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I have a pain in my esophagus most of the time and I am on Nexium, nothing seems to help the pain. I am considering surgery now, but I am scared, you hear the good & the bad on both sides. le Jo Blauer <capmyjo@...> wrote: I am another in the group who does not have a wrap, but will take Prevacid for life. , I know you said you didn't have NCCP's while taking Prilosec, but I still deal with the pain which increases with stress. Caroline, chewing gum really does

help me (and this fifty-three year old Grandmother can make some great bubbles LOL!)For Pippa and others facing Myotomy, I know the procedure has been a lifesaver for me. I no longer race for the bathroom after eating, feel like I am drowning in my sleep or aspirate causing asthma-like symptoms. I truly feel nearly "normal". I do still have two glasses of water with most meals, and tire easily, and I often have an ache in my esophagus that others on this board don't seem to have, but I still feel like a new person. I would have the surgery again in a heartbeat if faced with the same choices. Jo

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Jo,

Its always good to hear from you. I'm sorry to hear that while you do take Prevacid that you experience the NCCP's. Its worthy of another mention that we are all different with the same disease and what benefits one receives from a surgery or medication may not be the same for another person. I had the wrap done (which may be a reason for my overall troubles today), while you did not, which may account for your being able to get through meals with only a couple of glasses of water. I require an "unlimited" amount of soda to get through a meal.

My doctor never explained to me why the prilosec stopped the spasms, it just did. One never argues with success. That was over 10 years ago. Last night I had a particularly painful attack. Nifedipine, soda, aspirin, nothing seemed to stop the pain, which was climbing the scale. Usually I can handle it quite effectively. This morning I feel like last night never happened.

I share Jo's sentiments about having the surgery. For what is presently known about dealing with the disease, it is the best alternative.

In a message dated 9/19/2006 12:12:46 A.M. Eastern Standard Time, capmyjo@... writes:

I am another in the group who does not have a wrap, but will take Prevacid for life. , I know you said you didn't have NCCP's while taking Prilosec, but I still deal with the pain which increases with stress. Caroline, chewing gum really does help me (and this fifty-three year old Grandmother can make some great bubbles LOL!)For Pippa and others facing Myotomy, I know the procedure has been a lifesaver for me. I no longer race for the bathroom after eating, feel like I am drowning in my sleep or aspirate causing asthma-like symptoms. I truly feel nearly "normal". I do still have two glasses of water with most meals, and tire easily, and I often have an ache in my esophagus that others on this board don't seem to have, but I still feel like a new person. I would have the surgery again in a heartbeat if faced with the same choices. Jo

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Thank you Jo for your kind words regarding my surgery it gives

me posotivity to know that so many people have benifited from this

surgery here is hoping I follow with the same.

With regards to the discomfort and breathing problems I get them too

but didn't put the breathing problems down to the A until just very

recently when I noticed others in the group mentioning it.

Pippa X

>

> I am another in the group who does not have a wrap, but will take

> Prevacid for life. , I know you said you didn't have NCCP's

> while taking Prilosec, but I still deal with the pain which

increases

> with stress. Caroline, chewing gum really does help me (and this

fifty-

> three year old Grandmother can make some great bubbles LOL!)

>

> For Pippa and others facing Myotomy, I know the procedure has been

a

> lifesaver for me. I no longer race for the bathroom after eating,

feel

> like I am drowning in my sleep or aspirate causing asthma-like

> symptoms. I truly feel nearly " normal " . I do still have two

glasses of

> water with most meals, and tire easily, and I often have an ache

in

> my esophagus that others on this board don't seem to have, but I

> still feel like a new person. I would have the surgery again in a

> heartbeat if faced with the same choices.

>

> Jo

>

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What are NCCP's? All these abbreviations are confusing.

From: achalasia [mailto:achalasia ] On Behalf Of le BeechSent: Monday, September 18, 2006 11:37 PMachalasia Subject: Re: No Wrap/Prevacid

I have a pain in my esophagus most of the time and I am on Nexium, nothing seems to help the pain.

I am considering surgery now, but I am scared, you hear the good & the bad on both sides.

le Jo Blauer <capmyjo > wrote:

I am another in the group who does not have a wrap, but will take Prevacid for life. , I know you said you didn't have NCCP's while taking Prilosec, but I still deal with the pain which increases with stress. Caroline, chewing gum really does help me (and this fifty-three year old Grandmother can make some great bubbles LOL!)For Pippa and others facing Myotomy, I know the procedure has been a lifesaver for me. I no longer race for the bathroom after eating, feel like I am drowning in my sleep or aspirate causing asthma-like symptoms. I truly feel nearly "normal". I do still have two glasses of water with most meals, and tire easily, and I often have an ache in my esophagus that others on this board don't seem to have, but I still feel like a new person. I would have the surgery again in a heartbeat if faced with the same choices. Jo

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Non Cardiac Chest Pains, these are spasms of the E, that feel

like cardiac pain but arenโ€™t!

C Warren

Co-Founder

www.achalasia.us

From:

achalasia [mailto:achalasia ] On Behalf Of

Flynn

Sent: Tuesday, September 19, 2006 1:02 PM

achalasia

Subject: RE: No Wrap/Prevacid

What are NCCP's? All these abbreviations are confusing.

From: achalasia [mailto:achalasia ]

On Behalf Of le Beech

Sent: Monday, September 18, 2006 11:37 PM

achalasia

Subject: Re: No Wrap/Prevacid

I have a pain in my esophagus most of the time and I am on

Nexium, nothing seems to help the pain.

I am considering surgery now, but I am scared, you hear the

good & the bad on both sides.

le Jo Blauer <capmyjo@...>

wrote:

I am another in the group who

does not have a wrap, but will take

Prevacid for life. , I know you said you didn't have NCCP's

while taking Prilosec, but I still deal with the pain which increases

with stress. Caroline, chewing gum really does help me (and this fifty-

three year old Grandmother can make some great bubbles LOL!)

For Pippa and others facing Myotomy, I know the procedure has been a

lifesaver for me. I no longer race for the bathroom after eating, feel

like I am drowning in my sleep or aspirate causing asthma-like

symptoms. I truly feel nearly " normal " . I do still have two glasses

of

water with most meals, and tire easily, and I often have an ache in

my esophagus that others on this board don't seem to have, but I

still feel like a new person. I would have the surgery again in a

heartbeat if faced with the same choices.

Jo

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NCCP's is Non Cardiac Chest Pains. Any pain in the chest not related to the heart is put in this catigory. I see Maggie has filled in the other question about Joan. You should not have to fight to get food down and that is why the surgery is needed. You will be better off after the surgery. As for not being able to eat or drink. Yes many of us do get to a point where liquids cannot even pass into the stomach. I have been there several times and it is no fun at all to be in that position. That is why I had the surgery it was nessesary so that I would not starve or get dehydrated. in Georgia. Flynn <hflynn3@...> wrote: What are NCCP's? All these abbreviations are confusing. From: achalasia [mailto:achalasia ] On Behalf Of le BeechSent: Monday, September 18, 2006 11:37 PMachalasia Subject: Re: No Wrap/Prevacid I have a pain in my esophagus most of the time and I am on Nexium, nothing seems to help the pain. I am considering

surgery now, but I am scared, you hear the good & the bad on both sides. le Jo Blauer <capmyjo > wrote: I am another in the group who does not have a wrap, but will take Prevacid for life. , I know you said you didn't have NCCP's while taking Prilosec, but I still deal with the pain which increases with stress. Caroline, chewing gum really does help me (and this fifty-three year old Grandmother can make some great bubbles LOL!)For Pippa and others facing Myotomy, I know the procedure has been a lifesaver for me. I no longer race for the bathroom after eating, feel like I am drowning in my sleep or aspirate causing asthma-like symptoms. I truly feel nearly "normal". I do still have two glasses of water with most meals, and tire easily, and I often

have an ache in my esophagus that others on this board don't seem to have, but I still feel like a new person. I would have the surgery again in a heartbeat if faced with the same choices. Jo <FONT face="comic sans ms" color=#ff0000 size=5> in Georgia </FONT><IMG

src=" 04.gif">

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Thanks maggie for finding that post of Joan. I did not mean to stir up anything bad. in GeorgiaLunaIam2@... wrote: Hello hflynn3earthlink (DOT) net, In reference to your comment: What are NCCP's? All these abbreviations are confusing. NCCP = Non cardiac chest pains....also referred to here as spasms. Maggie <FONT face="comic sans ms" color=#ff0000 size=5> in Georgia </FONT><IMG

src=" 04.gif">

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How bad should one get before having the surgery?

From: achalasia [mailto:achalasia ] On Behalf Of Mueller IVSent: Tuesday, September 19, 2006 10:37 AMachalasia Subject: RE: No Wrap/Prevacid

NCCP's is Non Cardiac Chest Pains. Any pain in the chest not related to the heart is put in this catigory. I see Maggie has filled in the other question about Joan. You should not have to fight to get food down and that is why the surgery is needed. You will be better off after the surgery. As for not being able to eat or drink. Yes many of us do get to a point where liquids cannot even pass into the stomach. I have been there several times and it is no fun at all to be in that position. That is why I had the surgery it was nessesary so that I would not starve or get dehydrated.

in Georgia. Flynn <hflynn3earthlink (DOT) net> wrote:

What are NCCP's? All these abbreviations are confusing.

From: achalasia [mailto:achalasia ] On Behalf Of le BeechSent: Monday, September 18, 2006 11:37 PMachalasia Subject: Re: No Wrap/Prevacid

I have a pain in my esophagus most of the time and I am on Nexium, nothing seems to help the pain.

I am considering surgery now, but I am scared, you hear the good & the bad on both sides.

le Jo Blauer <capmyjo > wrote:

I am another in the group who does not have a wrap, but will take Prevacid for life. , I know you said you didn't have NCCP's while taking Prilosec, but I still deal with the pain which increases with stress. Caroline, chewing gum really does help me (and this fifty-three year old Grandmother can make some great bubbles LOL!)For Pippa and others facing Myotomy, I know the procedure has been a lifesaver for me. I no longer race for the bathroom after eating, feel like I am drowning in my sleep or aspirate causing asthma-like symptoms. I truly feel nearly "normal". I do still have two glasses of water with most meals, and tire easily, and I often have an ache in my esophagus that others on this board don't seem to have, but I still feel like a new person. I would have the surgery again in a heartbeat if faced with the same choices. Jo

<FONT face="comic sans ms" color=#ff0000 size=5> in Georgia </FONT><IMG src=" 04.gif">

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, it is better to get things taken care of right off the bat. If you wait till it progresses to a point where removal is the only option then you are facing a major surgery. You also need to look at your quality of life. What are you realy willing to put up with? At some point you might get frustrated at just getting by and going in every so often to get a dilation or something. I would like to talk to you over the phone if you are willing. You can call me or I can call you. My home number is 478-971-7474 in Georgia Flynn <hflynn3@...> wrote: How bad should one get before having the surgery? From: achalasia [mailto:achalasia ] On Behalf Of Mueller IVSent: Tuesday, September 19, 2006 10:37 AMachalasia Subject: RE: No Wrap/Prevacid NCCP's is Non Cardiac Chest Pains. Any pain in the chest not related to the heart is put in this catigory. I see Maggie has filled in the other question about Joan. You should not have to fight to get food down and that

is why the surgery is needed. You will be better off after the surgery. As for not being able to eat or drink. Yes many of us do get to a point where liquids cannot even pass into the stomach. I have been there several times and it is no fun at all to be in that position. That is why I had the surgery it was nessesary so that I would not starve or get dehydrated. in Georgia. Flynn <hflynn3earthlink (DOT) net> wrote: What are NCCP's? All these abbreviations are confusing. From:

achalasia [mailto:achalasia ] On Behalf Of le BeechSent: Monday, September 18, 2006 11:37 PMachalasia Subject: Re: No Wrap/Prevacid I have a pain in my esophagus most of the time and I am on Nexium, nothing seems to help the pain. I am considering surgery now, but I am scared, you hear the good & the bad on both sides. le Jo Blauer <capmyjo > wrote: I am another in the group who does not have a wrap, but will take Prevacid for life. , I know you said you didn't have NCCP's while taking Prilosec, but I still deal with the pain which increases with stress. Caroline, chewing

gum really does help me (and this fifty-three year old Grandmother can make some great bubbles LOL!)For Pippa and others facing Myotomy, I know the procedure has been a lifesaver for me. I no longer race for the bathroom after eating, feel like I am drowning in my sleep or aspirate causing asthma-like symptoms. I truly feel nearly "normal". I do still have two glasses of water with most meals, and tire easily, and I often have an ache in my esophagus that others on this board don't seem to have, but I still feel like a new person. I would have the surgery again in a heartbeat if faced with the same choices. Jo <FONT face="comic sans ms" color=#ff0000 size=5> in Georgia </FONT><IMG

src=" 04.gif"> Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1ยข/min. <FONT face="comic sans ms" color=#ff0000 size=5> in Georgia </FONT><IMG

src=" 04.gif">

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I will call you very soon. What time zone are you in? On the scale of major surgeries, open heart, prostate removal, gall bladders, where does the myotomy rank? Thanks for your help and friendship.

From: achalasia [mailto:achalasia ] On Behalf Of Mueller IVSent: Tuesday, September 19, 2006 11:47 AMachalasia Subject: RE: No Wrap/Prevacid

, it is better to get things taken care of right off the bat. If you wait till it progresses to a point where removal is the only option then you are facing a major surgery. You also need to look at your quality of life. What are you realy willing to put up with? At some point you might get frustrated at just getting by and going in every so often to get a dilation or something. I would like to talk to you over the phone if you are willing. You can call me or I can call you. My home number is 478-971-7474

in Georgia Flynn <hflynn3earthlink (DOT) net> wrote:

How bad should one get before having the surgery?

From: achalasia [mailto:achalasia ] On Behalf Of Mueller IVSent: Tuesday, September 19, 2006 10:37 AMachalasia Subject: RE: No Wrap/Prevacid

NCCP's is Non Cardiac Chest Pains. Any pain in the chest not related to the heart is put in this catigory. I see Maggie has filled in the other question about Joan. You should not have to fight to get food down and that is why the surgery is needed. You will be better off after the surgery. As for not being able to eat or drink. Yes many of us do get to a point where liquids cannot even pass into the stomach. I have been there several times and it is no fun at all to be in that position. That is why I had the surgery it was nessesary so that I would not starve or get dehydrated.

in Georgia. Flynn <hflynn3earthlink (DOT) net> wrote:

What are NCCP's? All these abbreviations are confusing.

From: achalasia [mailto:achalasia ] On Behalf Of le BeechSent: Monday, September 18, 2006 11:37 PMachalasia Subject: Re: No Wrap/Prevacid

I have a pain in my esophagus most of the time and I am on Nexium, nothing seems to help the pain.

I am considering surgery now, but I am scared, you hear the good & the bad on both sides.

le Jo Blauer <capmyjo > wrote:

I am another in the group who does not have a wrap, but will take Prevacid for life. , I know you said you didn't have NCCP's while taking Prilosec, but I still deal with the pain which increases with stress. Caroline, chewing gum really does help me (and this fifty-three year old Grandmother can make some great bubbles LOL!)For Pippa and others facing Myotomy, I know the procedure has been a lifesaver for me. I no longer race for the bathroom after eating, feel like I am drowning in my sleep or aspirate causing asthma-like symptoms. I truly feel nearly "normal". I do still have two glasses of water with most meals, and tire easily, and I often have an ache in my esophagus that others on this board don't seem to have, but I still feel like a new person. I would have the surgery again in a heartbeat if faced with the same choices. Jo

<FONT face="comic sans ms" color=#ff0000 size=5> in Georgia </FONT><IMG src=" 04.gif">

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1ยข/min.

<FONT face="comic sans ms" color=#ff0000 size=5> in Georgia </FONT><IMG src=" 04.gif">

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Where are you at? I am in the Eastern Day light time. Well, the myotomy is not as bad a open heart surgery. If you have th myotomy lapro I think it would compair to a gall bladder surgery. An open myotomy would be about the same but now you have to deal with a larger insision and the discomfort that that comes with it. I will have to say my lapro myotomy was not bad at all. My open redo myotomy was not to bad wither but I did feel like I had done 500 sit-ups in one day. My stomach was weak for a few weeks. I was really careful for many months after about how much I was lifting and stuff. I would realy take it slow when lifting anything and if I felt any discomfort I did not continue lifting. I think it would be good for you to talk to someone either in person or by phone. That adds a little more impact then just reading it on the site here. Pluss you can ask questions

and get answers in a better time line sort of way. You are welcome to call anytime and talk about this or anything. in Georgia. Flynn <hflynn3@...> wrote: I will call you very soon. What time zone are you in? On the scale of major surgeries, open heart, prostate removal, gall bladders, where does the myotomy rank? Thanks for your help and

friendship. From: achalasia [mailto:achalasia ] On Behalf Of Mueller IVSent: Tuesday, September 19, 2006 11:47 AMachalasia Subject: RE: No Wrap/Prevacid , it is better to get things taken care of right off the bat. If you wait till it progresses to a point where removal is the only option then you are facing a major surgery. You also need to look at your quality of life. What are you realy willing to put up with? At some point you might get frustrated at just getting by and going in every so often to get a dilation or something. I would like to talk to you over the phone if you are willing. You can call

me or I can call you. My home number is 478-971-7474 in Georgia Flynn <hflynn3earthlink (DOT) net> wrote: How bad should one get before having the surgery? From: achalasia [mailto:achalasia ] On Behalf Of Mueller IVSent: Tuesday, September 19, 2006 10:37 AMachalasia Subject: RE: No Wrap/Prevacid NCCP's is Non Cardiac Chest Pains. Any pain in the

chest not related to the heart is put in this catigory. I see Maggie has filled in the other question about Joan. You should not have to fight to get food down and that is why the surgery is needed. You will be better off after the surgery. As for not being able to eat or drink. Yes many of us do get to a point where liquids cannot even pass into the stomach. I have been there several times and it is no fun at all to be in that position. That is why I had the surgery it was nessesary so that I would not starve or get dehydrated. in Georgia. Flynn <hflynn3earthlink (DOT) net> wrote: What are NCCP's? All these abbreviations

are confusing. From: achalasia [mailto:achalasia ] On Behalf Of le BeechSent: Monday, September 18, 2006 11:37 PMachalasia Subject: Re: No Wrap/Prevacid I have a pain in my esophagus most of the time and I am on Nexium, nothing seems to help the pain. I am considering surgery now, but I am scared, you hear the good & the bad on both sides. le Jo Blauer <capmyjo > wrote: I am another in the group who does not have a wrap, but will take Prevacid for

life. , I know you said you didn't have NCCP's while taking Prilosec, but I still deal with the pain which increases with stress. Caroline, chewing gum really does help me (and this fifty-three year old Grandmother can make some great bubbles LOL!)For Pippa and others facing Myotomy, I know the procedure has been a lifesaver for me. I no longer race for the bathroom after eating, feel like I am drowning in my sleep or aspirate causing asthma-like symptoms. I truly feel nearly "normal". I do still have two glasses of water with most meals, and tire easily, and I often have an ache in my esophagus that others on this board don't seem to have, but I still feel like a new person. I would have the surgery again in a heartbeat if faced with the same choices. Jo <FONT face="comic sans ms" color=#ff0000 size=5> in Georgia </FONT><IMG src=" 04.gif"> Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1ยข/min. <FONT face="comic sans ms" color=#ff0000 size=5> in Georgia </FONT><IMG src=" 04.gif"> Get your own web address for just $1.99/1st yr. We'll help. Small Business. <FONT face="comic sans ms" color=#ff0000 size=5> in Georgia </FONT><IMG src=" 04.gif">

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I will get to you. I am in Southern California, so it may be a little late to call you now. Thanks for your friendship. As far as activity is concerned, I am curious about how soon one can resume physical activities after the lapro. I do a lot of public speaking, recording for a radio program, and playing a brass instrument. How long would I have to be off that activity?

From: achalasia [mailto:achalasia ] On Behalf Of Mueller IVSent: Tuesday, September 19, 2006 2:22 PMachalasia Subject: RE: No Wrap/Prevacid

Where are you at? I am in the Eastern Day light time. Well, the myotomy is not as bad a open heart surgery. If you have th myotomy lapro I think it would compair to a gall bladder surgery. An open myotomy would be about the same but now you have to deal with a larger insision and the discomfort that that comes with it. I will have to say my lapro myotomy was not bad at all. My open redo myotomy was not to bad wither but I did feel like I had done 500 sit-ups in one day. My stomach was weak for a few weeks. I was really careful for many months after about how much I was lifting and stuff. I would realy take it slow when lifting anything and if I felt any discomfort I did not continue lifting.

I think it would be good for you to talk to someone either in person or by phone. That adds a little more impact then just reading it on the site here. Pluss you can ask questions and get answers in a better time line sort of way.

You are welcome to call anytime and talk about this or anything.

in Georgia. Flynn <hflynn3earthlink (DOT) net> wrote:

I will call you very soon. What time zone are you in? On the scale of major surgeries, open heart, prostate removal, gall bladders, where does the myotomy rank? Thanks for your help and friendship.

From: achalasia [mailto:achalasia ] On Behalf Of Mueller IVSent: Tuesday, September 19, 2006 11:47 AMachalasia Subject: RE: No Wrap/Prevacid

, it is better to get things taken care of right off the bat. If you wait till it progresses to a point where removal is the only option then you are facing a major surgery. You also need to look at your quality of life. What are you realy willing to put up with? At some point you might get frustrated at just getting by and going in every so often to get a dilation or something. I would like to talk to you over the phone if you are willing. You can call me or I can call you. My home number is 478-971-7474

in Georgia Flynn <hflynn3earthlink (DOT) net> wrote:

How bad should one get before having the surgery?

From: achalasia [mailto:achalasia ] On Behalf Of Mueller IVSent: Tuesday, September 19, 2006 10:37 AMachalasia Subject: RE: No Wrap/Prevacid

NCCP's is Non Cardiac Chest Pains. Any pain in the chest not related to the heart is put in this catigory. I see Maggie has filled in the other question about Joan. You should not have to fight to get food down and that is why the surgery is needed. You will be better off after the surgery. As for not being able to eat or drink. Yes many of us do get to a point where liquids cannot even pass into the stomach. I have been there several times and it is no fun at all to be in that position. That is why I had the surgery it was nessesary so that I would not starve or get dehydrated.

in Georgia. Flynn <hflynn3earthlink (DOT) net> wrote:

What are NCCP's? All these abbreviations are confusing.

From: achalasia [mailto:achalasia ] On Behalf Of le BeechSent: Monday, September 18, 2006 11:37 PMachalasia Subject: Re: No Wrap/Prevacid

I have a pain in my esophagus most of the time and I am on Nexium, nothing seems to help the pain.

I am considering surgery now, but I am scared, you hear the good & the bad on both sides.

le Jo Blauer <capmyjo > wrote:

I am another in the group who does not have a wrap, but will take Prevacid for life. , I know you said you didn't have NCCP's while taking Prilosec, but I still deal with the pain which increases with stress. Caroline, chewing gum really does help me (and this fifty-three year old Grandmother can make some great bubbles LOL!)For Pippa and others facing Myotomy, I know the procedure has been a lifesaver for me. I no longer race for the bathroom after eating, feel like I am drowning in my sleep or aspirate causing asthma-like symptoms. I truly feel nearly "normal". I do still have two glasses of water with most meals, and tire easily, and I often have an ache in my esophagus that others on this board don't seem to have, but I still feel like a new person. I would have the surgery again in a heartbeat if faced with the same choices. Jo

<FONT face="comic sans ms" color=#ff0000 size=5> in Georgia </FONT><IMG src=" 04.gif">

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1ยข/min.

<FONT face="comic sans ms" color=#ff0000 size=5> in Georgia </FONT><IMG src=" 04.gif">

Get your own web address for just $1.99/1st yr. We'll help. Small Business.

<FONT face="comic sans ms" color=#ff0000 size=5> in Georgia </FONT><IMG src=" 04.gif">

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2ยข/min or less.

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