Yvonne

[Guest guest]

Hi ,

I am sorry to hear that you are having so much trouble as well.

From reading many posts and consulting with my doctor, it is better

not to wait for things to get worse. It already sounds like you are

suffering enough. Throughout the summer I waited and now I am at a

point where I can barely eat. I am not trying to frighten you, but

I encourage you to not wait.

As I mentioned, I am going in for surgery on Tuesday Sept 20th. You

mentioned that surgery frightens you. . . it frightens me too! But

it is really such a blessing that we have this option. And so many

members have had amazing success, and I am sure we can too!

You mentioned that you have two daughters. I know how hard it is

not to have the energy or feel well enough to do all the things that

you would like to do as a mom. I am going through it now with my 6

year old daughter. She is having a really hard time with me being

sick and is worried about the surgery. My husband and I have been

doing as much as we can to make this easier on her. She wants so

much for me to go swimming with her, or ride bikes, but I have no

energy. So last night, we had a girls night and watched movies and

ate junk food (well, she did!), we put makeup on each other,

painted nails, and then she slept in my bed (my husband slept in the

guest room:) It was so great to be able to do something fun with

her that didn't require much energy. I would highly recommend it!

Even though you are on the " other side of the world " you are not

alone... we are all just an email away! We are all connected

through this group and it doesn't matter how close or far you

are. . . we are all in this " A " journey together.

Wishing you happy swallowing today,

Diane

>

> Hello Dianne.

>

> I am new to the group too. Like yourself I have been diagnosed in

> August as well. I have had a barium swallow, dilation and

manometry.

> The dilation was great to start with I was eating much better.

Things

> are getting worse again now.

>

> My surgeon has left it as my call as to when I should go south

again

> for another manometry, to determine if I should get surgery yet. I

> just don't know how far to let it go again. Before the dilation I

was

> loosing 1kg a day (2.2lbs to a kg I beleive)

> and feeling so weak and sick.

> Loosing so much weight was really scary. I am still holding the

> weight I gained after the dilation now but I think it is going to

be

> short lived after the last few days.

> I have 2 daughters 16 and 8yrs.and am 40yrs myself.

>

> The prospect of surgery is a concern, but tonight I have had so

many

> comforting stories.

> My doctor has not recommended botox and I can't remember why.

> This group is wonderful, even though no one else seems to be on my

> side of the world.

> in Australia

>

>