2nd myotomy verses more pheunmatic dilations?

June 28, 2006

I am wondering how many people have had a 2nd myotomy? my Doc

DR.Fang from the university of utah wich I like he has been the best

so far that I have seen and the top doc for " A " in utah. Anyway the

last time I seen him in OCT. he said to fight it aggresivly I had

already had 2 pheunmatic dilations and he said 1-2 more and then if

that did not work to think about anthor myotomy. He wont remove

my " E " because I am 28 and he said my chances of it lasting are slim

to none. I like others stuggle to swallow it does go down eventualy

I suffer from severe nccp's sometimes for days at a time I sit up in

bed to get even water down sometimes but from where I was in the

begining this is nothing compared to that I think that the wrap was

done to tight because I will start to get dry heaves severe ones yes

nothing comes up I even force this when food is stuck and only a

little comes up. I thank the lord I have not had the flu in years

because I can't throw up someone told me I could I just haven't

tried hard enough is that possible yuck. anyway how is the out look

for a second myotomy or do I just live to the way I have adjusted to

living. Alot of days I feel to tired to fight anymore. other days I

wonder why on earth would I except this as a way of life. Family

often stare at me while I eat ya know what this makes it harder to

swallow. And does anyone else expiernce this. it is almost like my

throat forgets how to swallow and it takes me a great deal of effort

to even get my throat to swallow even liquid. Somedays I can dine on

steak and potatoes others I can't. I am sorry to ramble but there is

alot I ponder and I read the post and ponder some more how severe

can vigerous Achalasia get I know the depresion can get horrid

swallowing is a joke but in the end for those of us that are younger

not that I feel young and not to discredit the oracles here god

bless you all. But really having had " A " for 12 years how bad is it

going to get for me? I guess I am emotinal right now alot going on

and it makes it worse for me anyway anythoughts would be

appreciated. thanks again Tamara

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