Thank you all

[Guest guest]

I have received lot's of suggestions of possible things that may

help me.

So this is all I have tried.

3x Botox. The 1st was fantastic. The 2nd was so so and the 3rd a

waste of time. It just caused me pain.

I have and still are on Nefidipine.

I also take Motilimium. That dosn't look right!

I drink when I eat. I eat soft foods so thank goodness Dylan my 11

year old son loves pasta and noodles.

I have had 36 dilitations. 37 as of next week. They are becoming

increasing difficult for me as ssssoooooo much pain afterwards that

I have to stay in hospital for 3 days after one for massive doses of

Morphine and Medalazam.

(I can't spell tonight)

I have also had 4 second opions? and they all say the same thing " Go

away I don't want to touch you. You are a legal minfeild and

disaster area! " So are stuck with my current Doctor's. But the one

that does my dilitations only dose these and refers me on to a major

specialist for other things. I do not get on with this other Doc as

he has a bad God Complex. But Rob, the dilitation Doc is fantastic

and will drop everything to fit me in whenever I need it. And is not

charging me anymore as he is a Private Doctor.

And I have had 2 PEG tubes (feeding tubes)inserted.

I think that's it.

Cheers.

Australia