Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 , My 13 yr old daughter has A. Her first fix so to speak was Botox injections. It's very quick and almost immediate results, at least in her case. The down fall is it's short term, and my version and your version of short ranges from 3 months to 2 years, just depending on the individual. I have a friend that is 69 and she has had A since her 40's. Because of her age at the time she choose not to have any surgery and takes the Botox injections about every 9 months, she seems to do fine. Hope this helps in making your decision. Patty in FLsalccfa <salccfa@...> wrote: I was diagnosed with achalasia 22 years ago, it took doctors 2 yearsto figure out what I had, by that time I was 92 lbs and all thedoctors thought I was anorexic. I had a dialation in Toronto and wasinstantly able to eat. Although I still have trouble swallowing allthe time, but better than before. I have put off a 2nd dialation butthen the pain (spasms-I'm told)was so bad, I couldn't take it anymore.Because I am going away in February to Mexico and they can not get meinto Calgary before then to have another dialation, my specialists hassuggested Botox, as a temporary messure for now. Apparently theyinject it into the lower part so that it will relax and stay open sothe food will slide down. Has anyone had this done or know anythingabout this? ... Get your own web address. Have a HUGE year through Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 Thanks Patty! I have done some reading and found that it can leave scar tissue there and can have problems down the line when I do have a dialatation again. Although the surgery sounds like maybe the way to go, I would love to get rid of the pain from the spasms. They can last for 3-4 days with no break and no sleep, rather exhausting. I use to be able to drink water or cold milk and it also would go away but not during the 3-4 days in a row, nothing helpspATTY cHILDERS <pacjm20@...> wrote: , My 13 yr old daughter has A. Her first fix so to speak was Botox injections. It's very quick and almost immediate results, at least in her case. The down fall is it's short term, and my version and your version of short ranges from 3 months to 2 years, just depending on the individual. I have a friend that is 69 and she has had A since her 40's. Because of her age at the time she choose not to have any surgery and takes the Botox injections about every 9 months, she seems to do fine. Hope this helps in making your decision. Patty in FLsalccfa <salccfa (DOT) ca> wrote: I was diagnosed with achalasia 22 years ago, it took doctors 2 yearsto figure out what I had, by that time I was 92 lbs and all thedoctors thought I was anorexic. I had a dialation in Toronto and wasinstantly able to eat. Although I still have trouble swallowing allthe time, but better than before. I have put off a 2nd dialation butthen the pain (spasms-I'm told)was so bad, I couldn't take it anymore.Because I am going away in February to Mexico and they can not get meinto Calgary before then to have another dialation, my specialists hassuggested Botox, as a temporary messure for now. Apparently theyinject it into the lower part so that it will relax and stay open sothe food will slide down. Has anyone had this done or know anythingabout this? ... Get your own web address.Have a HUGE year through Small Business. All new - Get a sneak peak at messages with a handy reading pane. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 Why are you saying 69 is old It depends on your health I am 72 and not want to go every 9 mos for botox and eventually have to go for a feeding tube When I develop scar tissues I then might be tooooo old for extensive surgery 72 And feel young -- Re: Botox and achalasia , My 13 yr old daughter has A. Her first fix so to speak was Botox injections. It's very quick and almost immediate results, at least in her case. The down fall is it's short term, and my version and your version of short ranges from 3 months to 2 years, just depending on the individual. I have a friend that is 69 and she has had A since her 40's. Because of her age at the time she choose not to have any surgery and takes the Botox injections about every 9 months, she seems to do fine. Hope this helps in making your decision. Patty in FLsalccfa <salccfa (DOT) ca> wrote: I was diagnosed with achalasia 22 years ago, it took doctors 2 yearsto figure out what I had, by that time I was 92 lbs and all thedoctors thought I was anorexic. I had a dialation in Toronto and wasinstantly able to eat. Although I still have trouble swallowing allthe time, but better than before. I have put off a 2nd dialation butthen the pain (spasms-I'm told)was so bad, I couldn't take it anymore.Because I am going away in February to Mexico and they can not get meinto Calgary before then to have another dialation, my specialists hassuggested Botox, as a temporary messure for now. Apparently theyinject it into the lower part so that it will relax and stay open sothe food will slide down. Has anyone had this done or know anythingabout this? ... Get your own web address.Have a HUGE year through Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 , Congrats on your 72 years young. I was not referring to 69 as being old. This was my friends words, not mine, I agree with you on not having Botox every 9 months, but that was her choice. Of course this was not our choice for my daughter. Cheers to many more young years. Patty in FL Bartolino <jfbartolino@...> wrote: Why are you saying 69 is old It depends on your health I am 72 and not want to go every 9 mos for botox and eventually have to go for a feeding tube When I develop scar tissues I then might be tooooo old for extensive surgery 72 And feel young -- Re: Botox and achalasia , My 13 yr old daughter has A. Her first fix so to speak was Botox injections. It's very quick and almost immediate results, at least in her case. The down fall is it's short term, and my version and your version of short ranges from 3 months to 2 years, just depending on the individual. I have a friend that is 69 and she has had A since her 40's. Because of her age at the time she choose not to have any surgery and takes the Botox injections about every 9 months, she seems to do fine. Hope this helps in making your decision. Patty in FLsalccfa <salccfa (DOT) ca> wrote: I was diagnosed with achalasia 22 years ago, it took doctors 2 yearsto figure out what I had, by that time I was 92 lbs and all thedoctors thought I was anorexic. I had a dialation in Toronto and wasinstantly able to eat. Although I still have trouble swallowing allthe time, but better than before. I have put off a 2nd dialation butthen the pain (spasms-I'm told)was so bad, I couldn't take it anymore.Because I am going away in February to Mexico and they can not get meinto Calgary before then to have another dialation, my specialists hassuggested Botox, as a temporary messure for now. Apparently theyinject it into the lower part so that it will relax and stay open sothe food will slide down. Has anyone had this done or know anythingabout this? ... Get your own web address.Have a HUGE year through Small Business. Check out the all-new beta - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 Since my surgery Oct 24th I am eating much better Feeling much better Am not tired can go all day There is a big change I do eat small portions Watch what I eat Don't eat dinner pass 6 JUst to be cautious CArrie -- Re: Botox and achalasia , My 13 yr old daughter has A. Her first fix so to speak was Botox injections. It's very quick and almost immediate results, at least in her case. The down fall is it's short term, and my version and your version of short ranges from 3 months to 2 years, just depending on the individual. I have a friend that is 69 and she has had A since her 40's. Because of her age at the time she choose not to have any surgery and takes the Botox injections about every 9 months, she seems to do fine. Hope this helps in making your decision. Patty in FLsalccfa <salccfa (DOT) ca> wrote: I was diagnosed with achalasia 22 years ago, it took doctors 2 yearsto figure out what I had, by that time I was 92 lbs and all thedoctors thought I was anorexic. I had a dialation in Toronto and wasinstantly able to eat. Although I still have trouble swallowing allthe time, but better than before. I have put off a 2nd dialation butthen the pain (spasms-I'm told)was so bad, I couldn't take it anymore.Because I am going away in February to Mexico and they can not get meinto Calgary before then to have another dialation, my specialists hassuggested Botox, as a temporary messure for now. Apparently theyinject it into the lower part so that it will relax and stay open sothe food will slide down. Has anyone had this done or know anythingabout this? ... Get your own web address.Have a HUGE year through Small Business. Check out the all-new beta - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 Another thought I am an RN and surgery and procedures AIN"T like they use to be You all know that Age is never the question [ for most procedures] It's what health you are in My MOm is 96 Still lives alone and takes care of her own things Like banking checking accounts Plays bingo etc etc -- Re: Botox and achalasia , My 13 yr old daughter has A. Her first fix so to speak was Botox injections. It's very quick and almost immediate results, at least in her case. The down fall is it's short term, and my version and your version of short ranges from 3 months to 2 years, just depending on the individual. I have a friend that is 69 and she has had A since her 40's. Because of her age at the time she choose not to have any surgery and takes the Botox injections about every 9 months, she seems to do fine. Hope this helps in making your decision. Patty in FLsalccfa <salccfa (DOT) ca> wrote: I was diagnosed with achalasia 22 years ago, it took doctors 2 yearsto figure out what I had, by that time I was 92 lbs and all thedoctors thought I was anorexic. I had a dialation in Toronto and wasinstantly able to eat. Although I still have trouble swallowing allthe time, but better than before. I have put off a 2nd dialation butthen the pain (spasms-I'm told)was so bad, I couldn't take it anymore.Because I am going away in February to Mexico and they can not get meinto Calgary before then to have another dialation, my specialists hassuggested Botox, as a temporary messure for now. Apparently theyinject it into the lower part so that it will relax and stay open sothe food will slide down. Has anyone had this done or know anythingabout this? ... Get your own web address.Have a HUGE year through Small Business. Check out the all-new beta - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 Wow 3-4 days. Hopefully will never get to that point. Did the Dr's confirm if it was spasms or acid reflux? One of her Dr's feels that she should go back and confirm that she is not having acid reflux. My opinion is that I don't see the need for another Dr visit if it's not necessary at this point and being that the pains go away so quickly I feel that it's not acid reflux. Any other thoughts out there. Patty in FLS <salccfa@...> wrote: Thanks Patty! I have done some reading and found that it can leave scar tissue there and can have problems down the line when I do have a dialatation again. Although the surgery sounds like maybe the way to go, I would love to get rid of the pain from the spasms. They can last for 3-4 days with no break and no sleep, rather exhausting. I use to be able to drink water or cold milk and it also would go away but not during the 3-4 days in a row, nothing helpspATTY cHILDERS <pacjm20 > wrote: , My 13 yr old daughter has A. Her first fix so to speak was Botox injections. It's very quick and almost immediate results, at least in her case. The down fall is it's short term, and my version and your version of short ranges from 3 months to 2 years, just depending on the individual. I have a friend that is 69 and she has had A since her 40's. Because of her age at the time she choose not to have any surgery and takes the Botox injections about every 9 months, she seems to do fine. Hope this helps in making your decision. Patty in FLsalccfa <salccfa (DOT) ca> wrote: I was diagnosed with achalasia 22 years ago, it took doctors 2 yearsto figure out what I had, by that time I was 92 lbs and all thedoctors thought I was anorexic. I had a dialation in Toronto and wasinstantly able to eat. Although I still have trouble swallowing allthe time, but better than before. I have put off a 2nd dialation butthen the pain (spasms-I'm told)was so bad, I couldn't take it anymore.Because I am going away in February to Mexico and they can not get meinto Calgary before then to have another dialation, my specialists hassuggested Botox, as a temporary messure for now. Apparently theyinject it into the lower part so that it will relax and stay open sothe food will slide down. Has anyone had this done or know anythingabout this? ... Get your own web address.Have a HUGE year through Small Business. All new - Get a sneak peak at messages with a handy reading pane. Don't get soaked. Take a quick peak at the forecast with the Search weather shortcut. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2007 Report Share Posted January 20, 2007 My specialist years ago told me that it was spasms, I have always believe that is what it was. I did end up in the hospital emergency when the 3-4 days happen and they gave me a " pink lady. " Within in 10 minutes it was gone. They say it freezes the esophogus for about 10 minutes giving it enough time to relax and stop. I have gone twice for this, as I never knew someone could help me at emergency. I describe it as a heart attack and apparently most describe it like that. Yes hopefully never has to have that for long periods of time, but remember the " pink lady " thats what the hospitals here call it. > I was diagnosed with achalasia 22 years ago, it took doctors 2 years > to figure out what I had, by that time I was 92 lbs and all the > doctors thought I was anorexic. I had a dialation in Toronto and was > instantly able to eat. Although I still have trouble swallowing all > the time, but better than before. I have put off a 2nd dialation but > then the pain (spasms-I'm told)was so bad, I couldn't take it anymore. > Because I am going away in February to Mexico and they can not get me > into Calgary before then to have another dialation, my specialists has > suggested Botox, as a temporary messure for now. Apparently they > inject it into the lower part so that it will relax and stay open so > the food will slide down. Has anyone had this done or know anything > about this? ... > > > > > > --------------------------------- > Get your own web address. > Have a HUGE year through Small Business. > > > > > > --------------------------------- > All new - > --------------------------------- > Get a sneak peak at messages with a handy reading pane. > > > > > --------------------------------- > Don't get soaked. Take a quick peak at the forecast > with the Search weather shortcut. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2007 Report Share Posted January 21, 2007 salccfa wrote: > My specialist years ago told me that it was spasms, I have always > believe that is what it was. I did end up in the hospital emergency > when the 3-4 days happen and they gave me a " pink lady. " Within in > 10 minutes it was gone. They say it freezes the esophogus for about > 10 minutes giving it enough time to relax and stop. Interesting. A " pink lady " is liquid antacid mixed with viscous xylocaine. The antacid is there to neutralize acid and the xylocaine (anesthetic ,mucosal-local) numbs nerves local to tissue it comes in contact with. It is often given for pain from reflux. If the pink lady works the implication is, whether there is a true spasm or not, that the mucosal surface of the esophagus was irritated. Similar to xylocaine is Benzocaine. Benzocaine is the active ingredient in Orajel. If you have ever had Orajel in your mouth you have an idea of what that numbing is like. Another item you may have around the home that can do this is clove. If you chew on clove it will cause a similar feeling in your mouth. I have suggested before that clove may be good for " spasm " pain, but I have not heard from anyone who has tried it. I don't have spasms so I can't say from personal experience if it works. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2007 Report Share Posted January 21, 2007 Thanks Notan, that is good information. The first time I went it worked great, but the pain had subsided slightly by the time they saw me. The second time I went it was probably 45 minutes and it still was not completely gone, I could feel jumping around but no real hard pain. They gave me some other pain killers to take home in case to get a good nights sleep, one was buscapan and I forget what the other was. The buscapan didn't really help. But thanks for the information on what is in it, I have always doubted the fact that it was spasms. Although I had not had any pain for about a month and woke up this morning with one. Just had some water and it went away. I am beginning to think it is pasta or breads, as I have been trying to eat three proper meals a day and had illiminated breads, all but flax and I had pasta last night. I will try the cloves and let you know when I do. Interesting -- In achalasia , notan ostrich <notan_ostrich@...> wrote: > > salccfa wrote: > > My specialist years ago told me that it was spasms, I have always > > believe that is what it was. I did end up in the hospital emergency > > when the 3-4 days happen and they gave me a " pink lady. " Within in > > 10 minutes it was gone. They say it freezes the esophogus for about > > 10 minutes giving it enough time to relax and stop. > > Interesting. A " pink lady " is liquid antacid mixed with viscous > xylocaine. The antacid is there to neutralize acid and the xylocaine > (anesthetic ,mucosal-local) numbs nerves local to tissue it comes in > contact with. It is often given for pain from reflux. If the pink lady > works the implication is, whether there is a true spasm or not, that the > mucosal surface of the esophagus was irritated. > > Similar to xylocaine is Benzocaine. Benzocaine is the active ingredient > in Orajel. If you have ever had Orajel in your mouth you have an idea of > what that numbing is like. Another item you may have around the home > that can do this is clove. If you chew on clove it will cause a similar > feeling in your mouth. I have suggested before that clove may be good > for " spasm " pain, but I have not heard from anyone who has tried it. I > don't have spasms so I can't say from personal experience if it works. > > notan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 Patty or anyone who has had Botox, Did your daughter still have spasm after she had the botox. Was she able to eat anything she wanted or did she have to be careful with certain foods still? My concern is the food in Mexico when we are away for our 20th anniversary in February. I am now debating on whether or not I should do this. I can still eat at this point, yes it gets stuck and I drink lots of water, but it is the spasms that I want to get rid of for now, even if its only for a week while I'm away. I don't want to have 3-4days of sleeping. Does anyone kow if the botox helps the spasms? in Alberta > I was diagnosed with achalasia 22 years ago, it took doctors 2 years > to figure out what I had, by that time I was 92 lbs and all the > doctors thought I was anorexic. I had a dialation in Toronto and was > instantly able to eat. Although I still have trouble swallowing all > the time, but better than before. I have put off a 2nd dialation but > then the pain (spasms-I'm told)was so bad, I couldn't take it anymore. > Because I am going away in February to Mexico and they can not get me > into Calgary before then to have another dialation, my specialists has > suggested Botox, as a temporary messure for now. Apparently they > inject it into the lower part so that it will relax and stay open so > the food will slide down. Has anyone had this done or know anything > about this? ... > > > > > > > --------------------------------- > Get your own web address. > Have a HUGE year through Small Business. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 , I had several rounds of botox. I would not recommend going that route and if I could do it over again I would go right to surgery. To answer your question, I was able to eat anything I wanted to right after the procedure with no restrictions. The procedure for me was an out patient thing where I went in around 9 am and was back home by about 11 am. I slept most of that day due the the antistatic but after that I was go to go. I hope that helps you out. in Georgia co-founder www.achalasia.ussalccfa <salccfa@...> wrote: Patty or anyone who has had Botox,Did your daughter still have spasm after she had the botox. Was she able to eat anything she wanted or did she have to be careful with certain foods still? My concern is the food in Mexico when we are away for our 20th anniversary in February. I am now debating on whether or not I should do this. I can still eat at this point, yes it gets stuck and I drink lots of water, but it is the spasms that I want to get rid of for now, even if its only for a week while I'm away. I don't want to have 3-4days of sleeping. Does anyone kow if the botox helps the spasms? in Alberta> I was diagnosed with achalasia 22 years ago, it took doctors 2 years> to figure out what I had, by that time I was 92 lbs and all the> doctors thought I was anorexic. I had a dialation in Toronto and was> instantly able to eat. Although I still have trouble swallowing all> the time, but better than before. I have put off a 2nd dialation but> then the pain (spasms-I'm told)was so bad, I couldn't take it anymore.> Because I am going away in February to Mexico and they can not get me> into Calgary before then to have another dialation, my specialists has> suggested Botox, as a temporary messure for now. Apparently they> inject it into the lower part so that it will relax and stay open so> the food will slide down. Has anyone had this done or know anything> about this? ...> > > > > > > ---------------------------------> Get your own web address.> Have a HUGE year through Small Business.><FONT face="comic sans ms" color=#ff0000 size=5> in Georgia </FONT><IMG src=" "> Expecting? Get great news right away with email Auto-Check.Try the Beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 Hi , I have had eight Botox injections in the past 6 years. Their efficacy lasted around the nine months mark. for the first week after the injection i still couldn't eat much (mainly soft foods)but this gradually wore off and i was able to eat normally (sometimes even red meat!) after about ten days.My doctor thinks it was because i would have swelling at the injection iste and had to wait for this to subside. I would recommend Botox to anyone ahead of a myotomy, but when i had my myotomy done in '95, Botox wasn't a treatment for achalasia. Deb from Melbourne, Australia. salccfa <salccfa@...> wrote: Patty or anyone who has had Botox,Did your daughter still have spasm after she had the botox. Was she able to eat anything she wanted or did she have to be careful with certain foods still? My concern is the food in Mexico when we are away for our 20th anniversary in February. I am now debating on whether or not I should do this. I can still eat at this point, yes it gets stuck and I drink lots of water, but it is the spasms that I want to get rid of for now, even if its only for a week while I'm away. I don't want to have 3-4days of sleeping. Does anyone kow if the botox helps the spasms? in Alberta> I was diagnosed with achalasia 22 years ago, it took doctors 2 years> to figure out what I had, by that time I was 92 lbs and all the> doctors thought I was anorexic. I had a dialation in Toronto and was> instantly able to eat. Although I still have trouble swallowing all> the time, but better than before. I have put off a 2nd dialation but> then the pain (spasms-I'm told)was so bad, I couldn't take it anymore.> Because I am going away in February to Mexico and they can not get me> into Calgary before then to have another dialation, my specialists has> suggested Botox, as a temporary messure for now. Apparently they> inject it into the lower part so that it will relax and stay open so> the food will slide down. Has anyone had this done or know anything> about this? ...> > > > > > > ---------------------------------> Get your own web address.> Have a HUGE year through Small Business.> Send instant messages to your online friends http://au.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2007 Report Share Posted January 25, 2007 I don't see botox as a fix for the NCCPs, especially since the LES isn't the cause of many NCCPs. I'd try a low-dose version of an anti-depressant over a shot of Botox. And/or get a prescription for some nifedipine to use on an as-needed basis. The anti-depressant seems to affect the way the brain interprets the sensations from the esophagus. When I'm on any medication that regulates serotonin in some way, I have a marked decrease in NCCPs. When I do have a "spasm" it will almost always respond to nifedipine within minutes (prick the capsule and squirt it under the tongue, it will absorb into the blood stream from under the tongue). Lots of people have posted great results here with both techniques. Debbi in Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 Like you I am a very long time sufferer from Achilasia. I seem to give this Botox message about once a year. To all who have read this before I say Hi, for in Canada I offer the following:I am now 74 years of age, I found it hard to swallow in the 1970's.When they finally decided it was not Gerd they said I was too old for surgery.The first Botox lasted for about a year, the second for two years and the so it has been now for two more, I am now into 20 months since the last and the old symptoms are starting to appear. I expect next month I will make the appointment and go to get it done again. My other health problems are giving me more trouble but that is the aging process.Keep a positive outlook, "A" is not going away. I have found a new life helpingelementary school kids to read and have some-one to talk to who will not carp or laugh at them.All the best to Achilasians everywhere. Ingramsalccfa <salccfa@...> wrote: I was diagnosed with achalasia 22 years ago, it took doctors 2 years to figure out what I had, by that time I was 92 lbs and all the doctors thought I was anorexic. I had a dialation in Toronto and was instantly able to eat. Although I still have trouble swallowing all the time, but better than before. I have put off a 2nd dialation but then the pain (spasms-I'm told)was so bad, I couldn't take it anymore. Because I am going away in February to Mexico and they can not get me into Calgary before then to have another dialation, my specialists has suggested Botox, as a temporary messure for now. Apparently they inject it into the lower part so that it will relax and stay open so the food will slide down. Has anyone had this done or know anything about this? ... Now that's room service! Choose from over 150,000 hotels in 45,000 destinations on Travel to find your fit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 Hallo! Saw this mesage and simply had to reply and just give my experience. I had a Botox injection back in October. Was supposed to have the operation but shortly before surgery time, my doctor told me he wanted to do some more testing. He gave me a Botox injection to get me through and as part of the diagnosis. Before the Botox, I used to have these spasms fairly sporadically, but when they came felt like a heart attack. After the Botox I had such severe spasms (I was at home and out of hospital) that we called emergency services thinking I was having a heart attack or had Botox posioning (!!!) I was literally soaking in sweat, shaking, tingling in hands and feet, gasping for breath, on the floor. A horrible experience. A call to my surgeon the next morning confirmed it as a spasm induced by tthe Botox. That was the worst it got. For a couple of weeks after, I got a couple every week - not nearly at that intensity though - and then they eased off. Now I have one - very mild and only lasting a couple of minutes - every 2-3 weeks. I'm not sure if this information is a help, but I just wanted to let you know my experience. My surgeon told me this is a side-effect of a Botox or a dilation. The surgery will also cause these spasms, which - he said - will in most cases ease after about 3 months. I am THANKFUL for the Botox in some ways, although I know it can makee the myotomy more difficult. I went into hospital desperate, skinny, stressed and not too informed. I won some time to do some research, contact this forum and make a well-informed decision about the operation. All the best to you! Greetings across the miles Anita in Germany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 > Anita, I am now thinking I should postpone this until after I caome back from Mexico. I absolutely do not want to have any spasms there to ruin my holiday, especially since they have subsided for now it seems. I certainly do not want to provoke them to come back. Decisions, decisions...so confused... > Hallo! > > Saw this mesage and simply had to reply and just give my experience. I had a Botox > injection back in October. Was supposed to have the operation but shortly before surgery > time, my doctor told me he wanted to do some more testing. > > He gave me a Botox injection to get me through and as part of the diagnosis. > > Before the Botox, I used to have these spasms fairly sporadically, but when they came felt > like a heart attack. After the Botox I had such severe spasms (I was at home and out of > hospital) that we called emergency services thinking I was having a heart attack or had > Botox posioning (!!!) I was literally soaking in sweat, shaking, tingling in hands and feet, > gasping for breath, on the floor. A horrible experience. A call to my surgeon the next > morning confirmed it as a spasm induced by tthe Botox. That was the worst it got. For a > couple of weeks after, I got a couple every week - not nearly at that intensity though - and > then they eased off. Now I have one - very mild and only lasting a couple of minutes - > every 2-3 weeks. > > I'm not sure if this information is a help, but I just wanted to let you know my experience. > My surgeon told me this is a side-effect of a Botox or a dilation. The surgery will also > cause these spasms, which - he said - will in most cases ease after about 3 months. > > I am THANKFUL for the Botox in some ways, although I know it can makee the myotomy > more difficult. I went into hospital desperate, skinny, stressed and not too informed. I won > some time to do some research, contact this forum and make a well- informed decision > about the operation. > > All the best to you! > > Greetings across the miles > > Anita in Germany > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 Hallo ! I feel rotten that I've made you confused. I just wanted to tell you my experience with Botox. This is a tricky problem - maybe you will not be effected by it in the same way I was. As we see so often in this forum, what effects one person in one way effects another in a different way. The main thing is, that I just wasn't prepared for the spasms; I was terribly frightened, having no idea what was happening to me. Once I knew what it was, I was able to rationalise the pain. It was scary only when I didn't know what it was. Actually, it was probably more scary for my husband! Thinking of you and sending greetings across the miles Anita in Germany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 Hallo Anita all the way in Germany! Do not feel rotten, I am thankful for the honesty about your experience. I have already been going back and forth on the issue for a couple of weeks and now I'm down to the wire. I know everyone reacts differently and to go fully prepared is good. The spasms are the main reason for me right now if that could dissappear right away for a bit, I would be thrilled. But there is no way of knowing that and I will have to make that choice very very soon. I will be calling the doctor shortly to find out what kind of symptons are associated with it and how his other patients have reacted to this. Then I will make my final decision on whether to cancel or not and wait until I return from Mexico. I will let everyone know what he tells me. Thank you for your reply and honesty, it is the only way I can make an informed decision. all the way in Alberta, Canada > > Hallo ! > > I feel rotten that I've made you confused. I just wanted to tell you my experience with Botox. > This is a tricky problem - maybe you will not be effected by it in the same way I was. As we > see so often in this forum, what effects one person in one way effects another in a different > way. > > The main thing is, that I just wasn't prepared for the spasms; I was terribly frightened, having > no idea what was happening to me. Once I knew what it was, I was able to rationalise the > pain. It was scary only when I didn't know what it was. Actually, it was probably more scary > for my husband! > > Thinking of you and sending greetings across the miles > > Anita in Germany > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 Anita, How long after your Botox did you have the really severe spasms? My husband (with Diffuse Esophageal Spasm, a different motility disorder) has had 3 rounds of Botox injections. About 3 weeks after the second and third ones, he had some terribly severe spasms, like what you're describing. The last ones kept him in terrible pain (and unable to swallow) for about 26 hours straight! The doctors never really said that it was a side effect and I always wondered if he was the only one who had had this experience. I'm so glad the group has helped you to make a more informed decision about surgery! I wish you the best of luck! in Michigan > > Hallo! > > Saw this mesage and simply had to reply and just give my experience. I had a Botox > injection back in October. Was supposed to have the operation but shortly before surgery > time, my doctor told me he wanted to do some more testing. > > He gave me a Botox injection to get me through and as part of the diagnosis. > > Before the Botox, I used to have these spasms fairly sporadically, but when they came felt > like a heart attack. After the Botox I had such severe spasms (I was at home and out of > hospital) that we called emergency services thinking I was having a heart attack or had > Botox posioning (!!!) I was literally soaking in sweat, shaking, tingling in hands and feet, > gasping for breath, on the floor. A horrible experience. A call to my surgeon the next > morning confirmed it as a spasm induced by tthe Botox. That was the worst it got. For a > couple of weeks after, I got a couple every week - not nearly at that intensity though - and > then they eased off. Now I have one - very mild and only lasting a couple of minutes - > every 2-3 weeks. > > I'm not sure if this information is a help, but I just wanted to let you know my experience. > My surgeon told me this is a side-effect of a Botox or a dilation. The surgery will also > cause these spasms, which - he said - will in most cases ease after about 3 months. > > I am THANKFUL for the Botox in some ways, although I know it can makee the myotomy > more difficult. I went into hospital desperate, skinny, stressed and not too informed. I won > some time to do some research, contact this forum and make a well-informed decision > about the operation. > > All the best to you! > > Greetings across the miles > > Anita in Germany > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2007 Report Share Posted February 2, 2007 G'day ! It's 3 months ago now, but I remember the first extremely severe one was on my first night home, having had the Botox the day before. It lasted for a long time in the night. For the next couple of weeks I had more, but then they subsided fairly quickly, to the point where now I have one every 2-3 weeks. Short and sweet, they are now! (!!) I've followed some advice on this forum and find that cold water does the trick. I am now at least mentally prepared for the post-operation time. Hoping that will help me to steel myself physically should I get severe spasms then. Greetings across the miles Anita in Germany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2007 Report Share Posted February 2, 2007 Thanks everyone for the information on botox and nifediphine capsules. I have decided that I will go through with the injection today at 1pm. The doctor said this could be a side effect but there is no garantee. Since I already have 3-4 days of spasms happenning when they happen, why not. I will be asking my doctor for the nifediphine capsules today when I go, so I will be prepared and maybe take them with me to Mexico. > > > G'day ! > > It's 3 months ago now, but I remember the first extremely severe one was on my first night > home, having had the Botox the day before. It lasted for a long time in the night. For the next > couple of weeks I had more, but then they subsided fairly quickly, to the point where now I > have one every 2-3 weeks. Short and sweet, they are now! (!!) I've followed some advice on > this forum and find that cold water does the trick. > > I am now at least mentally prepared for the post-operation time. Hoping that will help me to > steel myself physically should I get severe spasms then. > > Greetings across the miles > > Anita in Germany > Quote Link to comment Share on other sites More sharing options...
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