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- LOVED the post on defining success. OH, if only we could get

the doctors to set realistic expectations and explain the chronic

nature of our disease. I'm sure you've seen and we've all felt

the 'whaddya mean it's not cured' thing. That breaks my heart more than

anything. It's why I've started posting the 'new normal' thing - to try

to let everyone know ('cause I've been there, done that for over 25

years now) that it's scary to think you'll never be cured but you just

get used to it and it's not so bad. I think it was Ann that posted

recently that as bleak as we may feel sometimes, we can walk, talk,

see, hear, etc. It could be so much worse!!

Sandi - thanks for checking on Deborah, I know it's still early where

you are so I will check back again later to hear the good news. tell

her hey!! from the East Coast.

Happy Swallowing!

- in Va.

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