Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 It's an interesting question you ask. I will answer you from personal experience, but first want to pose the question as to how Alzheimer's is diagnosed. Many of us know that the "gold standard" of diagnosing it is to do an autopsy. Not the best idea to have it done that way when you are still alive. Obviously, you know that manometry is the gold standard with diagnosing Achalasia. But, my point is, from my example above, and despite some disagreement by some very learned people here, you don't need a manometry to diagnose achalasia. I had all the symptoms for nearly a year, and yes, it is very true that with malfunctions of the esophagus, you will have similar, if not identical symptoms for different disorders. But doctors, through their experience can add 2 + 2 and come up with the correct answer. My GI doctor was confident enough with my symptoms and from the results of my barium swallow (that left me only a couple of hours away from killing me, before saving my life), along with several endoscopies to make a positive diagnosis, which led him to do several stretchings and balloon dilatations. When he finally sent me, later on, from NY to Philadelphia for the manometry, the technician botched it so badly, and tortured me so much, unable to get the tube down, that they would not even accept payment from me for it (circa 1985). When the same doctor then sent me down to s Hopkins for the same test, my GI doc, retired Hendricks, told me that they don't need manometries for positive diagnosis. The proof of that would be my having a Heller Myotomy in 1991, without ever having a successful manometry done. I know that I'm in the majority in saying that the test is not pleasant, to put it mildly, but apparently my doctors were definitely in the minority when they told me they would rather do other tests to diagnose achalasia then to put a patient thru that kind of torture. In 2006, I cannot tell you what their policy is. To repeat your question: I was wondering, Has anyone here ever NOT been able to get through the manometry test and still get a diagnosis of A? The diagnosis came way before the manometry test that I could not get through due to the tightness of my LES and the inabilities of the technician. In a message dated 6/19/2006 5:56:37 P.M. Eastern Standard Time, AriesAngel70@... writes: I was wondering, Has anyone here ever NOT been able to get through the manometry test and still get a diagnosis of A? Thanks so much Like my Tags? Join my group! RobynsTagDesigns Like my Stats? Join my Group! RobynsStationary Check out my blogs! RobynsCurrentEventsBlog Loving & LivingThroughLossBlog A dog is the only thing on earth that loves you more than he loves himself -Josh Billings Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 Robyn, You didn't tell us what your height is, but at 86 pounds you must take positive actions ASAP. You can't continue this way. I'm sure others here share the same concerns for you. If you can't do the manometry, you must find a doctor who will diagnose you, whatever the cause of what has happened to you, and then follow with all the necessary steps to get you back to where you should be. Please keep on asking questions and try to tell us more about yourself so that we might help. In a message dated 6/19/2006 8:25:23 P.M. Eastern Standard Time, AriesAngel70@... writes: Hi Thank you so much for your post. I asked because I know in my heart of hearts there is no way in hell I will be able to get through a manometry test. First off I have severe panic disorder and the second I feel that tube going up my nose I am going to freak out. Secondly If they were even able to get this far and get it in the minute I felt it in my throat I'd want to pull it out.. My throat, esophagus is so messed up now and I constantly feel like there's something in it and the muscles are always spasming and so forth that I have anxiety attacks from this nevermind a manamotry. My GI doctor wanted to do one and I haven't been back to him since. Almost a yr later. My swallowing has gotten worse but he said to me I will have to do a manomtry and 24 hr ph to really tell you how bad your reflux is how bad your hiatal hernia is and if there is a motility problem. Well I can tell him from my own experience there IS a major motility problem going on here. I don't see why he feels the need to torture me to allready tell me what I know.. I am so confused and scared so I sit here each day at 86 pounds getting in what little food I can, mostly liquids and pureed things and ice cream. I recently started a 1500 calorie weight gainig drink. I haven't seen much in the way of wieght gain but then again I"ve been too afraid to get on the scale for fear I will have lost more and not gained. I live in SC where the health care is horrible. I am also sick with chronic lyme disease for 15 yrs so I am sick on a daily basis. I SO wish I lived closer to Ohio so I could go to the Cleveland clinic but to be honest I don't know if my body would stand the travel.. I'm very confused, I don't feel well at all and Im also very scared.. *sigh* This is why I don't write much because I don't have much to contribute.. Thank you so much for posting so quickly on my question. Robyn Like my Tags? Join my group! RobynsTagDesigns Like my Stats? Join my Group! RobynsStationary Check out my blogs! RobynsCurrentEventsBlog Loving & LivingThroughLossBlog A dog is the only thing on earth that loves you more than he loves himself -Josh Billings -- Re: Manometry Question It's an interesting question you ask. I will answer you from personal experience, but first want to pose the question as to how Alzheimer's is diagnosed. Many of us know that the "gold standard" of diagnosing it is to do an autopsy. Not the best idea to have it done that way when you are still alive. Obviously, you know that manometry is the gold standard with diagnosing Achalasia. But, my point is, from my example above, and despite some disagreement by some very learned people here, you don't need a manometry to diagnose achalasia. I had all the symptoms for nearly a year, and yes, it is very true that with malfunctions of the esophagus, you will have similar, if not identical symptoms for different disorders. But doctors, through their experience can add 2 + 2 and come up with the correct answer. My GI doctor was confident enough with my symptoms and from the results of my barium swallow (that left me only a couple of hours away from killing me, before saving my life), along with several endoscopies to make a positive diagnosis, which led him to do several stretchings and balloon dilatations. When he finally sent me, later on, from NY to Philadelphia for the manometry, the technician botched it so badly, and tortured me so much, unable to get the tube down, that they would not even accept payment from me for it (circa 1985). When the same doctor then sent me down to s Hopkins for the same test, my GI doc, retired Hendricks, told me that they don't need manometries for positive diagnosis. The proof of that would be my having a Heller Myotomy in 1991, without ever having a successful manometry done. I know that I'm in the majority in saying that the test is not pleasant, to put it mildly, but apparently my doctors were definitely in the minority when they told me they would rather do other tests to diagnose achalasia then to put a patient thru that kind of torture. In 2006, I cannot tell you what their policy is. To repeat your question: I was wondering, Has anyone here ever NOT been able to get through the manometry test and still get a diagnosis of A? The diagnosis came way before the manometry test that I could not get through due to the tightness of my LES and the inabilities of the technician. In a message dated 6/19/2006 5:56:37 P.M. Eastern Standard Time, AriesAngel70@... writes: I was wondering, Has anyone here ever NOT been able to get through the manometry test and still get a diagnosis of A? Thanks so much Like my Tags? Join my group! RobynsTagDesigns Like my Stats? Join my Group! RobynsStationary Check out my blogs! RobynsCurrentEventsBlog Loving & LivingThroughLossBlog A dog is the only thing on earth that loves you more than he loves himself -Josh Billings Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 Hi Thank you so much for your post. I asked because I know in my heart of hearts there is no way in hell I will be able to get through a manometry test. First off I have severe panic disorder and the second I feel that tube going up my nose I am going to freak out. Secondly If they were even able to get this far and get it in the minute I felt it in my throat I'd want to pull it out.. My throat, esophagus is so messed up now and I constantly feel like there's something in it and the muscles are always spasming and so forth that I have anxiety attacks from this nevermind a manamotry. My GI doctor wanted to do one and I haven't been back to him since. Almost a yr later. My swallowing has gotten worse but he said to me I will have to do a manomtry and 24 hr ph to really tell you how bad your reflux is how bad your hiatal hernia is and if there is a motility problem. Well I can tell him from my own experience there IS a major motility problem going on here. I don't see why he feels the need to torture me to allready tell me what I know.. I am so confused and scared so I sit here each day at 86 pounds getting in what little food I can, mostly liquids and pureed things and ice cream. I recently started a 1500 calorie weight gainig drink. I haven't seen much in the way of wieght gain but then again I"ve been too afraid to get on the scale for fear I will have lost more and not gained. I live in SC where the health care is horrible. I am also sick with chronic lyme disease for 15 yrs so I am sick on a daily basis. I SO wish I lived closer to Ohio so I could go to the Cleveland clinic but to be honest I don't know if my body would stand the travel.. I'm very confused, I don't feel well at all and Im also very scared.. *sigh* This is why I don't write much because I don't have much to contribute.. Thank you so much for posting so quickly on my question. Robyn Like my Tags? Join my group! RobynsTagDesigns Like my Stats? Join my Group! RobynsStationary Check out my blogs! RobynsCurrentEventsBlog Loving & LivingThroughLossBlog A dog is the only thing on earth that loves you more than he loves himself -Josh Billings -- Re: Manometry Question It's an interesting question you ask. I will answer you from personal experience, but first want to pose the question as to how Alzheimer's is diagnosed. Many of us know that the "gold standard" of diagnosing it is to do an autopsy. Not the best idea to have it done that way when you are still alive. Obviously, you know that manometry is the gold standard with diagnosing Achalasia. But, my point is, from my example above, and despite some disagreement by some very learned people here, you don't need a manometry to diagnose achalasia. I had all the symptoms for nearly a year, and yes, it is very true that with malfunctions of the esophagus, you will have similar, if not identical symptoms for different disorders. But doctors, through their experience can add 2 + 2 and come up with the correct answer. My GI doctor was confident enough with my symptoms and from the results of my barium swallow (that left me only a couple of hours away from killing me, before saving my life), along with several endoscopies to make a positive diagnosis, which led him to do several stretchings and balloon dilatations. When he finally sent me, later on, from NY to Philadelphia for the manometry, the technician botched it so badly, and tortured me so much, unable to get the tube down, that they would not even accept payment from me for it (circa 1985). When the same doctor then sent me down to s Hopkins for the same test, my GI doc, retired Hendricks, told me that they don't need manometries for positive diagnosis. The proof of that would be my having a Heller Myotomy in 1991, without ever having a successful manometry done. I know that I'm in the majority in saying that the test is not pleasant, to put it mildly, but apparently my doctors were definitely in the minority when they told me they would rather do other tests to diagnose achalasia then to put a patient thru that kind of torture. In 2006, I cannot tell you what their policy is. To repeat your question: I was wondering, Has anyone here ever NOT been able to get through the manometry test and still get a diagnosis of A? The diagnosis came way before the manometry test that I could not get through due to the tightness of my LES and the inabilities of the technician. In a message dated 6/19/2006 5:56:37 P.M. Eastern Standard Time, AriesAngel70@... writes: I was wondering, Has anyone here ever NOT been able to get through the manometry test and still get a diagnosis of A? Thanks so much Like my Tags? Join my group! RobynsTagDesigns Like my Stats? Join my Group! RobynsStationary Check out my blogs! RobynsCurrentEventsBlog Loving & LivingThroughLossBlog A dog is the only thing on earth that loves you more than he loves himself -Josh Billings Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 Robyn, I just wanted to let you know that the manometry was not that bad for me. I, too, have anxiety attacks so I know what you are talking about. I was able to pray my way through my test and I didn't have any problem with gagging. It was slightly uncomfortable and I was glad when it was over, but it didn't seem to last as long as I thought it would. I also had a very nice technician and she helped me feel better. Have you ever taken any medication for your anxiety attacks? If so, you would be able to take some before your test and I know you would do fine. Maybe you could speak with the person that would do your test and discuss your apprehension with him or her. They might be able to help allay your fears. Good luck, Kathy -- In achalasia , " ariesangel70 " <AriesAngel70@...> wrote: > > Hi > > Thank you so much for your post. I asked because I know in my heart of > hearts there is no way in hell I will be able to get through a manometry > test. First off I have severe panic disorder and the second I feel that tube > going up my nose I am going to freak out. Secondly If they were even able to > get this far and get it in the minute I felt it in my throat I'd want to > pull it out.. My throat, esophagus is so messed up now and I constantly feel > like there's something in it and the muscles are always spasming and so > forth that I have anxiety attacks from this nevermind a manamotry. My GI > doctor wanted to do one and I haven't been back to him since. Almost a yr > later. My swallowing has gotten worse but he said to me I will have to do a > manomtry and 24 hr ph to really tell you how bad your reflux is how bad your > hiatal hernia is and if there is a motility problem. Well I can tell him > from my own experience there IS a major motility problem going on here. I > don't see why he feels the need to torture me to allready tell me what I > know.. I am so confused and scared so I sit here each day at 86 pounds > getting in what little food I can, mostly liquids and pureed things and ice > cream. I recently started a 1500 calorie weight gainig drink. I haven't seen > much in the way of wieght gain but then again I " ve been too afraid to get on > the scale for fear I will have lost more and not gained. > > I live in SC where the health care is horrible. I am also sick with chronic > lyme disease for 15 yrs so I am sick on a daily basis. I SO wish I lived > closer to Ohio so I could go to the Cleveland clinic but to be honest I don > t know if my body would stand the travel.. I'm very confused, I don't feel > well at all and Im also very scared.. *sigh* This is why I don't write much > because I don't have much to contribute.. Thank you so much for posting so > quickly on my question. > > Robyn > > > > > > Like my Tags? Join my group! > > RobynsTagDesigns > > Like my Stats? Join my Group! > > RobynsStationary > > Check out my blogs! > > RobynsCurrentEventsBlog > > Loving & LivingThroughLossBlog > > A dog is the only thing on earth that loves > > you more than he loves himself > > -Josh Billings > > > > > > > > > > > > > > > > > > > > -- Re: Manometry Question > > > > It's an interesting question you ask. I will answer you from personal > experience, but first want to pose the question as to how Alzheimer's is > diagnosed. Many of us know that the " gold standard " of diagnosing it is to > do an autopsy. Not the best idea to have it done that way when you are > still alive. > > > > Obviously, you know that manometry is the gold standard with diagnosing > Achalasia. But, my point is, from my example above, and despite some > disagreement by some very learned people here, you don't need a manometry to > diagnose achalasia. > > > > I had all the symptoms for nearly a year, and yes, it is very true that with > malfunctions of the esophagus, you will have similar, if not identical > symptoms for different disorders. But doctors, through their experience can > add 2 + 2 and come up with the correct answer. > > > > My GI doctor was confident enough with my symptoms and from the results of > my barium swallow (that left me only a couple of hours away from killing me, > before saving my life), along with several endoscopies to make a positive > diagnosis, which led him to do several stretchings and balloon dilatations. > > > > When he finally sent me, later on, from NY to Philadelphia for the manometry > the technician botched it so badly, and tortured me so much, unable to get > the tube down, that they would not even accept payment from me for it (circa > 1985). When the same doctor then sent me down to s Hopkins for the same > test, my GI doc, retired Hendricks, told me that they don't need > manometries for positive diagnosis. The proof of that would be my having a > Heller Myotomy in 1991, without ever having a successful manometry done. > > > > I know that I'm in the majority in saying that the test is not pleasant, to > put it mildly, but apparently my doctors were definitely in the minority > when they told me they would rather do other tests to diagnose achalasia > then to put a patient thru that kind of torture. > > > > In 2006, I cannot tell you what their policy is. > > > > To repeat your question: > > > > I was wondering, Has anyone here ever NOT been able to get through the > manometry test and still get a diagnosis of A? > > > > The diagnosis came way before the manometry test that I could not get > through due to the tightness of my LES and the inabilities of the technician > > > > > > > > > > > > > In a message dated 6/19/2006 5:56:37 P.M. Eastern Standard Time, > AriesAngel70@... writes: > > > > > > I was wondering, > > Has anyone here ever NOT been able to get through the manometry test and > still get a diagnosis of A? > > Thanks so much > > > > > > Like my Tags? Join my group! > > RobynsTagDesigns > > Like my Stats? Join my Group! > > RobynsStationary > > Check out my blogs! > > RobynsCurrentEventsBlog > > Loving & LivingThroughLossBlog > > A dog is the only thing on earth that loves > > you more than he loves himself > > -Josh Billings > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 I just had a failed manometry test. My GI doc seems to be saying that he can diagnose me without one. He did not tell me that we had to repeat it. I am still chasing down a definate diagnosis though! I certainly hope that you have success through other routes!!! > > I was wondering, > > Has anyone here ever NOT been able to get through the manometry test and > still get a diagnosis of A? > > Thanks so much > > > > > > Like my Tags? Join my group! > > RobynsTagDesigns > > Like my Stats? Join my Group! > > RobynsStationary > > Check out my blogs! > > RobynsCurrentEventsBlog > > Loving & LivingThroughLossBlog > > A dog is the only thing on earth that loves > > you more than he loves himself > > -Josh Billings > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 Hi, I think I be be part of a minority, but I have never had a manometry and was diagnosed with A via barium swallow, endoscopy and had had a host of testing done by the time I went to get my barium. I had the classic bird beak and the xray guys took one look at it and said " A " . But again, I strongly emphasize that this is not the norm. Lisbeth > > I was wondering, > > Has anyone here ever NOT been able to get through the manometry test and > still get a diagnosis of A? > > Thanks so much > > > > > > Like my Tags? Join my group! > > RobynsTagDesigns > > Like my Stats? Join my Group! > > RobynsStationary > > Check out my blogs! > > RobynsCurrentEventsBlog > > Loving & LivingThroughLossBlog > > A dog is the only thing on earth that loves > > you more than he loves himself > > -Josh Billings > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 Kathy Thanks so much for answering. Yes I take Ativan but that was given to me for the swallowing and sleeping problems. I take it 2 times a day once before bed at night and then once in the afternoon so I can sleep a little and swallow a little better when I wake up. I didn't know you could take anything like that before the manamotry? I was told by someone, can't remember who that I wasn't able to take anything for the anxiety because it would throw off the test result by relaxing my muscles? I am so confused..LOL.. Im glad you were able to get through your test OK.. Problem Is here in SC the health care is so aweful I don't trust anyone here but I"m looking into the university hospital 3 hours away from me and I see they have a digestive center and a doctor there who deals with strictly esophageal and swallowing problems. He also studied under Dr Rice at the Cleveland clinic so I have emailed him about me and I"m hoping someone will get back to me.. Thanks so much for your post Hugs Robyn Like my Tags? Join my group! RobynsTagDesigns Like my Stats? Join my Group! RobynsStationary Check out my blogs! RobynsCurrentEventsBlog Loving & LivingThroughLossBlog A dog is the only thing on earth that loves you more than he loves himself -Josh Billings -- Re: Manometry Question> > > > It's an interesting question you ask. I will answer you from personal> experience, but first want to pose the question as to how Alzheimer's is> diagnosed. Many of us know that the "gold standard" of diagnosingit is to> do an autopsy. Not the best idea to have it done that way when you are> still alive. > > > > Obviously, you know that manometry is the gold standard with diagnosing> Achalasia. But, my point is, from my example above, and despite some> disagreement by some very learned people here, you don't need amanometry to> diagnose achalasia. > > > > I had all the symptoms for nearly a year, and yes, it is very truethat with> malfunctions of the esophagus, you will have similar, if not identical> symptoms for different disorders. But doctors, through theirexperience can> add 2 + 2 and come up with the correct answer.> > > > My GI doctor was confident enough with my symptoms and from theresults of> my barium swallow (that left me only a couple of hours away fromkilling me,> before saving my life), along with several endoscopies to make apositive> diagnosis, which led him to do several stretchings and balloondilatations.> > > > When he finally sent me, later on, from NY to Philadelphia for themanometry> the technician botched it so badly, and tortured me so much, unableto get> the tube down, that they would not even accept payment from me forit (circa> 1985). When the same doctor then sent me down to s Hopkins forthe same> test, my GI doc, retired Hendricks, told me that they don't need> manometries for positive diagnosis. The proof of that would be myhaving a> Heller Myotomy in 1991, without ever having a successful manometry done.> > > > I know that I'm in the majority in saying that the test is notpleasant, to> put it mildly, but apparently my doctors were definitely in the minority> when they told me they would rather do other tests to diagnose achalasia> then to put a patient thru that kind of torture.> > > > In 2006, I cannot tell you what their policy is.> > > > To repeat your question:> > > > I was wondering, Has anyone here ever NOT been able to get through the> manometry test and still get a diagnosis of A?> > > > The diagnosis came way before the manometry test that I could not get> through due to the tightness of my LES and the inabilities of thetechnician> > > > > > > > > > > > > In a message dated 6/19/2006 5:56:37 P.M. Eastern Standard Time,> AriesAngel70@... writes:> > > > > > I was wondering, > > Has anyone here ever NOT been able to get through the manometry test and> still get a diagnosis of A?> > Thanks so much> > > > > > Like my Tags? Join my group!> > RobynsTagDesigns> > Like my Stats? Join my Group!> > RobynsStationary> > Check out my blogs!> > RobynsCurrentEventsBlog> > Loving & LivingThroughLossBlog> > A dog is the only thing on earth that loves> > you more than he loves himself> > -Josh Billings> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 Robyn- You have much to offer by sharing your experience with others who may be going through it themselves, but are hesitant to reach out. You have more to gain by obtaining information and support from the group. Remember, we understand struggling to get food and drink past that spot in the throat (or chest), racing to get rid of the meal that just wouldn't go down, choking all the time, and some of us thinking that we wouldn't make it through the next incident. It is just my opinion that you might begin by emailing some of the doctors (Rice & Patti?). Do you have anyone who can drive you to the Cleveland Clinic? Maybe there are others on this board with more concrete ideas, but just take comfort in knowing that we care and are here for you. Jo > > Hi > > Thank you so much for your post. I asked because I know in my heart of > hearts there is no way in hell I will be able to get through a manometry > test. First off I have severe panic disorder and the second I feel that tube > going up my nose I am going to freak out. Secondly If they were even able to > get this far and get it in the minute I felt it in my throat I'd want to > pull it out.. My throat, esophagus is so messed up now and I constantly feel > like there's something in it and the muscles are always spasming and so > forth that I have anxiety attacks from this nevermind a manamotry. My GI > doctor wanted to do one and I haven't been back to him since. Almost a yr > later. My swallowing has gotten worse but he said to me I will have to do a > manomtry and 24 hr ph to really tell you how bad your reflux is how bad your > hiatal hernia is and if there is a motility problem. Well I can tell him > from my own experience there IS a major motility problem going on here. I > don't see why he feels the need to torture me to allready tell me what I > know.. I am so confused and scared so I sit here each day at 86 pounds > getting in what little food I can, mostly liquids and pureed things and ice > cream. I recently started a 1500 calorie weight gainig drink. I haven't seen > much in the way of wieght gain but then again I " ve been too afraid to get on > the scale for fear I will have lost more and not gained. > > I live in SC where the health care is horrible. I am also sick with chronic > lyme disease for 15 yrs so I am sick on a daily basis. I SO wish I lived > closer to Ohio so I could go to the Cleveland clinic but to be honest I don > t know if my body would stand the travel.. I'm very confused, I don't feel > well at all and Im also very scared.. *sigh* This is why I don't write much > because I don't have much to contribute.. Thank you so much for posting so > quickly on my question. > > Robyn > > > > > > Like my Tags? Join my group! > > RobynsTagDesigns > > Like my Stats? Join my Group! > > RobynsStationary > > Check out my blogs! > > RobynsCurrentEventsBlog > > Loving & LivingThroughLossBlog > > A dog is the only thing on earth that loves > > you more than he loves himself > > -Josh Billings > > > > > > > > > > > > > > > > > > > > -- Re: Manometry Question > > > > It's an interesting question you ask. I will answer you from personal > experience, but first want to pose the question as to how Alzheimer's is > diagnosed. Many of us know that the " gold standard " of diagnosing it is to > do an autopsy. Not the best idea to have it done that way when you are > still alive. > > > > Obviously, you know that manometry is the gold standard with diagnosing > Achalasia. But, my point is, from my example above, and despite some > disagreement by some very learned people here, you don't need a manometry to > diagnose achalasia. > > > > I had all the symptoms for nearly a year, and yes, it is very true that with > malfunctions of the esophagus, you will have similar, if not identical > symptoms for different disorders. But doctors, through their experience can > add 2 + 2 and come up with the correct answer. > > > > My GI doctor was confident enough with my symptoms and from the results of > my barium swallow (that left me only a couple of hours away from killing me, > before saving my life), along with several endoscopies to make a positive > diagnosis, which led him to do several stretchings and balloon dilatations. > > > > When he finally sent me, later on, from NY to Philadelphia for the manometry > the technician botched it so badly, and tortured me so much, unable to get > the tube down, that they would not even accept payment from me for it (circa > 1985). When the same doctor then sent me down to s Hopkins for the same > test, my GI doc, retired Hendricks, told me that they don't need > manometries for positive diagnosis. The proof of that would be my having a > Heller Myotomy in 1991, without ever having a successful manometry done. > > > > I know that I'm in the majority in saying that the test is not pleasant, to > put it mildly, but apparently my doctors were definitely in the minority > when they told me they would rather do other tests to diagnose achalasia > then to put a patient thru that kind of torture. > > > > In 2006, I cannot tell you what their policy is. > > > > To repeat your question: > > > > I was wondering, Has anyone here ever NOT been able to get through the > manometry test and still get a diagnosis of A? > > > > The diagnosis came way before the manometry test that I could not get > through due to the tightness of my LES and the inabilities of the technician > > > > > > > > > > > > > In a message dated 6/19/2006 5:56:37 P.M. Eastern Standard Time, > AriesAngel70@... writes: > > > > > > I was wondering, > > Has anyone here ever NOT been able to get through the manometry test and > still get a diagnosis of A? > > Thanks so much > > > > > > Like my Tags? Join my group! > > RobynsTagDesigns > > Like my Stats? Join my Group! > > RobynsStationary > > Check out my blogs! > > RobynsCurrentEventsBlog > > Loving & LivingThroughLossBlog > > A dog is the only thing on earth that loves > > you more than he loves himself > > -Josh Billings > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 I couldn’t get through mine!!! Due to stupid techs LOL. They sucked, let me tell you! This was before my myotomy by the BUTCHER as I call him now!!! They couldn’t get it to go through the LES so they kept pulling it out and putting it back down, after about 20 min of this they decided to give up!! And in the process and made my nasal passages swell up. So when they went to pull it out, they couldn’t. The probes’ were getting caught at the back of my nasal cavity, finally they just yanked it out!!! In the process damaged my septum!! Now I can’t have tubes put down that side!! Please visit my new site, www.achalasia.us From: achalasia [mailto:achalasia ] On Behalf Of lclopez477 Sent: Monday, June 19, 2006 10:07 PM achalasia Subject: Re: Manometry Question Hi, I think I be be part of a minority, but I have never had a manometry and was diagnosed with A via barium swallow, endoscopy and had had a host of testing done by the time I went to get my barium. I had the classic bird beak and the xray guys took one look at it and said " A " . But again, I strongly emphasize that this is not the norm. Lisbeth > > I was wondering, > > Has anyone here ever NOT been able to get through the manometry test and > still get a diagnosis of A? > > Thanks so much > > > > > > Like my Tags? Join my group! > > RobynsTagDesigns > > Like my Stats? Join my Group! > > RobynsStationary > > Check out my blogs! > > RobynsCurrentEventsBlog > > Loving & LivingThroughLossBlog > > A dog is the only thing on earth that loves > > you more than he loves himself > > -Josh Billings > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 Hello, I know how scary the manometry study can be I have had 4 total includung the one that was failed because I had a paninc attack. Might I add that snorting lidacane up the nose is NO FUN AT ALL.But if it comes down to it the Dr. can give you 5mg of valium just enough to calm the nerves but not so much to mess up the test.I did not have my first manometry until I went to have my myotomy with a wrap that was after 5-6 balloon dilations. > > I was wondering, > > Has anyone here ever NOT been able to get through the manometry test and > still get a diagnosis of A? > > Thanks so much Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 1) For the pH study, request the bravo pH test (I posted about this about a month ago and could try to dig up the post if it would be helpful to you). It does not involve tubes. They endoscopically place a small detector in your E that measures the pH in your E and then falls off after a few days. 2) For my first manometry, they gave me Ativan (1 mg I think). I had also been told I couldn't have any sedatives b/c they would mess up the test results (they would relax my muscles too much to detect abnormalities). But my doctor said Ativan would be okay. I don't think it did much for my level of calmness but it is worth trying. Since the 1st manometry didn't work, they did a second one in which they endoscopy placed the manometry tube while I was very sedated. Then, once I woke up the did the rest of the test. Luckily the versed that they gave me for the manometry test made my memory of a lot of the test very fuzzy. What I remember was somewhat unpleasnt but bearable. Honestly I did not enjoy the test but it was not as bad as I had feared. I had gotten rather nauseous once by an ENT putting a tube down my nose to look at my vocal cords so I was really worried about the manometry test. But it wasn't as bad as I feared. I also took an 8 week mediation class before the manometry test to help me relax. I think this helped a fair amount. (It at least kept me calm while I was waiting for the test. I couldn't really try to meditate during the test.) I recommend talking to your doctor about all the ways he could try to minimize the discomfort to you during the manometry test and if there are any ways to diagnose you without it ASAP. It may be worth trying the endoscopy placement of the manometry tube. If you wake up and are really uncomfortable, you could always tell them to immediately pull out the tube. They can do this rather quickly. I told myself that I could survive the manometry test. And if it turned out I was wrong, then I would not blame myself for not tolerating the test. I would just try to figure out what other options there were for me. If you are the person who mentioned being 86 pounds, my guess is that dealing with the manometry test might not be that much worse than what you are dealing with everyday already. So, the manometry test may be worth trying if it will lead to a diagnosis and treatment options for you. Or see if another doctor will diagnose you without the test. Vicki > > Hi > > Thank you so much for your post. I asked because I know in my heart of > hearts there is no way in hell I will be able to get through a manometry > test. First off I have severe panic disorder and the second I feel that tube > going up my nose I am going to freak out. Secondly If they were even able to > get this far and get it in the minute I felt it in my throat I'd want to > pull it out.. My throat, esophagus is so messed up now and I constantly feel > like there's something in it and the muscles are always spasming and so > forth that I have anxiety attacks from this nevermind a manamotry. My GI > doctor wanted to do one and I haven't been back to him since. Almost a yr > later. My swallowing has gotten worse but he said to me I will have to do a > manomtry and 24 hr ph to really tell you how bad your reflux is how bad your > hiatal hernia is and if there is a motility problem. Well I can tell him > from my own experience there IS a major motility problem going on here. I > don't see why he feels the need to torture me to allready tell me what I > know.. I am so confused and scared so I sit here each day at 86 pounds > getting in what little food I can, mostly liquids and pureed things and ice > cream. I recently started a 1500 calorie weight gainig drink. I haven't seen > much in the way of wieght gain but then again I " ve been too afraid to get on > the scale for fear I will have lost more and not gained. > > I live in SC where the health care is horrible. I am also sick with chronic > lyme disease for 15 yrs so I am sick on a daily basis. I SO wish I lived > closer to Ohio so I could go to the Cleveland clinic but to be honest I don > t know if my body would stand the travel.. I'm very confused, I don't feel > well at all and Im also very scared.. *sigh* This is why I don't write much > because I don't have much to contribute.. Thank you so much for posting so > quickly on my question. > > Robyn > > > > > > Like my Tags? Join my group! > > RobynsTagDesigns > > Like my Stats? Join my Group! > > RobynsStationary > > Check out my blogs! > > RobynsCurrentEventsBlog > > Loving & LivingThroughLossBlog > > A dog is the only thing on earth that loves > > you more than he loves himself > > -Josh Billings > > > > > > > > > > > > > > > > > > > > -- Re: Manometry Question > > > > It's an interesting question you ask. I will answer you from personal > experience, but first want to pose the question as to how Alzheimer's is > diagnosed. Many of us know that the " gold standard " of diagnosing it is to > do an autopsy. Not the best idea to have it done that way when you are > still alive. > > > > Obviously, you know that manometry is the gold standard with diagnosing > Achalasia. But, my point is, from my example above, and despite some > disagreement by some very learned people here, you don't need a manometry to > diagnose achalasia. > > > > I had all the symptoms for nearly a year, and yes, it is very true that with > malfunctions of the esophagus, you will have similar, if not identical > symptoms for different disorders. But doctors, through their experience can > add 2 + 2 and come up with the correct answer. > > > > My GI doctor was confident enough with my symptoms and from the results of > my barium swallow (that left me only a couple of hours away from killing me, > before saving my life), along with several endoscopies to make a positive > diagnosis, which led him to do several stretchings and balloon dilatations. > > > > When he finally sent me, later on, from NY to Philadelphia for the manometry > the technician botched it so badly, and tortured me so much, unable to get > the tube down, that they would not even accept payment from me for it (circa > 1985). When the same doctor then sent me down to s Hopkins for the same > test, my GI doc, retired Hendricks, told me that they don't need > manometries for positive diagnosis. The proof of that would be my having a > Heller Myotomy in 1991, without ever having a successful manometry done. > > > > I know that I'm in the majority in saying that the test is not pleasant, to > put it mildly, but apparently my doctors were definitely in the minority > when they told me they would rather do other tests to diagnose achalasia > then to put a patient thru that kind of torture. > > > > In 2006, I cannot tell you what their policy is. > > > > To repeat your question: > > > > I was wondering, Has anyone here ever NOT been able to get through the > manometry test and still get a diagnosis of A? > > > > The diagnosis came way before the manometry test that I could not get > through due to the tightness of my LES and the inabilities of the technician > > > > > > > > > > > > > In a message dated 6/19/2006 5:56:37 P.M. Eastern Standard Time, > AriesAngel70@... writes: > > > > > > I was wondering, > > Has anyone here ever NOT been able to get through the manometry test and > still get a diagnosis of A? > > Thanks so much > > > > > > Like my Tags? Join my group! > > RobynsTagDesigns > > Like my Stats? Join my Group! > > RobynsStationary > > Check out my blogs! > > RobynsCurrentEventsBlog > > Loving & LivingThroughLossBlog > > A dog is the only thing on earth that loves > > you more than he loves himself > > -Josh Billings > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2006 Report Share Posted June 20, 2006 Hi Robyn, I too was very anxious about tubes going in my nose/throat. I was fortunate to have a very caring technician that helped me through the process. She told me there were two parts to the test. First drinking little sips of salt water and then drinking a thicker liquid. The first part of the test didn't go so great. When she first put the tube down she gave me a glass of water and told me to take lots of fast gulps as she put the tube in. I should not have done that. She got it almost all the way in and then I felt all that water coming up and yelled " Take it out " . She took the tube out as everything came up. I told her that there was no way I could take that many big gulps in a row so she put it in without me having to swallow water. She was very encouraging, soothing and apologetic the whole time as she could tell how miserable the experience was. Even though I threw up several more times during the test, she was able to get good enough readings and said there was no way she was going to put me through the second part of the test. I did not have to have the 24hr PH testing. I don't share this with you to scare you, just to encourage you to try and get the test so you can get treatment. Darla > > I was wondering, > > Has anyone here ever NOT been able to get through the manometry test and > still get a diagnosis of A? > > Thanks so much > > > > > > Like my Tags? Join my group! > > RobynsTagDesigns > > Like my Stats? Join my Group! > > RobynsStationary > > Check out my blogs! > > RobynsCurrentEventsBlog > > Loving & LivingThroughLossBlog > > A dog is the only thing on earth that loves > > you more than he loves himself > > -Josh Billings > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2006 Report Share Posted June 20, 2006 Robyn, The test isn't that bad. A technician (usually a RN)will ask you to sniff some Gel/ then will ask you to clean it/ drink some water as she/he inserts the little wire/ the entire procedure will be over very quickly. Don't eat/drink anything 12 hours prior the test. Don't be afraid and don't stress about it. As you know stress doesn't make thinks easy for us. I had the little wire inserted twice. ( the fire alarm went off during the first time ) Keep us posted, Thanks Manny on LI > > > > I was wondering, > > > > Has anyone here ever NOT been able to get through the manometry > test and > > still get a diagnosis of A? > > > > Thanks so much > > > > > > > > > > > > Like my Tags? Join my group! > > > > RobynsTagDesigns > > > > Like my Stats? Join my Group! > > > > RobynsStationary > > > > Check out my blogs! > > > > RobynsCurrentEventsBlog > > > > Loving & LivingThroughLossBlog > > > > A dog is the only thing on earth that loves > > > > you more than he loves himself > > > > -Josh Billings > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2006 Report Share Posted June 20, 2006 I think you are correct, Robyn, that the doc will want you off anything that relaxes you as it messes up the test. > > > > > > Hi > > > > > > Thank you so much for your post. I asked because I know in my heart of > > > hearts there is no way in hell I will be able to get through a manometry > > > test. First off I have severe panic disorder and the second I feel > > that tube > > > going up my nose I am going to freak out. Secondly If they were even > > able to > > > get this far and get it in the minute I felt it in my throat I'd want to > > > pull it out.. My throat, esophagus is so messed up now and I > > constantly feel > > > like there's something in it and the muscles are always spasming and so > > > forth that I have anxiety attacks from this nevermind a manamotry. My GI > > > doctor wanted to do one and I haven't been back to him since. Almost > > a yr > > > later. My swallowing has gotten worse but he said to me I will have > > to do a > > > manomtry and 24 hr ph to really tell you how bad your reflux is how > > bad your > > > hiatal hernia is and if there is a motility problem. Well I can tell him > > > from my own experience there IS a major motility problem going on > > here. I > > > don't see why he feels the need to torture me to allready tell me what I > > > know.. I am so confused and scared so I sit here each day at 86 pounds > > > getting in what little food I can, mostly liquids and pureed things > > and ice > > > cream. I recently started a 1500 calorie weight gainig drink. I > > haven't seen > > > much in the way of wieght gain but then again I " ve been too afraid > > to get on > > > the scale for fear I will have lost more and not gained. > > > > > > I live in SC where the health care is horrible. I am also sick with > > chronic > > > lyme disease for 15 yrs so I am sick on a daily basis. I SO wish I lived > > > closer to Ohio so I could go to the Cleveland clinic but to be > > honest I don > > > t know if my body would stand the travel.. I'm very confused, I > > don't feel > > > well at all and Im also very scared.. *sigh* This is why I don't > > write much > > > because I don't have much to contribute.. Thank you so much for > > posting so > > > quickly on my question. > > > > > > Robyn > > > > > > > > > > > > > > > > > > Like my Tags? Join my group! > > > > > > RobynsTagDesigns > > > > > > Like my Stats? Join my Group! > > > > > > RobynsStationary > > > > > > Check out my blogs! > > > > > > RobynsCurrentEventsBlog > > > > > > Loving & LivingThroughLossBlog > > > > > > A dog is the only thing on earth that loves > > > > > > you more than he loves himself > > > > > > -Josh Billings > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > -- Re: Manometry Question > > > > > > > > > > > > It's an interesting question you ask. I will answer you from personal > > > experience, but first want to pose the question as to how Alzheimer's is > > > diagnosed. Many of us know that the " gold standard " of diagnosing > > it is to > > > do an autopsy. Not the best idea to have it done that way when you are > > > still alive. > > > > > > > > > > > > Obviously, you know that manometry is the gold standard with diagnosing > > > Achalasia. But, my point is, from my example above, and despite some > > > disagreement by some very learned people here, you don't need a > > manometry to > > > diagnose achalasia. > > > > > > > > > > > > I had all the symptoms for nearly a year, and yes, it is very true > > that with > > > malfunctions of the esophagus, you will have similar, if not identical > > > symptoms for different disorders. But doctors, through their > > experience can > > > add 2 + 2 and come up with the correct answer. > > > > > > > > > > > > My GI doctor was confident enough with my symptoms and from the > > results of > > > my barium swallow (that left me only a couple of hours away from > > killing me, > > > before saving my life), along with several endoscopies to make a > > positive > > > diagnosis, which led him to do several stretchings and balloon > > dilatations. > > > > > > > > > > > > When he finally sent me, later on, from NY to Philadelphia for the > > manometry > > > the technician botched it so badly, and tortured me so much, unable > > to get > > > the tube down, that they would not even accept payment from me for > > it (circa > > > 1985). When the same doctor then sent me down to s Hopkins for > > the same > > > test, my GI doc, retired Hendricks, told me that they don't need > > > manometries for positive diagnosis. The proof of that would be my > > having a > > > Heller Myotomy in 1991, without ever having a successful manometry done. > > > > > > > > > > > > I know that I'm in the majority in saying that the test is not > > pleasant, to > > > put it mildly, but apparently my doctors were definitely in the minority > > > when they told me they would rather do other tests to diagnose achalasia > > > then to put a patient thru that kind of torture. > > > > > > > > > > > > In 2006, I cannot tell you what their policy is. > > > > > > > > > > > > To repeat your question: > > > > > > > > > > > > I was wondering, Has anyone here ever NOT been able to get through the > > > manometry test and still get a diagnosis of A? > > > > > > > > > > > > The diagnosis came way before the manometry test that I could not get > > > through due to the tightness of my LES and the inabilities of the > > technician > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > In a message dated 6/19/2006 5:56:37 P.M. Eastern Standard Time, > > > AriesAngel70@ writes: > > > > > > > > > > > > > > > > > > I was wondering, > > > > > > Has anyone here ever NOT been able to get through the manometry test and > > > still get a diagnosis of A? > > > > > > Thanks so much > > > > > > > > > > > > > > > > > > Like my Tags? Join my group! > > > > > > RobynsTagDesigns > > > > > > Like my Stats? Join my Group! > > > > > > RobynsStationary > > > > > > Check out my blogs! > > > > > > RobynsCurrentEventsBlog > > > > > > Loving & LivingThroughLossBlog > > > > > > A dog is the only thing on earth that loves > > > > > > you more than he loves himself > > > > > > -Josh Billings > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 Also Robyn, would it be possible to do the journey over two days and stop somewhere overnight? Being a little Islander I do not really know how many miles you are talking. Jo Blauer <capmyjo@...> wrote: Robyn-You have much to offer by sharing your experience with others who may be going through it themselves, but are hesitant to reach out. You have more to gain by obtaining information and support from the group. Remember, we understand struggling to get food and drink past that spot in the throat (or chest), racing to get rid of the meal that just wouldn't go down, choking all the time, and some of us thinking that we wouldn't make it through the next incident. It is just my opinion that you might begin by emailing some of the doctors (Rice & Patti?). Do you have anyone who can drive you to the Cleveland Clinic? Maybe there are others on this board with more concrete ideas, but just take comfort in knowing that we care and are here for you. Jo>> Hi > > Thank you so much for your post. I asked because I know in my heart of> hearts there is no way in hell I will be able to get through a manometry> test. First off I have severe panic disorder and the second I feel that tube> going up my nose I am going to freak out. Secondly If they were even able to> get this far and get it in the minute I felt it in my throat I'd want to> pull it out.. My throat, esophagus is so messed up now and I constantly feel> like there's something in it and the muscles are always spasming and so> forth that I have anxiety attacks from this nevermind a manamotry. My GI> doctor wanted to do one and I haven't been back to him since. Almost a yr> later. My swallowing has gotten worse but he said to me I will have to do a> manomtry and 24 hr ph to really tell you how bad your reflux is how bad your> hiatal hernia is and if there is a motility problem. Well I can tell him> from my own experience there IS a major motility problem going on here. I> don't see why he feels the need to torture me to allready tell me what I> know.. I am so confused and scared so I sit here each day at 86 pounds> getting in what little food I can, mostly liquids and pureed things and ice> cream. I recently started a 1500 calorie weight gainig drink. I haven't seen> much in the way of wieght gain but then again I"ve been too afraid to get on> the scale for fear I will have lost more and not gained.> > I live in SC where the health care is horrible. I am also sick with chronic> lyme disease for 15 yrs so I am sick on a daily basis. I SO wish I lived> closer to Ohio so I could go to the Cleveland clinic but to be honest I don> t know if my body would stand the travel.. I'm very confused, I don't feel> well at all and Im also very scared.. *sigh* This is why I don't write much> because I don't have much to contribute.. Thank you so much for posting so> quickly on my question.> > Robyn > > > > > > Like my Tags? Join my group!> > RobynsTagDesigns> > Like my Stats? Join my Group!> > RobynsStationary> > Check out my blogs!> > RobynsCurrentEventsBlog> > Loving & LivingThroughLossBlog> > A dog is the only thing on earth that loves> > you more than he loves himself> > -Josh Billings> > > > > > > > > > > > > > > > > > > > -- Re: Manometry Question> > > > It's an interesting question you ask. I will answer you from personal> experience, but first want to pose the question as to how Alzheimer's is> diagnosed. Many of us know that the "gold standard" of diagnosing it is to> do an autopsy. Not the best idea to have it done that way when you are> still alive. > > > > Obviously, you know that manometry is the gold standard with diagnosing> Achalasia. But, my point is, from my example above, and despite some> disagreement by some very learned people here, you don't need a manometry to> diagnose achalasia. > > > > I had all the symptoms for nearly a year, and yes, it is very true that with> malfunctions of the esophagus, you will have similar, if not identical> symptoms for different disorders. But doctors, through their experience can> add 2 + 2 and come up with the correct answer.> > > > My GI doctor was confident enough with my symptoms and from the results of> my barium swallow (that left me only a couple of hours away from killing me,> before saving my life), along with several endoscopies to make a positive> diagnosis, which led him to do several stretchings and balloon dilatations.> > > > When he finally sent me, later on, from NY to Philadelphia for the manometry> the technician botched it so badly, and tortured me so much, unable to get> the tube down, that they would not even accept payment from me for it (circa> 1985). When the same doctor then sent me down to s Hopkins for the same> test, my GI doc, retired Hendricks, told me that they don't need> manometries for positive diagnosis. The proof of that would be my having a> Heller Myotomy in 1991, without ever having a successful manometry done.> > > > I know that I'm in the majority in saying that the test is not pleasant, to> put it mildly, but apparently my doctors were definitely in the minority> when they told me they would rather do other tests to diagnose achalasia> then to put a patient thru that kind of torture.> > > > In 2006, I cannot tell you what their policy is.> > > > To repeat your question:> > > > I was wondering, Has anyone here ever NOT been able to get through the> manometry test and still get a diagnosis of A?> > > > The diagnosis came way before the manometry test that I could not get> through due to the tightness of my LES and the inabilities of the technician> > > > > > > > > > > > > In a message dated 6/19/2006 5:56:37 P.M. Eastern Standard Time,> AriesAngel70@... writes:> > > > > > I was wondering, > > Has anyone here ever NOT been able to get through the manometry test and> still get a diagnosis of A?> > Thanks so much> > > > > > Like my Tags? Join my group!> > RobynsTagDesigns> > Like my Stats? Join my Group!> > RobynsStationary> > Check out my blogs!> > RobynsCurrentEventsBlog> > Loving & LivingThroughLossBlog> > A dog is the only thing on earth that loves> > you more than he loves himself> > -Josh Billings> The all-new goes wherever you go - free your email address from your Internet provider. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 Blimey , what a performance. I can't really understand why they persist and persist on trying to make the tube go in to the stomach. I would have thought that by that time it would be obvious that the tube would not go any further because the patient had a very stubborn LES - in other words achalasia. But what do we know? We are only the ones who have to sit there wondering what the heck is going on. When I had my manometry last Autumn, I co-operated as best I could with the Doctors by suggesting that I drank some gulps of cold water, tried to make myself burp to open the sphincter and stood up during the procedure, but they never got it down. After one and a half hours of trying I am not sure that they learned very much about me and my measurements on that day. Warren <juliecwarren@...> wrote: I couldn’t get through mine!!! Due to stupid techs LOL. They sucked, let me tell you! This was before my myotomy by the BUTCHER as I call him now!!! They couldn’t get it to go through the LES so they kept pulling it out and putting it back down, after about 20 min of this they decided to give up!! And in the process and made my nasal passages swell up. So when they went to pull it out, they couldn’t. The probes’ were getting caught at the back of my nasal cavity, finally they just yanked it out!!! In the process damaged my septum!! Now I can’t have tubes put down that side!! Please visit my new site, www.achalasia.us From: achalasia [mailto:achalasia ] On Behalf Of lclopez477Sent: Monday, June 19, 2006 10:07 PMachalasia Subject: Re: Manometry Question Hi,I think I be be part of a minority, but I have never had a manometry and was diagnosed with A via barium swallow, endoscopy and had had a host of testing done by the time I went to get my barium. I had the classic bird beak and the xray guys took one look at it and said "A". But again, I strongly emphasize that this is not the norm. Lisbeth>> I was wondering, > > Has anyone here ever NOT been able to get through the manometry test and> still get a diagnosis of A?> > Thanks so much> > > > > > Like my Tags? Join my group!> > RobynsTagDesigns> > Like my Stats? Join my Group!> > RobynsStationary> > Check out my blogs!> > RobynsCurrentEventsBlog> > Loving & LivingThroughLossBlog> > A dog is the only thing on earth that loves> > you more than he loves himself> > -Josh Billings> The all-new goes wherever you go - free your email address from your Internet provider. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 Yikes Ann, Yeah who are we? Just the patient, that’s all, GOOD GRIEF!!!!! They had me try different position to!! Nothing worked come to find out there was a good reason why, DUH, this was after doctor “Butcher” had gotten a hold of me, I had a pouch forming, and the tube just coiled up, it didn’t have anywhere to go!!! Thank GOD CC didn’t make me go through that!!!!! Sorry to hear you went through some rough time too. Please visit my new site, www.achalasia.us From: achalasia [mailto:achalasia ] On Behalf Of Ann Higgs Sent: Wednesday, June 21, 2006 3:37 PM achalasia Subject: RE: Re: Manometry Question Blimey , what a performance. I can't really understand why they persist and persist on trying to make the tube go in to the stomach. I would have thought that by that time it would be obvious that the tube would not go any further because the patient had a very stubborn LES - in other words achalasia. But what do we know? We are only the ones who have to sit there wondering what the heck is going on. When I had my manometry last Autumn, I co-operated as best I could with the Doctors by suggesting that I drank some gulps of cold water, tried to make myself burp to open the sphincter and stood up during the procedure, but they never got it down. After one and a half hours of trying I am not sure that they learned very much about me and my measurements on that day. Warren <juliecwarren@...> wrote: I couldn’t get through mine!!! Due to stupid techs LOL. They sucked, let me tell you! This was before my myotomy by the BUTCHER as I call him now!!! They couldn’t get it to go through the LES so they kept pulling it out and putting it back down, after about 20 min of this they decided to give up!! And in the process and made my nasal passages swell up. So when they went to pull it out, they couldn’t. The probes’ were getting caught at the back of my nasal cavity, finally they just yanked it out!!! In the process damaged my septum!! Now I can’t have tubes put down that side!! Please visit my new site, www.achalasia.us From: achalasia [mailto:achalasia ] On Behalf Of lclopez477 Sent: Monday, June 19, 2006 10:07 PM achalasia Subject: Re: Manometry Question Hi, I think I be be part of a minority, but I have never had a manometry and was diagnosed with A via barium swallow, endoscopy and had had a host of testing done by the time I went to get my barium. I had the classic bird beak and the xray guys took one look at it and said " A " . But again, I strongly emphasize that this is not the norm. Lisbeth > > I was wondering, > > Has anyone here ever NOT been able to get through the manometry test and > still get a diagnosis of A? > > Thanks so much > > > > > > Like my Tags? Join my group! > > RobynsTagDesigns > > Like my Stats? Join my Group! > > RobynsStationary > > Check out my blogs! > > RobynsCurrentEventsBlog > > Loving & LivingThroughLossBlog > > A dog is the only thing on earth that loves > > you more than he loves himself > > -Josh Billings > The all-new goes wherever you go - free your email address from your Internet provider. Quote Link to comment Share on other sites More sharing options...
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