Re: Queswtion about just simply feeling strange

[Guest guest]

Steve,

In the event I might be wrong in asking, I would still rather ask if you are taking any calcium channel blockers, such as nifedipine for swallowing or spasms which are known blood pressure reducers?

In a message dated 8/6/2006 6:08:52 P.M. Eastern Standard Time, lennoxsteve@... writes:

Thanks everyone. I do have reasonably low blood pressure and I tend to agree with everyone who has suggested this is what it could be. The bit I can not work out is how it relates to my achalasia. It could be due to low fluid intake but whilst today has been a rubbish swallowing day I have managed to get a good volume of fluids down. I do think there is something else going on. I don't mean another disease, I mean some way my achalasia is affecting my blood pressure.

STEVE

Re: Queswtion about just simply feeling strange

Dear Steve,

That sounds like low blood pressure to me.Steve Lennox <lennoxsteve@ .co. uk> wrote:

Hello everyone.

A rather daft question this but does anyone get a "feeling strange" feeling that is associated with their achalasia?

The best I can describe it is that feeling you get when you get out of a bath and the water was too hot. Only it lasts all day. I initially thought it was blood sugar related with the oesophagus holding onto food and then letting it through but I have kept an eye on my blood sugars and whilst I do get a bit of dumping it does not seem to be related.

I usually only get it when my swallowing is bad.

I have spoken to the doctors who have said it is probably related to achalasia but can not offer an explanation.

Does anyone else get this as it is driving me nuts (I have had it for two days running this weekend). It doesn't stop me going about my day but it does feel like I am in danger of passing out (but I never do).

STEVE

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[Guest guest]

Dear Steve, That sounds like low blood pressure to me.Steve Lennox <lennoxsteve@...> wrote: Hello everyone. A rather daft question this but does anyone get a "feeling strange" feeling that is associated with their achalasia? The best I can describe it is that feeling you

get when you get out of a bath and the water was too hot. Only it lasts all day. I initially thought it was blood sugar related with the oesophagus holding onto food and then letting it through but I have kept an eye on my blood sugars and whilst I do get a bit of dumping it does not seem to be related. I usually only get it when my swallowing is bad. I have spoken to the doctors who have said it is probably related to achalasia but can not offer an explanation. Does anyone else get this as it is driving me nuts (I have had it for two days running this weekend). It doesn't stop me going about my day but it does feel like I am in danger of passing out (but I never do). STEVE

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[Guest guest]

Steve,

Do you take any medications that might cause this? I have been taking Reglan to empty my stomach due to esophageal ulcers. I hate it because it causes some really strange sensations...tingly sensations all through my GI tract. I notice it alot when I am sleeping and can really feel it every time I change sleeping positions.......worse thing I ever did was have a post moytomy dilatation....a most regrettable decision as now I must take these meds for life.

Sandi in No CA

>> Hello everyone.> > A rather daft question this but does anyone get a "feeling strange" feeling that is associated with their achalasia?> > The best I can describe it is that feeling you get when you get out of a bath and the water was too hot. Only it lasts all day. I initially thought it was blood sugar related with the oesophagus holding onto food and then letting it through but I have kept an eye on my blood sugars and whilst I do get a bit of dumping it does not seem to be related.> > I usually only get it when my swallowing is bad.> > I have spoken to the doctors who have said it is probably related to achalasia but can not offer an explanation.> > Does anyone else get this as it is driving me nuts (I have had it for two days running this weekend). It doesn't stop me going about my day but it does feel like I am in danger of passing out (but I never do).> > STEVE>

[Guest guest]

Steve,

I agree with Ann -- sounds like low blood pressure to me. I have

lower than average blood pressure and you descibe what I sometimes

feel. It really gets worse (feeling like I could pass out) when I

get dehydrated -- which may explain why it's bad for you when you

have problems swallowing especially if you're not getting enough

fluids in.

Hope you feel better soon.

-Kathleen

> Hello everyone.

>

> A rather daft question this but does anyone get a " feeling

strange " feeling that is associated with their achalasia?

>

> The best I can describe it is that feeling you get when you get

out of a bath and the water was too hot. Only it lasts all day. I

initially thought it was blood sugar related with the oesophagus

holding onto food and then letting it through but I have kept an eye

on my blood sugars and whilst I do get a bit of dumping it does not

seem to be related.

>

> I usually only get it when my swallowing is bad.

>

> I have spoken to the doctors who have said it is probably

related to achalasia but can not offer an explanation.

>

> Does anyone else get this as it is driving me nuts (I have had

it for two days running this weekend). It doesn't stop me going

about my day but it does feel like I am in danger of passing out

(but I never do).

>

> STEVE

>

>

>

>

>

>

> ---------------------------------

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>

[Guest guest]

Hi Hannah has suffered with very low blood pressure since she discovered she had achalasia. So much so that during her pregnancy we thought she had epilepsy - it turned out that whilst sitting she had trapped the blood and this had reduced her blood pressure further causing siezure like symptoms.When she has not been pregnant she has occasional bouts just as you describe.Her lowest blood pressure was after her myotomy - the doctor has said 'no treatment'.Might not be any help - but this is Hannah's experience.Message for Ann, HuddersfieldThanks for your best wishes for Belarus - really looking forward to it. I have just packed my bags with so many gifts that I do not have room for clothes!The weather is supposed to be very warm so it will have to be a few pairs of shorts and a couple of t-shirts - will sort out a date when I get back to meet up.Love WenAnn Higgs <lilac_blossom_lady@...>

wrote: Dear Steve, That sounds like low blood pressure to me.Steve Lennox <lennoxsteve (DOT) co.uk> wrote: Hello everyone. A rather daft question this but does anyone get a

"feeling strange" feeling that is associated with their achalasia? The best I can describe it is that feeling you get when you get out of a bath and the water was too hot. Only it lasts all day. I initially thought it was blood sugar related with the oesophagus holding onto food and then letting it through but I have kept an eye on my blood sugars and whilst I do get a bit of dumping it does not seem to be related. I usually only get it when my swallowing is bad. I have spoken to the doctors who have said it is probably related to achalasia but can not offer an explanation. Does anyone else get this as it is driving me nuts (I have had it for two days running this weekend). It doesn't stop me going about my day but it does feel like I am in danger of passing out (but I never do). STEVE All New – Tired of Vi@gr@! come-ons? Let our SpamGuard protect you.

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[Guest guest]

Thanks everyone. I do have reasonably low blood pressure and I tend to agree with everyone who has suggested this is what it could be. The bit I can not work out is how it relates to my achalasia. It could be due to low fluid intake but whilst today has been a rubbish swallowing day I have managed to get a good volume of fluids down. I do think there is something else going on. I don't mean another disease, I mean some way my achalasia is affecting my blood pressure.

STEVE

Re: Queswtion about just simply feeling strange

Dear Steve,

That sounds like low blood pressure to me.Steve Lennox <lennoxsteve@ .co. uk> wrote:

Hello everyone.

A rather daft question this but does anyone get a "feeling strange" feeling that is associated with their achalasia?

The best I can describe it is that feeling you get when you get out of a bath and the water was too hot. Only it lasts all day. I initially thought it was blood sugar related with the oesophagus holding onto food and then letting it through but I have kept an eye on my blood sugars and whilst I do get a bit of dumping it does not seem to be related.

I usually only get it when my swallowing is bad.

I have spoken to the doctors who have said it is probably related to achalasia but can not offer an explanation.

Does anyone else get this as it is driving me nuts (I have had it for two days running this weekend). It doesn't stop me going about my day but it does feel like I am in danger of passing out (but I never do).

STEVE

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[Guest guest]

Steve, My father has been in the hospital now for two weeks. He has Achalasia very badly. They are going to perform a surgery next week, because he cannot get anything down. He is not even able to get a sip of water down. He is on a TPN line with occasional saline drips. He does get low blood pressure. When his blood pressure gets low (which happens very often) he gets that feeling, very dizzy and not feeling so well. They give him more fluids by IV which always brings his blood pressure back up, and he seems to feel a slight bit better. I am not a doctor, but with my dad, I know that his low blood pressure seems to be directly related to dehydration. I wish for you to feel better soon! Take careSteve Lennox <lennoxsteve@...> wrote: Thanks everyone. I do have reasonably low blood pressure and I tend to agree with everyone who has suggested this is what it could be. The bit I can not work out is how it relates to my achalasia. It could be due to low fluid intake but whilst today has been a rubbish swallowing day I have managed to get a good volume of fluids down. I do think there is something else going on. I don't mean another disease, I mean some way my achalasia is affecting my blood pressure. STEVE Re: Queswtion about just simply feeling strange Dear Steve, That sounds like low blood pressure to me.Steve Lennox <lennoxsteve@ .co. uk> wrote: Hello everyone. A rather daft question this but does anyone get a "feeling strange" feeling that is associated with their achalasia? The best I can describe it is that feeling you get when you get out of a bath and the water was too hot. Only it lasts all day. I initially thought it was blood sugar related with the oesophagus holding onto food and then letting it through but I have kept an eye on my blood sugars and whilst I do get a bit of dumping it does not seem to be related. I usually only get it when my swallowing is bad. I have spoken to the doctors who have said it is probably related to achalasia but can not offer an explanation. Does anyone else get this as it is driving me nuts (I have had it for two days running this weekend). It doesn't stop me going

about my day but it does feel like I am in danger of passing out (but I never do). STEVE All New Tired of Vi@gr@! come-ons? Let our SpamGuard protect you.

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[Guest guest]

Another thought: could it be low blood sugar - or something

nutritionally related?

I get a similar feeling - lightheadedness - if I don't eat enough.

While eating some candy (chocolate!) fixes it almost immediately,

fruit juice works too. It would be easy to experiment with this ...

I have noticed that when I have been on a clear liquid diet (48 hours

for me) I have felt lightheaded (as well as dizzy & irritable, too!).

I even avoided driving a car at that time because I didn't feel

" sharp " . I attributed these feelings to lack of proper nutrition.

When my swallowing was particularly poor, I know my nutrition suffered.

Rich (Chicago)

>

> Hello everyone.

>

> A rather daft question this but does anyone get a " feeling strange "

feeling that is associated with their achalasia?

>

> The best I can describe it is that feeling you get when you get out

of a bath and the water was too hot. Only it lasts all day. I

initially thought it was blood sugar related with the oesophagus

holding onto food and then letting it through but I have kept an eye

on my blood sugars and whilst I do get a bit of dumping it does not

seem to be related.

>

> I usually only get it when my swallowing is bad.

>

> I have spoken to the doctors who have said it is probably related to

achalasia but can not offer an explanation.

>

> Does anyone else get this as it is driving me nuts (I have had it

for two days running this weekend). It doesn't stop me going about my

day but it does feel like I am in danger of passing out (but I never do).

>

> STEVE

>

[Guest guest]

I am wondering, Steve, if this feeling strange is associated with nighttime

coughing and

aspiration. When I was coughing at night, occassionally I would aspirate a bit

of saliva or

stuff and then have a low grade fever for a day or two.

Just an idea,

Peggy

>

> Hello everyone.

>

> A rather daft question this but does anyone get a " feeling strange " feeling

that is

associated with their achalasia?

>

> The best I can describe it is that feeling you get when you get out of a bath

and the

water was too hot. Only it lasts all day. I initially thought it was blood

sugar related with

the oesophagus holding onto food and then letting it through but I have kept an

eye on

my blood sugars and whilst I do get a bit of dumping it does not seem to be

related.

>

> I usually only get it when my swallowing is bad.

>

> I have spoken to the doctors who have said it is probably related to achalasia

but can

not offer an explanation.

>

> Does anyone else get this as it is driving me nuts (I have had it for two days

running this

weekend). It doesn't stop me going about my day but it does feel like I am in

danger of

passing out (but I never do).

>

> STEVE

>

[Guest guest]

,

Very interesting. Did anyone try to explain if the low blood pressure was connected to the achalasia?

STEVE

Re: Queswtion about just simply feeling strange

Hi Hannah has suffered with very low blood pressure since she discovered she had achalasia. So much so that during her pregnancy we thought she had epilepsy - it turned out that whilst sitting she had trapped the blood and this had reduced her blood pressure further causing siezure like symptoms.When she has not been pregnant she has occasional bouts just as you describe.Her lowest blood pressure was after her myotomy - the doctor has said 'no treatment'.Might not be any help - but this is Hannah's experience.Message for Ann, HuddersfieldThanks for your best wishes for Belarus - really looking forward to it. I have just packed my bags with so many gifts that I do not have room for clothes!The weather is supposed to be very warm so it will have to be a few pairs of shorts and a couple of t-shirts - will sort out a date when I get back to meet up.Love WenAnn Higgs <lilac_blossom_ lady (DOT)

co.uk> wrote:

Dear Steve,

That sounds like low blood pressure to me.Steve Lennox <lennoxsteve@ .co. uk> wrote:

Hello everyone.

A rather daft question this but does anyone get a "feeling strange" feeling that is associated with their achalasia?

The best I can describe it is that feeling you get when you get out of a bath and the water was too hot. Only it lasts all day. I initially thought it was blood sugar related with the oesophagus holding onto food and then letting it through but I have kept an eye on my blood sugars and whilst I do get a bit of dumping it does not seem to be related.

I usually only get it when my swallowing is bad.

I have spoken to the doctors who have said it is probably related to achalasia but can not offer an explanation.

Does anyone else get this as it is driving me nuts (I have had it for two days running this weekend). It doesn't stop me going about my day but it does feel like I am in danger of passing out (but I never do).

STEVE

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[Guest guest]

When I feel like that I know my blood pressure is low from lack of nutrients I go for my Ensure carrie

Dear Steve,

That sounds like low blood pressure to me.Steve Lennox <lennoxsteve@ .co. uk> wrote:

Hello everyone.

A rather daft question this but does anyone get a "feeling strange" feeling that is associated with their achalasia?

The best I can describe it is that feeling you get when you get out of a bath and the water was too hot. Only it lasts all day. I initially thought it was blood sugar related with the oesophagus holding onto food and then letting it through but I have kept an eye on my blood sugars and whilst I do get a bit of dumping it does not seem to be related.

I usually only get it when my swallowing is bad.

I have spoken to the doctors who have said it is probably related to achalasia but can not offer an explanation.

Does anyone else get this as it is driving me nuts (I have had it for two days running this weekend). It doesn't stop me going about my day but it does feel like I am in danger of passing out (but I never do).

STEVE

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[Guest guest]

Yeah, I get something like that too. My heart feels like your car

engine when it is reving up while in neutral. It is usually comes

before, after or during a chest pain (spasm)

> Steve Lennox <lennoxsteve@ .co. uk> wrote:

> Hello everyone.

>

> A rather daft question this but does anyone get a " feeling strange "

feeling

> that is associated with their achalasia?

>

> The best I can describe it is that feeling you get when you get out

of a

> bath and the water was too hot. >

> Does anyone else get this as it is driving me nuts

> STEVE

[Guest guest]

,

Thanks. So, any idea why that may be happenig? My surgeon thinks my oesophagus has stuck to my heart! Great! he doesn't know if that is the cause of the problem though. I also have read that the return nerves from the oesophagus can play havoc with things like blood pressure. Basically, my crude understanding of this is only the nerves going to the oesophagus are destroyed but the ones that return from the oesophagus are not affected. Nerves work in pairs. This causes great confusion and the brain finds it difficult to interpret the response. I am awful at understanding the nervous system so may have not got this quite right...any neurological scientists out there?

STEVE

Re: Queswtion about just simply feeling strange

Yeah, I get something like that too. My heart feels like your car engine when it is reving up while in neutral. It is usually comes before, after or during a chest pain (spasm)> Steve Lennox <lennoxsteve@ .co. uk> wrote:> Hello everyone.> > A rather daft question this but does anyone get a "feeling strange" feeling> that is associated with their achalasia?> > The best I can describe it is that feeling you get when you get out of a> bath and the water was too hot. > > Does anyone else get this as it is driving me nuts > STEVE

[Guest guest]

Steve Lennox wrote:

> My surgeon thinks my oesophagus has stuck to my heart!

I have not heard of it sticking (adhesion) to the heart, but if it has

become very large it could press against it. It results in tachycardia

(an abnormally rapid beat). There is a case or two you can find on the

Internet. See:

Extrinsic left atrial compression in a patient with achalasia.

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=PubMed & list_uids=1\

2208598 & dopt=Abstract

notan

[Guest guest]

Never stick to your HEART Take it from an old RN

-- Re: Re: Queswtion about just simply feeling strange

Steve Lennox wrote:> My surgeon thinks my oesophagus has stuck to my heart! I have not heard of it sticking (adhesion) to the heart, but if it has become very large it could press against it. It results in tachycardia (an abnormally rapid beat). There is a case or two you can find on the Internet. See:Extrinsic left atrial compression in a patient with achalasia.http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=PubMed & list_uids=12208598 & dopt=Abstractnotan

[Guest guest]

When I had my Myotomy in '95 the surgeon said he found scar tissue

from my " E " sticking to my heart he said he got it. I think it has

reformed there but I don't know just thought I would put my 2 cent's

in Lot's of love Tamara

>

> > My surgeon thinks my oesophagus has stuck to my heart!

>

> I have not heard of it sticking (adhesion) to the heart, but if it

has

> become very large it could press against it. It results in

tachycardia

> (an abnormally rapid beat). There is a case or two you can find on

the

> Internet. See:

> Extrinsic left atrial compression in a patient with achalasia.

> http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

cmd=Retrieve & db=PubMed & list_uids=12208598 & dopt=Abstract

>

> notan

>

[Guest guest]

Dear Steve, Notan's theory sounds very feasible to me. Low blood pressure plus arrhythmia, due to pressure on the heart by the oesophagus. You can have tests for both these conditions, but be aware that treating the symptoms may not be the best course of action. In this case, the cause needs to be established and treated. This is a good example of you needing to be pro-active in your treatment and diagnosis. Love from Ann XX notan ostrich <notan_ostrich@...> wrote: Steve Lennox wrote:> My surgeon thinks my oesophagus has stuck to my heart! I have not heard of it sticking (adhesion) to the heart, but if it has become very large it could press against it. It results in tachycardia (an abnormally rapid beat). There is a case or two you can find on the Internet. See:Extrinsic left atrial compression in a patient with achalasia.http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=PubMed & list_uids=12208598 & dopt=Abstractnotan

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[Guest guest]

Notan,

Thanks very much. I have requested the paper it could make an interesting read. As for the sticking to the heart it would be through adhesions. My oesophagus is pretty large. At my last barium study the junior doctors jaw hit the floor and I heard him swear as the image came on the screen. Luckily the radiographer stepped in and said it is not uncommon for long standing achalasia otherwise I would have become totally obsessed. However, I have since learn't that mine is pretty big so it is possible that it is lying on all sorts of structures in my chest.

STEVE

Re: Re: Queswtion about just simply feeling strange

Steve Lennox wrote:> My surgeon thinks my oesophagus has stuck to my heart! I have not heard of it sticking (adhesion) to the heart, but if it has become very large it could press against it. It results in tachycardia (an abnormally rapid beat). There is a case or two you can find on the Internet. See:Extrinsic left atrial compression in a patient with achalasia.http://www.ncbi. nlm.nih.gov/ entrez/query. fcgi?cmd= Retrieve & db=PubMed & list_uids= 12208598 & dopt=Abstractnotan