Felicity/Rachna

[Guest guest]

Oh my goss. I still have not caught up with all the reading fo the

last 2 weeks. Who is this doctor you have seen. I think we need to

find someone who know what they are talking about!!!!

The research in Australia has been in place. I have filled out

questionaires and had feedback too.

The technician who did my manometry in Adelaide at the Repat Hospital

was very knowledgable and gave speaches and had latest computer

technology. My surgeon had done quite a few A patients and was very

understanding and knowledgable. The funny thing was when I went to

them I really did not need to tell them about the hell I was going

through they told me and understood. I was a private patient. It is a

shame you stopped your private cover. I have had everything done and

having private cover was a blessing the surgery and tests and travel

were very expensive for my family.

My opinion is that we need to ask as to who you can see and when. I

will drop an email to Dr Bessell and ask for a contact in Melbourne

for you to begin with. Let me know if you wish to pursue this.

My phone no is 08 89550241 or 08 89524551(wk). Please call I will be

happy to listen. We all understand exactly what you are going through.

You must have been beside yourself when you were told it will kill

you. The news of having A is stressful enough let alone getting the

wrong news. It is so wrong. If he did not know he should shut up.

I am 5 months post surgery and take no reflux medication. I had a

wrap done as well. I have had a battle with other problems as well

but now I am eating not all but most things with water to get it

down. I could not have water and food prior to surgery and was a very

sick weak person. My surgeon said I was one of the worst he had seen.

I have put my weight on and enjoy food and am not scared to eat in

public and make a fool of myself. I eat slow and careful to chew

things properly. Meat cooked on the BBQ is my enemy. This is the

worst as we cook on the BBQ all the time. I wrap mine in foil with a

sauce or wine to make it soft. My friends are all great support too.

If the closest people to you understand what you are going thru, it

will make your life easier too.

I am thinking as a public patient, you could go to your local member

and ask who and what avenues you could pursue to push for the

surgery. Send letters to the member in Health down there.

I have gone on a lot. Say on the group everyone here is a great help.

Thinking of you

Rachna,

Being the closed person to an A'n is hard. My husband was my rock and

I couldn't have gone through it without him. I was so scared to go to

surgery and he made me go. It is the best thing I did. 5 months

later, I can eat most things. Be strong for him, he is not. For us

this disease can test a family. Our bond is stronger from it I think.

My girls had to grow up fast and become the carers, they were

wonderful, but a very large burden for them.

Give your husband our regards.

All I can suggest is have foods for him to experiment on and don't

get too stressed when he regurgitates, he feels better after. If you

don't get too upset then it will upset him less too. I was sucking on

chocolates at my worst, but they did not even stay down. So

experiment. The recovery from surgery is far better than I really

thought it would be. It is a slow recovery and you will need to be

slow to take up foods from the pureed food to allow the E to heal

properly, but it is worth it. Just having to eat pureed foods after

surgery and that they can go down is heavenly.

I have prattled on far too much. If you want to talk please feel free

to call.

Kindest regards

in Alice Springs