Re: Tia update and concerns

[Guest guest]

wrote:

Notan, I too hope you get some answers.

Thanks.

on and off for the last week she has been

complaining of a stomach ache and occasional sore throat. She say's

it's not acid reflux.

It may or may not be. Try giving her some Tums or other antacid and see

if the discomfort is reduced. They tend to work quickly, although not

always completely, so it is easy to see if they are doing something. If

they do help, at all, then it is likely she has an issue with acid.

Even so there could be more to it such as esophagitis. So either way I

would call and ask the doctor about it.

She gets mad if I mention acid reflux,

because as she told me, "I'm never

taking Prevacid again".

I will be taking Nexium or another until I get my problem taken care or

perhaps forever. Wish I didn't have too, but not a big deal.

Should I be calling the doctor to get her examed?

The pains may be one of those things we call spasms. In time you may

find it is something "normal" for her. We are all different so what is

normal for some of us is not for others. In time you will know what is

normal for her. Right now you don't know so I would check these kind of

things out in case they are something. In time you will know and it

will be easier on both of you. It is kind of like having the manometry.

Relax it won't always be like this. It will get better.

Things were bad, but I got better. I am again waiting for things to get

better. They will get better. Life is like that, with or without

achalasia.

notan

[Guest guest]

,

Hope you get some answers soon, Tia sounds like a little love.

Notan,

you said

Things were bad, but I got better. I am again waiting for things

to get better. They will get better. Life is like that, with or

without achalasia.

What an inspiration you are, will go forward with this message in my

heart.

Hoping you also get some answers soon.

Lynda x (UK)

[Guest guest]

Hello Brave Tia!

I think it is wonderful news that you can swallow all types of food without

problems. That

- for us Achalasians - is something sooooo special. I hope I'll be able to do

that one day.

The news that you can do it encourages me.

Do you know, before I was diagnosed, and up to my Botox injection I was so very

thin,

could only drink liquids or eat very mushy food. Then, after the injection,

which allowed

me to swallow much more easily, I had such problems with my stomach. It had

grown so

tiny and was not used to any amounts of chewed food. It took me over two months

to get

my insides back to normal. And I had terrible constipation, stomach ache, gas

(yikes!). I

was scared about the stomach aches and had they continued much longer I would

immediately have gone to a doctor. I have a very understanding and rational

husband who

told me to be patient, who pointed out to me that this was all normal after

months of a

liquid diet. My stomach had to learn to work again. Only now - 10 weeks after

the

injection! - do I feel strong and feel good. And for the first time in ages,

other people -

besides my lovely family - are telling me I look better. I have even put on 4

kilos!

You had surgery, which in itself takes a long time to recover from.

You must go and see your doctor or at least talk to your doctor if you have

pains. They'll

be able to check things out. I think this is important, especially as your

surgery was only a

short while back.

I'm sure you will get better, Tia.

I'm thinking of you across the miles!

Anita in Germany

[Guest guest]

Dear & li'l Tia,

Glad to hear that Tia can swallow almost every food now and mangaes to

keep it down. This is really a great and encouraging news!! Weel done

Tia!!

Looking pale and tired is quiet normal for Achalasians before and soon

after the surgery, but this also goes away with time. I had my lap HM

and dor fundo in July last year and 5 months down the line, luckily, I

feel really great. Like Tia, I also can eat almost everything, and

sometimes even without a drink by my side. However I still looked weak

and pale until a few weeks ago. Recently only friends have strated

telling me that I look a lot better now. I also feel more energetic

myself. So I am sure Tia will be the same in a few weeks time.

Regarding the stomach aches, I too get them some times even today.

That's usually when I haven't eaten properly for a few hours or have

eaten something that causes gas formation (Yuk!!). I even feel a bit

pain in my E, something like spasms, but they don't last long. I think

that, even after surgery, we Achalasians need to eat small portions of

food more often, rather than 3 large meals (like normal people). Tia,

I'd suggest you to do the same for few months at least. I am sure

these pains will also become a thing of the past.

Considering Tia's age, like other people on this group, I'd also

suggest setting up a meeting with her Drs. If it is acid, they might

suggest some alternatives to Prevacid.

Hope this helps!!

Good luck for a speedy recovery Tia!!

Happy New Year to all!

Love & Hugs from across the miles,

Preeti in Hampshire (England)

>

> Hi Everyone,

>

> Notan, I too hope you get some answers.

>

> I don't think I should have logged onto our group tonight. Reading

the messages about how some of the members who have already gone

through surgery and are now having more complications with other

health issues in life is too much for me to read tonight. I truly wish

the best for all of you. It is just so unfair that one person has to

go through so much.

>

> One of the reason's I'm a little down is our local newspaper ran

an article on Tia today. I should be happy, it is a very nice article.

But, I think everything is too fresh and it opened up some wounds that

were not yet fully closed. Many people contacted me or my parents to

express care and happiness that Tia is doing well.

>

> Knowing that achalasia is a life time disease for Tia is very

unsettling. Not knowing when the next issue with it is going to happen

frightens me.

>

> Tia is able to swallow almost all food with no problem. Her father

and I have been observing that she still is eating very small amounts

and not enough healthy food. Many friends have been commenting on how

pale and tired she looks. I got a new mulit vitamin with iron to help

with this. She is no longer taking her prevacid. However, on and off

for the last week she has been complaining of a stomach ache and

occasional sore throat. She say's it's not acid reflux. She gets mad

if I mention acid reflux, because as she told me, " I'm never taking

Prevacid again " .

>

> We went out to dinner tonight and she was sitting with her knees

drawn up crying that her middle to upper stomach hurt. This was before

we ate. She felt a little better after she let out some gas. Yes, my

little princess thought this was hillarious!

>

> So any advice on the stomach aches? Would going back on prevacid

be the cure? I'm still trying to learn about all of this. I'm not sure

if acid reflux and gas or the same thing, related or totally

different. I'm not too concerned with the paleness and her being

tired. I'm assuming this is totally normal considering how much she

went through for months before surgery. Right??

>

> Should I be calling the doctor to get her examed?

>

> I will appreciate any advice. I'm sure Tia will listen to you

all before she takes my advice! Her surgery was almost 2 months ago,

she had the laproscopic heller myotomy with dor fundoplication. She is

9 years old.

>

> Once again, thanks for being here for me and letting me vent. I

look forward to hearing from you.

>

> Happy New Year!

>

> Sequim, WA (Very NW on the Olympic Peninsula)

>

> __________________________________________________

>

[Guest guest]

and Tia,

Although I'm sure it is quite frustrating to continue to have these issues, it should continue to improve. It took several months after my myotomy

to feel more normal. I certainly had stomach aches. Most of the time, I could attribute these to eating too much at one sitting or eating a food

(meat, bread...) that I had not had for some time. My stomach, I believe, was simply pushed too far too fast from the limited diet to which it had

become accustomed. Also, the wrap must have further shrunk my stomach. The pain would be quite bad and I found I had to walk, walk, walk to

try to get some relief - no idea why that helped. Maybe it didn't, but it seemed to be the only thing I could do and not exacerbate the pain. The

good news is that that all resolved several months post surgery. Another possibility, of course, as has been mentioned, is that Tia is having

some spasms. Spasms too can be quite painful and each of us seems to experience them slightly differently. For me, again, these have all but

resolved, especially once I had made it several months after the surgery.

Tia - hang in there sweetie - it really should continue to get better. You are such a brave little girl!

(in Ohio)

From: achalasia [mailto:achalasia ] On Behalf Of BourmSent: Thursday, January 04, 2007 1:10 AMachalasia Subject: Tia update and concerns

Hi Everyone,

Notan, I too hope you get some answers.

I don't think I should have logged onto our group tonight. Reading the messages about how some of the members who have already gone through surgery and are now having more complications with other health issues in life is too much for me to read tonight. I truly wish the best for all of you. It is just so unfair that one person has to go through so much.

One of the reason's I'm a little down is our local newspaper ran an article on Tia today. I should be happy, it is a very nice article. But, I think everything is too fresh and it opened up some wounds that were not yet fully closed. Many people contacted me or my! parents to express care and happiness that Tia is doing well.

Knowing that achalasia is a life time disease for Tia is very unsettling. Not knowing when the next issue with it is going to happen frightens me.

Tia is able to swallow almost all food with no problem. Her father and I have been observing that she still is eating very small amounts and not enough healthy food. Many friends have been commenting on how pale and tired she looks. I got a new mulit vitamin with iron to help with this. She is no longer taking her prevacid. However, on and off for the last week she has been complaining of a stomach ache and occasional sore throat. She say's it's not acid reflux. She gets mad if I mention acid reflux, because as she told me, "I'm never taking Prevacid again".

We went out to dinner tonight and she was sitting with her knees drawn up crying that her middle to upper stomach hurt. This was before we ate. She felt a little better after she let out some gas. Yes, my little princess thought this was hillarious!

So any advice on the stomach aches? Would going back on prevacid be the cure? I'm still trying to learn about all of this. I'm not sure if acid reflux and gas or the same thing, related or totally different. I'm not too concerned with the paleness and her being tired. I'm assuming this is totally normal considering how much she went through for months befor! e surgery. Right??

Should I be calling the doctor to get her examed?

I will appreciate any advice. I'm sure Tia will listen to you all before she takes my advice! Her surgery was almost 2 months ago, she had the laproscopic heller myotomy with dor fundoplication. She is 9 years old.

Once again, thanks for being here for me and letting me vent. I look forward to hearing from you.

Happy New Year!

Sequim, WA (Very NW on the Olympic Peninsula)

__________________________________________________