-Debbi--Kathie-Giselle-Mobunny

[Guest guest]

- I have just been thinking about you. I have seen your name in

chat a couple of times, but had no response when I directed comments

to you. Are you OK?

Debbi- I haven't seen you post for a while. I was wondering how you

have been, and wanted to see if you had any interest in meeting

because we live so close.

- Did you and your husband decide not to see Dr Patti?

Kathie-You are not a whiner- you are strong, and caring. (and I am

sure you are much more computer literate that you indicate)

Giselle- You mentioned being a part of a study. I would love to

participate in a study, but no one is asking. I think being a part

of a study would be a great way to monitor this disease, and get

some of the best care there is. Here I am...Is anyone listening?

Mobunny-Let your husband know that some of us who had problems with

night choking and aspiration found immediate relief from those

symptoms with the myotomy procedure. That in turn led to nights of

restful sleep. The surgery doesn't resolve all the symptoms, but for

me, the surgery has improved my quality of life, and this group has

given me support, knowledge, and power.