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While we're on T-shirts, I'd like to say that I was looking

forward to wearing my Achalasia T-shirts which we had

an opportunity to buy back before Christmas. I was

disappointed to learn this week that my money was being

returned because there was not enough interest to support

the cost of printing.

I'd have thought we'd all want to activate more interest

in our disease. I hope we'll be given another opportunity

and that next time there'll be enough of us to make the

printing worthwhile.

Yep, I wear T-shirts too.:)

Maggie

Alabama

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The best T-shirt I have seen lately is my daughter's....

YOU DON'T KNOW ME

(and then in smaller print...."Federal Witness Protection Plan")

I laugh every time she wears it. Cindi

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Maggie... I dont remember, who did the t-shirts? and tell me some

more about not enough interest. Once the screen is made, it doesnt

matter. I may be willing to do it, but I gotta have details.

So whomever knows about the tee's let me know

Carolyn ..mom of Cameron

>

> While we're on T-shirts, I'd like to say that I was looking

> forward to wearing my Achalasia T-shirts which we had

> an opportunity to buy back before Christmas. I was

> disappointed to learn this week that my money was being

> returned because there was not enough interest to support

> the cost of printing.

>

> I'd have thought we'd all want to activate more interest

> in our disease. I hope we'll be given another opportunity

> and that next time there'll be enough of us to make the

> printing worthwhile.

>

> Yep, I wear T-shirts too.:)

>

> Maggie

> Alabama

>

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Carolyn, I'm sorry I am so late answering your questions

about the T-shirts. I have had little ones visiting me this

past week and they have kept me hopping.

The group got an email from , around the

middle of November together with an order form to download

to order T shirts along with several other items. The shirts were going to carry the Gendia emblem shown here with Achalasia on the back. I ordered two. I was just informed that my money was being returned because there was not enough interest in the shirts to cover the cost of printing. The emblem looked like this:

You can read about the Gendia foundation on The Global

Health Network web site and this emblem is on our group

web site. is the founder of the rare disease

web sites.

Maggie

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