Guest guest Posted November 9, 2006 Report Share Posted November 9, 2006 > > hello alan, i am doing better this week i have notice that my symptoms are coming back slowly i notice this morning i took a sip of tea and it would not go down it hurt real bad and i thought i was gonna have to throw up but it finially went down and sat. night my old pain came back i could not lay down for a while it woke me up about 1:00 that morning it finally went a way. i have not called my doctor i may and i may not i got me some cola syurp it did nothing for me the levsin has not helped me either so i dont know what to do now maybe i will talk to my doctor i dont know what i will do at the moment well i hope you are doing okay see ya patricia > Hi , I've just started reading these boards and thought I'd mention something that helps me with the pain. I carry a banana with me everywhere I go, and packets of crackers in the glove box. If I feel the pain starting to come on, I stop everything, sit quietly eating a banana, and I can usually head it off at the pass. It took me years to figure this out but it's such a relief. I used to cry and writh in pain from this and finally have a handle on it. Also, Prilosec doesn't really help me, but Ranitidine does (not sure of the brand name). I take 2 a day of the over the counter strength. Keep a banana by your bed at night, eat one perhaps before going to bed. This helps me with liquids aspirating in the middle of the night. I have had achalasia since I was 16 when I had a heller myotomy and still suffer with it at 42. Good luck. DeeDee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 It is with great pleasure that I have found this group. Considering I have found little pleasure, lately, thanks to Achalasia. To make a long story short....I started with trouble swallowing solids then liquids in May 2002, at the age of 39. After several upper endoscopies, barium swallow and esophageal mynometry testing, I was diagnosed with Achalasia. I had a Laparoscopic Heller myotomy and Nissen fundoplication in October 2002 at the Cleveland Clinic by Dr. Rice ( one night in hospital). I was relieved of symptoms for only 6 months. I have had 3 pneumatic (balloon) dilations since my surgery (the last one in 2005). I always know it is time for another dilation because I lose my appetite (often feeling nauseated just thinking of eating) and drop 5-10 pounds. Actually, I am going through one of those phases, now! I was at the Cleve. Clinic just last week-had another endoscopy, myometry testing and barium swallow. " Guess what! " , I was told. " You still have Achalasia! " It was kind of insulting. As if I didn't already know that I will have this condition all my life. Anyway, I am scheduled for a bougie dilation next week (different than a balloon dilation, less risk of perforating my esophagus, I have been told.) My gastroenterologist will be conferring with my surgeon soon. Have any of you had great success having a second myotomy, or fundoplication " taken down " , or even an esophagectomy? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2007 Report Share Posted January 15, 2007 I take Prilosec once a day and I have not had any issues with reflux. My first proceduer was done lapro and the second was done open. One of the reasons that the second operation was done open is it was done by a different doctor. You can read my whole story at my web site. www.achalasia.us. I have family that lives in Youngstown. The Cleveland Clinic is one of the best places to get our disease treated. If you have any other questions or even want to talk about what I have gone through feel free to e-mail or even call if you like. mt4mar@... or 478-971-7474 is my home number. in Georgia joncristino <joncristino@...> wrote: Hello, . My name is Jon. I live in a southwest suburb ofCleveland, Ohio, named Strongsville. So, a Heller redo w/o a wrapmade you so much better! Thanks for sharing. Do you have alot ofreflux without the stomach wrap? Was your first Heller laparoscopic?Also, did they have to do an open procedure for your second myotomy?Thanks, Jon.> It is with great pleasure that I have found this group.Considering I> have found little pleasure, lately, thanks to Achalasia. > To make a long story short....I started with trouble swallowing solids> then liquids in May 2002, at the age of 39. After several upper> endoscopies, barium swallow and esophageal mynometry testing, I was> diagnosed with Achalasia. I had a Laparoscopic Heller myotomy and> Nissen fundoplication in October 2002 at the Cleveland Clinic by Dr.> Rice ( one night in hospital). I was relieved of symptoms for> only 6 months. I have had 3 pneumatic (balloon) dilations since my> surgery (the last one in 2005). I always know it is time for another> dilation because I lose my appetite (often feeling nauseated just> thinking of eating) and drop 5-10 pounds. Actually, I am going> through one of those phases, now! I was at the Cleve. Clinic just> last week-had another endoscopy, myometry testing and barium swallow.> "Guess what!", I was told. "You still have Achalasia!" It was kind> of insulting. As if I didn't already know that I will have this> condition all my life. Anyway, I am scheduled for a bougie dilation> next week (different than a balloon dilation, less risk of perforating> my esophagus, I have been told.) My gastroenterologist will be> conferring with my surgeon soon. Have any of you had great success> having a second myotomy, or fundoplication "taken down", or even an> esophagectomy? > > > > > > > <FONT face="comic sans ms" color=#ff0000 size=5> in Georgia</FONT><IMGsrc=" ">> > ---------------------------------> Never miss an email again!> Toolbar alerts you the instant new Mail arrives. Check it out.><FONT face="comic sans ms" color=#ff0000 size=5> in Georgia </FONT><IMG src=" "> TV dinner still cooling?Check out "Tonight's Picks" on TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2007 Report Share Posted January 15, 2007 I had a nissen 9 years ago. I now need to have the nissen loosened and am planning on meeting with surgeons in NYC this Spring for the surgery redo. I have to say though that 9 years seems to be a pretty good stretch of time compared to some of the other posts I've seen and I've never had a dilation or anything. Of course, these days I have to drink at least a liter of water per meal! What my GI told me was that Nissens are not commonly done anymore because they tend to be too tight and that the Dor is the wrap of choice these days. I guess the only benefit to having the Nissen is that I have never had reflux and have never had to take anti-reflux meds. I am not looking forward to adding that to my routine after the redo. I'm only 31 and a lifetime of Prilosec seems very unappealing to me. Dayna > > Joncristino > > I had my surgery at CC too, in 2002, I've had 2 dilations done since both > were bougie, as those seem to work best with me. As far as the nissen, yes > some have and results with having the fundo taken down or switched to a > different type of fundo. Mine is a toupet, though I can't vomit anymore I > haven't had any other problems with it. My last operation was open since the > first one was botched by a doc that didn't know what he was doing. So far > I'm very pleased! There are tons of people on this site that are willing to > help and give you ideas!! > > > > C Warren > > Co-Founder > > www.achalasia.us > > From: achalasia [mailto:achalasia ] On Behalf > Of joncristino > Sent: Saturday, January 13, 2007 4:12 PM > achalasia > Subject: Achalasia > > > > It is with great pleasure that I have found this group. Considering I > have found little pleasure, lately, thanks to Achalasia. > To make a long story short....I started with trouble swallowing solids > then liquids in May 2002, at the age of 39. After several upper > endoscopies, barium swallow and esophageal mynometry testing, I was > diagnosed with Achalasia. I had a Laparoscopic Heller myotomy and > Nissen fundoplication in October 2002 at the Cleveland Clinic by Dr. > Rice ( one night in hospital). I was relieved of symptoms for > only 6 months. I have had 3 pneumatic (balloon) dilations since my > surgery (the last one in 2005). I always know it is time for another > dilation because I lose my appetite (often feeling nauseated just > thinking of eating) and drop 5-10 pounds. Actually, I am going > through one of those phases, now! I was at the Cleve. Clinic just > last week-had another endoscopy, myometry testing and barium swallow. > " Guess what! " , I was told. " You still have Achalasia! " It was kind > of insulting. As if I didn't already know that I will have this > condition all my life. Anyway, I am scheduled for a bougie dilation > next week (different than a balloon dilation, less risk of perforating > my esophagus, I have been told.) My gastroenterologist will be > conferring with my surgeon soon. Have any of you had great success > having a second myotomy, or fundoplication " taken down " , or even an > esophagectomy? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2007 Report Share Posted September 26, 2007 Kristi, I’m so glad that you found us. I’m sure you’ll get a lot of help here. in SF From: achalasia [mailto:achalasia ] On Behalf Of kristinajohnson243 Sent: Tuesday, September 25, 2007 5:50 PM achalasia Subject: achalasia I'm 39 and was diagnosed when i was 30. I have had dilatations, botox, and myotomy. Now I'm experiencing sinus tachy-brady syndrome, dizziness, chest pain, and syncope. My latest motility study showed non-functional or aperistaltic esophagus. Has anybody had vaso-vagal symptoms with there achalasia. I have an appt. with Dr. Kline at usc and Dr. DeMeester. Dr. DeMeester performs an esophagectomy by means of laparoscopy. I have a feeling that is what I'm going to need to get rid of symptoms. In cases anybody wonders heart has been totally checked out and I work for a heart surgeon in the OR so I'm all to familiar with the medical aspect of my condition. Thanks for any help someone can offer kristi Quote Link to comment Share on other sites More sharing options...
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