Esophageal motility Study Results

June 19, 2006

Dear friends.

My GI called, he received my Motility Study Results. The results

confirmed that I have Achalasia. The GI asked me to schedule an in

office appointment to talk about my options. Nifedipine didn't work

for me! So let's see what other options he suggests.

Thanks for all the support.

Manny on Long Island

June 19, 2006

Dear Manny, I hope you are not too shocked by this conclusive diagnosis. Sometimes it is better to know what you are dealing with, so that you can roll up your sleeves and move on. Join the Club. You are now a fully- fledged Member. Nice to put a face to the writing. Brings you to life. Love from Club Member Ann in England xxxxxxxM1Silva <nybigapple@...> wrote: Esophageal motility Study ResultsDear friends. My GI called, he received my Motility Study Results. The results confirmed that I have Achalasia. The GI asked me to schedule an in office appointment to talk about my options. Nifedipine didn't work for me! So let's see what other options he suggests.Thanks for all the support.Manny on Long Island

All new "The new Interface is stunning in its simplicity and ease of use." - PC Magazine

July 11, 2006

Manny, If you have had a definitive diagnosis, I do not like the sound of either of those options. Do not concede to this.M1Silva <nybigapple@...> wrote: My GI went over the results with me. He said that based on the study, it shows that I got Achalasia and that it is in its early stages.He told me all about the options available but did not recommend me having surgery because was too

early and he said that it could create additional problems that I don't have at the moment.He suggested1) The temporary relive - Botox injection 2) Do Nothing for now.I decided not to do anything for now and wait.He decided to keep on the Prevacid and scheduled a follow up appointment 3 months from now.Thanks for all your supportManny_on_Long_Island

All new "The new Interface is stunning in its simplicity and ease of use." - PC Magazine

July 11, 2006

Manny, please read back some of the old messages regarding

Botox. At the best it is temporary. It is also claimed by many

surgeons that Botox can make the surgery harder and less

successful due to the scar tissue it leaves.

I had two Botox (that was 6 years ago and before I knew

better) neither of them helped me at all. If I'd known then

what I know now I'd definitely not have had them. Isn't

hindsight wonderful?

Please do a lot of research before you agree to Botox.

Good Luck,

Maggie

July 11, 2006

Dear Ann,

Based on the Esophageal Study and barium test the diagnosis are

definitive (early stage achalasia), but my GI and the Doctor that

read the Esophageal Study said they wouldn't recommend surgery, also

about a year or so ago my GI did my upper endoscopy and he said that

my stomach looked normal and that my esophagus was not damaged.

Sometimes after surgery you might develop the hiccups and acids

might start to damage the esophagus, yes I know you can get a wrap

but it isn't done right the first time you will need to do it again.

He recommended trying to change my diet habits and avoid the trouble

foods and he said that he would like to see me again in 3 to 4

months to see how I was doing.

So far I have done that, I try to avoid dry foods like white rice

and dry bread. I am leaving a normal life, I'm more relaxed.

I will wait 3 months then if my symptoms get worse I will decide

what to do.

> My GI went over the results with me. He said that based

on the study,

> it shows that I got Achalasia and that it is in its early stages.

>

> He told me all about the options available but did not recommend

me

> having surgery because was too early and he said that it could

create

> additional problems that I don't have at the moment.

>

> He suggested

>

> 1) The temporary relive - Botox injection

>

> 2) Do Nothing for now.

>

> I decided not to do anything for now and wait.

>

> He decided to keep on the Prevacid and scheduled a follow up

> appointment 3 months from now.

>

> Thanks for all your support

> Manny_on_Long_Island

>

> ---------------------------------

> All new " The new Interface is stunning in its

simplicity and ease of use. " - PC Magazine

>

July 11, 2006

Dear Manny, I don't suppose three months is going to make much difference, but I do not like what he is saying. Is he waiting for your E to become damaged before he feels that surgery is applicable? Knowing what I know now, I wish that I had had surgery at an early stage. Then I could have avoided the distension which may eventally lead me down the path is currently having to tread. You are right about the wrap. It is a fine line between it being too tight and too loose. I have been put on acid suppressing meds to prevent the acid causing ulceration or something worse to my E. I know that this is not the ideal solution which we all

want, which is to be completely normal and med. free, but hard luck, we have to compromise. Anyone who develops diabetes had to take insulin in some form and it's not so different a situation for us. It's what you might call "needs must". As for foods, yes dry bread is difficult but most foods can be eaten in different forms. I used to find that I could eat toast or toasted sandwiches when I could not eat normal sandwiches, and fried rice, as served in Chinese cookery might be a safer bet. Anything covered in olive oil, like stir-fried vegetables is also worth a try. But ultimately, surely the idea is to be able to eat more or less what you

want. I leave the decision to you, but you know what I think. Love from Ann xxM1Silva <nybigapple@...> wrote: Dear Ann,Based on the Esophageal Study and barium test the diagnosis are definitive (early stage achalasia), but my GI and the Doctor that read the Esophageal Study said they wouldn't recommend surgery, also about a year or so ago my GI did my upper endoscopy and he said that my

stomach looked normal and that my esophagus was not damaged.Sometimes after surgery you might develop the hiccups and acids might start to damage the esophagus, yes I know you can get a wrap but it isn't done right the first time you will need to do it again.He recommended trying to change my diet habits and avoid the trouble foods and he said that he would like to see me again in 3 to 4 months to see how I was doing.So far I have done that, I try to avoid dry foods like white rice and dry bread. I am leaving a normal life, I'm more relaxed.I will wait 3 months then if my symptoms get worse I will decide what to do.> My GI went over the results with me. He said that based on the study, > it shows that I got Achalasia and that it is in its early stages.> > He told me all about the options available but did not recommend me > having surgery because was too early and he said that it could create > additional problems that I don't have at the moment.> > He suggested> > 1) The temporary relive - Botox injection > > 2) Do Nothing for now.> > I decided not to do anything for now and wait.> > He decided to keep on the Prevacid and scheduled a follow up > appointment 3 months from now.> > Thanks for all your support> Manny_on_Long_Island> > > > > > > ---------------------------------> All new "The new

Interface is stunning in its simplicity and ease of use." - PC Magazine>

All new "The new Interface is stunning in its simplicity and ease of use." - PC Magazine

July 11, 2006

Manny

Yes things in oil do seem to go

down better, maybe that explains why I put butter on everything LOL. My

husband just shakes his head at me with the butter thing, he about gags!

And yes bread is a bad thing for me, we (me and hubby) have had this continuing

discussion over buns LOL. I don’t buy them and he likes them.

Couldn’t understand til recently why I didn’t buy them LOL.

let me know when your going to go in for surgery! I want to start putting

surgeries of our members on the calendar! So I know when their

anniversaries are!!!

C Warren

Co-Founder

www.achalasia.us

From:

achalasia [mailto:achalasia ] On Behalf Of Ann

Higgs

Sent: Tuesday, July 11, 2006 11:22 AM

achalasia

Subject: Re: Re: Esophageal motility Study Results

Dear Manny,

I don't suppose three

months is going to make much difference, but I do not like what he is

saying. Is he waiting for your E to become damaged before he feels

that surgery is applicable? Knowing what I know now, I wish that I had

had surgery at an early stage. Then I could have avoided the distension

which may eventally lead me down the path is currently having to tread.

You are right about the

wrap. It is a fine line between it being too tight and too loose.

I have been put on acid suppressing meds to prevent the acid causing

ulceration or something worse to my E. I know that this is not the ideal

solution which we all want, which is to be completely normal and med. free, but

hard luck, we have to compromise.

Anyone who develops

diabetes had to take insulin in some form and it's not so different a situation

for us. It's what you might call " needs must " .

As for foods, yes dry

bread is difficult but most foods can be eaten in different forms. I used

to find that I could eat toast or toasted sandwiches when I could not eat

normal sandwiches, and fried rice, as served in Chinese cookery might be a

safer bet. Anything covered in olive oil, like stir-fried vegetables is

also worth a try.

But ultimately, surely the

idea is to be able to eat more or less what you want.

I leave the decision to

you, but you know what I think.

Love from Ann xx

M1Silva <nybigapple@...>

wrote: