Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 Every dilation and endoscope that I have had done I was sedated the whole time. I have had around 12 procedure combined over the last 11 years. in Suffolk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 On 1/12/2006 at 10:28:17 A.M. Central Standard Time wrote: Incidentally, I am curious regarding the balloon dilitations of today. I had a dilatation in February 2005. The balloon, 35mm. was fully extended for 3 minutes. I had conscious sedation which helps greatly but I could still feel the pain, but was not that bad. Others here have reported no pain at all. Maggie Alabama Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 what is that? --- Lorentzen <jdlor@...> wrote: > Sandi and Lisbeth -- > > bougie dilations . __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 I am > interested in hearing from others who have had dilations post myotomy. > Also can dilations be done during pregnancy if needed? > > Thanks as always for your help and understanding. > > Lisbeth > Philly, PA Hi Lisbeth - I am 17 years post op and have had one or 2 dilations since surgery. I didn't know any better at the time (before this group) so when a doctor suggested one I just OK'd it. Never had any problems and I haven't had one now in probably 10 years or so. It's very common to have a dilation after surgery - I think most of us have. They seem to be more effective after surgery, with much longer results. If you are pregnant, congratulations!! Being pregnant will affect your ability to swallow somewhat, especially as the baby grows. My personal opinion is that unless you are really in pain or having difficulty with all swallowing, or with weight loss, etc. to put off any dilations. You don't want the drugs and you certainly don't want the procedure without drugs AND - you may find that after the baby is born- you do better with swallowing. Otherwise, do understand that your swallowing will never be perfect and there may be foods specific to you that you just can't tolerate. It's all part of the learning process in discovering what your 'new normal' is. Hope that helps! Happy swallowing! - in Va. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 Hi , Before I had the balloon dilitations, I also had the bougie dilations in NYC. Bougies are long weighted tubings of various diameters that are inserted down the esophagus. The destination is the cardiac sphincter muscle and the purpose of the Bougie is to get down there and open up the sphincter, using the bougies with the smaller diameter first, and increasing the size as the opening increases. While it was relatively low tech, it did provide some temporay and limited relief. I had forgotten about those " lovable " bougies when I was giving my bio the other day. Those sword swallowing circus performers had nothing over us achalasiacs! > > > Sandi and Lisbeth -- > > > > bougie dilations . > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 I just wanted to add on to my last post that the bougie, which I recall as a rubbery type surface is covered with a lubricant in order for it to slide down. Once it contacts the sphincter, that's when the fun begins as it has to be pushed into an opening of a smaller diameter than the diameter of the bougie. Once accomplished, it is removed and a larger one is inserted, and so on. While not pleasant, the manometry still stands out as the worst of the worst. Incidentally, I am curious regarding the balloon dilitations of today. When I had my six done, there was never any anesthesia or light sedation used (from 1982 - 1990). I had to endure the burning pain for 90 seconds of having the muscle ripped apart (followed by the overnight stay for observation). Has the way its being done changed at all? Is there sedation? Thank you. > > > > > Sandi and Lisbeth -- > > > > > > bougie dilations . > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 , They usually give you demerol and versed, a drug that puts you in a twilight sleep...the same as when you have an endoscopy. At least this is my experience. Well drugged and feeling no pain! Sorry your experience sounds dreadful...where did you have this done? Wouldn't want to go there! Sandi in No CA > > > > > > > Sandi and Lisbeth -- > > > > > > > > bougie dilations . > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 Hi Lisbeth! I am not sure if a dilitation can be done during pregnancy. But I will say that I swallowed fantastic during both of my pregnancies. Not one problem. I have had three dilitations post surgery. 2 regular and 1 pneumatic. The pneumatic one was a miracle for me. That was 5 yrs. ago. I am also on no medications for achalasia. I find that for MYSELF that the side effects aren't worth it. I rarely ever get heartburn or spasms anymore. Oh, I am on a digestive enzyme for my lazy a** stomach. I went in for a dilitation once, 15 hrs after a meal, and the dr. said it was remarkable the amount of food still in my stomach. Blech. If you are pregant, congratulations. Dawn in Ohio > > > Hi everyone, > > > > > > Don't usually post, but I have a question. I had a myotomy July 2004 > > > and I have started having slight decrease once I hit the one year > > > mark. Got off milk because it made keeping things down a problem but > > > am occasionally having problems making food go down instead of back > > > up. My doctor has suggested a dilation and I am hesitant because it's > > > so soon after the myotomy and am worried about how it will decrease > > > the effectiveness of future dilations in the long term. I am > > > interested in hearing from others who have had dilations post > myotomy. > > > Also can dilations be done during pregnancy if needed? > > > > > > Thanks as always for your help and understanding. > > > > > > Lisbeth > > > Philly, PA > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 Yes!!I have always been sedated during any procedure. Except that one where they stick the tube up your nose and then gag you, and make you swallow water. I wish I was sedated for that one. Oh the misery! Dawn in Ohio > > Every dilation and endoscope that I have had done I was sedated the whole > time. I have had around 12 procedure combined over the last 11 years. > > in Suffolk > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 Hi Lisbeth, I dont respond here that often but I thought I'd respond to yours. First......I have my heller done in June 2004 and had 3 dilations in one week in April 2005. I was already doing really bad in Dec. 2004 so I knew something had to happen again. It is now Jan. 2006 and I am doing wonderful. I can eat much better allthough I still have a restricted diet (but that does include bread which for most is a troublefood..for me, it works). Also......you can have a dilation during a pregnancy. I had one done but it didnt make a huge difference. My doc. at the time wasnt very experienced at performing dilations and because of the perforation risk he decided to only do one. He didnt want to perform surgery on someone who is pregnant. I know I felt so relieved when I woke up and still have my big belly I hope I was able to help you out a bit. Hugz, Biancka The Netherlands Dilation post myotomy > Hi everyone, > > Don't usually post, but I have a question. I had a myotomy July 2004 > and I have started having slight decrease once I hit the one year > mark. Got off milk because it made keeping things down a problem but > am occasionally having problems making food go down instead of back > up. My doctor has suggested a dilation and I am hesitant because it's > so soon after the myotomy and am worried about how it will decrease > the effectiveness of future dilations in the long term. I am > interested in hearing from others who have had dilations post myotomy. > Also can dilations be done during pregnancy if needed? > > Thanks as always for your help and understanding. > > Lisbeth > Philly, PA > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 Hello Biancka, It is so good to hear from you. I am delighted that you are doing so well. Thanks for the positive post. Kathie in Pittsburgh > > Hi Lisbeth, > First......I have my heller done in June 2004 and had 3 dilations in one week in April 2005. I was already doing really bad in Dec. 2004 so I knew something had to happen again. It is now Jan. 2006 and I am doing wonderful. I can eat much better allthough I still have a restricted diet (but that does include bread which for most is a troublefood..for me, it works). > Also......you can have a dilation during a pregnancy. I had one done but it didnt make a huge difference. My doc. at the time wasnt very experienced at performing dilations and because of the perforation risk he decided to only do one. He didnt want to perform surgery on someone who is pregnant. I know I felt so relieved when I woke up and still have my big belly > I hope I was able to help you out a bit. > Hugz, > Biancka > The Netherlands > ----- Original Message ----- > From: " lclopez477 " <Lisbeth477@a...> > <achalasia > > Sent: Thursday, January 12, 2006 12:49 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2006 Report Share Posted January 13, 2006 >> Incidentally, I am curious regarding the balloon dilitations of > today. When I had my six done, there was never any anesthesia or > light sedation used (from 1982 - 1990). I had to endure the burning > pain for 90 seconds of having the muscle ripped apart (followed by > the overnight stay for observation). Has the way its being done > changed at all? Is there sedation? Thank you. > Wow - so sorry to hear about that. I have always been knocked out for EGD's and dilations, even back in the early 80's. I only had one doctor say 'we normally don't sedate you for that'. Yeah, uh - I for one am NOT going to have anything like that done even with 'twilight'. In the early days I woke up a couple of times during procedures swinging and needing to be restrained. I don't remember any pain, just a feeling like I couldn't breathe and with being groggy, wanting to pull out the scope. I warn my doctor now that he better knock me out completely and even have some extra standing by or else he can suffer the consequences. Now I agree with you about the menometries - you'd almost have to drag me kicking and screaming to do another one of those. I had my first in I guess about '82, I remember the awful tasting spray for the back of my throat and another awful tasting something that I had to gargle with. UGH, makes me cringe even now. I had another one in '96 or '97. This time there was some kind of gel that they put up your nostril and you had to snort?!? If possible - that was even worse- it burned so bad. I would have been a terrible drug addict!! They were supposed to do a 24 hour ph test at that time but I had such a hard time with the menometry that they opted out. The doctor kind of gave me some crap for that too " oh, too bad you couldn't tolerate that better, that test would have very helpful " yeah buddy, east to say when you've never even had an NG tube!! Phew -'nuf on that rant. Rest assured and anyone else going for tests, unless you have some medical thing that makes you a poor candidate, I've found all of my doctors are willing to sedate me fully. Happy Swallowing! - in Va. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2006 Report Share Posted January 13, 2006 > > doctor kind of gave me some crap for that too " oh, too bad you couldn't > tolerate that better, that test would have very helpful " yeah buddy, > east to say when you've never even had an NG tube!! > , That was about the only thing that impressed us about my husband's doctor at the Univ. of Michigan. He told us that he had been part of a control for a study at the University, so he had had several manometries done! I thought that was great - that he could empathize with his patients! He said he was trying not to have to order one for my husband because he knew they weren't fun. Unfortunately, my husband ended up needing one and it was tougher than ones he's had at other hospitals. in Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 Thanks all for your replies. Isn't it funny how we're all comforted by comparing experiences? It makes it easier to deal with A. I had my annual barium in Aug. Barium showed that things were getting stuck and just sitting there,enough so that the stuff they make you drink settled and formed a straight line towards the bottom of the E. Also having foam issues but that's not the major annoyance. Main problem is that I'm developing " pockets " where liquid will not go down and come back up without even trying to regurg it. So I have to get rid of the water bubble before any other stuck is allowed to go down. I'm worried about things getting progressively worse and having to need a dilation during a possible pregnancy (which hopefully will be this year now that I am not anemic or underweight). Also worried about what possible damage I am doing to my e by waiting until things get worse. But then if this is as bad as I'll get, I'm not losing weight and eat pretty much what I want and average size portions, just tons of water, than maybe I don't need a dilation. At least not now. Thanks again for all of your help. Lisbeth in windy and icy Philly. Quote Link to comment Share on other sites More sharing options...
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