Re: Coughing and throwing up at night

[Guest guest]

Gosh, Corri, I'm really glad you are going to see Dr. Rice. I've heard very good things about him. I was coughing up and throwing up and regurgitating a lot before I had my Heller's. I was bringing up foamy stuff, too, and spitting that out. I had such an attractive array of little spit bowls and semi-used tissues and a brown paper bag at the side of the bed for used up spitty tissues and extra barfing events....so attractive! NOT. The spitting up was a serious problem because, at times, I aspirated junk and that, I can tell you, is really serious. Serious. I've had pneumonia six times and I am NOT EAGER AT ALL to have aspiration lung infections, etc., from junk coming up, and then, my breathing it in....involuntarily. I'd much rather eat ice cream cones involuntarily. Then, walk the dogs. I'm so glad you will be seeing Dr. Rice. Good luck and all best wishes, Deborah

[Guest guest]

Tonia:

Hey - haven't heard from you in a bit. I would love to meet with you in Daytona when you arrive. I am having surgery in June (5th) and will be back to work in July, but the Beach isn't too far....keep in touch and we will plan a day at the beach.

Tammy - FL

Re: Coughing and throwing up at night

Best news I have heard all day! Glad your going to seE Dr Rice!!Let me know if you have any questions at all,I am here for you.Tonia> >> > > > I wrote this post yesterday around 5PM, thought I

clicked > on "Send Now" but > > apparently did not, just discovering that it was not sent. I > hope that it > > does not appear too much out of context considering posts that > followed. I was > > responding to Corri's questions directed to me. Debbi has since > made > > comments, all of which I agree with.> > > > > > Hi Corri,> > > > In response to your questions to me, as you know most of the > people in > > this group, including myself, have been where you are now. There > were many > > times that symptoms would lessen, we would feel pretty good, then > it would come > > back with a vengeance. Those momentary breaks are only > a "tease." Often > > the stretching esophagus will "accommodate" the food going thru > by enlarging > > even more and we will

mistakenly think we are better. Your X-> rays will dispute > > how you think you feel, as will your doctors.> > > > You ask what might happen if you don't have the surgery. 10 > years ago I > > would not have a clue since Achalasians rarely, if ever, met > another person > > with this disease. From this group I have learned that some > people can go > > many years and do alright, while others suffer more and sooner. > There is no > > way of telling except to see over time how it all plays out. In > some cases the > > problem can be "passive," other times more "aggressive. " In > thinking about > > your night time "adventures, " your situation appears more > serious. Worse > > case scenario would be our beloved , who was a teenager > living with her > > parents when she had her

dilatation and nothing more. Now, 17 > years later she's > > recovering from an esophagectomy done by Dr. Rice. You DON'T > want that to > > happen to you. BTW, Dr. Rice is the "goto" surgeon, as you have > probably been > > reading, at TCC.> > > > Getting back to your questions (copied below), yes you could > be doing > > more harm to your esophagus by doing nothing. A barium swallow > and endoscopy > > might get you some answers, especially if it can be compared > against earlier > > tests.> > > > This is one disease where it is in your best interests to get > yourself > > evaluated by more than one doctor. Don't hesitate to go out > there and get > > second opinions. Sometimes a doctor might sound really > knowledgeable about > > this disease, until you speak to

someone who really knows > achalasia and you get > > a wakeup call.> > > > Debbi gave you some good advice. I would be very curious to > try to find > > out precisely why your dilatations failed before having another > one. Maybe > > you need a more skilled doctor to perform it should there be a > next time. > > Some have as many as half a dozen before it either helps or > surgery must be > > done. Seek out more opinions.> > > > In a message dated 4/5/2007 3:55:34 P.M. Eastern Daylight Time, > > corriellyn@ writes:> > > > > > ,> > > > Thanks so much for the detailed email.> > > > The support here is unreal, and the wealth of knowledge floors me.> > > > You are right, I am at a crossroads. My Doctor will not perform > > another

dilatation,or botox, so it is surgery or let things get > > progressively worse. The strange thing is the minute I think I > > can't take anymore, I will go without an attack for a few weeks. > I > > did meet with the Head of Thoracic Surgery at the University of > > Michigan hospital about a year ago. But since I am so close to > > Cleveland I think I would feel more comfortable going to the > > Cleveland Clinic. > > > > Do you happen to know what can happen if you do not get the > > surgery? Eventually will your E erode? Am I doing more harm than > I > > realize? I have not been to my doctor in over a year, since he > > wasn't willing to do anything more for me.> > > > Thanks again for your words of wisdom.> > > > Corri in MI> > > > --- In _achalasia@gro uachala_ >

(mailto:achalasia@grou ps.com) , > > cynmark24@, cy> > >> > > > > > Hi Corri,> > > > > > Sorry to read that you needed to return here for support. > > The good news > > > is, as you know, there is plenty of support here to help you > > through this > > > difficult time. , from Ohio, just gave you an excellent > > answer. My > > > answer, though slanted, tries to be more analytical. > > > > > > Among the things you wrote that jump out at me is> > > > > > "I have chosen not to have the myotomy due to the side effects > of > > the > > > surgery,"> > > > > > Corri, you are now sitting at the "crossroads" where you need > to >

> make a > > > decision that may affect your well being for the rest of your > > life. Its a matter > > > of considering all of your alternatives, writing down all of > the > > positives > > > and negatives of each one, and then making an informed > decision. > > Let's see > > > what the alternatives are.> > > > > > 1) Do nothing at all;> > > 2) Have another dilatation;> > > 3) See what happens with a botox injection.> > > 4) Have the Heller Myotomy.> > > 5) And not to insult the homeopathic achalasians out there, > > acupuncture, > > > chiropractic, herbs, meditation, and whatever else.> > > > > > Advantages of each of the above.> > > > > > 1) Doing nothing - probably no advantages, but you won't be > > concerning

> > > yourself with the side effects of botox, or surgery,or another > > dilatation that > > > does little to help, etc.> > > > > > 2) Another dilatation - Maybe the next dilatation will work > > and you won't > > > have to put yourself thru a surgery, or botox.> > > > > > 3) Botox injections are relatively simple to do and usually > > have good > > > results.> > > > > > 4) HM - when done by the best surgeons returns you to as close > > as you are > > > going to get to eating normally again.> > > > > > 5) "Natural Cure" - if you can find it, nothing might be > > better.> > > > > > Disadvantages of each of the above.> > > > > > 1) Doing nothing - you have obviously reached the point where >

> you are > > > really suffering and its going to get worse. Your esophagus > > might get so bad > > > that nothing short of its removal might help. A Heller Myotomy > > is a piece of > > > cake compared to an esophagectomy. The longer you wait the more > > your > > > esophagus will become mega and the more problems you will have. > > I would forget about > > > choice #1.> > > > > > 2) Another dilatation. You have said that your results have > > not been > > > good. Chances are another one won't be any better. You risk a > > perforation, > > > needlessly, and you might develop scar tissue that could make > an > > operation more > > > complex. You might be buying time for no reason while your > > esophagus worsens.> > > > >

> 3) Botox - proven to be a very temporary fix. Probably best > > to be used > > > in older individuals who cannot tolerate the surgery, or less > > likely that the > > > LES will heal and give problems. You don't want to go every 6 > > months. It > > > might complicate future surgeries.> > > > > > 4) Heller Myotomy - Its major surgery with all the risks > > inherent with an > > > operation. You can get out in one day, or one week, plus there > > is recovery > > > time and the risk of perforation. There is also the risk of > > increased acid > > > reflux, which you would take medication for. Are the results > > worth the risks? > > > and many others would answer would an enthusiastic "YES." > > Can the > > > risks be reduced by going to a surgeon who

has performed this > > many times? Yes. > > > You must decide, based on how you feel now, how much more > > suffering you are > > > going to endure before acting upon it. You are at the point now > > where you > > > must be "pro-active. must be "pro-active. <WBR>" You> > > > > > 5) Natural cures - wonderful if it works. If you can't find > > it, and > > > there are many out there trying, you risk further damage that > > might lead to an > > > esophagectomy. Its one thing if you were at an early stage. You > > are not.> > > > > > Corri, what I wrote above is far from complete. I think you > just > > need a bit > > > of a push in the right direction at this moment. I hope this > > helped.> > > > > > > >

> > > > > > > > > > > > > > > > In a message dated 4/5/2007 3:03:00 P.M. Eastern Daylight Time, > > > corriellyn@ corri> > > > > > > > > > > > > > > Hi All, > > > > > > It has been 2 years since I have posted antyhing on this > message > > > board. I was diagnosed 2.5 years ago and have had 2 > dilatations, > > with > > > poor results. Lately I have been waking up 3-4 times a night > > coughing > > > horribly, and throwing up. I try not to eat anything at least 3 > > hours > > > before I lay down but nothing seems to help. I sleep atop 5 > > pillows, > > > and it still doesn't help. I have chosen not to have the > myotomy > > due > > > to the side

effects of the surgery, but everyday that passes I > am > > > rethinking my decision.> > > > > > Can anyone give me some advice on my nighttime attacks?> > > > > > Thanks All,> > > > > > Corri in MI> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ************ ******** ******** ************ <WBR>**** *****<WBR>> > _http://www.aol. http_ (http://www.aol. com./) > > >> > > > > > > > _Messages in this topic _ > > > (http://groups. / group/achalasia/ message/41616; _ylc=X3oDMTM2Z> m9zcWNuBF9TAzk3MzU5 NzE0BGdycElkAzEw NzM0NDUEZ3Jwc3BJ ZAMxNzA1M> > > DYxNTg5BG1zZ0lkAzQx NjIzBHNlYwNmdHIE c2xrA3Z0cGMEc3Rp bWUDMTE3NTgwMjg2 OA> R0cGNJZAM> > 0MTYxNg--) (0) _Reply (via web post) _ > > > (http://groups. / group/achalasia/ post;_ylc= X3oDMTJxZTQzMm5n BF> 9TAzk3MzU5NzE0BGdyc ElkAzEwNzM0NDUEZ 3Jwc3BJZAMxNz> > > A1MDYxNTg5BG1zZ0lkA zQxNjIzBHNlYwNmd HIEc2xrA3JwbHkEc 3RpbWUDMTE3NTgwM jg> 2OA--?act> > =reply & messageNum= 41623) | _Start a new topic _ > > > (http://groups. / group/achalasia/

post;_ylc= X3oDMTJlOWs2aWJm BF> 9TAzk3MzU5NzE0BGdyc ElkAzEwNzM0NDUEZ 3Jw> > c3BJZAMxNzA1MDYxNTg 5BHNlYwNmdHIEc2x rA250cGMEc3RpbWU DMTE3NTgwMjg2OA-> -) > > _Messages_ > > > (http://groups. / group/achalasia/ messages; _ylc=X3oDMTJlYzd jaz> lkBF9TAzk3MzU5NzE0B GdycElkAzEwNzM0N DUEZ3Jwc3BJZAMxN zA1MDYxNTg5BHNlY wN> mdHIEc2> > xrA21zZ3MEc3RpbWUDM TE3NTgwMjg2OA- -) | _Files_ > > > (http://groups. / group/achalasia/ files;_ylc= X3oDMTJmNGFrcjhl B> F9TAzk3MzU5NzE0BGdy cElkAzEwNzM0NDUE Z3Jw> > > c3BJZAMxNzA1MDYxNTg 5BHNlYwNmdHIEc2x rA2ZpbGVzBHN0aW1 lAzExNzU4MDI4Njg -> ) | > > _Photos_ >

> > (http://groups. / group/achalasia/ photos;_ylc= X3oDMTJlMmNkcTJm> BF9TAzk3MzU5NzE0BGd ycElkAzEwNzM0NDU EZ3Jwc3BJZAMxNzA 1MDYxNTg5BHNlYwN md> HIEc2xrA3Bob3> > QEc3RpbWUDMTE3NTgwM jg2OA--) | _Links_ > > > (http://groups. / group/achalasia/ links;_ylc= X3oDMTJmMDNtMXR0 B> F9TAzk3MzU5NzE0BGdy cElkAzEwNzM0NDUE Z3Jwc3BJZAMx> > NzA1MDYxNTg5BHNlYwN mdHIEc2xrA2xpbmt zBHN0aW1lAzExNzU 4MDI4Njg- ) | > _Database_ > > > (http://groups. / group/achalasia/ database; _ylc=X3oDMTJjYW1 wNW> 9vBF9TAzk3> >

> MzU5NzE0BGdycElkAzE wNzM0NDUEZ3Jwc3B JZAMxNzA1MDYxNTg 5BHNlYwNmdHIEc2x rA> 2RiBHN0aW> > 1lAzExNzU4MDI4Njg- ) | _Polls_ > > > (http://groups. / group/achalasia/ polls;_ylc= X3oDMTJmNWZnaTBx B> F9TAzk3MzU5NzE0BGdy cElkAzEwNzM0NDUE Z3Jwc3BJZAMxNzA1 MDYx> > NTg5BHNlYwNmdHIEc2x rA3BvbGxzBHN0aW1 lAzExNzU4MDI4Njg -) | > _Calendar_ > > > (http://groups. / group/achalasia/ calendar; _ylc=X3oDMTJkNXF 1Z2> dpBF9TAzk3MzU5NzE0> > > BGdycElkAzEwNzM0NDU EZ3Jwc3BJZAMxNzA 1MDYxNTg5BHNlYwN mdHIEc2xrA2NhbAR zd> GltZQMxMT> > c1ODAyODY4) > > > > > > > > > > > >

> > > > ************ ********* ********* ******** See what's free at > http://www.aol. com.> >>

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

[Guest guest]

JoAnn,

I see you are from NM, as am I. I am curious if you considered having

your procedure done in Albuquerque. I had mine done at Pres and have

had no problems. By the way you are the 1st person from NM that I know

of having Achalasia (besides myself)! I thought I was the only one ;-)

Thanks

Rich in Albuquerque (actually Placitas)

[Guest guest]

Joanne:

Hi. I am from FL and saw that you had a myotomy and had no problems. Do you mind telling me all about recovery from the littlest detail. I am facing surgery 6/5 and would like to know what is ahead. Also, could you tell me your symptoms prior and now. Thanks for any info.

Tammy - FL

Re: Coughing and throwing up at night

JoAnn,I see you are from NM, as am I. I am curious if you considered having your procedure done in Albuquerque. I had mine done at Pres and have had no problems. By the way you are the 1st person from NM that I know of having Achalasia (besides myself)! I thought I was the only one ;-)ThanksRich in Albuquerque (actually Placitas)

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

[Guest guest]

--Hi Tammy,

I was diagnosed in Dec. 05, after two and a half years of

misdiagnosis. It first started out like acid reflux. My family dr.

put me on zantac which helped some but I had to take it all the

time. I'm rather anti medication so quit taking it and went to the

health food store and got some digestive enzymes. These seemed to

work better. During this time I started having problems swallowing

so I went back to my family dr. and he sent me to the gastro dr. He

did a endoscopy and said that my esophagus had a restriction from the

acid reflux and did a dilation and put me on Nexium. A month later I

went back with the same complaint so he did another endscopy and

dilation but said that my e was in good shape and really didn't need

much stretching. After that the symptoms continued but I quit going

to the dr. Symptoms gradually got worse, spasms started which I

thought was acid reflux but I discovered that drinking water would

solve the problem. I started throwing up some but not too often and

also started choking at night. So about a year later I went back to

the gastro dr. he did tests and diagnosed achalasia and put me on a

high blood pressure medication. I was lucky and found this group

and got much needed information. I had my lap heller surgery on Wed.

March 21. The surgery took about two and a half hours. When I woke

up in the recovery room the main pain I had was in my shoulders. The

nures explained that that was from the air that had been put into me

during surgery. As soon as I got to my room I was able to eat ice

chips which was very necessary due to the tube put into the mouth

during surgery. My throat was dry and sore. The ice chips worked

wonders. The next day I was able to get up and walk around. I left

the hospital the Thursday about 24 hours after surgery. I spent the

next day mainly in bed but was able to walk around easily. I ate soft

foods, mashed potatoes, gravy, mac and cheese, jello, pudding. I

passed my Barium test Friday morning and the dr. told me I could eat

normally in about a week. I took pain medication off and on through

Sunday and didn't need it after that. Saturday I was able to visit

and walk through the art museum. Sunday we visited the Football hall

of fame. I was able to walk through most of it but got tired and had

to sit down. We were trying to see as much as possible since we had

not been to Cleveland before. I had some acid reflux and spasms the

first week after surgery but have had very few problems since then. I

stayed home from work about a week and a half. Didn't have any

problem working full days when I went back. I'm a teacher so work

days are very busy. I now feel better than I have in quite a while.

I have a lot more energy. I do still have to eat slowly and wash

food down which the dr. said would be necessary forever. He said

that my e is one of the narrowest he had seen in an a patient, so

because of the narrow e I would have to always eat slowly and drink

with it and would probably feel sticking. I figure I can live with

that, I feel sooo much better than I did before surgery.

Hope this helps you. Feel free to ask anything you want to know.

Good luck with your surgery, I will be thinking of you on June 5th.

JoAnn in New Mexico

- In achalasia , Steve Crawford <stla_c@...> wrote:

>

> Joanne:

> Hi. I am from FL and saw that you had a myotomy and had no

problems. Do you mind telling me all about recovery from the

littlest detail. I am facing surgery 6/5 and would like to know what

is ahead. Also, could you tell me your symptoms prior and now. Thanks

for any info.

> Tammy - FL

>

>

> Re: Coughing and throwing up at night

>

> JoAnn,

>

> I see you are from NM, as am I. I am curious if you considered

having

> your procedure done in Albuquerque. I had mine done at Pres and

have

> had no problems. By the way you are the 1st person from NM that I

know

> of having Achalasia (besides myself)! I thought I was the only

one ;-)

>

> Thanks

> Rich in Albuquerque (actually Placitas)

>

>

>

>

> __________________________________________________

>

[Guest guest]

--Hi Rich,

I too was thinking that I was the only New Mexician with achalasia.

I'm in Farmington. I'm sorry that you have this but it is great to

have company. It's great to hear that you are also doing well. I'm

amazed how much better I feel. I don't think I realized how bad I

was feeling before. I didn't think about treatment in Albuquerque

because I didn't know any drs. who specialized in achalasia. When I

was diagnosed in Dec. the drs. here really didn't know what to do. I

was lucky enough to find this group. They all seemed in agreement

that it was important to find the most experienced dr. you can

afford. Dr. Rice and the Cleveland Clinic were both primary

providers on our insurance and came highly recommended so I went

there. I'm thinking yearly check-ups would be much easier in

Albuquerque. Who are your drs. both surgeon and gastro? Are they

experienced with achalasia? How did you find them? What follow up

does your dr. recommend? My son-in-law has barrets esophagus and

needs to have his hiatal hernia repaired so I'm thinking this might

be good info for him also.

Thanks,

JoAnn

- In achalasia , " dundidder " <rbarnett8912@...> wrote:

>

> JoAnn,

>

> I see you are from NM, as am I. I am curious if you considered

having

> your procedure done in Albuquerque. I had mine done at Pres and

have

> had no problems. By the way you are the 1st person from NM that I

know

> of having Achalasia (besides myself)! I thought I was the only

one ;-)

>

> Thanks

> Rich in Albuquerque (actually Placitas)

>

[Guest guest]

--Tammy,

oops, need to make a correction I was diagnosed in Dec 06 and I was

actually off work two and a half weeks ( one was spring break).

Jo Ann

- In achalasia , " jomascarenas " <jomascarenas@...>

wrote:

>

> --Hi Tammy,

> I was diagnosed in Dec. 05, after two and a half years of

> misdiagnosis. It first started out like acid reflux. My family dr.

> put me on zantac which helped some but I had to take it all the

> time. I'm rather anti medication so quit taking it and went to the

> health food store and got some digestive enzymes. These seemed to

> work better. During this time I started having problems swallowing

> so I went back to my family dr. and he sent me to the gastro dr. He

> did a endoscopy and said that my esophagus had a restriction from

the

> acid reflux and did a dilation and put me on Nexium. A month later

I

> went back with the same complaint so he did another endscopy and

> dilation but said that my e was in good shape and really didn't

need

> much stretching. After that the symptoms continued but I quit

going

> to the dr. Symptoms gradually got worse, spasms started which I

> thought was acid reflux but I discovered that drinking water would

> solve the problem. I started throwing up some but not too often

and

> also started choking at night. So about a year later I went back

to

> the gastro dr. he did tests and diagnosed achalasia and put me on a

> high blood pressure medication. I was lucky and found this group

> and got much needed information. I had my lap heller surgery on

Wed.

> March 21. The surgery took about two and a half hours. When I

woke

> up in the recovery room the main pain I had was in my shoulders.

The

> nures explained that that was from the air that had been put into

me

> during surgery. As soon as I got to my room I was able to eat ice

> chips which was very necessary due to the tube put into the mouth

> during surgery. My throat was dry and sore. The ice chips worked

> wonders. The next day I was able to get up and walk around. I

left

> the hospital the Thursday about 24 hours after surgery. I spent

the

> next day mainly in bed but was able to walk around easily. I ate

soft

> foods, mashed potatoes, gravy, mac and cheese, jello, pudding. I

> passed my Barium test Friday morning and the dr. told me I could

eat

> normally in about a week. I took pain medication off and on

through

> Sunday and didn't need it after that. Saturday I was able to visit

> and walk through the art museum. Sunday we visited the Football

hall

> of fame. I was able to walk through most of it but got tired and

had

> to sit down. We were trying to see as much as possible since we

had

> not been to Cleveland before. I had some acid reflux and spasms the

> first week after surgery but have had very few problems since then.

I

> stayed home from work about a week and a half. Didn't have any

> problem working full days when I went back. I'm a teacher so work

> days are very busy. I now feel better than I have in quite a

while.

> I have a lot more energy. I do still have to eat slowly and wash

> food down which the dr. said would be necessary forever. He said

> that my e is one of the narrowest he had seen in an a patient, so

> because of the narrow e I would have to always eat slowly and drink

> with it and would probably feel sticking. I figure I can live with

> that, I feel sooo much better than I did before surgery.

> Hope this helps you. Feel free to ask anything you want to know.

> Good luck with your surgery, I will be thinking of you on June 5th.

>

> JoAnn in New Mexico

>

>

> - In achalasia , Steve Crawford <stla_c@> wrote:

> >

> > Joanne:

> > Hi. I am from FL and saw that you had a myotomy and had no

> problems. Do you mind telling me all about recovery from the

> littlest detail. I am facing surgery 6/5 and would like to know

what

> is ahead. Also, could you tell me your symptoms prior and now.

Thanks

> for any info.

> > Tammy - FL

> >

> >

> > Re: Coughing and throwing up at night

> >

> > JoAnn,

> >

> > I see you are from NM, as am I. I am curious if you considered

> having

> > your procedure done in Albuquerque. I had mine done at Pres and

> have

> > had no problems. By the way you are the 1st person from NM that I

> know

> > of having Achalasia (besides myself)! I thought I was the only

> one ;-)

> >

> > Thanks

> > Rich in Albuquerque (actually Placitas)

> >

> >

> >

> >

> > __________________________________________________

> >

[Guest guest]

Hi JoAnn,

I'm glad to hear you are doing well also. My problem now is keeping

the weight off, I have gained about 15# since Jan! Not a bad problem

to have though.

My surgeon was Dr. Bombach. He does not do just myotomies,

but I think he does 1 or 2 a month. He was recommended by my GI, and

so far I have no regrets about his procedure (lap myotomy w/Toupet

Fundop) after reading this website (I did not find this website until

after my surgery). I bounced back very quickly after surgery and

right now feel like new!

My GI is Dr. Ming. He is the my 3rd GI over my 3-4 year

journey to finally get this diagnosed and fixed. I was recommended

to his group by my family Dr. He does not specialize in Achalasia,

but I don't think that ABQ/NM has the demand for a specialist.

My surgeon said that no follow-up at all was needed. But I disagree

and plan on visiting my GI and getting tested annually, probably endo

at a minimum (I will avoid manometry at all costs!).

AS far as knowledge of Achalasia, I think these guys are good but may

not at the level of the Cleveland Clinic simply due to our small

population. FOr getting follow-up testing, I would have no issue

recommending using Pres (where my GI is). They can perform any test

that you need, and I have had no problem with their competence,

cleaniness, professionalism, etc.

If you would like to talk more or e-mail, send me a message at

rbarnett8912@.... I can give you phone #'s etc.

By the way, what kind of follow-up did your surgeon/GI recommend?

Rich

[Guest guest]

--Hi Rich,

I'm glad you're planning on getting follow up care. Listening to

people on this forum it sounds really important. I do think I will

talk to Dr. Rice about getting tests done closer to home. When he

was talking to me it sounded like he was considering it at first but

then changed his mind because he said that he would want to scope me

himself. Don't know if scoping is to be done every year of not.

Maybe I can do testing at home if I don't need to be scoped every

year. Which to answer your question, I don't know what tests will be

done for follow up. I go in June for my check up after surgery.

They are doing the dreaded manometry, ph probe, barium swallow and x-

ray. I will ask at my June appt. what tests will be done at the

yearly check and let you know. Your e-mail address didn't come

through so I'll try giving you mine by writing it out and see if it

works. My e-mail is ljmascarenas at msn . com I would like to have

you drs. numbers I think my son-in-law will be interested. Do you

have and problems with acid reflux? I think they do the same wrap to

fix a hiatal hernia.

JoAnn

- In achalasia , " dundidder " <rbarnett8912@...> wrote:

>

> Hi JoAnn,

>

> I'm glad to hear you are doing well also. My problem now is

keeping

> the weight off, I have gained about 15# since Jan! Not a bad

problem

> to have though.

>

> My surgeon was Dr. Bombach. He does not do just myotomies,

> but I think he does 1 or 2 a month. He was recommended by my GI,

and

> so far I have no regrets about his procedure (lap myotomy w/Toupet

> Fundop) after reading this website (I did not find this website

until

> after my surgery). I bounced back very quickly after surgery and

> right now feel like new!

>

> My GI is Dr. Ming. He is the my 3rd GI over my 3-4 year

> journey to finally get this diagnosed and fixed. I was recommended

> to his group by my family Dr. He does not specialize in Achalasia,

> but I don't think that ABQ/NM has the demand for a specialist.

>

> My surgeon said that no follow-up at all was needed. But I

disagree

> and plan on visiting my GI and getting tested annually, probably

endo

> at a minimum (I will avoid manometry at all costs!).

>

> AS far as knowledge of Achalasia, I think these guys are good but

may

> not at the level of the Cleveland Clinic simply due to our small

> population. FOr getting follow-up testing, I would have no issue

> recommending using Pres (where my GI is). They can perform any

test

> that you need, and I have had no problem with their competence,

> cleaniness, professionalism, etc.

>

> If you would like to talk more or e-mail, send me a message at

> rbarnett8912@... I can give you phone #'s etc.

>

> By the way, what kind of follow-up did your surgeon/GI recommend?

>

> Rich

>

[Guest guest]

Hi All,

I know it has been awhile since I have written anything, but I wanted

you all to know thag I saw Dr. Rice last thursday and he scheduled my

myotomy for June 27. I am way more relieved than I am scared. I have

pre-op tests on the 15th, and just hope everything goes smoothly.

Thanks so much for everyones support, you guys are awesome!

>

> Gosh, Corri, I'm really glad you are going to see Dr. Rice. I've heard

very good

> things about him.

> I was coughing up and throwing up and regurgitating a lot before I had

my

> Heller's. I was bringing up foamy stuff, too, and spitting that out. I

had such an

> attractive array of little spit bowls and semi-used tissues and a

brown paper bag

> at the side of the bed for used up spitty tissues and extra barfing

events....so

> attractive! NOT.

> The spitting up was a serious problem because, at times, I aspirated

junk and

> that, I can tell you, is really serious. Serious. I've had pneumonia

six times

> and I am NOT EAGER AT ALL to have aspiration lung infections, etc.,

from

> junk coming up, and then, my breathing it in....involuntarily.

> I'd much rather eat ice cream cones involuntarily. Then, walk the

dogs.

>

> I'm so glad you will be seeing Dr. Rice. Good luck and all best

wishes,

> Deborah

>

[Guest guest]

Good luck for your surgery! Glad to hear you are more relieved than scared. I hope you keep feeling this confident and relieved!!! Good for you!!! Love, IsabellaCorri <corriellyn@...> wrote: Hi All,I know it has been awhile since I have written anything, but I wantedyou all to know thag I saw Dr. Rice last thursday and he scheduled mymyotomy for June 27. I am way more relieved than I am scared. I havepre-op tests on the 15th, and just hope

everything goes smoothly. Thanks so much for everyones support, you guys are awesome!>> Gosh, Corri, I'm really glad you are going to see Dr. Rice. I've heardvery good> things about him.> I was coughing up and throwing up and regurgitating a lot before I hadmy> Heller's. I was bringing up foamy stuff, too, and spitting that out. Ihad such an> attractive array of little spit bowls and semi-used tissues and abrown paper bag> at the side of the bed for used up spitty tissues and extra barfingevents....so> attractive! NOT.> The spitting up was a serious problem because, at times, I aspiratedjunk and> that, I can tell you, is really serious. Serious. I've had pneumoniasix times> and I am NOT EAGER AT ALL to have

aspiration lung infections, etc.,from> junk coming up, and then, my breathing it in....involuntarily.> I'd much rather eat ice cream cones involuntarily. Then, walk thedogs.>> I'm so glad you will be seeing Dr. Rice. Good luck and all bestwishes,> Deborah>

It's here! Your new message!Get

new email alerts with the free Toolbar.

[Guest guest]

Thanks for the kind words Isabella.

Corri

> >

> > Gosh, Corri, I'm really glad you are going to see Dr. Rice. I've

heard

> very good

> > things about him.

> > I was coughing up and throwing up and regurgitating a lot before

I had

> my

> > Heller's. I was bringing up foamy stuff, too, and spitting that

out. I

> had such an

> > attractive array of little spit bowls and semi-used tissues and a

> brown paper bag

> > at the side of the bed for used up spitty tissues and extra

barfing

> events....so

> > attractive! NOT.

> > The spitting up was a serious problem because, at times, I

aspirated

> junk and

> > that, I can tell you, is really serious. Serious. I've had

pneumonia

> six times

> > and I am NOT EAGER AT ALL to have aspiration lung infections,

etc.,

> from

> > junk coming up, and then, my breathing it in....involuntarily.

> > I'd much rather eat ice cream cones involuntarily. Then, walk the

> dogs.

> >

> > I'm so glad you will be seeing Dr. Rice. Good luck and all best

> wishes,

> > Deborah

> >

>

>

>

>

>

>

> ---------------------------------

> It's here! Your new message!

> Get new email alerts with the free Toolbar.

>