Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 Ann Higgs wrote: Do YOU take a PPI? I do not. I was told that unless I have heart burn that I shouldn't need them, but if I have any heart burn to get it checked fast. This is one of those areas where it is hard to know what is best. As we know, if you have achalasia you may not have any heart burn even when there is significant reflux. I have a fundoplication so if it is working things should be good, but there is no guarantee. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 I too have a wrap, but from what I have seen in the Group, there is such a variance between the outcomes of surgery, wraps too slack, wraps too tight, extra dilatations after surgery needed to break missed or rejoined fibres, the cut not going far enough down or up, etc. that I get the impression that it is extremely difficult to get everything precisely right. I would be interested to know the opinions on PPIs from others in the Group. I think you made a good point about achalasians having difficulty identifying heartburn. I am presuming that you are saying that because the nerves there are so useless, they do not always recognise acid reflux? Also I believe it is easy to confuse heartburn and spasm sensations? You are far better educated about our disorder than I am. I hope you can make some sense of the questions I am raising? As a matter of interest, I HAVE found that if I do not take my medication, I do experience what feels like mild heartburn. notan ostrich <notan_ostrich@...> wrote: Ann Higgs wrote: Do YOU take a PPI?I do not. I was told that unless I have heart burn that I shouldn't need them, but if I have any heart burn to get it checked fast. This is one of those areas where it is hard to know what is best. As we know, if you have achalasia you may not have any heart burn even when there is significant reflux. I have a fundoplication so if it is working things should be good, but there is no guarantee. notan Send instant messages to your online friends http://uk.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 Ann Higgs wrote: I think you made a good point about achalasians having difficulty identifying heartburn. I am presuming that you are saying that because the nerves there are so useless, they do not always recognise acid reflux? Yes, and it works two ways. You could have bad reflux and not have pain or you could have something like distention and it feel like heartburn. Another thing is that we can become overly sensitive to acid, so a little acid in food produces pain when it shouldn't. The scary one though is that we don't feel it when we have bad reflux. Also I believe it is easy to confuse heartburn and spasm sensations? Yes. .... I HAVE found that if I do not take my medication, I do experience what feels like mild heartburn. It likely is heartburn if the medication helps. I don't take anything for reflux but if I drink something like Coke or lemonade I can feel a mild burn from the acid. If I then take a little antacid the burn goes away. This makes me think that I am sensitive to the acid but that in general there is no acid there to feel, so no reflux. Still, I do intend to have it checked sometime, but I am in no rush. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2006 Report Share Posted November 12, 2006 Dear Notan, In your opinion and to your knowledge, once that someone has been definitively diagnosed with achalasia, is there any need to ever have a manometry test again? (Blimey Notan, we talk to you as if you are an eminent specialist, which to most of us, you are.) From Ann (totally uneminent) xx Send instant messages to your online friends http://uk.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2006 Report Share Posted November 16, 2006 Notan , Thanks.. I had said you " dr " only out of admiration.. We all know how much deep study you have done in achalasia and this always reflects in your replies to various questions asked by all..thanks again for your valuable support For all on this board.. Mukesh Re: Re: Speech therapy Mukesh Shah wrote: > Has anyone advised you for this speech therapy to regain muscle strength ? > It is not typically done for achalasia. It is done for other diseases like Parkinson's or stroke. For achalasia there is no getting around the nerve damage that controls the muscles. > May be our Dr.Notan can guide us !! > I have no training in medicine. Please don't confuse people about that. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2007 Report Share Posted January 3, 2007 Anita wrote: > ... I have been diagnosed with Achalasia, hiatal hernia and Barrett's > esophagus, so I'm really a rare case. > Yes, I would say you have had some bad luck too. If I remember correctly you have not had a myotomy. If you have a hernia when having the myotomy they would fix the hernia at the same time. Otherwise usually a typical hiatal hernia does not need to be fixed. Thank-you for the good wish. notan Quote Link to comment Share on other sites More sharing options...
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