???s for those who have had botox

[Guest guest]

Hi everyone. I have a few questions for anyone who has had botox. I

went in for an EGD on 7/13. My GI couldn't keep my E open with the

dialator he had, and since I couldn't even drink water, he called a

doc in Pittsburgh and got me in the next day for another EGD and

botox. I argued against botox but was told this was the quickest way

to get relief. I hadn't had liquids for almost 5 days. Yesterday I had

the botox. I still can't swallow liquids. How long until it takes

effect? Also, this may be TMI so pardon me, but did anyone else bring

up old blood the day after botox? Is this normal? Thanks in advance

for helping me out with info.

Lilli

P.S. The doctor in Pittsburgh told me that they couldn't do a

dialation without a definitive diagnosis of achalasia, so I have to go

back up to Pittsburgh for manometry since the one I had here couldn't

be completed. Does any of this sound familiar or are they just making

money on me?

[Guest guest]

Lilli,

After reading your post, I asked (who has had 3 separate

rounds of Botox) your questions. He was always told that by the next

day, he should start feeling the effect of the Botox. It never really

worked too well or too long for him, though. Also, about the blood,

he wondered if you had a biopsy done at one of these EGDs. Especially

if you haven't had an official diagnosis (and sometimes even if you

have an official diagnosis), the GI many times does a biopsy (or

biopsies) during an EGD. That can cause a little bleeding. I've even

seen the blood on the photos they gave us after one of 's EGDs. I

think I can understand, too, that they wouldn't want to do a dilation

(especially a balloon dilation at the LES) before they know exactly

what they're dealing with. Before he was diagnosed, 's doctors

had done some savory dilations (not as forceful as balloon dilations)

to try to relieve his symptoms. I think these were done higher up on

the E and not at the LES.

I'm REALLY hoping you can get an accurate diagnosis soon! You

might need to be the " squeaky wheel " about the problems you've had

with manometries, to get the staff to try to make you more

comfortable, but it sounds like you need that test to get some

answers. You're in Ohio, right? Remember what I said about Cleveland

Clinic. Their one nurse (can't remember her name) was excellent at

manometries and had a very calming manner about her. I would think

that can make it maybe just a tad easier on you if you have someone

skilled at the test, doing it. I'm hoping today brings better

swallowing for you!! Please keep us posted.

in Michigan

[Guest guest]

Lilli,

I had one before. I did not have great relief after botox. I had a

piece of chicken stuck in my LES maybe it is related or caused by

Achalasia. my GI just injected Botox anyway. since then, I have never

had any type of treatment. however, I am drinking herbal tea and

getting acupuncture once awhile. I am doing pretty good now. I had

experienced unable-to-eat-and-drink days. it only lasted for two

days. The longest period was the chicken accident, Three days,and I

was dehydrated and admitted to the GI ER.

just some info.

Quincia

>

> Lilli,

> After reading your post, I asked (who has had 3 separate

> rounds of Botox) your questions. He was always told that by the

next

> day, he should start feeling the effect of the Botox. It never

really

> worked too well or too long for him, though. Also, about the blood,

> he wondered if you had a biopsy done at one of these EGDs.

Especially

> if you haven't had an official diagnosis (and sometimes even if you

> have an official diagnosis), the GI many times does a biopsy (or

> biopsies) during an EGD. That can cause a little bleeding. I've

even

> seen the blood on the photos they gave us after one of 's

EGDs. I

> think I can understand, too, that they wouldn't want to do a

dilation

> (especially a balloon dilation at the LES) before they know exactly

> what they're dealing with. Before he was diagnosed, 's doctors

> had done some savory dilations (not as forceful as balloon

dilations)

> to try to relieve his symptoms. I think these were done higher up

on

> the E and not at the LES.

> I'm REALLY hoping you can get an accurate diagnosis soon! You

> might need to be the " squeaky wheel " about the problems you've had

> with manometries, to get the staff to try to make you more

> comfortable, but it sounds like you need that test to get some

> answers. You're in Ohio, right? Remember what I said about

Cleveland

> Clinic. Their one nurse (can't remember her name) was excellent at

> manometries and had a very calming manner about her. I would think

> that can make it maybe just a tad easier on you if you have someone

> skilled at the test, doing it. I'm hoping today brings better

> swallowing for you!! Please keep us posted.

>

> in Michigan

>