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Hi -

Thank Adi for me. It was a cute message. And that dog was really

something! It's true I'm sure that we can all use some relaxing moments

after dealing with OCD on a regular basis.

Jackie

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Thank you again Cliff and Margaret. I think it is great to hear both of your

comments. If we make a God of Dr. Crooks-no matter how good his info is , we

may not be open to hearing other suggestions and after all info keeps changin

and improving.

I have learned so much from both of you Thanks for your paper Cliff-very

generous of you

Blessings

Aine

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Kelli, that is NOT the kind of report you want to get from your child's

teacher, first day back or anywhere! Talk to her about it, take it to the

principal, etc. I hope it gets better. Maybe you and other parents could

take turns helping out in the classroom until the school gets more hired help?

And to everyone sharing those hard feelings.....that's why we're all here. I

look at Eli and sometimes I see the DS before I see him. Lots of people tell

me he looks like his brother but I just don't see it. I don't see that he

looks like my other kids. Although last summer my mom sent me some pictures

taken during a family party and sure enough, he looked like his big brother.

I burst into tears. But that was the only time I saw it.

Thinking of all of you with love,

debbi mom to Logan (almost 6) Eli (DS) and Milo 3 1/2

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Dear Connie:

Depending on which side effects you are talking about, Elavil does

have some problems which are common to many of the tricyclics. The drug

usually works as type of sedative, for many, at least until they get

used to it, and causes a " zombie " effect for most people. BUT, there

have been some differences seen in both HCV and HIV patients while on

therapy, and therefore, it is hard to predict how anyone will respond to

this med.

There are two major side effects that are commonly seen, which needs

some monitoring. When this is used as a psy. drug, for the " general "

population, many people who have a tendency to have any degree of

obesity, gain weight, which is " fine print " on the side effects which

few pay attention to. While no one has published a comprehensive study

on this, many physicians concluded it was because people were " less

depressed " , and ate more. But, if you talk to those patients, and

examine the population that have been on these drugs, and especially

Elavil, it is believed that the weight gain is from the drug acting to

slow metabolism, and therefore there is a weight gain. There is enough

data to indicate if this will help the HCV patient and their usual

weight loss.

The other, and more serious side effect(s) of this classification,

that may develop over time, (which is not known how long any average

might be), is something called tardive dyskinesia. This is something

that can be both serious, and not reversible. A short term will probably

not make any difference, but, again, everyone is different. This side

effect is seen as " tremors " in the hands, and looks something like

Parkinson's Tremors. The rest of the side effects are not usually seen,

and for some this drug works very well, while others find they have too

groggy effects that may last a few days. The other problems are not

usually seen in most people, but the drug company must put down

anything, even if it is one case.

The Atarax is another name for Vistaril in the oral form. It acts

similar to Benadryl, but lasts longer in the system. Except for those

that might be suicidal, or you personally have a reaction, this is one

med that is frequently prescribed as a " premed " , because it is safe, and

does not interfere with most other meds. In HCV, it is frequently

prescribed, and it is safe. Probably, the worst effect you may

experience would be drowsiness the next morning, until you are used to

it. I frequently prescribe this for many different problems, and you'll

have to try it to find out if it works well for you. It is compatible

with HCV. Marty

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Dear :

While what you have written is true, tylenol, when taken in liver

irritation doses, can cause permanent liver damage. This is also one of

the medications that we see in the ER on teen suicide attempts, and

depending on how much, how long, etc., the first place to receive

permanent damage is the liver. While there are many, many documented

cases of tylenol and liver damage, especially because of over doses,

this is not the same for ibuprofen.

The ibuprofen aka Motrin or Advil, is more kidney irritating, and

definitely can be stomach irritating. Since someone may take these OTC

meds frequently, if it is for muscle or joint related pain, ibuprofen is

also an antiinflammatory, and is probably a better medication. If

someone is just taking it for basic prevention, they can always alter

the ibuprofen and tylenol. This is what we do in peds for fevers, and

can increase the dose without the normal side effects, and doubling of

one medication alone.

Lets face it, any and every drug has potential for problems, and as

long as someone is monitored, and they do not exceed the " normal " dose,

either will probably be OK. But, whenever possible, I still op for

ibuprofen over tylenol, both as a precaution, and for it's other

properties in HCV. Marty

Date: Sat, 16 Sep 2000 14:27:34 -0700 (PDT)

From: claudine intexas <claudineintexas@...>

Subject: Re: Tylenol/Ibuprofen

Tylenol is perfectly safe to take. It has been studied

in people with liver disease and has been found to be

one of the safest things to take. The most recent of

these studied doses of 3 grams daily, which is the

same as 2 extra strength every 8 hours. It is not an

irritant, or toxic in normal doses, except in rare

cases of alcohol use or starvation. It is only toxic

to the liver if it is taken in LARGE doses (ie 10

grams), or with alcohol or possibly in cases of

starvation. On the other hand, ibuprofen has been

shown to cause elevations in liver function tests

which can persist for months in those with liver

disease. In fact, if you go to http://www.rxlist.com

and look up ibuprofen, and look under warnings, this

is what is shown:

Liver Effects: As with other nonsteroidal

anti-inflammatory drugs, borderline elevations of one

or more liver function tests may occur in up to 15% of

patients. These abnormalities may progress, may remain

essentially unchanged, or may be transient with

continued therapy. The SGPT (ALT) test is probably the

most sensitive indicator of liver dysfunction.

Meaningful (3 times the upper limit of normal)

elevations of SGPT or SGOT (AST) occurred in

controlled clinical trials in less than 1% of

patients. A patient with symptoms and/or signs

suggesting liver dysfunction, or in whom an abnormal

liver test has occurred, should be evaluated for

evidence of the development of more severe hepatic

reactions while on therapy with ibuprofen. Severe

hepatic reactions, including jaundice and cases of

fatal hepatitis, have been reported with ibuprofen as

with other nonsteroidal anti-inflammatory drugs.

Although such reactions are rare, if abnormal liver

tests persist or worsen, if clinical signs and

symptoms consistent with liver disease develop, or if

systemic manifestations occur (e.g., eosinophilia,

rash, etc), ibuprofen should be discontinued.

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Dear Lora:

There is approximately the equivalent of 1/2 dose in every pen. This

is assuming you have properly set the pen for the 300 units, each time.

I have many patients that save this in a vial, and if there is a

problem, they have it as a backup. Also, you can look on the pen which

states the concentration of units per milliliter, which is more than in

the vial, ie: more liquid from the vial to get the same amount of

medication. Also, the needles from the " pen " insulin syringes will screw

on the Interferon pen. If you need the extra dose, just use an " insulin "

or " TB " syringe, which usually has the needles attached already, is

small and narrow, and easy to get the correct dose. Marty

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I don't know if this even fits under one of the categories but I had to

write.I just spent the last hour of hell with my son and am at my wits

end.After we returned from a birthday party which I have to stay at because

he gets " overly excited " we decided to go swimming at our subdivision pool

for an hour.I told him I didn't want to hear any complaints out of him and

that I expected him to be on his best behavior. He gets his sunscreen on

jumps in the pool and forgot his goggles.I told him he would have to just

swim without them because it was too far of a walk to go home and he could

swim without them this once. Well a bomb dropped and off he went screaming and

on a tirade because of this.I told him several times that we would leave.We

finally did after he went screaming and everyone looked at us. I of course

shouldn't but I lost my temper and both of us worked ourselves up to a tizzy.

I know I shouldn't get upset but I did and it only makes situations worse but

I did it anyway.Now,he is in his room quiet and came downstairs to give me a

hug and apologize saying he is sorry that his brain is so stupid.Make me feel

worse.Anyway I told him i wasn't upset that he forgot his goggles but that he

didn't act like a big boy.Sorry to have rambled on but this horrible mother

was upset and feeling guilty.Thanks for letting me vent.Gretchen mother to

6

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Dear dear Gretchen,

Hug yourself. Hug your son. To your son, without knowing him or anything

about him, I can relate. My daughter has some compulsive behaviors, and if

things aren't the way they are suppose to be, she can get very frazzled. It

is the frazzled part I have begun to understand more about after I

experienced my first panic attack. I no longer get them, but I'm sure they

could pop up again. I also know that my daughter is sensitive to many many

things that most of us couldn't imagine. I also know that she likes to

initiate hugs but it is difficult to just go give her one. Sometimes my

even touching her sets her in a tizzy. But the next minute she is pouring

herself all over me. She has so many idiosyncrasies and mind " rules " that

govern her, that one has to be sharp all the time. Sometimes I am a good

mom and I catch on and when we leave the house I make sure she has her hat,

her purse, her money, her hankies, her water bottle, her extra clothes in

case she soils, her bag of pens, and whatever else the day brought to her

attention. But sometimes, I've got my mind on gasoline, money,

destinations, trying to teach people how to cope, board meetings, and my own

personal issues. Did I brush my teeth, did I take my blood pressure

medicine........then on we go. And if it doesn't work well, we have people

stare at us too, as we're pulled off the side of the road with

sitting on the grass pulling her clothes up over her head and my eyes

looking straight ahead, or at a magazine I grab off the floor, so that she

doesn't learn that her bizarre behavior gets my attention. But boy, as soon

as she comes out of it, and begins to sign or do something I can lavish

attention to, I have to be ready. Reward the good behaviors with plenty of

attention, ignore the other stuff. But, guess what, sometimes we can't.

We live in this world of perfect. And we don't always fit. The trick is

not to opt or settle for pity and disdain looks. Act extremely intelligent

at this point.

Say, " Now come on , let's go call your mother and ask what she

thinks. " Lip enunciation looking straight at the onlookers. Kim is too

engrossed in herself, she doesn't even know I did that. And by ignoring her

and looking right at them, well, they figure you're not worried, why should

they be. And by then, their kids give them worries of their own.

Don't even let your mind go there....where you are beating up on yourself.

Find humor in the whole thing. Laugh at yourself. Cry if you

can......(Usually I'm so hard boiled I can't shed a tear)

is very lucky to have you for a mama. You know that. And you are so

lucky to have . He will teach you a lot more than you'll ever teach

him, even if he becomes the Albert Einstein to beat all. He'll teach you

what it really is to be humble. What laughter truly is. What blessings

truly are.

Isn't it wonderful how he came down and apologized and said that about his

brain being stupid. Wow! He's one bright boy. And to be able to speak so

well......or even sign or gesture all of that...How far these kids travel in

their mind's eye. Thank you for sharing your story. The next time I get to

that point, I'll think of you, Gretchen, and , and I'll wonder how your

day is going, and I won't feel so alone, either. Love to you both. Cheers.

Sandy Tome

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Gretchen: I don't see anything wrong with the way that you handled the

situation. Your son has to learn that screaming and carrying on is not

acceptable behavior. Knowing what precipitated the incident is helpful to

you but you still have to let him know what is and isn't acceptable. And he

does know because he came to you later after he settled down to let you know

that he understands. I think you are on the right track- it's just real hard

at times to be consistent with what you will and will not allow for

behavior.

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Gretchen,

You are not a horrible mom. Just human. I know the screaming is the thing

that drives me crazy. I can handle anything, the not eating, the speech

anything.. But the screaming fits I have a hard time with. Although

realizing that most people in this group are dealing with it to helps. Just

remember you are not the only one out there.

Mom of 3. 1 with delays

> I don't know if this even fits under one of the categories but I had to

> write.I just spent the last hour of hell with my son and am at my wits

> end.

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In England we are no longer allowed to sell Kava Kava. It is really annoying because the cases of liver damage all seem to have involved people in Germany who overindulged in alcohol to the extent that the alcohol could have killed them (or other prescription drugs)! Could be just coincidental that they were taking a particular Kava extract at the same time, or a contributory factor. Our trade association wanted the ban on Kava to be lifted and for a warning to be put on the labels that it should not be taken with alcohol but this has not worked. So the alcohol and drugs that kill are allowed to continue, and poor old Kava Kava is made a scapegoat.

I hear that in Ireland, St s Wort and Ginkgo Biloba are now banned - is that coming everywhere too? Seems to me there might be a campaign by the big drug companies going on here!!

You can tell that I am annoyed, can't you!!

Love and light, Celia

n a message dated 06/03/03 21:30:12 GMT Standard Time, paramaishaya@... writes:

Does anyone have info on Kava Kava?. A friend of mine reports that the FDA is removing it from the market because it causes liver damage.

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You can import any item as long as it is for personal use with a maximum supply of three months.

-----Original Message-----From: Celiastuart@... [mailto:Celiastuart@...]Sent: 07 March 2003 07:26qxci-english Subject: Re: Digest Number 291In England we are no longer allowed to sell Kava Kava. It is really annoying because the cases of liver damage all seem to have involved people in Germany who overindulged in alcohol to the extent that the alcohol could have killed them (or other prescription drugs)! Could be just coincidental that they were taking a particular Kava extract at the same time, or a contributory factor. Our trade association wanted the ban on Kava to be lifted and for a warning to be put on the labels that it should not be taken with alcohol but this has not worked. So the alcohol and drugs that kill are allowed to continue, and poor old Kava Kava is made a scapegoat.I hear that in Ireland, St s Wort and Ginkgo Biloba are now banned - is that coming everywhere too? Seems to me there might be a campaign by the big drug companies going on here!!You can tell that I am annoyed, can't you!!Love and light, Celia n a message dated 06/03/03 21:30:12 GMT Standard Time, paramaishaya@... writes:

Does anyone have info on Kava Kava?. A friend of mine reports that the FDA is removing it from the market because it causes liver damage. ............................................

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Guest guest

.... it so happened with stevia, and with noni.

to all useful products, that held a risk for pharma industry or sugar industry.

it is understandable, that this annoys thinking people.

i for myself have decided to go even further underground.....for the sake of humanity.

marlene

Re: Digest Number 291

In England we are no longer allowed to sell Kava Kava. It is really annoying because the cases of liver damage all seem to have involved people in Germany who overindulged in alcohol to the extent that the alcohol could have killed them (or other prescription drugs)! Could be just coincidental that they were taking a particular Kava extract at the same time, or a contributory factor. Our trade association wanted the ban on Kava to be lifted and for a warning to be put on the labels that it should not be taken with alcohol but this has not worked. So the alcohol and drugs that kill are allowed to continue, and poor old Kava Kava is made a scapegoat.I hear that in Ireland, St s Wort and Ginkgo Biloba are now banned - is that coming everywhere too? Seems to me there might be a campaign by the big drug companies going on here!!You can tell that I am annoyed, can't you!!Love and light, Celia n a message dated 06/03/03 21:30:12 GMT Standard Time, paramaishaya@... writes:

Does anyone have info on Kava Kava?. A friend of mine reports that the FDA is removing it from the market because it causes liver damage. ............................................

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  • 2 years later...
Guest guest

Ileana, Thank you! I have needed that link!!!

ellie

Date: Wed, 27 Apr 2005 11:27:22 EDT

From: enchantedbeads@...<mailto:enchantedbeads@...>

Subject: Re: Re: scoby doners/recipients

Please try this link:

http://www.kombu.de/suche2.htm<http://www.kombu.de/suche2.htm>

On the same website you can also find a place where you could sign up as a

donor.

Good luck,

Ileana

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  • 9 months later...

Thanks again for the information on general aviation. I am sure you know what you are talking about as an air traffic controller. However, there are some of us who would never be able to get treatment if we had to pay for commercial flights - even with the discounts offered by some agencies. I fly with Angel Flight, aware of the potential risks, and am VERY appreciative of their services. And again, I, personally, have never had any problems with them; nor have I heard of anyone else having problems with them. I do appreciate your concern & all the detailed information on the matter. You must be great at your job as you seem to be very conscientous.

Blessings,

Carla Kay

Ps. 96:1,3, & 4a Sing to the LORD a new song; sing to the LORD, all the earth. Declare His glory among the nations, His marvelous deeds among all peoples. For great is the LORD and most worthy of praise...

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  • 6 months later...
Guest guest

Well, just think--if you take kava off the market, that's big bucks

for Zanax and other artificial tranquilizers. We are living in very

interesting times and it seems the only way we're going to clean up

this mess is to just wait for the earth shift to occur.

is Rotella, M.Ac., CNC

>

> In England we are no longer allowed to sell Kava Kava. It is really

annoying

> because the cases of liver damage all seem to have involved people

in Germany

> who overindulged in alcohol to the extent that the alcohol could

have killed

> them (or other prescription drugs)! Could be just coincidental that

they were

> taking a particular Kava extract at the same time, or a contributory

factor.

> Our trade association wanted the ban on Kava to be lifted and for a

warning

> to be put on the labels that it should not be taken with alcohol but

this has

> not worked. So the alcohol and drugs that kill are allowed to

continue, and

> poor old Kava Kava is made a scapegoat.

>

> I hear that in Ireland, St s Wort and Ginkgo Biloba are now

banned - is

> that coming everywhere too? Seems to me there might be a campaign

by the big

> drug companies going on here!!

>

> You can tell that I am annoyed, can't you!!

>

> Love and light, Celia

>

>

> n a message dated 06/03/03 21:30:12 GMT Standard Time, paramaishaya@...

> writes:

>

>

> > Does anyone have info on Kava Kava?. A friend of mine reports

that the FDA

> > is removing it from the market because it causes liver damage.

> >

> >

> >

>

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Of the 24 cases of Germans with liver

disease, allegedly associated with Kava use in 2001, 1 died and 3

required liver transplant. Kava was blamed but it was never made clear

that 18 of these were also using conventional

prescription/over-the-counter drugs with known or potential liver

toxicity. Thus the possibility of interaction with with some of these

hepatotoxic drugs. In fact kava has the potential to interact with a

wide range of medications as well as alcohol. And also it was possible

that the use of kava by these folks were above the recommended dosages

- prolonged and high dosages of kava CAN have side-effects.

We should use herbs judiciously because some are extremely potent. As

for the governments worldwide, they would like to ban everything but

pharmaceuticals. After all, interactions of drugs are the leading cause

of deaths in the West and probably the leading cause of illness. What

could be better for the big pharmas - more profits. The pharmas are in

fact inventing diseases to fit in with their designed drugs.

Come on folks, we don't need kava to lift us, we have the SCIO and our

intelligence. And our cells have their own innate intelligence. Keep

going and be well. Azizah

jadespring2003 wrote:

Well, just think--if you take kava off the market, that's big bucks

for Zanax and other artificial tranquilizers. We are living in very

interesting times and it seems the only way we're going to clean up

this mess is to just wait for the earth shift to occur.

is Rotella, M.Ac., CNC

>

> In England we are no longer allowed to sell Kava Kava. It is really

annoying

> because the cases of liver damage all seem to have involved people

in Germany

> who overindulged in alcohol to the extent that the alcohol could

have killed

> them (or other prescription drugs)! Could be just coincidental that

they were

> taking a particular Kava extract at the same time, or a

contributory

factor.

> Our trade association wanted the ban on Kava to be lifted and for a

warning

> to be put on the labels that it should not be taken with alcohol

but

this has

> not worked. So the alcohol and drugs that kill are allowed to

continue, and

> poor old Kava Kava is made a scapegoat.

>

> I hear that in Ireland, St s Wort and Ginkgo Biloba are now

banned - is

> that coming everywhere too? Seems to me there might be a campaign

by the big

> drug companies going on here!!

>

> You can tell that I am annoyed, can't you!!

>

> Love and light, Celia

>

>

> n a message dated 06/03/03 21:30:12 GMT Standard Time,

paramaishaya@...

> writes:

>

>

> > Does anyone have info on Kava Kava?. A friend of mine reports

that the FDA

> > is removing it from the market because it causes liver

damage.

> >

> >

> >

>

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