I AM FURIOUS!!

[Guest guest]

Hi everyone

I had to stop by my GI's office today on the way home from my MD this morning to pick up the records he had on my stomach and my EGD etc so I can take them to the esophagus guy tomorrow. I am sick as a dog and feeling like hell but I needed the records. I have always liked my GI doctor and he was the ONLY one I trusted ever to do an EGD on me. Well, I just got done reading his notes on me and I am livid. He said I told him I have bad panic disorder and have been hospitalized for it.. That is a LIE! I have NEVER been hospitalized for ANY MENTAL ILLNESS EVER.. He then goes on to state that some of my teeth looked stained but "not the usual staining from smoking but rather it looks like ACID STAINING FROM DAILY VOMITING-HE IS CONCERNED ABOUT BULEMIA!! I almost went through the ROOF when I saw this.. I have NEVER been nor will I EVER be Bulemic. As a matter of fact I have a FEAR of throwing up.. NOW I know why this man was not so anxious to help me. He thinks I"m a NUT and I'm making all of this up!! I can NOT believe what he wrote. I just fired off a letter to him and blasted him. My teeth are stained from incompete dental work in the 1990s. I had some bonding done and the teeth they bonded never got colored. I had gotten sick and stopped going to get them finished. Plus they are also stained from the years of antibiotics I've been on for Lyme Disease. You think he would have asked me? NO he jumps to some INSANE conclusion that I make myself vomit everyday? NO WONDER he couldn't find a reason for my swallowing trouble.. He NEVER believed me!! Has anyone else ever had this happen to them? I am so livid and upset right now. I asked him in my letter to him if he was insane. How could he even THINK someone would WANT this problem and if he knows anyone who does they need to be in a nut house not a GI's office.. I am just so pissed off right now...

Thanks for letting me vent..

Robyn

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[Guest guest]

oh yeah, I know that story all to well. My

pediatrician, I was 16 when I got diagnoised for

achalasia, first thought I was bulemic as well. When I

had my appointment with her she asked me psychological

questions pertaining to self-esteem and body image.

WtF? My parents also believed that I was bulemic as

well and I was really pissed that no one believed me

about my condition. It wasn't bulemia, I knew

something was wrong. At the time, my achalasia

symptoms were gradually getting worse and there were

times when I can eat...so my family first suspected a

eating disorder. But at least a couple weeks later,

my pediatrician finally recognized the problem as

achalasia when I told her about my symptoms and

referred me to a GI specialist. I would've gone nuts

if she still didn't believe me....

[Guest guest]

Ditto for me also.

I was diagnosed at the age of 16 as well.

My symptoms came on pretty fast in the grand scheme of things, and

before I knew it I was eating and then getting up in the middle of

meals to go to the bathroom where it all came back up. It was pretty

crazy. I ended up getting down to about 90 pounds before my doctor

actually did anything about it, but I remember him asking me all sorts

of things alluding to the fact that he thought I was bulimic.

I remember telling my mom that I swore I wasn't making myself get

sick, that I was really scared because I thought something was really

wrong and I was going to die.

She believed me...she knew that if that's what I said, then I was

telling the truth.

The doctors just assume they know...I mean, geez, let's see, a teenage

girl, losing weight rapidly....of course that's what it has to be.

Dumbasses.

I wish the stupidity had ended there. Then we finally get a gastro doc

in NYC - a supposed " specialist " , who does pneumatic dilitations on me

and sends me on my way. Never once told us to do follow up on a

regular basis, never once warned that things could progress and

stretch and what the result could be. And here I am, now at 33 being

told I'll definitely need an esophagectomy in the future...

I really believe what it all comes down to is competent medical care,

and people taking it upon themselves to educate themselves as fully as

possible so we know what is going on. That's why this group is such a

great thing...not only do we support each other, but we educate and

guide each other as well.

in NY

Re:I AM FURIOUS!!

achalasia

> oh yeah, I know that story all to well. My

> pediatrician, I was 16 when I got diagnoised for

> achalasia, first thought I was bulemic as well. When I

> had my appointment with her she asked me psychological

> questions pertaining to self-esteem and body image.

> WtF? My parents also believed that I was bulemic as

> well and I was really pissed that no one believed me

> about my condition. It wasn't bulemia, I knew

> something was wrong. At the time, my achalasia

> symptoms were gradually getting worse and there were

> times when I can eat...so my family first suspected a

> eating disorder. But at least a couple weeks later,

> my pediatrician finally recognized the problem as

> achalasia when I told her about my symptoms and

> referred me to a GI specialist. I would've gone nuts

> if she still didn't believe me....

>

>

>

[Guest guest]

My daughter went through the same thing except the doctors decided she was anorexic - and i became labelled as an interfering mum who could not come to terms with the fact that her daughter had anorexia. It was a very stressful time - and I think I actually believed Hannah was going to die - she went down to 80lbs from 140lbs in a matter of months and it was not until I sat in the GP's room and insisted that he referred Hannah to a Consultant that we got one. At this stage she did not have the energy to fight. And then he told me it would take 3 to 4 months! And not to worry but he thought Hannah had a virus. - despite her inability to hardly walk - her hair falling out and dehydration! We went private and saw a consultant in a matter of days.The consultant knew what it was straight away. AFter all the tests - she had a heller myotomy with wrap. And now 3 years on she has a 17 month old daughter and another due at

Easter.Although she occasionally gets the odd blip - it is nothing like it was - she decided to help others she would put a complaint into the ombudsman. The ombudsman, a layperson, picked up that Hannah could have been diagnosed two years before her myotomy - from a barium she had when her symptoms were beginning. This would have meant that she would not have had to go through the trauma of psychiatric treatment (nightmare) with drug addicts and anorexics (as you can imagine I pulled her out of that one after two sessions when Hannah had been accused of self harming etc).Considering everything she went through she is very well adjusted - every now again when the reality of her illness hits her she has a weak moment - and now we are waiting for the response from the hospital re the fact she could have been diagnosed earlier.It's a shame the medical profession take away the personal aspect. I often wonder how they would feel if it was them

or a member of their family with this illness and no-one believed them would it be so impersonal to them then?tracylb@... wrote: Ditto for me also. I was diagnosed at the age of 16 as well. My symptoms came on pretty fast in the grand scheme of things, and before I knew it I was eating and then getting up in the middle of meals to go to the bathroom where it all came back up. It was pretty crazy. I ended up getting down to about 90 pounds before my doctor actually did anything about it, but I

remember him asking me all sorts of things alluding to the fact that he thought I was bulimic. I remember telling my mom that I swore I wasn't making myself get sick, that I was really scared because I thought something was really wrong and I was going to die. She believed me...she knew that if that's what I said, then I was telling the truth. The doctors just assume they know...I mean, geez, let's see, a teenage girl, losing weight rapidly....of course that's what it has to be. Dumbasses. I wish the stupidity had ended there. Then we finally get a gastro doc in NYC - a supposed "specialist", who does pneumatic dilitations on me and sends me on my way. Never once told us to do follow up on a regular basis, never once warned that things could progress and stretch and what the result could be. And here I am, now at 33 being told I'll definitely need an esophagectomy in the future... I really

believe what it all comes down to is competent medical care, and people taking it upon themselves to educate themselves as fully as possible so we know what is going on. That's why this group is such a great thing...not only do we support each other, but we educate and guide each other as well. in NY Re:I AM FURIOUS!! achalasia > oh yeah, I know that story all to well. My > pediatrician, I was 16 when I got diagnoised for > achalasia, first thought I was bulemic as well. When I > had my appointment with her she asked me psychological > questions pertaining to self-esteem and body image. > WtF? My parents

also believed that I was bulemic as > well and I was really pissed that no one believed me > about my condition. It wasn't bulemia, I knew > something was wrong. At the time, my achalasia > symptoms were gradually getting worse and there were > times when I can eat...so my family first suspected a > eating disorder. But at least a couple weeks later, > my pediatrician finally recognized the problem as > achalasia when I told her about my symptoms and > referred me to a GI specialist. I would've gone nuts > if she still didn't believe me.... > > >

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