Re: yes, Let's cure the disease, not the symptoms

[Guest guest]

Hi Marg, I would love to hear what you have learned in the

homeopathic route. I just starting seeing a new alternative medicine

doctor who will have me doing things like hypnotherapy (the real

medical kind) and bio-feedback to help train my brain into relaxing.

One of the hard things to remember with this ailment is that the

problem isn't with the organ not working (esophagous) but with the

nerves not sending signals. You fix the nerve problem, you fix

Achalasia. Obviously though, its not as easy as that. I will keep

everyone on the board informed of my experience. Thanks.

>

>

> Dear Mr. Clean,I feel the same way. I have taken some homeopathic

> paths that have given me some relief. I have stopped losing

weight.

> I do not come back to this site too often, but the alternatives have

> helped greatly and my latest foray into a new regimen has helped

too.

> I will give you the information if you are interested, please reply.

> Good luck,

> Marg

> >

> > In a message dated 7/10/2006 8:32:07 A.M. Eastern Daylight Time,

> > bbabson@ writes:

> >

> >

> >

> > Hello,

> >

> > I am a 23 year old male who has had Achalasia symptoms for a

year

> > and a half now. Every single swallow, food or liquid, takes a

very

> > long time to go down. I am miserable all day, I rarely have an

> > appetite and have lost a lot of weight (I weigh 134 lbs, 6 feet

> > tall). I also suffer from very severe chest pains, or spasms as

> > they are called with this condition. However, my pain not only

can

> > center sometimes in the center of the chest, but also on the

right

> > side of the middle of my chest under the rib cage. Drinking

water

> > after every bite helps a bit, and drinking small sips of water

> > during spasms lessens the pain. From my extensive reserach

online,

> > I think I am in the upper tier of more severe cases out there.

> >

> > However, I refuse to get a Heller Myotomy. Everything about the

> > surgery seems wrong to me. Namely, that it is a surgery that

cures

> > the symptoms and not the disease, as even the surgeon who would

do

> > the procedure on me admitted nobody knows why people suffer from

> > Achalasia. So, I have explored other avenues, so far with not

much

> > luck. I have just delved into the Chinese herbal route, as I am

> > seeing a Dr now. He presribed some herbal tablets that at first

got

> > rid of some chest pain, but now I all of the symptoms are back.

> >

> > There is one thing I can say to the extreme cases of Achalasia

> > sufferers out there, and let me apologize in advance if people

find

> > this offensive. As I mentioned I have been suffering for a long

> > time now and I needed something to make the pain just a bit

easier

> > to handle. Marijuana has been a life saver for me, as I try to

> > search for a cure. I have an appetite with it and have gained

> > weight, and it distracts enough from the pain while swallowing

that

> > it makes the meals go by easier. I have stopped it now, as it

ruins

> > the rest of my day, but I just wanted to let people know if they

are

> > looking for some kind of relief.

> >

> > Now, finally to my question. Is there ANYONE out there who has

> > found any relief from ANYTHING out there that doesn't result in

> > cutting up my body? I have found a few posts around here

regarding

> > alternatives, but I would like to see if anyone has a more

concise

> > route. I am one of the few that believe this is a completely

> > curable disease without surgery. There is a reason Achalasia

> > suffers are mainly in the United States, probably because of

diet.

> > There is also a reason NOBODY overseas gets the Heller Myotomy,

as

> > most health care overseas is free, so doctors and hospitals have

no

> > reason to push very expensive surgeries like the Heller Myotomy.

> > Remember that in the US medicine is just another business, and

> > sometimes it comes before good medicine. I hope I have spurred

some

> > people on here into looking for alternatives and I hope we can

all

> > help each other cure this frustrating disease.

> >

> > Thanks

> >

> > mr_clean

> >

>

[Guest guest]

This whole message sounds like one big come-on to me. Same thing with the last time she came to our site.

In a message dated 7/21/2006 12:08:25 A.M. Eastern Standard Time, gezmorgan@... writes:

You are correct, it is not as simple as that. I comeby the site occasionally just to see if there are anymore helpful hints. The people who share are great butmany go thru lots of procedures that may or may notwork and may or may not have to be undone. There doesnot seem to be any common ground on something thatworks for all.I have been getting accupuncture treatments for over ayear. I would have good weeks and bad weeks, but thebad weeks were much better than my original condition,so I kept going. Then someone told me about Dr.Saputo's treatments. He uses an infared photon lighttreatment and I seem to be making some real headwayafter three weeks. My accupuncturist and Dr. Saputoare working together and today I at ate a sandwich anddessert. Later I had a glass of wine. I could not dothat before. I had a light dinner too. I have kept itall down and felt the swallowing process take place. My throat does not feel jammed with food. I wish I hadfound this sooner. I do not know what part of thecountry you are in, but here is his website and I amhappy to answer any questions you have and I have noproducts to sell and other motives other than gettingbetter myself.Here is his site, you probably have to paste it in.http://www.healthmedicineinstitute.com/body.cfm?id=6#introducingIt seems to be reawakening the motility nerves in myesophageus and if you want i will keep you updated onmy progress. I am in the san francisco Bay Area.Good luck, Marg--- mr_clean021 <bbabsongmail> wrote:> Hi Marg, I would love to hear what you have learned> in the > homeopathic route. I just starting seeing a new> alternative medicine > doctor who will have me doing things like> hypnotherapy (the real > medical kind) and bio-feedback to help train my> brain into relaxing. > One of the hard things to remember with this ailment> is that the > problem isn't with the organ not working> (esophagous) but with the > nerves not sending signals. You fix the nerve> problem, you fix > Achalasia. Obviously though, its not as easy as> that. I will keep > everyone on the board informed of my experience. > Thanks.> > > >> > > > Dear Mr. Clean,I feel the same way. I have taken> some homeopathic> > paths that have given me some relief. I have> stopped losing > weight. > > I do not come back to this site too often, but the> alternatives have> > helped greatly and my latest foray into a new> regimen has helped > too. > > I will give you the information if you are> interested, please reply.> > Good luck,> > Marg > > > > > > In a message dated 7/10/2006 8:32:07 A.M.> Eastern Daylight Time, > > > bbabson@ writes:> > > > > > > > > > > > Hello,> > > > > > I am a 23 year old male who has had Achalasia> symptoms for a > year > > > and a half now. Every single swallow, food or> liquid, takes a > very > > > long time to go down. I am miserable all day, I> rarely have an > > > appetite and have lost a lot of weight (I weigh> 134 lbs, 6 feet > > > tall). I also suffer from very severe chest> pains, or spasms as > > > they are called with this condition. However,> my pain not only > can > > > center sometimes in the center of the chest,> but also on the > right > > > side of the middle of my chest under the rib> cage. Drinking > water > > > after every bite helps a bit, and drinking> small sips of water > > > during spasms lessens the pain. From my > extensive reserach > online, > > > I think I am in the upper tier of more severe > cases out there.> > > > > > However, I refuse to get a Heller Myotomy.> Everything about the > > > surgery seems wrong to me. Namely, that it is a> surgery that > cures > > > the symptoms and not the disease, as even the> surgeon who would > do > > > the procedure on me admitted nobody knows why> people suffer from > > > Achalasia. So, I have explored other avenues, so> far with not > much > > > luck. I have just delved into the Chinese herbal> route, as I am > > > seeing a Dr now. He presribed some herbal> tablets that at first > got > > > rid of some chest pain, but now I all of the> symptoms are back.> > > > > > There is one thing I can say to the extreme> cases of Achalasia > > > sufferers out there, and let me apologize in> advance if people > find > > > this offensive. As I mentioned I have been> suffering for a long > > > time now and I needed something to make the > pain just a bit > easier > > > to handle. Marijuana has been a life saver for> me, as I try to > > > search for a cure. I have an appetite with it> and have gained > > > weight, and it distracts enough from the pain> while swallowing > that > > > it makes the meals go by easier. I have stopped> it now, as it > ruins > > > the rest of my day, but I just wanted to let> people know if they > are > > > looking for some kind of relief.> > > > > > Now, finally to my question. Is there ANYONE out> there who has > > > found any relief from ANYTHING out there that> doesn't result in > > > cutting up my body? I have found a few posts> around here > regarding > > > alternatives, but I would like to see if anyone> has a more > concise > > > route. I am one of the few that believe this is> a completely > > > curable disease without surgery. There is a> reason Achalasia > > > suffers are mainly in the United States,> probably because of > diet. > > > There is also a reason NOBODY overseas gets the> Heller Myotomy, > as > > > most health care overseas is free, so doctors> and hospitals have > no > > > reason to push very expensive surgeries like > the Heller Myotomy. > > > Remember that in the US medicine is just another> business, and > > > sometimes it comes before good medicine. I hope> I have spurred > some > > > people on here into looking for alternatives and> I hope we can > all > > > help each other cure this frustrating disease.> > > > > > Thanks> > > > > > mr_clean> > >> >> > > > > >

[Guest guest]

You are correct, it is not as simple as that. I come

by the site occasionally just to see if there are any

more helpful hints. The people who share are great but

many go thru lots of procedures that may or may not

work and may or may not have to be undone. There does

not seem to be any common ground on something that

works for all.

I have been getting accupuncture treatments for over a

year. I would have good weeks and bad weeks, but the

bad weeks were much better than my original condition,

so I kept going. Then someone told me about Dr.

Saputo's treatments. He uses an infared photon light

treatment and I seem to be making some real headway

after three weeks. My accupuncturist and Dr. Saputo

are working together and today I at ate a sandwich and

dessert. Later I had a glass of wine. I could not do

that before. I had a light dinner too. I have kept it

all down and felt the swallowing process take place.

My throat does not feel jammed with food. I wish I had

found this sooner. I do not know what part of the

country you are in, but here is his website and I am

happy to answer any questions you have and I have no

products to sell and other motives other than getting

better myself.

Here is his site, you probably have to paste it in.

http://www.healthmedicineinstitute.com/body.cfm?id=6#introducing

It seems to be reawakening the motility nerves in my

esophageus and if you want i will keep you updated on

my progress. I am in the san francisco Bay Area.

Good luck, Marg

--- mr_clean021 <bbabson@...> wrote:

> Hi Marg, I would love to hear what you have learned

> in the

> homeopathic route. I just starting seeing a new

> alternative medicine

> doctor who will have me doing things like

> hypnotherapy (the real

> medical kind) and bio-feedback to help train my

> brain into relaxing.

> One of the hard things to remember with this ailment

> is that the

> problem isn't with the organ not working

> (esophagous) but with the

> nerves not sending signals. You fix the nerve

> problem, you fix

> Achalasia. Obviously though, its not as easy as

> that. I will keep

> everyone on the board informed of my experience.

> Thanks.

>

>

> >

> >

> > Dear Mr. Clean,I feel the same way. I have taken

> some homeopathic

> > paths that have given me some relief. I have

> stopped losing

> weight.

> > I do not come back to this site too often, but the

> alternatives have

> > helped greatly and my latest foray into a new

> regimen has helped

> too.

> > I will give you the information if you are

> interested, please reply.

> > Good luck,

> > Marg

> > >

> > > In a message dated 7/10/2006 8:32:07 A.M.

> Eastern Daylight Time,

> > > bbabson@ writes:

> > >

> > >

> > >

> > > Hello,

> > >

> > > I am a 23 year old male who has had Achalasia

> symptoms for a

> year

> > > and a half now. Every single swallow, food or

> liquid, takes a

> very

> > > long time to go down. I am miserable all day, I

> rarely have an

> > > appetite and have lost a lot of weight (I weigh

> 134 lbs, 6 feet

> > > tall). I also suffer from very severe chest

> pains, or spasms as

> > > they are called with this condition. However,

> my pain not only

> can

> > > center sometimes in the center of the chest,

> but also on the

> right

> > > side of the middle of my chest under the rib

> cage. Drinking

> water

> > > after every bite helps a bit, and drinking

> small sips of water

> > > during spasms lessens the pain. From my

> extensive reserach

> online,

> > > I think I am in the upper tier of more severe

> cases out there.

> > >

> > > However, I refuse to get a Heller Myotomy.

> Everything about the

> > > surgery seems wrong to me. Namely, that it is a

> surgery that

> cures

> > > the symptoms and not the disease, as even the

> surgeon who would

> do

> > > the procedure on me admitted nobody knows why

> people suffer from

> > > Achalasia. So, I have explored other avenues, so

> far with not

> much

> > > luck. I have just delved into the Chinese herbal

> route, as I am

> > > seeing a Dr now. He presribed some herbal

> tablets that at first

> got

> > > rid of some chest pain, but now I all of the

> symptoms are back.

> > >

> > > There is one thing I can say to the extreme

> cases of Achalasia

> > > sufferers out there, and let me apologize in

> advance if people

> find

> > > this offensive. As I mentioned I have been

> suffering for a long

> > > time now and I needed something to make the

> pain just a bit

> easier

> > > to handle. Marijuana has been a life saver for

> me, as I try to

> > > search for a cure. I have an appetite with it

> and have gained

> > > weight, and it distracts enough from the pain

> while swallowing

> that

> > > it makes the meals go by easier. I have stopped

> it now, as it

> ruins

> > > the rest of my day, but I just wanted to let

> people know if they

> are

> > > looking for some kind of relief.

> > >

> > > Now, finally to my question. Is there ANYONE out

> there who has

> > > found any relief from ANYTHING out there that

> doesn't result in

> > > cutting up my body? I have found a few posts

> around here

> regarding

> > > alternatives, but I would like to see if anyone

> has a more

> concise

> > > route. I am one of the few that believe this is

> a completely

> > > curable disease without surgery. There is a

> reason Achalasia

> > > suffers are mainly in the United States,

> probably because of

> diet.

> > > There is also a reason NOBODY overseas gets the

> Heller Myotomy,

> as

> > > most health care overseas is free, so doctors

> and hospitals have

> no

> > > reason to push very expensive surgeries like

> the Heller Myotomy.

> > > Remember that in the US medicine is just another

> business, and

> > > sometimes it comes before good medicine. I hope

> I have spurred

> some

> > > people on here into looking for alternatives and

> I hope we can

> all

> > > help each other cure this frustrating disease.

> > >

> > > Thanks

> > >

> > > mr_clean

> > >

> >

>

>

>

>

>

>

[Guest guest]

For what it's worth, I once contacted a larger alternative medicine

practice in my area run by Dr. ph Mercola when I was first

diagnosed with achalasia. You can check it out yourself at

http://mercola.com/index.htm.

Over the years, Dr. Mercola has become a best-selling author. He is

considered to be a bit controversial in that he runs an impressive

business selling many health products via his web site.

I had high hopes that he would help me solve my achalasia problem with

his knowledge of alternative medical practices. But before I plunked

down a few hundred dollars for a doctor's visit - and more for tests

(not covered by my insurance at the time) I set up a 15 minute phone

appointment with him. Our conversation was very revealing and well

worth the $50.00 charged to my credit card before he got on the line.

I asked him several direct questions I had prepared in writing. Among

them was whether or not he had treated achalasia successfully before.

His answer was " once, in an infant " . I asked him how he knew the

baby had achalasia as well as a couple of other questions about

treatment. At that point he became flustered and angry and proclaimed

that he would " never do anything like this again " (phone

consultation). Our conversation ended. My money was well spent. I

felt that he did not have sufficient experience to guaranty any sort

of outcome. I was disappointed by I saved myself a lot of time and money.

It is in our nature to be hopeful and optomistic. That said, I would

encourage anyone engaging with any practitioner (alternative or

otherwise) to ask direct questions about specific experience with this

rare condition - achalasia, therapies, and outcomes. Listen carefully

to what is said - or not.

Rich (in Chicago)

> > >

> > >

> > > Dear Mr. Clean,I feel the same way. I have taken

> > some homeopathic

> > > paths that have given me some relief. I have

> > stopped losing

> > weight.

> > > I do not come back to this site too often, but the

> > alternatives have

> > > helped greatly and my latest foray into a new

> > regimen has helped

> > too.

> > > I will give you the information if you are

> > interested, please reply.

> > > Good luck,

> > > Marg

[Guest guest]

This is amazing, everyone who writes here sows seeds

of hope and support for those who come to read the

comments of others. I appreciate it when my fellow

Achalasians leave specific info that helps them

individually cope with the challenges they encounter,

even if it does not work for anyone else.

For me, it has been 1 1/2 years of having things

mostly under control (much better than the first year

when I lost 60 pounds, never ate out, daily spasms and

my doctors had few alternatives to offer). I have a

life, a job, little pain, along with some of the same

problems we all encounter, and I also have hope that I

can beat this. Previously, I wrote about Accupuncture

and how it has helped me and still does; now months

later,I added something else that is helping me.

Eventually it may or may not fail but I am trying - it

is my alternative.

To those who read this,I thought this site was for all

of us to share; not yours, not mine but open to all.

Let me know if you want me to keep my progress and

alternatives to myself and I will graciously be a

reader only. Marg

--- cynmark24@... wrote:

>

> This whole message sounds like one big come-on to

> me. Same thing with the

> last time she came to our site.

>

>

>

> In a message dated 7/21/2006 12:08:25 A.M. Eastern

> Standard Time,

> gezmorgan@... writes:

>

>

>

>

> You are correct, it is not as simple as that. I come

> by the site occasionally just to see if there are

> any

> more helpful hints. The people who share are great

> but

> many go thru lots of procedures that may or may not

> work and may or may not have to be undone. There

> does

> not seem to be any common ground on something that

> works for all.

>

> I have been getting accupuncture treatments for

> over a

> year. I would have good weeks and bad weeks, but

> the

> bad weeks were much better than my original

> condition,

> so I kept going. Then someone told me about Dr.

> Saputo's treatments. He uses an infared photon

> light

> treatment and I seem to be making some real headway

> after three weeks. My accupuncturist and Dr. Saputo

> are working together and today I at ate a sandwich

> and

> dessert. Later I had a glass of wine. I could not

> do

> that before. I had a light dinner too. I have kept

> it

> all down and felt the swallowing process take

> place.

> My throat does not feel jammed with food. I wish I

> had

> found this sooner. I do not know what part of the

> country you are in, but here is his website and I

> am

> happy to answer any questions you have and I have

> no

> products to sell and other motives other than

> getting

> better myself.

> Here is his site, you probably have to paste it in.

>

_http://www.healthmehttp://www.healthttp://wwhttp://wwhttp://www._

>

>

(http://www.healthmedicineinstitute.com/body.cfm?id=6#introducing)

>

> It seems to be reawakening the motility nerves in

> my

> esophageus and if you want i will keep you updated

> on

> my progress. I am in the san francisco Bay Area.

> Good luck, Marg

>

> --- mr_clean021 <_bbabson@..._

> (mailto:bbabson@...) > wrote:

> > Hi Marg, I would love to hear what you have

> learned

> > in the

> > homeopathic route. I just starting seeing a new

> > alternative medicine

> > doctor who will have me doing things like

> > hypnotherapy (the real

> > medical kind) and bio-feedback to help train my

> > brain into relaxing.

> > One of the hard things to remember with this

> ailment

> > is that the

> > problem isn't with the organ not working

> > (esophagous) but with the

> > nerves not sending signals. You fix the nerve

> > problem, you fix

> > Achalasia. Obviously though, its not as easy as

> > that. I will keep

> > everyone on the board informed of my experience.

> > Thanks.

> >

> >

> > >

> > >

> > > Dear Mr. Clean,I feel the same way. I have taken

> > some homeopathic

> > > paths that have given me some relief. I have

> > stopped losing

> > weight.

> > > I do not come back to this site too often, but

> the

> > alternatives have

> > > helped greatly and my latest foray into a new

> > regimen has helped

> > too.

> > > I will give you the information if you are

> > interested, please reply.

> > > Good luck,

> > > Marg

> > > >

> > > > In a message dated 7/10/2006 8:32:07 A.M.

> > Eastern Daylight Time,

> > > > bbabson@ writes:

> > > >

> > > >

> > > >

> > > > Hello,

> > > >

> > > > I am a 23 year old male who has had Achalasia

> > symptoms for a

> > year

> > > > and a half now. Every single swallow, food or

> > liquid, takes a

> > very

> > > > long time to go down. I am miserable all day,

> I

> > rarely have an

> > > > appetite and have lost a lot of weight (I

> weigh

> > 134 lbs, 6 feet

> > > > tall). I also suffer from very severe chest

> > pains, or spasms as

> > > > they are called with this condition. However,

> > my pain not only

> > can

> > > > center sometimes in the center of the chest,

> > but also on the

> > right

> > > > side of the middle of my chest under the rib

> > cage. Drinking

> > water

> > > > after every bite helps a bit, and drinking

> > small sips of water

> > > > during spasms lessens the pain. From my

> > extensive reserach

> > online,

> > > > I think I am in the upper tier of more severe

>

> > cases out there.

> > > >

> > > > However, I refuse to get a Heller Myotomy.

> > Everything about the

> > > > surgery seems wrong to me. Namely, that it is

> a

> > surgery that

> > cures

> > > > the symptoms and not the disease, as even the

> > surgeon who would

> > do

> > > > the procedure on me admitted nobody knows why

> > people suffer from

> > > > Achalasia. So, I have explored other avenues,

> so

> > far with not

> > much

> > > > luck. I have just delved into the Chinese

> herbal

> > route, as I am

> > > > seeing a Dr now. He presribed some herbal

> > tablets that at first

> > got

> > > > rid of some chest pain, but now I all of the

> > symptoms are back.

> > > >

> > > > There is one thing I can say to the extreme

> > cases of Achalasia

> > > > sufferers out there, and let me apologize in

> > advance if people

> > find

> > > > this offensive. As I mentioned I have been

> > suffering for a long

> > > > time now and I needed something to make the

> > pain just a bit

> > easier

> > > > to handle. Marijuana has been a life saver for

> > me, as I try to

> > > > search for a cure. I have an appetite with it

> > and have gained

> > > > weight, and it distracts enough from the pain

> > while swallowing

> > that

> > > > it makes the meals go by easier. I have

> stopped

> > it now, as it

> > ruins

> > > > the rest of my day, but I just wanted to let

> > people know if they

> > are

> > > > looking for some kind of relief.

> > > >

>

=== message truncated ===

[Guest guest]

This whole sequence of postings kinda shocked me. My response is

related to Mr Cleans statments about achalasia. Here's the thing,

we don't know the cause, we don't have a cure... all we know is how

to manage the disease. What we do know is that it IS nerve

degeneration to the point where the nerves that control

the " involuntary " movement of the esophagus do not work. Pathology

reports show a significant decrease/lack of ganglion cells on the

lower esophagus. What we also know is that once there is nerve

damage, there is no way of repairing nerve damage. I hate to be so

negative, but I spoke with Dr Rice about this same topic. Even if

we do find a cure for achalasia, the damage is too far progressed to

change anything. Perphaps someday, maybe, stem cell research will

be able to regenerate esophagus nerves. Until then, we need to

preserve the esophagus so that we will be able to keep it the rest

of our lives. That's the goal of a Heller Myotomy, passage of food

and preservation of the esophagus. Every choice of achalasia

intervention has its risks and benifits. It's when the benifits

outweight the risks that we know it's the right decision, and this

may be different in each individual.

My thoughts.

in Michigan

> > >

> > >

> > > Dear Mr. Clean,I feel the same way. I have taken

> > some homeopathic

> > > paths that have given me some relief. I have

> > stopped losing

> > weight.

> > > I do not come back to this site too often, but the

> > alternatives have

> > > helped greatly and my latest foray into a new

> > regimen has helped

> > too.

> > > I will give you the information if you are

> > interested, please reply.

> > > Good luck,

> > > Marg

> > > >

> > > > In a message dated 7/10/2006 8:32:07 A.M.

> > Eastern Daylight Time,

> > > > bbabson@ writes:

> > > >

> > > >

> > > >

> > > > Hello,

> > > >

> > > > I am a 23 year old male who has had Achalasia

> > symptoms for a

> > year

> > > > and a half now. Every single swallow, food or

> > liquid, takes a

> > very

> > > > long time to go down. I am miserable all day, I

> > rarely have an

> > > > appetite and have lost a lot of weight (I weigh

> > 134 lbs, 6 feet

> > > > tall). I also suffer from very severe chest

> > pains, or spasms as

> > > > they are called with this condition. However,

> > my pain not only

> > can

> > > > center sometimes in the center of the chest,

> > but also on the

> > right

> > > > side of the middle of my chest under the rib

> > cage. Drinking

> > water

> > > > after every bite helps a bit, and drinking

> > small sips of water

> > > > during spasms lessens the pain. From my

> > extensive reserach

> > online,

> > > > I think I am in the upper tier of more severe

> > cases out there.

> > > >

> > > > However, I refuse to get a Heller Myotomy.

> > Everything about the

> > > > surgery seems wrong to me. Namely, that it is a

> > surgery that

> > cures

> > > > the symptoms and not the disease, as even the

> > surgeon who would

> > do

> > > > the procedure on me admitted nobody knows why

> > people suffer from

> > > > Achalasia. So, I have explored other avenues, so

> > far with not

> > much

> > > > luck. I have just delved into the Chinese herbal

> > route, as I am

> > > > seeing a Dr now. He presribed some herbal

> > tablets that at first

> > got

> > > > rid of some chest pain, but now I all of the

> > symptoms are back.

> > > >

> > > > There is one thing I can say to the extreme

> > cases of Achalasia

> > > > sufferers out there, and let me apologize in

> > advance if people

> > find

> > > > this offensive. As I mentioned I have been

> > suffering for a long

> > > > time now and I needed something to make the

> > pain just a bit

> > easier

> > > > to handle. Marijuana has been a life saver for

> > me, as I try to

> > > > search for a cure. I have an appetite with it

> > and have gained

> > > > weight, and it distracts enough from the pain

> > while swallowing

> > that

> > > > it makes the meals go by easier. I have stopped

> > it now, as it

> > ruins

> > > > the rest of my day, but I just wanted to let

> > people know if they

> > are

> > > > looking for some kind of relief.

> > > >

> > > > Now, finally to my question. Is there ANYONE out

> > there who has

> > > > found any relief from ANYTHING out there that

> > doesn't result in

> > > > cutting up my body? I have found a few posts

> > around here

> > regarding

> > > > alternatives, but I would like to see if anyone

> > has a more

> > concise

> > > > route. I am one of the few that believe this is

> > a completely

> > > > curable disease without surgery. There is a

> > reason Achalasia

> > > > suffers are mainly in the United States,

> > probably because of

> > diet.

> > > > There is also a reason NOBODY overseas gets the

> > Heller Myotomy,

> > as

> > > > most health care overseas is free, so doctors

> > and hospitals have

> > no

> > > > reason to push very expensive surgeries like

> > the Heller Myotomy.

> > > > Remember that in the US medicine is just another

> > business, and

> > > > sometimes it comes before good medicine. I hope

> > I have spurred

> > some

> > > > people on here into looking for alternatives and

> > I hope we can

> > all

> > > > help each other cure this frustrating disease.

> > > >

> > > > Thanks

> > > >

> > > > mr_clean

> > > >

> > >

> >

> >

> >

> >

> >

> >

>

[Guest guest]

Marge--explain to me how accupunture helped with A--where did you go--thanks, from BostonMargaret <gezmorgan@...> wrote: This is amazing, everyone who writes here sows seedsof hope and support for those who come to read thecomments of others. I appreciate it when my fellowAchalasians leave specific info that helps themindividually cope with the challenges they encounter,even if it does not work for anyone else. For me, it has been 1 1/2 years of having thingsmostly under control (much better than

the first yearwhen I lost 60 pounds, never ate out, daily spasms andmy doctors had few alternatives to offer). I have alife, a job, little pain, along with some of the sameproblems we all encounter, and I also have hope that Ican beat this. Previously, I wrote about Accupunctureand how it has helped me and still does; now monthslater,I added something else that is helping me.Eventually it may or may not fail but I am trying - itis my alternative. To those who read this,I thought this site was for allof us to share; not yours, not mine but open to all.Let me know if you want me to keep my progress andalternatives to myself and I will graciously be areader only. Marg--- cynmark24aol wrote:> > This whole message sounds like one big come-on to> me. Same thing with the > last time she came to our site.> >

> > In a message dated 7/21/2006 12:08:25 A.M. Eastern> Standard Time, > gezmorgan writes:> > > > > You are correct, it is not as simple as that. I come> by the site occasionally just to see if there are> any> more helpful hints. The people who share are great> but> many go thru lots of procedures that may or may not> work and may or may not have to be undone. There> does> not seem to be any common ground on something that> works for all.> > I have been getting accupuncture treatments for> over a> year. I would have good weeks and bad weeks, but> the> bad weeks were much better than my original > condition,> so I kept going. Then someone told me about Dr.> Saputo's treatments. He uses an infared photon> light>

treatment and I seem to be making some real headway> after three weeks. My accupuncturist and Dr. Saputo> are working together and today I at ate a sandwich> and> dessert. Later I had a glass of wine. I could not> do> that before. I had a light dinner too. I have kept> it> all down and felt the swallowing process take > place. > My throat does not feel jammed with food. I wish I> had> found this sooner. I do not know what part of the> country you are in, but here is his website and I> am> happy to answer any questions you have and I have > no> products to sell and other motives other than> getting> better myself.> Here is his site, you probably have to paste it in.>_http://www.healthmehttp://www.healthttp://wwhttp://wwhttp://www._> >(http://www.healthmedicineinstitute.com/body.cfm?id=6#introducing)> > It seems to be reawakening the motility nerves in> my> esophageus and if you want i will keep you updated> on> my progress. I am in the san francisco Bay Area.> Good luck, Marg> > --- mr_clean021 <_bbabsongmail (DOT) bba_> (mailto:bbabsongmail) > wrote:> > Hi Marg, I would love to hear what you have> learned> > in the > > homeopathic route. I just starting seeing a new> > alternative medicine > >

doctor who will have me doing things like> > hypnotherapy (the real > > medical kind) and bio-feedback to help train my> > brain into relaxing. > > One of the hard things to remember with this> ailment> > is that the > > problem isn't with the organ not working> > (esophagous) but with the > > nerves not sending signals. You fix the nerve> > problem, you fix > > Achalasia. Obviously though, its not as easy as> > that. I will keep > > everyone on the board informed of my experience. > > Thanks.> > > > > > >> > > > > > Dear Mr. Clean,I feel the same way. I have taken> >

some homeopathic> > > paths that have given me some relief. I have> > stopped losing > > weight. > > > I do not come back to this site too often, but> the> > alternatives have> > > helped greatly and my latest foray into a new> > regimen has helped > > too. > > > I will give you the information if you are> > interested, please reply.> > > Good luck,> > > Marg > > > > > > > > In a message dated 7/10/2006 8:32:07 A.M.> > Eastern Daylight Time, > > > > bbabson@ writes:> > > > > > > > > > > > > > > > Hello,> > > > > > > > I am a 23 year old male who has had Achalasia> > symptoms for a > > year > > > > and a half now. Every single swallow, food

or> > liquid, takes a > > very > > > > long time to go down. I am miserable all day,> I> > rarely have an > > > > appetite and have lost a lot of weight (I> weigh> > 134 lbs, 6 feet > > > > tall). I also suffer from very severe chest> > pains, or spasms as > > > > they are called with this condition. However,> > my pain not only > > can > > > > center sometimes in the center of the chest,> > but also on the > > right > > > > side of the middle of my chest under the rib> > cage. Drinking > > water > > > > after every bite helps a bit, and drinking> > small sips of water > > > > during spasms lessens the pain. From my > > extensive reserach > > online, > > > > I think I am in the

upper tier of more severe> > > cases out there.> > > > > > > > However, I refuse to get a Heller Myotomy.> > Everything about the > > > > surgery seems wrong to me. Namely, that it is> a> > surgery that > > cures > > > > the symptoms and not the disease, as even the> > surgeon who would > > do > > > > the procedure on me admitted nobody knows why> > people suffer from > > > > Achalasia. So, I have explored other avenues,> so> > far with not > > much > > > > luck. I have just delved into the Chinese> herbal> > route, as I am > > > > seeing a Dr now. He presribed some herbal> > tablets that at first > > got > > > > rid of some chest pain, but now I all of the> > symptoms are

back.> > > > > > > > There is one thing I can say to the extreme> > cases of Achalasia > > > > sufferers out there, and let me apologize in> > advance if people > > find > > > > this offensive. As I mentioned I have been> > suffering for a long > > > > time now and I needed something to make the > > pain just a bit > > easier > > > > to handle. Marijuana has been a life saver for> > me, as I try to > > > > search for a cure. I have an appetite with it> > and have gained > > > > weight, and it distracts enough from the pain> > while swallowing > > that > > > > it makes the meals go by easier. I have> stopped> > it now, as it > > ruins > > > > the rest of my day, but I just wanted to

let> > people know if they > > are > > > > looking for some kind of relief.> > > > > === message truncated ===

Groups are talking. We´re listening. Check out the handy changes to .

[Guest guest]

Hi , I use an accupuncturist in San Francsico

who is amazing. I also go to physical therapist who

has given me some vocal exercises to strengthen my E.

The person who wrote about singing is correct. I have

not had a spasm for a few months.

I also take a treatment that is an infared laser that

is experimental. This treatment seems to awaken the

nerve endings and really helps, but wears off. The

Doctor says it may become more permanent with more

treatments. After these treatments I swallow for about

a week.

I will keep you updated if you are interested. Marg

--- Capone <rebeccacapone@...> wrote:

> Marge--explain to me how accupunture helped with

> A--where did you go--thanks, from Boston

>

> Margaret <gezmorgan@...> wrote:

> This is amazing, everyone who writes here sows

> seeds

> of hope and support for those who come to read the

> comments of others. I appreciate it when my fellow

> Achalasians leave specific info that helps them

> individually cope with the challenges they

> encounter,

> even if it does not work for anyone else.

>

> For me, it has been 1 1/2 years of having things

> mostly under control (much better than the first

> year

> when I lost 60 pounds, never ate out, daily spasms

> and

> my doctors had few alternatives to offer). I have a

> life, a job, little pain, along with some of the

> same

> problems we all encounter, and I also have hope that

> I

> can beat this. Previously, I wrote about

> Accupuncture

> and how it has helped me and still does; now months

> later,I added something else that is helping me.

> Eventually it may or may not fail but I am trying -

> it

> is my alternative.

>

> To those who read this,I thought this site was for

> all

> of us to share; not yours, not mine but open to all.

> Let me know if you want me to keep my progress and

> alternatives to myself and I will graciously be a

> reader only. Marg

>

> --- cynmark24@... wrote:

>

> >

> > This whole message sounds like one big come-on to

> > me. Same thing with the

> > last time she came to our site.

> >

> >

> >

> > In a message dated 7/21/2006 12:08:25 A.M. Eastern

> > Standard Time,

> > gezmorgan@... writes:

> >

> >

> >

> >

> > You are correct, it is not as simple as that. I

> come

> > by the site occasionally just to see if there are

> > any

> > more helpful hints. The people who share are great

> > but

> > many go thru lots of procedures that may or may

> not

> > work and may or may not have to be undone. There

> > does

> > not seem to be any common ground on something that

> > works for all.

> >

> > I have been getting accupuncture treatments for

> > over a

> > year. I would have good weeks and bad weeks, but

> > the

> > bad weeks were much better than my original

> > condition,

> > so I kept going. Then someone told me about Dr.

> > Saputo's treatments. He uses an infared photon

> > light

> > treatment and I seem to be making some real

> headway

> > after three weeks. My accupuncturist and Dr.

> Saputo

> > are working together and today I at ate a sandwich

> > and

> > dessert. Later I had a glass of wine. I could not

> > do

> > that before. I had a light dinner too. I have kept

> > it

> > all down and felt the swallowing process take

> > place.

> > My throat does not feel jammed with food. I wish I

> > had

> > found this sooner. I do not know what part of the

> > country you are in, but here is his website and I

> > am

> > happy to answer any questions you have and I have

> > no

> > products to sell and other motives other than

> > getting

> > better myself.

> > Here is his site, you probably have to paste it

> in.

> >

>

_http://www.healthmehttp://www.healthttp://wwhttp://wwhttp://www._

> >

> >

>

(http://www.healthmedicineinstitute.com/body.cfm?id=6#introducing)

> >

> > It seems to be reawakening the motility nerves in

> > my

> > esophageus and if you want i will keep you updated

> > on

> > my progress. I am in the san francisco Bay Area.

> > Good luck, Marg

> >

> > --- mr_clean021 <_bbabson@..._

> > (mailto:bbabson@...) > wrote:

> > > Hi Marg, I would love to hear what you have

> > learned

> > > in the

> > > homeopathic route. I just starting seeing a new

> > > alternative medicine

> > > doctor who will have me doing things like

> > > hypnotherapy (the real

> > > medical kind) and bio-feedback to help train my

> > > brain into relaxing.

> > > One of the hard things to remember with this

> > ailment

> > > is that the

> > > problem isn't with the organ not working

> > > (esophagous) but with the

> > > nerves not sending signals. You fix the nerve

> > > problem, you fix

> > > Achalasia. Obviously though, its not as easy as

> > > that. I will keep

> > > everyone on the board informed of my experience.

>

> > > Thanks.

> > >

> > >

> > > >

> > > >

> > > > Dear Mr. Clean,I feel the same way. I have

> taken

> > > some homeopathic

> > > > paths that have given me some relief. I have

> > > stopped losing

> > > weight.

> > > > I do not come back to this site too often, but

> > the

> > > alternatives have

> > > > helped greatly and my latest foray into a new

> > > regimen has helped

> > > too.

> > > > I will give you the information if you are

> > > interested, please reply.

> > > > Good luck,

> > > > Marg

> > > > >

> > > > > In a message dated 7/10/2006 8:32:07 A.M.

> > > Eastern Daylight Time,

> > > > > bbabson@ writes:

> > > > >

> > > > >

> > > > >

> > > > > Hello,

> > > > >

> > > > > I am a 23 year old male who has had

> Achalasia

> > > symptoms for a

> > > year

> > > > > and a half now. Every single swallow, food

> or

> > > liquid, takes a

> > > very

> > > > > long time to go down. I am miserable all

> day,

> > I

> > > rarely have an

> > > > > appetite and have lost a lot of weight (I

> > weigh

> > > 134 lbs, 6 feet

> > > > > tall). I also suffer from very severe chest

> > > pains, or spasms as

> > > > > they are called with this condition.

> However,

> > > my pain not only

> > > can

> > > > > center sometimes in the center of the chest,

> > > but also on the

> > > right

> > > > > side of the middle of my chest under the rib

> > > cage. Drinking

> > > water

> > > > > after every bite helps a bit, and drinking

> > > small sips of water

> > > > > during spasms lessens the pain. From my

> > > extensive reserach

> > > online,

> > > > > I think I am in the upper tier of more

> severe

>

=== message truncated ===