when I can al least get on my treadmill so I can add some exercise to my regime. Just thought I would ad to your post Donna. I am feeling much better, but the side I have in incicsion on is still painful. Must be the muscle as they went in on my left side in the back, just below the shoulder blade. The did this because

of the weight I carry on my stomach. Less risk of error. Well everyone, have a great day and hope you have much success in swallowing. Donna King <freyascloak> wrote: Hi - I've been away for a few days and posted this before Iwent away...anyway I just got back and wanted to say thank you forreplying to my post.I'm glad to hear that I'm not the only one out there is who is havingfood/weight issues. After having your myotomy, are you swallowing at 100%, 80%, or????How long have you had achalasia, how much weight did you lose intotal, and do you think you had a "normal" relationship with foodbeforehand?I don't know why I'm so curious about other

people's experience.. .justseeking some understanding, I suppose. I know the phrase "your mileage may vary" always comes to mine whenthinking of A - everyone is so different - anyway it helps just to beable to think out loud, so to speak, and talk about it.Take care,Donna> >> > I'm writing this because I'm wondering if anyone else has this > issue.> > > > I haven't quite got my head wrapped around it yet, but basically > I'm> > scared of gaining weight after my

upcoming myotomy. > > > > I was dieting and lost 20 pounds, then A got severe and I lost 20> > more. Now I'm eating at least two real meals a day (thanks to> > Nifedipine) and weight loss has slowed down considerably. I would > love> > to lose another 10 but am grateful for what I have - as many have > said> > before me- the only good thing about A.> > > > Before nifedipine (and sometimes now between pills), I sometimes > eat> > very unhealthy food, like chocolate, ice cream, fries - what have > you> > - because I think "what the hey, I'll just regurgitate it anyway" > but> > isn't this type of behavior rather bulemic? > > > > Is it bad to fill your E knowing you are only going to give it > back?> > It can't be healthy for the tone of the muscle or for the psyche.> > > > Any

words of wisdom from those of you who may be dealing with this> > sort of thing, or have dealt with it in the past?> > > > Thanks> > Donna> >> Finding fabulous fares is fun.Let FareChase search your favorite travel sites to find flight and hotel bargains. Answers - Get better answers from someone who knows. Try it now.

Looking for a deal? Find great prices on flights and hotels with FareChase.

[Guest guest]

Hey , Congratulations on your 34th birtdhday!!! This is really a happy birthday for you, isn't it? Having the whole surgery behind you! Love, Isabellatracylb@... wrote: Corri,The body is an amazing thing, and as we that suffer from achalasia know, we can adapt and make due with whatever we can manage. I think one reason that some people tend to maintain or even gain weight with achalasia is because they find that a lot of

the higher calorie, not so good for us foods are the ones that go down the best, therefore that's what we end up eating. Also, it depends on how severe your achalasia is. I was diagnosed with Achalasia when I was 16, and I turned 34 today. Before I was diagnosed with A, I was accused of having an eating disorder as I was throwing up all my food and my weight dropped down to 90 pounds - of course, what else could possibly be wrong with a 16 year old girl that loses that much weight?!?!?! (Idiots)Once they figured it out, I had a couple dilitations and they sent me on my way with no follow up plan. Over the years I kept my weight relatively stable. I have had two kids, gained normal weight during pregnancy and started having issues again after the birth of my youngest 2 1/2 years ago. Needless to say, tomorrow is 10 weeks since my esophagectomy by Dr. Rice - I went into it at a normal weight and have lost a total of

about 8-10 pounds since surgery and am at about 120 pounds. Eating is finally going relatively well for me, so I am hoping to put a few pounds back on and get back to my normal 130ish range. On that note, everyone's body reacts differently to this disease and can handle the flow of calories differently. I'm glad you are going to Dr. Rice - he is simply the best there is. What do you think of him so far? in NY Re: Achalasia, Weight issuesachalasia > Hi All,> > I am so glad we are actually talking about this!> > I have actually put on weight since I was diagnosed with A back in > 2004. I also have the attitude, who cares

what I eat, I will just > regurgitate it. I just don't understand how I am not losing > weight!!!! I am over 200LBS, and I just quit smoking because I > have > my myotomy schedlued with Dr. Rice on June 27th. Dr. Rice was > like > well you are still eating enough to gain weight. It boggles my > mind..............> > Corri in MI> > > > > > > > > > > > > > > > > > >> > > > I'm writing this because I'm wondering if anyone else has > this > > > issue.> > > > > > > > I haven't quite got my head wrapped around it yet, but > basically > > > I'm> > > > scared of gaining weight after my upcoming myotomy. > > > >

> > > > I was dieting and lost 20 pounds, then A got severe and I > lost > 20> > > > more. Now I'm eating at least two real meals a day (thanks to> > > > Nifedipine) and weight loss has slowed down considerably. I > would > > > love> > > > to lose another 10 but am grateful for what I have - as many > have > > > said> > > > before me- the only good thing about A.> > > > > > > > Before nifedipine (and sometimes now between pills), I > sometimes > > > eat> > > > very unhealthy food, like chocolate, ice cream, fries - what > have > > > you> > > > - because I think "what the hey, I'll just regurgitate it > anyway" > > > but> > > > isn't this type of behavior rather bulemic? > > > > >

> > > Is it bad to fill your E knowing you are only going to give > it > > > back?> > > > It can't be healthy for the tone of the muscle or for the > psyche.> > > > > > > > Any words of wisdom from those of you who may be dealing > with > this> > > > sort of thing, or have dealt with it in the past?> > > > > > > > Thanks> > > > Donna> > > >> > >> > > > > > > > > > > > > > Finding fabulous fares is fun.> > Let FareChase search your favorite travel sites to find > flight and hotel bargains.> > > > > > > > > __________________________________________________________ > > is the world's favourite

email. Don't settle for > less, > sign up for> > your free account today > http://uk.rd./evt=44106/*http://uk.docs./mail/winte> r07.html> >> > >

No need to miss a message. Get email on-the-go with for Mobile. Get started.

[Guest guest]

First, happy belated birthday wishes for . May life get easier with each passing day!

Slightly OT, but here is a bit of newly released research on the topic (minus Achalasia):but still interesting:

http://www.virginia.edu/uvatoday/newsRelease.php?id=2069

Best wishes to everyone,

PegSee what's free at AOL.com.

[Guest guest]

Isabella,

Thanks for the birthday wishes. It was a good day yesterday, and I'm

trying to gear up for returning to work next week. Not sure how that

will go.

in NY

Re: Achalasia, Weight issues

> achalasia

>

> > Hi All,

> >

> > I am so glad we are actually talking about this!

> >

> > I have actually put on weight since I was diagnosed with A back

> in

> > 2004. I also have the attitude, who cares what I eat, I will

> just

> > regurgitate it. I just don't understand how I am not losing

> > weight!!!! I am over 200LBS, and I just quit smoking because I

> > have

> > my myotomy schedlued with Dr. Rice on June 27th. Dr. Rice was

> > like

> > well you are still eating enough to gain weight. It boggles my

> > mind..............

> >

> > Corri in MI

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > > > >

> > > > > I'm writing this because I'm wondering if anyone else has

> > this

> > > > issue.

> > > > >

> > > > > I haven't quite got my head wrapped around it yet, but

> > basically

> > > > I'm

> > > > > scared of gaining weight after my upcoming myotomy.

> > > > >

> > > > > I was dieting and lost 20 pounds, then A got severe and I

> > lost

> > 20

> > > > > more. Now I'm eating at least two real meals a day (thanks to

> > > > > Nifedipine) and weight loss has slowed down considerably.

> I

> > would

> > > > love

> > > > > to lose another 10 but am grateful for what I have - as

> many

> > have

> > > > said

> > > > > before me- the only good thing about A.

> > > > >

> > > > > Before nifedipine (and sometimes now between pills), I

> > sometimes

> > > > eat

> > > > > very unhealthy food, like chocolate, ice cream, fries -

> what

> > have

> > > > you

> > > > > - because I think " what the hey, I'll just regurgitate it

> > anyway "

> > > > but

> > > > > isn't this type of behavior rather bulemic?

> > > > >

> > > > > Is it bad to fill your E knowing you are only going to

> give

> > it

> > > > back?

> > > > > It can't be healthy for the tone of the muscle or for the

> > psyche.

> > > > >

> > > > > Any words of wisdom from those of you who may be dealing

> > with

> > this

> > > > > sort of thing, or have dealt with it in the past?

> > > > >

> > > > > Thanks

> > > > > Donna

> > > > >

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > Finding fabulous fares is fun.

> > > Let FareChase search your favorite travel sites to find

> > flight and hotel bargains.

> > >

> > >

> > >

> > >

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> > >

> >

> >

> >

>

>

>

>

>

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[Guest guest]

Peg,

Thanks for the birthday wishes and all your support.

in NY

Re: Re: Achalasia, Weight issues

achalasia

> First, happy belated birthday wishes for . May life get

> easier with

> each passing day!

>

> Slightly OT, but here is a bit of newly released research on the

> topic

> (minus Achalasia):but still interesting:

>

> _http://www.virginia.edu/uvatoday/newsRelease.php?id=2069_

> (http://www.virginia.edu/uvatoday/newsRelease.php?id=2069)

>

> Best wishes to everyone,

>

> Peg

>

>

>

> ************************************** See what's free at

> http://www.aol.com.

[Guest guest]

In a message dated 6/7/2007 3:57:01 PM Central Daylight Time, LunaIam2@... writes:

We had this discussion on the board some years ago. I think it was

determine then too that there are more over weight people with

Achalasia than there are normal or under weight.

This may be one very good point to ensure that it is added as a statement to the CarePlace description! It is also pervasively written in all the medical research reports that extreme weight loss and anorexia are key symptoms/results of the illness. It would be good to try to address this somehow. Thoughts, anyone? This illness is lonely enough and hard enough to discuss. We know that some people aren't diagnosed because they can't take hearing 'it's in your head'. I wonder how many afflicted people's symptoms worsen because they think they wouldn't be dx'd as having Achalasia because they don't 'fit' the anorexic, underweight symptom, and don't seek medical help because of it.

I also just recently found (there's only one!) one article that also makes a direct statment that Achalasia is not a 'rare' disorder. Achalasia instead is referred to as an 'unusual' disorder. Hmmmm????

Peg