Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Kristi - Welcome to the group - we are thrilled you found us!! sounds like a wonderful little boy, and very smart!!! To think up his own signs at such a young age is remarkable!!! My son would just scream and grunt, until we finally started teaching him signs. From what you have written it does sound like might have verbal apraxia (or verbal dyspraxia, they are the same thing). Verbal apraxia is a neurological disorder - not a developmental disorder. It is hard to get insurance companies to cover speech therapy - but it is possible. I am in the middle of fighting with mine and must say I am actually gaining ground. I have medical letters from a dev. ped, neurologist, pediatrician, 2 SLP's all saying this is a neurological condition and speech (or lack of) is a symptom. I am still fighting them, but will continue to do so until I win!! My son sees a SLP 3 times a week for 30 minutes. He turns 4 TODAY - we have been in therapy for 1 1/2 years. I do think these children need intensive therapy more than 2 times a month.......I would suggest seeing a Dev. Ped and a neurologist and see what they suggest. You can also use them for a paper trail and have them write you letters stating it is a medical necessity he have speech therapy. I wish you all the best - please keep us all posted. Let me know if there is anything else I can do to help - I will do ANYTHING!!! Carnell North Carolina www.verbaldyspraxia.com > Hello! > I am new to this group and quite frankly to e-mail, so I hope this works. I > am a mom to 5 children ages 9 to 8 months. My first three children have no > delays. My fourth, is a boy, who is speech delayed. He is almost 3 > 1/2. A friend who has deaf children gave me the number to early > intervention about the time turned 2. They evaluated him and he > qualified for in home therapy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Dear Kristi, Welcome to the group. You not only did a good job for being new to E-mail but you described your son, 's history very well. You have been through the same things with inadequate help as many of us have on the listserv. It is so hard to get proper speech therapy and especially as often as we need it. Apraxia is a hard diagnoses. The pediatrician doesn't see the child often and some children are just slow talkers. It is hard for them to judge much before 2 years. I would definitely make an appointment with either a pediatric neurologist or a developmental pediatrician. Your pediatrician should be helpful in suggesting a good specialist. If you have a Children's Hospital where you live they may be helpful also. Try hard to get a quick appointment so can get the proper diagnoses. Apraxia is not a developmental delay as your insurance company would like to believe. It is very important for a doctor who diagnoses apraxia to use the term neurological delay and to state that frequent ST is the only way the child will learn to talk correctly. Kristi, it is only natural to worry about any delay with our children. You know your child best and you as a parent. are the best advocator for . Kristi, I am the grandmother of a little girl who is my pride and joy, and she has apraxia. She is the same age as your and been through the same route as . She has been diagnosed by both a developmental and neurological pediatrician. She will return to school again in a few weeks just as . The insurance company is paying for her speech three times a week. A letter from the ST and from the doctors using the correct term may get the insurance company to cooperate. Keep bugging them and go to the top of the company if you have to. Good luck and God Bless you and your wonderfully big family. Patty, Grammy to and a bunch and from Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Kristi, I completely agree with Patty. I also think that it is imperative to get a diagnosis and start fighting for what you know your child needs. In our case it took more than a year to get a referral from our ped, (from the time Kurt was 18 mo until he was about 33 mo). We currently have him speech therapy twice a week and occupational therapy once and he is making great progress. Keep it up, Doug, father to andra, 7 and Kurt almost 5 and with apraxia Cincinnati Subject: Re: [ ] Help??? Dear Kristi, Welcome to the group. You not only did a good job for being new to E-mail but you described your son, 's history very well. You have been through the same things with inadequate help as many of us have on the listserv. It is so hard to get proper speech therapy and especially as often as we need it. Apraxia is a hard diagnoses. The pediatrician doesn't see the child often and some children are just slow talkers. It is hard for them to judge much before 2 years. I would definitely make an appointment with either a pediatric neurologist or a developmental pediatrician. Your pediatrician should be helpful in suggesting a good specialist. If you have a Children's Hospital where you live they may be helpful also. Try hard to get a quick appointment so can get the proper diagnoses. Apraxia is not a developmental delay as your insurance company would like to believe. It is very important for a doctor who diagnoses apraxia to use the term neurological delay and to state that frequent ST is the only way the child will learn to talk correctly. Kristi, it is only natural to worry about any delay with our children. You know your child best and you as a parent. are the best advocator for . Kristi, I am the grandmother of a little girl who is my pride and joy, and she has apraxia. She is the same age as your and been through the same route as . She has been diagnosed by both a developmental and neurological pediatrician. She will return to school again in a few weeks just as . The insurance company is paying for her speech three times a week. A letter from the ST and from the doctors using the correct term may get the insurance company to cooperate. Keep bugging them and go to the top of the company if you have to. Good luck and God Bless you and your wonderfully big family. Patty, Grammy to and a bunch and from Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2011 Report Share Posted January 5, 2011 What kind of helmet is it? I know a DOC Band is not supposed to be over the eyes or to the side. Ours would slightly settle over his eyebrow and the tech would adjust it until it stopped doing that. Toward the end of the week between visits, it would settle again a little over the eye but it was still pretty snug. Our baby is a wiggle worm too and the helmet managed to stay in place. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2011 Report Share Posted January 6, 2011 Its a helmet from Hanger. We are going today to get it adjusted.. Hope this works we live 2 hours away so I would hate to there every other day.. Thanks for the info > > > What kind of helmet is it? I know a DOC Band is not supposed to be over the eyes or to the side. Ours would slightly settle over his eyebrow and the tech would adjust it until it stopped doing that. Toward the end of the week between visits, it would settle again a little over the eye but it was still pretty snug. Our baby is a wiggle worm too and the helmet managed to stay in place. > Quote Link to comment Share on other sites More sharing options...
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